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HI

We started aciclovir with my 18 year old dd last Thursday. So far she has had a

few more outbursts than usual. She looks pale and isn't in a very good mood. I

am guessing she may feel nauseous or have a headache?

Kath

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HI

We started aciclovir with my 18 year old dd last Thursday. So far she has had a

few more outbursts than usual. She looks pale and isn't in a very good mood. I

am guessing she may feel nauseous or have a headache?

Kath

Sent from my iPad

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Hi za,

Hope Natasa is watching as well.

The first time we did Valtrex, we saw side effects in the first week on day 5.

Side effects for us were: head-pressing against us and hard surfaces (like head

banging, to relieve inflammation) and stupidly massive yeast. Lots of stimming,

lining up, to cope with extra stress on the body. This time, with acyclovir, we

haven't had any. All we've seen is great gains. We have learned to a certain

extent from the first time.

You might not get any side effects at all but most of us do.

In a nutshell, to avoid the side-effects, i.e. to keep the extra stress on the

body in control which might result from anti-viral use, you need to:

Increase your yeast protocol, after observation of first week.

We upped probiotics at night. We use CP1 and Candex as it doesn't contain

Streptococcus Thermophilis which for some reason has negative impact on PANDAS

kids. We haven't used as much Candex as we used to, but are working it back in

again (remember we totally came off biomed for a while because we hadn't had a

break for six years).

You need to manage inflammation - consider Ibuprofen. Not good for kids with

gut issues, granted, but you are looking at bigger picture and not long term

use. We did Valtrex a few years ago which is six times more bioavailable than

Acyclovir. We had massive stimming (we needed prescription yeast killers and at

that point had to fight for them because this was all new) and pressing head

against surfaces to relieve pain. This time on Acyclovir, we did a week of

regular ibuprofen at the beginning of the protocol. Then occasional doses if

needed on the odd rough day. This worked for us. We didn't get the head

pressing and all the stims. If we had a really bad moment we'd put it in again,

but not regularly. Also you could up the fish oils. That helps as well. You

could also up fish oil protocol, that has helped here.

Manage the strep. Another thing is we have got J on Zithro at the same time as

the anti-viral. This won't make it necessarily what DG will prescribe for Eddie

because we had massive strep titres. It depends. But Zithro has an overall

anti-inflammatory effect on the body. So this begs question, did J avoid

side-effects this time because of Zithro or Ibuprofen, because he was on both?

I think Ibuprofen helps because when he was on Zithro alone for strep, he still

had inflammation so we needed something extra, particularly at the start. It is

not something I want long term, but it is helping right now, along with the rest

of the world I'm looking for more healthy ways.

Getting the strep/tics under control before you start antivirals seems to have

helped this time. We didn't know strep was rampant the first time we did

Valtrex.

To me, if you have viral and strep at same time, you are going to battle

inflammation and if you can do that you are on a winner. Its so much better for

us this time. Whatever you do, don't suddenly stop the anti-virals but I guess

has told you that.

Liver and Kidney Support. Essential to clear systemic prescription drugs

through the system (and viruses). I use Liv-detox but am considering moving to

other supps.

Methylation. You need to make sure the MB12/folinic is in place, but if the

negative effects are too much at the start, I would do that week 2/3 if not

established already or you won't know what's causing what.

Managing coming off anti-virals eventually - up your strep protocol. When

viruses move out we have found in comes Strep.

Isobel Ramsey gave me a tip about massaging encense oil (in a carrier) into

the feet at night, this and some music helps calm as well, so think about

what calms Eddie as well as supps to avoid the storm.

If things get really awful, pick up the phone to 's sec , and he will

get back to you usually by the end of the day if its an emergency.

Have you got some Melatonin to help with the sleep, is Eddie all right on that?

Please ask if I've been unclear and you want me to answer anything in more

details.

Much love to you and Eddie

Things have got so much better in all areas here having braved this one out for

a while.

Eil x

>

> starting aciclovir tomorrow morning with eddie, just wondering what side

effects we have to look forward to? plus a rough idea of when we might see any

side effects.

>

> any tips of things to look out for and things to treat greatly appreciated,

>

> karenza

> xxx

>

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Hi za,

Hope Natasa is watching as well.

The first time we did Valtrex, we saw side effects in the first week on day 5.

Side effects for us were: head-pressing against us and hard surfaces (like head

banging, to relieve inflammation) and stupidly massive yeast. Lots of stimming,

lining up, to cope with extra stress on the body. This time, with acyclovir, we

haven't had any. All we've seen is great gains. We have learned to a certain

extent from the first time.

You might not get any side effects at all but most of us do.

In a nutshell, to avoid the side-effects, i.e. to keep the extra stress on the

body in control which might result from anti-viral use, you need to:

Increase your yeast protocol, after observation of first week.

We upped probiotics at night. We use CP1 and Candex as it doesn't contain

Streptococcus Thermophilis which for some reason has negative impact on PANDAS

kids. We haven't used as much Candex as we used to, but are working it back in

again (remember we totally came off biomed for a while because we hadn't had a

break for six years).

You need to manage inflammation - consider Ibuprofen. Not good for kids with

gut issues, granted, but you are looking at bigger picture and not long term

use. We did Valtrex a few years ago which is six times more bioavailable than

Acyclovir. We had massive stimming (we needed prescription yeast killers and at

that point had to fight for them because this was all new) and pressing head

against surfaces to relieve pain. This time on Acyclovir, we did a week of

regular ibuprofen at the beginning of the protocol. Then occasional doses if

needed on the odd rough day. This worked for us. We didn't get the head

pressing and all the stims. If we had a really bad moment we'd put it in again,

but not regularly. Also you could up the fish oils. That helps as well. You

could also up fish oil protocol, that has helped here.

Manage the strep. Another thing is we have got J on Zithro at the same time as

the anti-viral. This won't make it necessarily what DG will prescribe for Eddie

because we had massive strep titres. It depends. But Zithro has an overall

anti-inflammatory effect on the body. So this begs question, did J avoid

side-effects this time because of Zithro or Ibuprofen, because he was on both?

I think Ibuprofen helps because when he was on Zithro alone for strep, he still

had inflammation so we needed something extra, particularly at the start. It is

not something I want long term, but it is helping right now, along with the rest

of the world I'm looking for more healthy ways.

Getting the strep/tics under control before you start antivirals seems to have

helped this time. We didn't know strep was rampant the first time we did

Valtrex.

To me, if you have viral and strep at same time, you are going to battle

inflammation and if you can do that you are on a winner. Its so much better for

us this time. Whatever you do, don't suddenly stop the anti-virals but I guess

has told you that.

Liver and Kidney Support. Essential to clear systemic prescription drugs

through the system (and viruses). I use Liv-detox but am considering moving to

other supps.

Methylation. You need to make sure the MB12/folinic is in place, but if the

negative effects are too much at the start, I would do that week 2/3 if not

established already or you won't know what's causing what.

Managing coming off anti-virals eventually - up your strep protocol. When

viruses move out we have found in comes Strep.

Isobel Ramsey gave me a tip about massaging encense oil (in a carrier) into

the feet at night, this and some music helps calm as well, so think about

what calms Eddie as well as supps to avoid the storm.

If things get really awful, pick up the phone to 's sec , and he will

get back to you usually by the end of the day if its an emergency.

Have you got some Melatonin to help with the sleep, is Eddie all right on that?

Please ask if I've been unclear and you want me to answer anything in more

details.

Much love to you and Eddie

Things have got so much better in all areas here having braved this one out for

a while.

Eil x

>

> starting aciclovir tomorrow morning with eddie, just wondering what side

effects we have to look forward to? plus a rough idea of when we might see any

side effects.

>

> any tips of things to look out for and things to treat greatly appreciated,

>

> karenza

> xxx

>

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Hi Eileen;

When you took ibuprofen for a week at the height of side effects, how much were

you taking per day? This helped with head banging and head pressing?

Thanks!

Kim

>

>

> Hi za,

> Hope Natasa is watching as well.

>

> The first time we did Valtrex, we saw side effects in the first week on day 5.

Side effects for us were: head-pressing against us and hard surfaces (like head

banging, to relieve inflammation) and stupidly massive yeast. Lots of stimming,

lining up, to cope with extra stress on the body. This time, with acyclovir, we

haven't had any. All we've seen is great gains. We have learned to a certain

extent from the first time.

>

> You might not get any side effects at all but most of us do.

>

> In a nutshell, to avoid the side-effects, i.e. to keep the extra stress on the

body in control which might result from anti-viral use, you need to:

>

> Increase your yeast protocol, after observation of first week.

> We upped probiotics at night. We use CP1 and Candex as it doesn't contain

Streptococcus Thermophilis which for some reason has negative impact on PANDAS

kids. We haven't used as much Candex as we used to, but are working it back in

again (remember we totally came off biomed for a while because we hadn't had a

break for six years).

>

> You need to manage inflammation - consider Ibuprofen. Not good for kids with

gut issues, granted, but you are looking at bigger picture and not long term

use. We did Valtrex a few years ago which is six times more bioavailable than

Acyclovir. We had massive stimming (we needed prescription yeast killers and at

that point had to fight for them because this was all new) and pressing head

against surfaces to relieve pain. This time on Acyclovir, we did a week of

regular ibuprofen at the beginning of the protocol. Then occasional doses if

needed on the odd rough day. This worked for us. We didn't get the head

pressing and all the stims. If we had a really bad moment we'd put it in again,

but not regularly. Also you could up the fish oils. That helps as well. You

could also up fish oil protocol, that has helped here.

>

> Manage the strep. Another thing is we have got J on Zithro at the same time

as the anti-viral. This won't make it necessarily what DG will prescribe for

Eddie because we had massive strep titres. It depends. But Zithro has an

overall anti-inflammatory effect on the body. So this begs question, did J avoid

side-effects this time because of Zithro or Ibuprofen, because he was on both?

I think Ibuprofen helps because when he was on Zithro alone for strep, he still

had inflammation so we needed something extra, particularly at the start. It is

not something I want long term, but it is helping right now, along with the rest

of the world I'm looking for more healthy ways.

>

> Getting the strep/tics under control before you start antivirals seems to have

helped this time. We didn't know strep was rampant the first time we did

Valtrex.

>

> To me, if you have viral and strep at same time, you are going to battle

inflammation and if you can do that you are on a winner. Its so much better for

us this time. Whatever you do, don't suddenly stop the anti-virals but I guess

has told you that.

>

> Liver and Kidney Support. Essential to clear systemic prescription drugs

through the system (and viruses). I use Liv-detox but am considering moving to

other supps.

>

> Methylation. You need to make sure the MB12/folinic is in place, but if the

negative effects are too much at the start, I would do that week 2/3 if not

established already or you won't know what's causing what.

>

> Managing coming off anti-virals eventually - up your strep protocol. When

viruses move out we have found in comes Strep.

>

> Isobel Ramsey gave me a tip about massaging encense oil (in a carrier)

into the feet at night, this and some music helps calm as well, so think

about what calms Eddie as well as supps to avoid the storm.

>

> If things get really awful, pick up the phone to 's sec , and he

will get back to you usually by the end of the day if its an emergency.

>

> Have you got some Melatonin to help with the sleep, is Eddie all right on

that?

>

> Please ask if I've been unclear and you want me to answer anything in more

details.

>

> Much love to you and Eddie

> Things have got so much better in all areas here having braved this one out

for a while.

>

> Eil x

>

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Hi Eileen;

When you took ibuprofen for a week at the height of side effects, how much were

you taking per day? This helped with head banging and head pressing?

Thanks!

Kim

>

>

> Hi za,

> Hope Natasa is watching as well.

>

> The first time we did Valtrex, we saw side effects in the first week on day 5.

Side effects for us were: head-pressing against us and hard surfaces (like head

banging, to relieve inflammation) and stupidly massive yeast. Lots of stimming,

lining up, to cope with extra stress on the body. This time, with acyclovir, we

haven't had any. All we've seen is great gains. We have learned to a certain

extent from the first time.

>

> You might not get any side effects at all but most of us do.

>

> In a nutshell, to avoid the side-effects, i.e. to keep the extra stress on the

body in control which might result from anti-viral use, you need to:

>

> Increase your yeast protocol, after observation of first week.

> We upped probiotics at night. We use CP1 and Candex as it doesn't contain

Streptococcus Thermophilis which for some reason has negative impact on PANDAS

kids. We haven't used as much Candex as we used to, but are working it back in

again (remember we totally came off biomed for a while because we hadn't had a

break for six years).

>

> You need to manage inflammation - consider Ibuprofen. Not good for kids with

gut issues, granted, but you are looking at bigger picture and not long term

use. We did Valtrex a few years ago which is six times more bioavailable than

Acyclovir. We had massive stimming (we needed prescription yeast killers and at

that point had to fight for them because this was all new) and pressing head

against surfaces to relieve pain. This time on Acyclovir, we did a week of

regular ibuprofen at the beginning of the protocol. Then occasional doses if

needed on the odd rough day. This worked for us. We didn't get the head

pressing and all the stims. If we had a really bad moment we'd put it in again,

but not regularly. Also you could up the fish oils. That helps as well. You

could also up fish oil protocol, that has helped here.

>

> Manage the strep. Another thing is we have got J on Zithro at the same time

as the anti-viral. This won't make it necessarily what DG will prescribe for

Eddie because we had massive strep titres. It depends. But Zithro has an

overall anti-inflammatory effect on the body. So this begs question, did J avoid

side-effects this time because of Zithro or Ibuprofen, because he was on both?

I think Ibuprofen helps because when he was on Zithro alone for strep, he still

had inflammation so we needed something extra, particularly at the start. It is

not something I want long term, but it is helping right now, along with the rest

of the world I'm looking for more healthy ways.

>

> Getting the strep/tics under control before you start antivirals seems to have

helped this time. We didn't know strep was rampant the first time we did

Valtrex.

>

> To me, if you have viral and strep at same time, you are going to battle

inflammation and if you can do that you are on a winner. Its so much better for

us this time. Whatever you do, don't suddenly stop the anti-virals but I guess

has told you that.

>

> Liver and Kidney Support. Essential to clear systemic prescription drugs

through the system (and viruses). I use Liv-detox but am considering moving to

other supps.

>

> Methylation. You need to make sure the MB12/folinic is in place, but if the

negative effects are too much at the start, I would do that week 2/3 if not

established already or you won't know what's causing what.

>

> Managing coming off anti-virals eventually - up your strep protocol. When

viruses move out we have found in comes Strep.

>

> Isobel Ramsey gave me a tip about massaging encense oil (in a carrier)

into the feet at night, this and some music helps calm as well, so think

about what calms Eddie as well as supps to avoid the storm.

>

> If things get really awful, pick up the phone to 's sec , and he

will get back to you usually by the end of the day if its an emergency.

>

> Have you got some Melatonin to help with the sleep, is Eddie all right on

that?

>

> Please ask if I've been unclear and you want me to answer anything in more

details.

>

> Much love to you and Eddie

> Things have got so much better in all areas here having braved this one out

for a while.

>

> Eil x

>

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Thanks so much for the quick reply Eileen. I'm not sure we have Nurofen here in

Canada, but I am assuming it is probably 200 mg strength?

My dd is 9 and aprox. 60 lbs so I will probably dose her 200mg 3x/day. We are

dealing with some severe behaviours (most likely due to die off) including head

banging.

Yes, I agree - I don't plan on dosing ibuprofen long term. More for temporarily

taking the edge off.

Here are some natural anti inflammatories I have been considering. If anyone

has any experience with them I would love to hear... :

- copaiba oil

- nano-particulate curcumin (better bioavailability)

- astaxanthin

Thanks,

Kim

>

> Sorry Kim. Meant to say. I dose the orange flavoured Nurofen, which has less

additives than the strawberry one, at the dose according to weight. So it

depends how big your little one is. First five days I do three times a day.

Then when things get rough I will put in the odd dose. I have to add there may

be better ways of getting through this, hope someone has some out there! But

like I said in the original reply, I'm looking at the bigger picture.

>

> Eil x

>

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Thanks so much for the quick reply Eileen. I'm not sure we have Nurofen here in

Canada, but I am assuming it is probably 200 mg strength?

My dd is 9 and aprox. 60 lbs so I will probably dose her 200mg 3x/day. We are

dealing with some severe behaviours (most likely due to die off) including head

banging.

Yes, I agree - I don't plan on dosing ibuprofen long term. More for temporarily

taking the edge off.

Here are some natural anti inflammatories I have been considering. If anyone

has any experience with them I would love to hear... :

- copaiba oil

- nano-particulate curcumin (better bioavailability)

- astaxanthin

Thanks,

Kim

>

> Sorry Kim. Meant to say. I dose the orange flavoured Nurofen, which has less

additives than the strawberry one, at the dose according to weight. So it

depends how big your little one is. First five days I do three times a day.

Then when things get rough I will put in the odd dose. I have to add there may

be better ways of getting through this, hope someone has some out there! But

like I said in the original reply, I'm looking at the bigger picture.

>

> Eil x

>

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Thanks so much for the quick reply Eileen. I'm not sure we have Nurofen here in

Canada, but I am assuming it is probably 200 mg strength?

My dd is 9 and aprox. 60 lbs so I will probably dose her 200mg 3x/day. We are

dealing with some severe behaviours (most likely due to die off) including head

banging.

Yes, I agree - I don't plan on dosing ibuprofen long term. More for temporarily

taking the edge off.

Here are some natural anti inflammatories I have been considering. If anyone

has any experience with them I would love to hear... :

- copaiba oil

- nano-particulate curcumin (better bioavailability)

- astaxanthin

Thanks,

Kim

>

> Sorry Kim. Meant to say. I dose the orange flavoured Nurofen, which has less

additives than the strawberry one, at the dose according to weight. So it

depends how big your little one is. First five days I do three times a day.

Then when things get rough I will put in the odd dose. I have to add there may

be better ways of getting through this, hope someone has some out there! But

like I said in the original reply, I'm looking at the bigger picture.

>

> Eil x

>

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Point I'm making is I don't swallow whole everything those two guys say. Not

that I'm smarter than doc Goldberg or Rodrigues. Just that Doh! Metals

have to come out. (safely). Neither of them seem to have a handle on that.

Obvious, sorting it out (again). May take years, may not, rocky road, major

u-turn for us. Off to bed.

Eileen

>

> starting aciclovir tomorrow morning with eddie, just wondering what side

effects we have to look forward to? plus a rough idea of when we might see any

side effects.

>

> any tips of things to look out for and things to treat greatly appreciated,

>

> karenza

> xxx

>

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Point I'm making is I don't swallow whole everything those two guys say. Not

that I'm smarter than doc Goldberg or Rodrigues. Just that Doh! Metals

have to come out. (safely). Neither of them seem to have a handle on that.

Obvious, sorting it out (again). May take years, may not, rocky road, major

u-turn for us. Off to bed.

Eileen

>

> starting aciclovir tomorrow morning with eddie, just wondering what side

effects we have to look forward to? plus a rough idea of when we might see any

side effects.

>

> any tips of things to look out for and things to treat greatly appreciated,

>

> karenza

> xxx

>

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Share on other sites

Point I'm making is I don't swallow whole everything those two guys say. Not

that I'm smarter than doc Goldberg or Rodrigues. Just that Doh! Metals

have to come out. (safely). Neither of them seem to have a handle on that.

Obvious, sorting it out (again). May take years, may not, rocky road, major

u-turn for us. Off to bed.

Eileen

>

> starting aciclovir tomorrow morning with eddie, just wondering what side

effects we have to look forward to? plus a rough idea of when we might see any

side effects.

>

> any tips of things to look out for and things to treat greatly appreciated,

>

> karenza

> xxx

>

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Share on other sites

- copaiba oil (never heard of it, interesting, tell me more)

> - nano-particulate curcumin (better bioavailability) Didn't know of its

anti-inflammatory effects, heard of it more as an anti viral, like its being the

primary product in Enhansa. Not sure i want to mix enhansa with acyclovir, and

anyway, you need to work up slowly and anything I do like this I think I'm going

to do when i'M weaning off av.

> - astaxanthin - had my eye on this. , doc had never heard of it. Lots

of people in US are using it. When I was researching it I found this link:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2845588/?tool=pmcentrez

which shows it works as an immune modulator. Asked on TA facebook page but

didn't get any responses. Its an anti-oxidant as well. Mercola likes it, doesn't

he.

Mercola's brand is really expensive, I think I'm going for the Now Foods one or

the solgar soft gels.

The reason so far I'm avoiding Curcumin and Astaxathin for J at the moment is

they both have different actions in the body apart from anti-inflammatory,

that's why doing ibuprofen right now. Astaxathin I am trying on myself first to

see if its any good because lets put it this way, at the moment, I won't be

doing any dancing any time soon!

Talk soon

Eileen

> >

> > Sorry Kim. Meant to say. I dose the orange flavoured Nurofen, which has

less additives than the strawberry one, at the dose according to weight. So it

depends how big your little one is. First five days I do three times a day.

Then when things get rough I will put in the odd dose. I have to add there may

be better ways of getting through this, hope someone has some out there! But

like I said in the original reply, I'm looking at the bigger picture.

> >

> > Eil x

> >

>

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Yes, copaiba oil is one of those ancient remedies... used as

anti-inflammatory/pain reliever. It hails from Brazil. I am drawn to ancient

wisdom lately :)

Here are a couple of links that will give you a bit of info:

http://www.ncbi.nlm.nih.gov/pubmed/21323483

http://www.ncbi.nlm.nih.gov/pubmed/20064592 (pain relief equivalent to

morphine!)

http://www.youngliving.us/pdfs/PIP_Copaiba.pdf (I am not affiliated with this

company)

Kim

>

> - copaiba oil (never heard of it, interesting, tell me more)

>

> > - nano-particulate curcumin (better bioavailability) Didn't know of its

anti-inflammatory effects, heard of it more as an anti viral, like its being the

primary product in Enhansa. Not sure i want to mix enhansa with acyclovir, and

anyway, you need to work up slowly and anything I do like this I think I'm going

to do when i'M weaning off av.

>

> > - astaxanthin - had my eye on this. , doc had never heard of it. Lots

of people in US are using it. When I was researching it I found this link:

> http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2845588/?tool=pmcentrez

> which shows it works as an immune modulator. Asked on TA facebook page but

didn't get any responses. Its an anti-oxidant as well. Mercola likes it, doesn't

he.

>

> Mercola's brand is really expensive, I think I'm going for the Now Foods one

or the solgar soft gels.

>

> The reason so far I'm avoiding Curcumin and Astaxathin for J at the moment is

they both have different actions in the body apart from anti-inflammatory,

that's why doing ibuprofen right now. Astaxathin I am trying on myself first to

see if its any good because lets put it this way, at the moment, I won't be

doing any dancing any time soon!

>

> Talk soon

> Eileen

>

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On the small print for valtrex it says a very common side effect (affecting more

than 1 in 10 people) is headaches

x

>

> hi eileen

>

> i'm really glad you posted the info about ibruprofen, poor eddie was in a real

state last night, so i gave him some. we had only taken 4 x 800mg aciclovir

yesterday, first day, and he was crying (very unlike him), rocking back and

forth and holding his head, then running back and forth shouting with the

crying. i will go in with your week long plan of profen today and keep a close

eye on things.

>

> as you mentioned multi-strains of probos without strep in, do you have any

suggestions other than cp1. most multi-strains have strep in then. i checked

out primal defense ultra last night, looks good?!

>

> karenza

> xx

>

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On the small print for valtrex it says a very common side effect (affecting more

than 1 in 10 people) is headaches

x

>

> hi eileen

>

> i'm really glad you posted the info about ibruprofen, poor eddie was in a real

state last night, so i gave him some. we had only taken 4 x 800mg aciclovir

yesterday, first day, and he was crying (very unlike him), rocking back and

forth and holding his head, then running back and forth shouting with the

crying. i will go in with your week long plan of profen today and keep a close

eye on things.

>

> as you mentioned multi-strains of probos without strep in, do you have any

suggestions other than cp1. most multi-strains have strep in then. i checked

out primal defense ultra last night, looks good?!

>

> karenza

> xx

>

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On the small print for valtrex it says a very common side effect (affecting more

than 1 in 10 people) is headaches

x

>

> hi eileen

>

> i'm really glad you posted the info about ibruprofen, poor eddie was in a real

state last night, so i gave him some. we had only taken 4 x 800mg aciclovir

yesterday, first day, and he was crying (very unlike him), rocking back and

forth and holding his head, then running back and forth shouting with the

crying. i will go in with your week long plan of profen today and keep a close

eye on things.

>

> as you mentioned multi-strains of probos without strep in, do you have any

suggestions other than cp1. most multi-strains have strep in then. i checked

out primal defense ultra last night, looks good?!

>

> karenza

> xx

>

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HI za

We are now on day 9 of aciclovir and it's not good. Despite adding ibuprofen

after reading Eileens post (thanks Eileen) she appears agitated and unwell. OCD

behaviours are going through the roof. Not sure whether to continue.

Prior to aciclovir we tried valtrex but she didn't tolerate that and vomited on

day 3.

Hope you are having a better time of it

KAth

Sent from my iPad

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HI za

We are now on day 9 of aciclovir and it's not good. Despite adding ibuprofen

after reading Eileens post (thanks Eileen) she appears agitated and unwell. OCD

behaviours are going through the roof. Not sure whether to continue.

Prior to aciclovir we tried valtrex but she didn't tolerate that and vomited on

day 3.

Hope you are having a better time of it

KAth

Sent from my iPad

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hi kath

so sorry to hear she is not doing well. i gather that if there are underlying

bacterial infections (in our case strep) that the OCD symptoms can rocket with

anti-virals. we were told to watch out for this and add in anti-bacterials asap

if ocd symptoms increased. has she been tested for strep?

eddie had a bad morning yesterday, vomiting/diarrhea, but really perked up in

the afternoon, fast and furious. i was in turmoil whether to stop or not.

today he's on max dose of ibuprofen with peppermint oil for headaches and

nausea, so far so good.

let us know how its going,

karenza

>

> HI za

>

> We are now on day 9 of aciclovir and it's not good. Despite adding ibuprofen

after reading Eileens post (thanks Eileen) she appears agitated and unwell. OCD

behaviours are going through the roof. Not sure whether to continue.

>

> Prior to aciclovir we tried valtrex but she didn't tolerate that and vomited

on day 3.

>

> Hope you are having a better time of it

>

> KAth

>

> Sent from my iPad

>

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hi kath

so sorry to hear she is not doing well. i gather that if there are underlying

bacterial infections (in our case strep) that the OCD symptoms can rocket with

anti-virals. we were told to watch out for this and add in anti-bacterials asap

if ocd symptoms increased. has she been tested for strep?

eddie had a bad morning yesterday, vomiting/diarrhea, but really perked up in

the afternoon, fast and furious. i was in turmoil whether to stop or not.

today he's on max dose of ibuprofen with peppermint oil for headaches and

nausea, so far so good.

let us know how its going,

karenza

>

> HI za

>

> We are now on day 9 of aciclovir and it's not good. Despite adding ibuprofen

after reading Eileens post (thanks Eileen) she appears agitated and unwell. OCD

behaviours are going through the roof. Not sure whether to continue.

>

> Prior to aciclovir we tried valtrex but she didn't tolerate that and vomited

on day 3.

>

> Hope you are having a better time of it

>

> KAth

>

> Sent from my iPad

>

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Hi za

Yes she was tested for strep and it was negative,but that doesn't mean it's not

there apparently.

Rang Breakspear but Dr G not there , but spoke to Dr Y. She advised us to

suspend aciclovir and treat for yeast then try again with aciclovir. My heads

done in!

Good that your ds is doing ok on it

Kath

Sent from my iPad

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Hi za

Yes she was tested for strep and it was negative,but that doesn't mean it's not

there apparently.

Rang Breakspear but Dr G not there , but spoke to Dr Y. She advised us to

suspend aciclovir and treat for yeast then try again with aciclovir. My heads

done in!

Good that your ds is doing ok on it

Kath

Sent from my iPad

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Hi za

Yes she was tested for strep and it was negative,but that doesn't mean it's not

there apparently.

Rang Breakspear but Dr G not there , but spoke to Dr Y. She advised us to

suspend aciclovir and treat for yeast then try again with aciclovir. My heads

done in!

Good that your ds is doing ok on it

Kath

Sent from my iPad

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This is fantastic information. I have added to my list. Brilliant thank you

Kath x

> >

> > - copaiba oil (never heard of it, interesting, tell me more)

> >

> > > - nano-particulate curcumin (better bioavailability) Didn't know of its

anti-inflammatory effects, heard of it more as an anti viral, like its being the

primary product in Enhansa. Not sure i want to mix enhansa with acyclovir, and

anyway, you need to work up slowly and anything I do like this I think I'm going

to do when i'M weaning off av.

> >

> > > - astaxanthin - had my eye on this. , doc had never heard of it.

Lots of people in US are using it. When I was researching it I found this link:

> > http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2845588/?tool=pmcentrez

> > which shows it works as an immune modulator. Asked on TA facebook page but

didn't get any responses. Its an anti-oxidant as well. Mercola likes it, doesn't

he.

> >

> > Mercola's brand is really expensive, I think I'm going for the Now Foods one

or the solgar soft gels.

> >

> > The reason so far I'm avoiding Curcumin and Astaxathin for J at the moment

is they both have different actions in the body apart from anti-inflammatory,

that's why doing ibuprofen right now. Astaxathin I am trying on myself first to

see if its any good because lets put it this way, at the moment, I won't be

doing any dancing any time soon!

> >

> > Talk soon

> > Eileen

> >

>

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