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Re: Neuro AutonomicDisturbances

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Omg sorry to hear that. What was the dose? Which hormones are you supplementing now?Natasa Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Mon, 20 Feb 2012 23:22:42 -0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Neuro AutonomicDisturbances

Well, I think that the endocrine system can cause autism. If you had seen my dd just a few years ago she was heading for residential - not speaking to anyone, behaviour at home off the wall, diagnosed with ASD.

All gone now with hormone supplementation. Everyone is amazed at the difference. The lack of hormones explain why she couldn't cope with TST, even though it helped. It's a balancing act - but, life is completely different now. The improvement in her cognitive skills are the most amazing.

We are left with the effects of the stroke that she had after the Vit K overdose.

> > > > > >

> > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen and

> > > > > will reassess this month (3 months since starting Ketotifen). The result

> > was

> > > > > quite marked and by the effects of the medication it is likely to be

> > viral

> > > > > related. So will return for another autonomic test this month to see if

> > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > I took Dr G letter to Neurologist who also did ECG which result shows

> > > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine tests

> > this

> > > > > week.

> > > > > >

> > > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

> > what

> > > > > diagnosis, symptoms and most important treatment and prognosis their is?

> > > > > >

> > > > > > Thank you in advance.

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Omg sorry to hear that. What was the dose? Which hormones are you supplementing now?Natasa Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Mon, 20 Feb 2012 23:22:42 -0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Neuro AutonomicDisturbances

Well, I think that the endocrine system can cause autism. If you had seen my dd just a few years ago she was heading for residential - not speaking to anyone, behaviour at home off the wall, diagnosed with ASD.

All gone now with hormone supplementation. Everyone is amazed at the difference. The lack of hormones explain why she couldn't cope with TST, even though it helped. It's a balancing act - but, life is completely different now. The improvement in her cognitive skills are the most amazing.

We are left with the effects of the stroke that she had after the Vit K overdose.

> > > > > >

> > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen and

> > > > > will reassess this month (3 months since starting Ketotifen). The result

> > was

> > > > > quite marked and by the effects of the medication it is likely to be

> > viral

> > > > > related. So will return for another autonomic test this month to see if

> > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > I took Dr G letter to Neurologist who also did ECG which result shows

> > > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine tests

> > this

> > > > > week.

> > > > > >

> > > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

> > what

> > > > > diagnosis, symptoms and most important treatment and prognosis their is?

> > > > > >

> > > > > > Thank you in advance.

> > > > > >

> > > > >

> > > >

> > >

> >

>

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No, supplementing the hormones is not always a good thing, but,sometimes the

benefits outweigh the potential downsides as untreated leads to even more

fatigue and pressure on the adrenals. Salt and Vit c for adrenals, amino acids

at bedtime to help neurotransmitter production and hormone production helps.

> > > > >

> > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen

and

> > > > will reassess this month (3 months since starting Ketotifen). The

result

> was

> > > > quite marked and by the effects of the medication it is likely to be

> viral

> > > > related. So will return for another autonomic test this month to see if

> > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > I took Dr G letter to Neurologist who also did ECG which result shows

> > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests

> this

> > > > week.

> > > > >

> > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

> what

> > > > diagnosis, symptoms and most important treatment and prognosis their

is?

> > > > >

> > > > > Thank you in advance.

> > > > >

> > > >

> > >

> >

>

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Double dose - two doses given 30minutes apart after birth!

Supplementing: pregnenolone, thyroid (natural dessicated), cortisol, DHEA,

oestrogen

> > > > > > >

> > > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed

Ketotifen

> and

> > > > > > will reassess this month (3 months since starting Ketotifen). The

> result

> > > was

> > > > > > quite marked and by the effects of the medication it is likely to

be

> > > viral

> > > > > > related. So will return for another autonomic test this month to

see

> if

> > > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > > I took Dr G letter to Neurologist who also did ECG which result

> shows

> > > > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

> tests

> > > this

> > > > > > week.

> > > > > > >

> > > > > > > Does anyone here have a child with Neuro Autonomic Disturbances

and

> > > what

> > > > > > diagnosis, symptoms and most important treatment and prognosis

their

> is?

> > > > > > >

> > > > > > > Thank you in advance.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Guest guest

Double dose - two doses given 30minutes apart after birth!

Supplementing: pregnenolone, thyroid (natural dessicated), cortisol, DHEA,

oestrogen

> > > > > > >

> > > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed

Ketotifen

> and

> > > > > > will reassess this month (3 months since starting Ketotifen). The

> result

> > > was

> > > > > > quite marked and by the effects of the medication it is likely to

be

> > > viral

> > > > > > related. So will return for another autonomic test this month to

see

> if

> > > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > > I took Dr G letter to Neurologist who also did ECG which result

> shows

> > > > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

> tests

> > > this

> > > > > > week.

> > > > > > >

> > > > > > > Does anyone here have a child with Neuro Autonomic Disturbances

and

> > > what

> > > > > > diagnosis, symptoms and most important treatment and prognosis

their

> is?

> > > > > > >

> > > > > > > Thank you in advance.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Guest guest

Double dose - two doses given 30minutes apart after birth!

Supplementing: pregnenolone, thyroid (natural dessicated), cortisol, DHEA,

oestrogen

> > > > > > >

> > > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed

Ketotifen

> and

> > > > > > will reassess this month (3 months since starting Ketotifen). The

> result

> > > was

> > > > > > quite marked and by the effects of the medication it is likely to

be

> > > viral

> > > > > > related. So will return for another autonomic test this month to

see

> if

> > > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > > I took Dr G letter to Neurologist who also did ECG which result

> shows

> > > > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

> tests

> > > this

> > > > > > week.

> > > > > > >

> > > > > > > Does anyone here have a child with Neuro Autonomic Disturbances

and

> > > what

> > > > > > diagnosis, symptoms and most important treatment and prognosis

their

> is?

> > > > > > >

> > > > > > > Thank you in advance.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Guest guest

Don't know, guess I will find out soon

Mandi x

oh dear and you don't want to go down general anest route as you would have to do hospital etc.Will BS still charge you if Sam can't tolerate the test?

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natasa that is a long list of things anti histamine how muc neuro protek ?

etc... maybe if he has got interested in fottball you should consider he join

zachary at chelsea football. it son either fri pm or sundays am.. zach made lots

of progress with a interest he love ...

the h2 blockers are they steroids, i was offerred this in october ... what have

you seen with this? Isobel

> > > > >

> > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen

and

> > > > will reassess this month (3 months since starting Ketotifen). The

result

> > was

> > > > quite marked and by the effects of the medication it is likely to be

> viral

> > > > related. So will return for another autonomic test this month to see if

> > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > I took Dr G letter to Neurologist who also did ECG which result shows

> > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests

> > this

> > > > week.

> > > > >

> > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

> what

> > > > diagnosis, symptoms and most important treatment and prognosis their

is?

> > > > >

> > > > > Thank you in advance.

> > > > >

> > > >

> > >

> >

>

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Guest guest

natasa that is a long list of things anti histamine how muc neuro protek ?

etc... maybe if he has got interested in fottball you should consider he join

zachary at chelsea football. it son either fri pm or sundays am.. zach made lots

of progress with a interest he love ...

the h2 blockers are they steroids, i was offerred this in october ... what have

you seen with this? Isobel

> > > > >

> > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen

and

> > > > will reassess this month (3 months since starting Ketotifen). The

result

> > was

> > > > quite marked and by the effects of the medication it is likely to be

> viral

> > > > related. So will return for another autonomic test this month to see if

> > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > I took Dr G letter to Neurologist who also did ECG which result shows

> > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests

> > this

> > > > week.

> > > > >

> > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

> what

> > > > diagnosis, symptoms and most important treatment and prognosis their

is?

> > > > >

> > > > > Thank you in advance.

> > > > >

> > > >

> > >

> >

>

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Guest guest

natasa that is a long list of things anti histamine how muc neuro protek ?

etc... maybe if he has got interested in fottball you should consider he join

zachary at chelsea football. it son either fri pm or sundays am.. zach made lots

of progress with a interest he love ...

the h2 blockers are they steroids, i was offerred this in october ... what have

you seen with this? Isobel

> > > > >

> > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen

and

> > > > will reassess this month (3 months since starting Ketotifen). The

result

> > was

> > > > quite marked and by the effects of the medication it is likely to be

> viral

> > > > related. So will return for another autonomic test this month to see if

> > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > I took Dr G letter to Neurologist who also did ECG which result shows

> > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests

> > this

> > > > week.

> > > > >

> > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

> what

> > > > diagnosis, symptoms and most important treatment and prognosis their

is?

> > > > >

> > > > > Thank you in advance.

> > > > >

> > > >

> > >

> >

>

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Guest guest

They are not steroids, simply antihistamines targeting different types of histamine receptors to those targeted by anti-allergy antihistamines. used as antacids, for reflux (which ds has). Saw general improvements overall: focus, cognition, calmness etcNP at 2 caps per day, others as per bottle instructions.Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Tue, 21 Feb 2012 09:53:12 -0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Neuro AutonomicDisturbances

natasa that is a long list of things anti histamine how muc neuro protek ? etc... maybe if he has got interested in fottball you should consider he join zachary at chelsea football. it son either fri pm or sundays am.. zach made lots of progress with a interest he love ...

the h2 blockers are they steroids, i was offerred this in october ... what have you seen with this? Isobel

> > > > >

> > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen and

> > > > will reassess this month (3 months since starting Ketotifen). The result

> > was

> > > > quite marked and by the effects of the medication it is likely to be

> viral

> > > > related. So will return for another autonomic test this month to see if

> > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > I took Dr G letter to Neurologist who also did ECG which result shows

> > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine tests

> > this

> > > > week.

> > > > >

> > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

> what

> > > > diagnosis, symptoms and most important treatment and prognosis their is?

> > > > >

> > > > > Thank you in advance.

> > > > >

> > > >

> > >

> >

>

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Guest guest

They are not steroids, simply antihistamines targeting different types of histamine receptors to those targeted by anti-allergy antihistamines. used as antacids, for reflux (which ds has). Saw general improvements overall: focus, cognition, calmness etcNP at 2 caps per day, others as per bottle instructions.Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Tue, 21 Feb 2012 09:53:12 -0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Neuro AutonomicDisturbances

natasa that is a long list of things anti histamine how muc neuro protek ? etc... maybe if he has got interested in fottball you should consider he join zachary at chelsea football. it son either fri pm or sundays am.. zach made lots of progress with a interest he love ...

the h2 blockers are they steroids, i was offerred this in october ... what have you seen with this? Isobel

> > > > >

> > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen and

> > > > will reassess this month (3 months since starting Ketotifen). The result

> > was

> > > > quite marked and by the effects of the medication it is likely to be

> viral

> > > > related. So will return for another autonomic test this month to see if

> > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > I took Dr G letter to Neurologist who also did ECG which result shows

> > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine tests

> > this

> > > > week.

> > > > >

> > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

> what

> > > > diagnosis, symptoms and most important treatment and prognosis their is?

> > > > >

> > > > > Thank you in advance.

> > > > >

> > > >

> > >

> >

>

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Oh I am so sorry your dd had a stroke after vit K:( Was this the dose they

give as a baby?

What hormones did your dd need?

My ds has a right side weakness which got worse when he had a regression. My ds

couldn't cope with TST. But the HBOT is helping.

> > > > > > >

> > > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed

Ketotifen and

> > > > > > will reassess this month (3 months since starting Ketotifen). The

result

> > > was

> > > > > > quite marked and by the effects of the medication it is likely to

be

> > > viral

> > > > > > related. So will return for another autonomic test this month to

see if

> > > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > > I took Dr G letter to Neurologist who also did ECG which result

shows

> > > > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests

> > > this

> > > > > > week.

> > > > > > >

> > > > > > > Does anyone here have a child with Neuro Autonomic Disturbances

and

> > > what

> > > > > > diagnosis, symptoms and most important treatment and prognosis

their is?

> > > > > > >

> > > > > > > Thank you in advance.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Guest guest

Oh I am so sorry your dd had a stroke after vit K:( Was this the dose they

give as a baby?

What hormones did your dd need?

My ds has a right side weakness which got worse when he had a regression. My ds

couldn't cope with TST. But the HBOT is helping.

> > > > > > >

> > > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed

Ketotifen and

> > > > > > will reassess this month (3 months since starting Ketotifen). The

result

> > > was

> > > > > > quite marked and by the effects of the medication it is likely to

be

> > > viral

> > > > > > related. So will return for another autonomic test this month to

see if

> > > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > > I took Dr G letter to Neurologist who also did ECG which result

shows

> > > > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests

> > > this

> > > > > > week.

> > > > > > >

> > > > > > > Does anyone here have a child with Neuro Autonomic Disturbances

and

> > > what

> > > > > > diagnosis, symptoms and most important treatment and prognosis

their is?

> > > > > > >

> > > > > > > Thank you in advance.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Guest guest

Excellent news Natasa :-)

> > > > >

> > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen

and

> > > > will reassess this month (3 months since starting Ketotifen). The

result

> > was

> > > > quite marked and by the effects of the medication it is likely to be

> viral

> > > > related. So will return for another autonomic test this month to see if

> > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > I took Dr G letter to Neurologist who also did ECG which result shows

> > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests

> > this

> > > > week.

> > > > >

> > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

> what

> > > > diagnosis, symptoms and most important treatment and prognosis their

is?

> > > > >

> > > > > Thank you in advance.

> > > > >

> > > >

> > >

> >

>

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Guest guest

Excellent news Natasa :-)

> > > > >

> > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen

and

> > > > will reassess this month (3 months since starting Ketotifen). The

result

> > was

> > > > quite marked and by the effects of the medication it is likely to be

> viral

> > > > related. So will return for another autonomic test this month to see if

> > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > I took Dr G letter to Neurologist who also did ECG which result shows

> > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests

> > this

> > > > week.

> > > > >

> > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

> what

> > > > diagnosis, symptoms and most important treatment and prognosis their

is?

> > > > >

> > > > > Thank you in advance.

> > > > >

> > > >

> > >

> >

>

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Guest guest

Excellent news Natasa :-)

> > > > >

> > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen

and

> > > > will reassess this month (3 months since starting Ketotifen). The

result

> > was

> > > > quite marked and by the effects of the medication it is likely to be

> viral

> > > > related. So will return for another autonomic test this month to see if

> > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > I took Dr G letter to Neurologist who also did ECG which result shows

> > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests

> > this

> > > > week.

> > > > >

> > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

> what

> > > > diagnosis, symptoms and most important treatment and prognosis their

is?

> > > > >

> > > > > Thank you in advance.

> > > > >

> > > >

> > >

> >

>

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Guest guest

The low Vit D will prevent the thyroid hormone from being adequately used. A bit

of a catch 22 situation. Good idea to check the thryoid hormones especially if

it runs in the family.

x

> > > > > >

> > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed Ketotifen

and

> > > > > will reassess this month (3 months since starting Ketotifen). The

result was

> > > > > quite marked and by the effects of the medication it is likely to be

viral

> > > > > related. So will return for another autonomic test this month to see

if

> > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > I took Dr G letter to Neurologist who also did ECG which result

shows

> > > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests this

> > > > > week.

> > > > > >

> > > > > > Does anyone here have a child with Neuro Autonomic Disturbances and

what

> > > > > diagnosis, symptoms and most important treatment and prognosis their

is?

> > > > > >

> > > > > > Thank you in advance.

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Guest guest

Thanks - yes it was the doses given as a baby. I am still struggling to come to

terms with it.

She needs a whole load of hormones, but, in time she may not need as many. She

is on thyroid hormone (natural dessicated), hydrocortione, DHEA, oestrogen and

pregnenolone.

I read somewhere that if you want to build a brain from scratch that you would

start with pregnenolone!

x

> > > > > > > >

> > > > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed

Ketotifen and

> > > > > > > will reassess this month (3 months since starting Ketotifen). The

result

> > > > was

> > > > > > > quite marked and by the effects of the medication it is likely to

be

> > > > viral

> > > > > > > related. So will return for another autonomic test this month to

see if

> > > > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > > > I took Dr G letter to Neurologist who also did ECG which result

shows

> > > > > > > Neuro Autonomic Disturbances and wants ds to have bloods and

urine tests

> > > > this

> > > > > > > week.

> > > > > > > >

> > > > > > > > Does anyone here have a child with Neuro Autonomic Disturbances

and

> > > > what

> > > > > > > diagnosis, symptoms and most important treatment and prognosis

their is?

> > > > > > > >

> > > > > > > > Thank you in advance.

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Guest guest

Thank you as my sister has underactive Thyroid and on meds so will ask for

test for ds.

Stay strong and remeber you have done more than a Dr knows to find out and

get your dd the treatement she needs...as extremely complicated medical problems

and well done in pushing to get your dd better over time it isn't easy fighting

a system that has caused the damage in the first place...my ds regressed day he

had MMR I know how it feels and sending you lots of (((hugs)))

> > > > > > >

> > > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed

Ketotifen and

> > > > > > will reassess this month (3 months since starting Ketotifen). The

result was

> > > > > > quite marked and by the effects of the medication it is likely to

be viral

> > > > > > related. So will return for another autonomic test this month to

see if

> > > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > > I took Dr G letter to Neurologist who also did ECG which result

shows

> > > > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests this

> > > > > > week.

> > > > > > >

> > > > > > > Does anyone here have a child with Neuro Autonomic Disturbances

and what

> > > > > > diagnosis, symptoms and most important treatment and prognosis

their is?

> > > > > > >

> > > > > > > Thank you in advance.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Guest guest

Thank you as my sister has underactive Thyroid and on meds so will ask for

test for ds.

Stay strong and remeber you have done more than a Dr knows to find out and

get your dd the treatement she needs...as extremely complicated medical problems

and well done in pushing to get your dd better over time it isn't easy fighting

a system that has caused the damage in the first place...my ds regressed day he

had MMR I know how it feels and sending you lots of (((hugs)))

> > > > > > >

> > > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed

Ketotifen and

> > > > > > will reassess this month (3 months since starting Ketotifen). The

result was

> > > > > > quite marked and by the effects of the medication it is likely to

be viral

> > > > > > related. So will return for another autonomic test this month to

see if

> > > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > > I took Dr G letter to Neurologist who also did ECG which result

shows

> > > > > > Neuro Autonomic Disturbances and wants ds to have bloods and urine

tests this

> > > > > > week.

> > > > > > >

> > > > > > > Does anyone here have a child with Neuro Autonomic Disturbances

and what

> > > > > > diagnosis, symptoms and most important treatment and prognosis

their is?

> > > > > > >

> > > > > > > Thank you in advance.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Guest guest

So sorry to hear that your DS regresses the day he had the MMR. Thanks so much

for your kind thoughts and hugs. On this list we know that we all have our

experiences of fighting the system that has caused the damage in the first

place, even if that experience is different - we all know how we all feel, and

that is worth so much.

Best of luck with your DS and hope that the thyroid tests are useful.

xx

> > > > > > > >

> > > > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed

Ketotifen and

> > > > > > > will reassess this month (3 months since starting Ketotifen). The

result was

> > > > > > > quite marked and by the effects of the medication it is likely to

be viral

> > > > > > > related. So will return for another autonomic test this month to

see if

> > > > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > > > I took Dr G letter to Neurologist who also did ECG which result

shows

> > > > > > > Neuro Autonomic Disturbances and wants ds to have bloods and

urine tests this

> > > > > > > week.

> > > > > > > >

> > > > > > > > Does anyone here have a child with Neuro Autonomic Disturbances

and what

> > > > > > > diagnosis, symptoms and most important treatment and prognosis

their is?

> > > > > > > >

> > > > > > > > Thank you in advance.

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

Share this post


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Guest guest

So sorry to hear that your DS regresses the day he had the MMR. Thanks so much

for your kind thoughts and hugs. On this list we know that we all have our

experiences of fighting the system that has caused the damage in the first

place, even if that experience is different - we all know how we all feel, and

that is worth so much.

Best of luck with your DS and hope that the thyroid tests are useful.

xx

> > > > > > > >

> > > > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed

Ketotifen and

> > > > > > > will reassess this month (3 months since starting Ketotifen). The

result was

> > > > > > > quite marked and by the effects of the medication it is likely to

be viral

> > > > > > > related. So will return for another autonomic test this month to

see if

> > > > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > > > I took Dr G letter to Neurologist who also did ECG which result

shows

> > > > > > > Neuro Autonomic Disturbances and wants ds to have bloods and

urine tests this

> > > > > > > week.

> > > > > > > >

> > > > > > > > Does anyone here have a child with Neuro Autonomic Disturbances

and what

> > > > > > > diagnosis, symptoms and most important treatment and prognosis

their is?

> > > > > > > >

> > > > > > > > Thank you in advance.

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

Share this post


Link to post
Share on other sites
Guest guest

So sorry to hear that your DS regresses the day he had the MMR. Thanks so much

for your kind thoughts and hugs. On this list we know that we all have our

experiences of fighting the system that has caused the damage in the first

place, even if that experience is different - we all know how we all feel, and

that is worth so much.

Best of luck with your DS and hope that the thyroid tests are useful.

xx

> > > > > > > >

> > > > > > > > Dr G did an Autonomic test on ds 7yrs old. He prescribed

Ketotifen and

> > > > > > > will reassess this month (3 months since starting Ketotifen). The

result was

> > > > > > > quite marked and by the effects of the medication it is likely to

be viral

> > > > > > > related. So will return for another autonomic test this month to

see if

> > > > > > > Ketotifin has sabalized the disturbance if not try viral route.

> > > > > > > > I took Dr G letter to Neurologist who also did ECG which result

shows

> > > > > > > Neuro Autonomic Disturbances and wants ds to have bloods and

urine tests this

> > > > > > > week.

> > > > > > > >

> > > > > > > > Does anyone here have a child with Neuro Autonomic Disturbances

and what

> > > > > > > diagnosis, symptoms and most important treatment and prognosis

their is?

> > > > > > > >

> > > > > > > > Thank you in advance.

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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