Re: How to deal with other adults/kids

[Guest guest]

HI Debbi,

I'm just appalled at what that woman said to you. I am so sad

that you are suffering so much and then you have this idiot speak to

you like that. I'm sure I would have felt like crying and then

later I would have been spitting mad and thought of a million smart

things to say!!! This is going to get better. You are seeking help

and there is light at the end of the tunnel.

A year ago my son was in pretty bad shape with his OCD, Trich, and

TS, and we were at a college football game (homecoming game at my

daughter's college)and he was sitting down (everyone else was

standing and cheering) and he was pulling his hair out, tic-ing,

completely oblivious that his behavior was so socially unacceptable.

He was 15 at the time. He had huge bald spots and no eyelashes or

eyebrows. He looked and acted very strangely. Honestly, it broke my

heart and I felt very self-conscious knowing people were surely

watching him wondering what in the world this kid was doing!!!

Debbi, now he has a full head of hair and all of his eyelashes and

brows back, his OCD is under control and he has a good life. Last

year we were getting very little help from the psychiatrist we were

seeing and his meds were off and he was not receiving Cognitive

Behavioral Therapy. I really didn't know what was going to happen

to him. I have great hope for his future now. He's 16, driving, has

good friends, girls like him, life is pretty darned good. He's

really a great kid and no one would know he has all of these

disorders.

Hang in there. We're here to listen and support you. This WILL

get better.

Love and hugs,

Ann

> I wrote in last week (new here) and everyone was so nice for

replying. It

> really helped me. I hope my reply to that went through. Anyway,

tomorrow will be

> my 9 yr old son's first meeting with the psychologist. I can't

wait! I am

> feeling so desperate. It's impossible to go anywhere and NOT be

noticed. How do

> you all do it?

>

> How do you respond to people that comment? I've had people come

right out and

> ask me what's wrong with him, others have just said he's crazy. My

son

> attends only two classes at a charter school (we homeschool) and I

had another Mom

> asking what my son was doing (picking up specks and placing them

into a ziplock

> baggie to take home <sigh) when I thought I would just tell her he

has ocd.

> Well, she then tells me that her cousin was diagnosed with ocd and

this means

> that my son has been ABUSED! Ack! She goes on to say if " I " didn't

abuse him,

> then maybe my husband did!!! I couldn't even speak after that. I

only felt like

> crying. Do I NOT tell anyone why ds is behaving this way and just

let them

> think he's crazy? This is all so new to me I feel like I'm the one

going crazy.

>

> Do we just hide in the house? Actually, that's pretty much what we

are doing

> now. It's like I am now obsessed with my son's ocd. I can't even

sleep, if I

> do, I'm dreaming about it. Anyone else get through this?

>

> Debbi

>

>

>

[Guest guest]

Debbie,

Sorry for the late response, but I just read this. We have

experienced the opposite effect. Our DS tries SO hard to not be

" different " even around grandparents and such, that no one sees

anything wrong. When we've had to attempt to broadly explain his

non-participation in some things, most other parents still don't

understand. My wife actually had another woman say to her, " You say

he has all these problems...he seems fine to me, " implying my wife was

making this up as an excuse to avoid her. Not much you can say to

someone after that.

Sorry if this isn't much help.

Bill

[Guest guest]

Debbie,

Sorry for the late response, but I just read this. We have

experienced the opposite effect. Our DS tries SO hard to not be

" different " even around grandparents and such, that no one sees

anything wrong. When we've had to attempt to broadly explain his

non-participation in some things, most other parents still don't

understand. My wife actually had another woman say to her, " You say

he has all these problems...he seems fine to me, " implying my wife was

making this up as an excuse to avoid her. Not much you can say to

someone after that.

Sorry if this isn't much help.

Bill