's appointment

[Guest guest]

> Hello! had her Rhuemy appointment yesterday. It went well.

Since

> has been complaining of stomach pain ALL the time, the dr.

> suggested we experment by taking her off of the Naproxen for a couple of

> weeks and see if that helps. *she is also on MTX* After we got home she

> throw up (first time in a year). I wonder if it is the medicine because

we

> all got the flu shot.

>

> She was so hyper in his office. She was blowing kissing and hanging off

the

> door. She is still limited in some of her movements (neck, straighten her

> arms). But we can tell a difference in her movement since she has been on

> MTX. I sometimes forget she has this disease because her movements look

> like her playmates movements. PTL!!!

>

> just to remind everyone_ we live in Oregon and travel 2 hours (one-way)

to

> her appointments. started out with pauci over a year and half

ago

> and has progressed to poly.

>

> Amy

> Mother to 3 1/2 years old

> Mother to 2 years old

> Mother to Maddie 8 months old

>

[Guest guest]

Dear Amy, The flu is starting to go around big time here in Oregon. We

have all gotten the throw-up flu this week. Poor n was sick as a dog

on Wednesday, her birthday. It is especially hard because she couldn't take

her naprosyn now for 3 days. I am happy you received good news. in

Portland

Fw: 's appointment

>From: " Amy Fox " <foxpro@...>

>

>

>

>> Hello! had her Rhuemy appointment yesterday. It went well.

>Since

>> has been complaining of stomach pain ALL the time, the dr.

>> suggested we experment by taking her off of the Naproxen for a couple of

>> weeks and see if that helps. *she is also on MTX* After we got home she

>> throw up (first time in a year). I wonder if it is the medicine because

>we

>> all got the flu shot.

>>

>> She was so hyper in his office. She was blowing kissing and hanging off

>the

>> door. She is still limited in some of her movements (neck, straighten

her

>> arms). But we can tell a difference in her movement since she has been

on

>> MTX. I sometimes forget she has this disease because her movements look

>> like her playmates movements. PTL!!!

>>

>> just to remind everyone_ we live in Oregon and travel 2 hours (one-way)

>to

>> her appointments. started out with pauci over a year and half

>ago

>> and has progressed to poly.

>>

>> Amy

>> Mother to 3 1/2 years old

>> Mother to 2 years old

>> Mother to Maddie 8 months old

>>

>

>

>

>---------------------------

[Guest guest]

Hi ,

When Josh had stomache troubles we needed to take him off NSAID's. Then

he started zantaz and cytotec. I never really thought the NSAID's meant

too much, as he takes lots of other stronger meds, like prednisone and

plaquinel and MTX, too. Boy, was I surprised! In just a short time he

had a lot more discomfort and joint swelling. We hurried up and within a

week replaced the indomethacin with Relafen, which is supposed to be

somewhat easier on the stomache. That helped a little but wasn't as good

for the pain and inflammation as Indomethacin, which we eventually went

back to. So, I sort of understand what n is going through, without

her Naprosyn. What a way to spend a birthday, though I hope she

starts to feel better soon.

take care,

Georgina

WILLIAM PRICE wrote:

> Dear Amy, The flu is starting to go around big time here in Oregon. We

> have all gotten the throw-up flu this week. Poor n was sick as a dog

> on Wednesday, her birthday. It is especially hard because she couldn't take

> her naprosyn now for 3 days. I am happy you received good news. in

> Portland

[Guest guest]

Hi Amy,

I'm really glad that you're finally able to see some improvements, since

starting MTX. It does take a while for it to begin working but it's one

of the most reliable meds they have for treating JRA. I hope it's not

too hard for Sam now that she won't be having her NSAID. Josh couldn't

handle without one, we determined, but he's really sensitive.

What a long trip, to visit the doctor! Our rheumatologists are based in

Oahu, off island, so if we need to go see them when it's not a regularly

scheduled appt, we have to fly over. Still, the flight itself takes just

30 minutes and the drive from airport is only about 15 minutes. How

often do you have to go? Does she also see a pediatrician who is located

closer to home? That's what we do, here.

Take care,

Georgina

Amy Fox wrote:

> > Hello! had her Rhuemy appointment yesterday. It went well.

> Since

> > has been complaining of stomach pain ALL the time, the dr.

> > suggested we experment by taking her off of the Naproxen for a couple of

> > weeks and see if that helps. *she is also on MTX* After we got home she

> > throw up (first time in a year). I wonder if it is the medicine because

> we

> > all got the flu shot.

> >

> > She was so hyper in his office. She was blowing kissing and hanging off

> the

> > door. She is still limited in some of her movements (neck, straighten her

> > arms). But we can tell a difference in her movement since she has been on

> > MTX. I sometimes forget she has this disease because her movements look

> > like her playmates movements. PTL!!!

> >

> > just to remind everyone_ we live in Oregon and travel 2 hours (one-way)

> to

> > her appointments. started out with pauci over a year and half

> ago

> > and has progressed to poly.

> >

> > Amy

[Guest guest]

hello! I never saw this come though. Sorry, if this is a repeat.

Amy

----- Original Message -----

From: Amy Fox <foxpro@...>

> > Hello! had her Rhuemy appointment yesterday. It went well.

> Since

> > has been complaining of stomach pain ALL the time, the dr.

> > suggested we experment by taking her off of the Naproxen for a couple of

> > weeks and see if that helps. *she is also on MTX* After we got home

she

> > throw up (first time in a year). I wonder if it is the medicine because

> we

> > all got the flu shot.

> >

> > She was so hyper in his office. She was blowing kissing and hanging off

> the

> > door. She is still limited in some of her movements (neck, straighten

her

> > arms). But we can tell a difference in her movement since she has been

on

> > MTX. I sometimes forget she has this disease because her movements look

> > like her playmates movements. PTL!!!

> >

> > just to remind everyone_ we live in Oregon and travel 2 hours (one-way)

> to

> > her appointments. started out with pauci over a year and half

> ago

> > and has progressed to poly.

> >

> > Amy

> > Mother to 3 1/2 years old

> > Mother to 2 years old

> > Mother to Maddie 8 months old

> >

>

>

[Guest guest]

Hi Amy,

I saw it come through the first time, as I remember a follow up post I

made. I was surprised about the long travelling time to visit your

doctor. If it's a good one though, the trip is well worth it! I was

curious about how often you visited the doctor and if you saw a regular

pediatrician in between rheumy visits.

Take care,

Georgina

Amy Fox wrote:

> hello! I never saw this come though. Sorry, if this is a repeat.

> Amy

> ----- Original Message -----

> From: Amy Fox <foxpro@...>

> > > Hello! had her Rhuemy appointment yesterday. It went well.

> > Since

> > > has been complaining of stomach pain ALL the time, the dr.

> > > suggested we experment by taking her off of the Naproxen for a couple of

> > > weeks and see if that helps. *she is also on MTX* After we got home

> she

> > > throw up (first time in a year). I wonder if it is the medicine because

> > we

> > > all got the flu shot.

> > >

> > > She was so hyper in his office. She was blowing kissing and hanging off

> > the

> > > door. She is still limited in some of her movements (neck, straighten

> her

> > > arms). But we can tell a difference in her movement since she has been

> on

> > > MTX. I sometimes forget she has this disease because her movements look

> > > like her playmates movements. PTL!!!

> > >

> > > just to remind everyone_ we live in Oregon and travel 2 hours (one-way)

> > to

> > > her appointments. started out with pauci over a year and half

> > ago

> > > and has progressed to poly.

> > >

> > > Amy

> > > Mother to 3 1/2 years old

> > > Mother to 2 years old

> > > Mother to Maddie 8 months old

[Guest guest]

Georgina,

Hello! Hhhmmm....I never saw your post to me either. Something must of

been going wrong with my e-mail.

Anyway, sees the Rhuemy Dr. every 3 months (for awhile it was

every 10 weeks). And she sees the Ped. dr. once a year (for her regular

check-up). But I have a 2 year old and 8 months old...so, we live in the

dr.'s office. I make a lot of phone calls to the nurse in the office

(asking questions). Plus she calls and reminds me of 's blood work

stuff.

I'm thankful that there is a dr. here in Oregon. If it wasn't for the 2

hour drive we would have to drive 5 hours to Seattle.

In March they are going to have a get together for all the families in

Oregon. Since March is JRA awareness month.

~Amy

[Guest guest]

Hi Amy,

Oh, every 10 weeks isn't so bad. My son sees the rheumatologist every 4

weeks. They fly over to our island and do a JRA clinic at the same

office where my children's regular pediatricians are located. It makes

things very convenient as it's only a 10 minute drive from our home.

Still, when Josh is flaring the pediatrician usually likes to see him.

Then he calls the rheumy. So we see him quite frequently, too. The

nurses usually ask about my daughter because she normally only goes in

for a yearly exam (thank goodness for that!) Our nurses are

wonderful. We see nurses at the pediatricians office, the nurse that

works with the rheumys, and the nurses at the oncology center where Josh

gets his MTX. All of them are kind and friendly, and they have done so

much to make this a more pleasant experience for us. I know there's a

secretary day. Does anyone here know if there's a nurses day? There

probably is. And if there is, I don't want to miss it this year

Take care,

Georgina

Amy Fox wrote:

> Georgina,

>

> Hello! Hhhmmm....I never saw your post to me either. Something must of

> been going wrong with my e-mail.

> Anyway, sees the Rhuemy Dr. every 3 months (for awhile it was

> every 10 weeks). And she sees the Ped. dr. once a year (for her regular

> check-up). But I have a 2 year old and 8 months old...so, we live in the

> dr.'s office. I make a lot of phone calls to the nurse in the office

> (asking questions). Plus she calls and reminds me of 's blood work

> stuff.

>

> I'm thankful that there is a dr. here in Oregon. If it wasn't for the 2

> hour drive we would have to drive 5 hours to Seattle.

> In March they are going to have a get together for all the families in

> Oregon. Since March is JRA awareness month.

>

> ~Amy

[Guest guest]

hello

Its the side effect for mxt* vomitting? My so was on naperson for 3

years and he stated have stomach problem. I we are lucky his doctor is 20

min away from where we live. He see a great doctor.

I pray that she feels better.

Alison

[Guest guest]

Hi there

My daughter quite often feels very nauseous, the doc says it can be

from mxt......

good luck..

Ady Ogilvie

aogilvie@...

> Re: Fw: 's appointment

>

> From: AlisonEarly@...

>

> hello

>

> Its the side effect for mxt* vomitting? My so was on naperson for 3

> years and he stated have stomach problem. I we are lucky his doctor is 20

>

> min away from where we live. He see a great doctor.

> I pray that she feels better.

> Alison

>

> _____

>

>

[Guest guest]

Jen-

Best of luck to you and .

Diane

[Guest guest]

Thank you so much for the advice.. it is VERY hard watching my

daughter go threw this i work in a nursing home and i see adults dealing

with this pain and think of my daughter all the time hopeing and praying

that she wont end up like them if i can help it. I as well as the other

parents here pray that there will be a cure someday or it will just go away.

well thanks again and god bless.. kellie

>From: DONALD A MORSE <dam755@...>

>Reply-

>

>CC:

>Subject: Re: 's appointment

>Date: Fri, 20 Jul 2001 20:06:37 -0700

>

>

>Kellie, understand your apprehension, but regardless of what might or

>might not develop, ten years down the road, it is not your fault.

>Not your fault for trying to give your daughter some kind of relief, from

>the pain of jra. And no matter what form of drug there is available out

>there, there is always going to be some risk of side effect.

>Because any time you put any foreign substance into the body, there is

>going to be an effect. But with close monitoring of blood, they can keep

>a check on these things.

>I know it is easy to say, don't feel guilty, I can't know the anguish

>that you and all the other parents feel, watching your child suffer with

>this, as I am a single man with no children. BUT, I do know what my own

>mother dealt with, as she lived and dealt with my jra, and the heart

>break I feel, every time I see, a child suffering from jra, or any other

>chronic decease.

>And even if you don't feel you know as much as other, about jra or any

>thing else, don't be afraid to voice an opinion or question, because we

>all started out, just as bewildered as you, and seeking lots of answers

>and advise.

>Keep asking those Questions, no matter What!

>God Bless and Prayers!

> A. Morse

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Kellie, understand your apprehension, but regardless of what might or

might not develop, ten years down the road, it is not your fault.

Not your fault for trying to give your daughter some kind of relief, from

the pain of jra. And no matter what form of drug there is available out

there, there is always going to be some risk of side effect.

Because any time you put any foreign substance into the body, there is

going to be an effect. But with close monitoring of blood, they can keep

a check on these things.

I know it is easy to say, don't feel guilty, I can't know the anguish

that you and all the other parents feel, watching your child suffer with

this, as I am a single man with no children. BUT, I do know what my own

mother dealt with, as she lived and dealt with my jra, and the heart

break I feel, every time I see, a child suffering from jra, or any other

chronic decease.

And even if you don't feel you know as much as other, about jra or any

thing else, don't be afraid to voice an opinion or question, because we

all started out, just as bewildered as you, and seeking lots of answers

and advise.

Keep asking those Questions, no matter What!

God Bless and Prayers!

A. Morse

[Guest guest]

In a message dated 11/14/2002 9:11:12 PM Eastern Standard Time, dj2kirby@... writes:

Send those pictures to us plagio police & we'll let you know what we

think!!!

Thanks for the update.

Debbie Abby's mom

MI

I will!!! Thanks Debbie.

[Guest guest]

:

Most of us know just what you're feeling right now. Like you said,

you're glad he might be done & are ready for him to be done,

BUT...you feel he could get more correction, etc.etc.etc..

The truth is, the ultimate decision is yours & your family's if you

want him to get another band.

It does sound like he's rec'd great correction & you're probably the

only one who notices any remaining flatness.

Send those pictures to us plagio police & we'll let you know what we

think!!!

Thanks for the update.

Debbie Abby's mom

MI

> Well.. had his appt at CT tonight..and we set up his exit

casting for 2

> weeks from yesterday...the day before thanksgiving.

>

> I'm happy...but it's not definite. We go to the cranial facial dr

on this

> coming Wednesday....so it all depends on what he says. She thinks

he is

> going to say that he is corrected enough and is done. So she said

if that's

> what he says..then that's what we are doing. But she feels he

could benefit

> from a little more correction. I asked her if she thinks he got

really good

> correction..and she said yes..but she would like to see him get a

little

> more..but it's up to Dr Hall. Last time Dr Hall had said that if

's

> head grew some....then he wouldn't care if we left him in the

helmet..but

> that if his head didn't grow hardly at all or at all..then he would

have to

> come out..b/c at our last visit with him...he said that from the

month

> before...'s head didn't grow hardly at all..and that it was

ok for

> then..but that if it didn't grow the next time then it would be

time to take

> him out of the band..b/c the band is restricting his head growth.

>

> I am happy with his correction..and i guess Charlotte has to go by

what Dr

> Hall says..but i'm a little unsure since Charlotte said she would

like to see

> a little more correction. But it's not like Charlotte gave us the

option of

> listening to Dr Hall or not..she said we will go by what he says.

I also

> wouldn't want to put in danger where his head is restricted

from

> growing...so i have mixed feelings. I did want to be done..and am

excited

> that we are at the end.but i want him to get the most correction he

can.

> His head definitely looks so much better than it did..but it's not

totally

> rounded. Charlotte said he did get nice rounding..and that his

front got a

> lot better too..but that his right side is still a little flatter

than the

> left. It is.but i can only tell if i look hard....He's been in the

band for

> 3 months now....

>

> When we take the exit pictures..i'll figure out a way to get them

on

> here..and then i'll show you guys his beginning photos and his end

photos...

>

> Anyway, sorry this got so long....

>

>

> Mom to

[Guest guest]

Hi ,

On the CT site is a file on a study that CT did about how the DOCband

doesn't restrict head growth during treatment. May be you could print

it and bring it with you to your neuro appt? Did you tell Charlotte

that the neuro is concerned that 's band maybe restricting head

growth?

I look at it this way, if Charlotte tells me that she'd like to see

get more correction, I'd stick with it. This is the only

chance I have to correct her head. There is only a small window open

for correction. One day it will be too late.

This has to be a really had decision to make. I'm sure it's really

tough. Do what you think is best for .

Good luck,

> Well.. had his appt at CT tonight..and we set up his exit

casting for 2

> weeks from yesterday...the day before thanksgiving.

>

> I'm happy...but it's not definite. We go to the cranial facial dr

on this

> coming Wednesday....so it all depends on what he says. She thinks

he is

> going to say that he is corrected enough and is done. So she said

if that's

> what he says..then that's what we are doing. But she feels he

could benefit

> from a little more correction. I asked her if she thinks he got

really good

> correction..and she said yes..but she would like to see him get a

little

> more..but it's up to Dr Hall. Last time Dr Hall had said that if

's

> head grew some....then he wouldn't care if we left him in the

helmet..but

> that if his head didn't grow hardly at all or at all..then he would

have to

> come out..b/c at our last visit with him...he said that from the

month

> before...'s head didn't grow hardly at all..and that it was

ok for

> then..but that if it didn't grow the next time then it would be

time to take

> him out of the band..b/c the band is restricting his head growth.

>

> I am happy with his correction..and i guess Charlotte has to go by

what Dr

> Hall says..but i'm a little unsure since Charlotte said she would

like to see

> a little more correction. But it's not like Charlotte gave us the

option of

> listening to Dr Hall or not..she said we will go by what he says.

I also

> wouldn't want to put in danger where his head is restricted

from

> growing...so i have mixed feelings. I did want to be done..and am

excited

> that we are at the end.but i want him to get the most correction he

can.

> His head definitely looks so much better than it did..but it's not

totally

> rounded. Charlotte said he did get nice rounding..and that his

front got a

> lot better too..but that his right side is still a little flatter

than the

> left. It is.but i can only tell if i look hard....He's been in the

band for

> 3 months now....

>

> When we take the exit pictures..i'll figure out a way to get them

on

> here..and then i'll show you guys his beginning photos and his end

photos...

>

> Anyway, sorry this got so long....

>

>

> Mom to

[Guest guest]

Hi ,

Yea...i did tell her that..and she didn't say anything. Just kind of repeated that we'll do what Dr Hall wants. She didn't say at all that see what dr hall says and then it's up to me. She said that in 2 weeks to come back and that should be the big finale...and i said oh really..and she said yea...b/c she thinks dr hall will say that he got enough correction...and so we'll do what he says. It's not like she gave me the option of continuing..she basically said we have to follow Dr Hall. When i asked her if she felt he got good correction..she said yes...but i would like to see him get a little more...but then kind of repeated that Dr Hall will say it's enough though.

If 's head didn't grow hardly at all in 2 months..i'd really be afraid not to listen to Dr Hall. Even though there's been studies...if 's head is still the same as last month..i would be afraid and i'm happy with the correction he got. Of course i feel as though if he could get more correction i would love for him to be able to..but i also would not want to hurt by restricting his growth. I am going to read the article that you told me about on the CT website... but if Dr hall says it's time to come out b/c he didn't grow at all..then i really would be afraid not to listen. I couldn't imagine pushing for more correction and then something else be wrong or worse b/c i didn't listen to Dr Hall. If he tells me that..then i will probably call Charlotte and talk to her and see what she says. It doesn't seem like she was giving me an option at all...so i'm not sure she would continue if Dr Hall said no anyway. And i don't think he would need a second band..b/c he's only been in this one for 3 months..and i think they last for 4 months....i just think Charlotte meant we should keep him in this band longer if it was up to her...a couple of weeks ago i asked her if she thought he would need a second band and she said no.not at all...so my guess is that she would like him to wear this for another month or until he outgrows it....so i will talk to Dr Hall when we go...

Thanks , for all your help!

In a message dated 11/14/2002 9:54:37 PM Eastern Standard Time, taime@... writes:

Did you tell Charlotte

that the neuro is concerned that 's band maybe restricting head

growth?

I look at it this way, if Charlotte tells me that she'd like to see

get more correction, I'd stick with it. This is the only

chance I have to correct her head. There is only a small window open

for correction. One day it will be too late.

This has to be a really had decision to make. I'm sure it's really

tough. Do what you think is best for .

Good luck,

[Guest guest]

In a message dated 11/15/2002 11:44:31 AM Eastern Standard Time, marcisch@... writes:

.. If you and Charlotte think needs a new band then I

think that is your choice

Thanks Marci,

I don't think Charlotte thinks he should get a 2nd band...he's only been in this band for 3 months..and he still has some room in it. I think she just feels he should stay in this band for a while longer.... I had asked Charlotte a few weeks ago if she thought he would need a 2nd band..and she said no...not at all. So i'm thinking she was just saying that he should stay in the helmet until he wears out this band. I'm not positive though..but she didn't give me that option..she said she would like to see him get more correction but that if Dr Hall says he's done..then we will do the exit casting. It's not like she gave me the option of continuing even if dr hall said no.

I guess i'll wait to see what dr hall says..and then i can talk to charlotte afterwards....and see what she says. At least she did say that he received good correction..even if she feels he can benefit from more....

[Guest guest]

Thanks Marci...I will let you guys know on Wednesday.

In a message dated 11/15/2002 1:53:07 PM Eastern Standard Time, marcisch@... writes:

Oh, I see what you are saying. Charlotte thinks he could stay in

his current band a little longer, but she thinks that Dr. Hall will

say to stop so it won't restrict growth. Hmm, I will be curious to

read about what Dr. Hall says.

Marci

>In a message

[Guest guest]

,

I can see why you are having mixed emotions. You are kind of

getting two different stories - one from the specialist and one

from Charlotte. I don't think it is a common belief that the bands

restrict head growth. I really wonder where your specialist gets

this idea. Of course, who am I to doubt an expert, but still, it's not

something I've ever really heard people talking about in this

group. If you and Charlotte think needs a new band then I

think that is your choice. On the flip side, if it is over in 2 weeks

then hooray! At least you got some good correction and

looks better for it. Having the band off for Thanksgiving and

Christmas would be a good thing. :-)

Good luck with your decision. I know it won't be easy, but you will

do the right thing for .

Marci (Mom to )

Oklahoma

> Well.. had his appt at CT tonight..and we set up his exit

casting for 2

> weeks from yesterday...the day before thanksgiving.

>

> I'm happy...but it's not definite. We go to the cranial facial dr on

this

> coming Wednesday....so it all depends on what he says. She

thinks he is

> going to say that he is corrected enough and is done. So she

said if that's

> what he says..then that's what we are doing. But she feels he

could benefit

> from a little more correction. I asked her if she thinks he got

really good

> correction..and she said yes..but she would like to see him get

a little

> more..but it's up to Dr Hall. Last time Dr Hall had said that if

's

> head grew some....then he wouldn't care if we left him in the

helmet..but

> that if his head didn't grow hardly at all or at all..then he would

have to

> come out..b/c at our last visit with him...he said that from the

month

> before...'s head didn't grow hardly at all..and that it was

ok for

> then..but that if it didn't grow the next time then it would be time

to take

> him out of the band..b/c the band is restricting his head growth.

>

> I am happy with his correction..and i guess Charlotte has to go

by what Dr

> Hall says..but i'm a little unsure since Charlotte said she would

like to see

> a little more correction. But it's not like Charlotte gave us the

option of

> listening to Dr Hall or not..she said we will go by what he says.

I also

> wouldn't want to put in danger where his head is

restricted from

> growing...so i have mixed feelings. I did want to be done..and

am excited

> that we are at the end.but i want him to get the most correction

he can.

> His head definitely looks so much better than it did..but it's not

totally

> rounded. Charlotte said he did get nice rounding..and that his

front got a

> lot better too..but that his right side is still a little flatter than the

> left. It is.but i can only tell if i look hard....He's been in the band

for

> 3 months now....

>

> When we take the exit pictures..i'll figure out a way to get them

on

> here..and then i'll show you guys his beginning photos and his

end photos...

>

> Anyway, sorry this got so long....

>

>

> Mom to

[Guest guest]

had his appointment today with the craniofacial dr....and he is no longer wearing his helmet....so now he will graduate a week from today as planned.

I'm happy about it but also nervous that his head will get flat again.

His head only grew a half a centimeter in a month..and the dr said his head is not growing at a rate that they expect...and it hasn't been....and it's better if we get him out of the helmet. Also he said he got good correction (not perfect) but good.....and he said it should continue to grow and round out...

He said we should keep him off the back of his head mostly which is fine b/c he is hardly on the back of his head anymore..he always sleeps on his stomach...he is only on his back for diaper changes...when we are tickling him..and when he gets his bottle..

He wants to see us back in 2 months to see how much 's head grew...and to make sure there is no regression....

I'm so worried that his head is going to flatten again...even today i am constantly checking his head...and analyzing it. I keep thinking it's already flattening..LOL..which i know isn't possible....but still...LOL.

Anyway..so that's it....he's helmetless....

Mom to

[Guest guest]

In a message dated 11/20/2002 9:25:46 PM Eastern Standard Time, tinuviel@... writes:

yay! way to go justin! don't worry natalie, just be mindful of it and i'm sure he'll be just fine! congratulations to both of you!

Thanks !!!

[Guest guest]

,

Yes...Charlotte at our last appt said that Dr Hall was probably going to say he is done and to get him out...and so we set up the exit casting appointment. She did say that he got good correction..but that she would like to see more...but 's head just hasn't been growing and the cranial dr feels that the helmet is slowing down his growth. It may not be..but his head really hasn't grown much in the months he has been in the helmet...and i really don't want to take the chance of keeping him in the helmet against the dr's advice and risking something happening to his head or brain. I am happy with his head...but i guess i just want someone to say he got great correction and doesn't need the helmet anymore..LOL....i'm not usually a perfectionist..but when it comes to i am. I am happy with his correction...i don't know if you saw the pictures i sent in recently...and am excited that he is done...

In a message dated 11/20/2002 9:56:36 PM Eastern Standard Time, rmanias@... writes:

-

Has outgrown the band? Does your orthotist know he is done?

Maybe you can squeeze some more growth out of the band, since you

seem to be a bit concerned.

Don't worry too much about him regressing. Dane graduated at 8

months and has gotten a tad bit rounder (that flat spot behind the

ear) since.

At 10 months, he probably isn't on that flat spot much at all

anymore.

Congratulations!

Dane's mom DOC Grad

[Guest guest]

,

Thanks!! Yea..Dr Hall just said that it would be better to get him out of the helmet..and that to come back in 2 months to make sure his head is growing...and he said also to make sure he doesn't regress. But it is true that he is hardly on his back at all anymore..he's just about walking and he sleeps on his stomach.

I will definitely let you guys know when he officially graduated!! Thanks!!

In a message dated 11/20/2002 10:00:01 PM Eastern Standard Time, taime@... writes:

Hi ,

I wouldn't worry about his head growing slow. That happened to

, at one point her head didn't grow at all in a months time.

When she first got banded her head grew close to an inch in over 2

months time. I'm sure if it was something to worry about Dr. Hall

would of said so. Don't you think? I really can't see

regressing at his age. At 10 months they are so mobile and hardly on

their heads anymore. Please post when he is an official graduate, so

I can congratulate !!

[Guest guest]

Thanks ,

I didn't know you had pneumonia..are you doing better??? I hope you are feeling better!

I think he got good correction too..and when i look at the pictures i sent in...it really looks good...but i'll see how the pictures from CT look ...b/c they will take the pictures the same pose as before...so it will probably be a more accurate comparison..although i did try to take the same pose as my before pictures too..LOL...

We'll definitely frame his diploma..LOL...

Thanks !!

In a message dated 11/20/2002 10:58:28 PM Eastern Standard Time, rmanias@... writes:

-

I haven't been checking the board b/c of pneumonia, but I just

looked up his pictures. He looks great! Seems to me he got some

great improvement

I think it is common to worry about regression. Just a couple weeks

ago we pulled out Dane's headsicle because we were once again

analyzing his head. He looks fine! If anything, he has rounded a

bit more.

Hopefully the exit cast is a breeze! You'll have to frame his

Graduation Diploma! We have Dane's on the fridge!

Dane's mom DOC Grad