Re: Hi....Kinda new here....

[Guest guest]

Domi - I am so sorry you are having these problems. We live in Arlington,

TX and our son (8 months) was fitted for the DOC band yesterday. Seems to

be doing pretty good so far. Aimee is still young enough where the DOC band

will work from what I have read. Hang in there. Seems to me there is much

these doctors need to learn about craniosynostosis and plagiocephaly as they

seem to mis-diagnois it quite frequently.

> -----Original Message-----

> From: Dominika [sMTP:dominika@...]

> Sent: Friday, November 03, 2000 1:37 PM

> Plagiocephalyegroups

> Subject: Hi....Kinda new here....

>

> Hi everyone...I believe I had been a part of this group back in

> August when I was told by my daughters pediatrician that she needed a

> helmet. My daughter was then 6 months old.....We went to the

> craniofacial clinic here in Dallas, TX and were told after almost 3

> weeks post a cat scan that my daughter did not have craniosynostosis

> and that she didn't need a helmet....whew...what a relief right?

> Well...as much as a relief that it was....last month at my daughters

> 9 month check up her pediatrician said...no no no...she needs a

> helmet...So we are now at square one again. I just recieved the

> prescription for the doc band from the craniofacial place...after

> waiting for them to do this for a MONTH....I am ticked to say the

> least.....I am praying to God that the ins. will pay for this but

> cranial technologies told me outright that it will be denied...so I

> don't have my hopes up in any way. So now my daughter is 10 months

> old....and she has an elongated head. I seem to notice it so much

> when she is playing in the bath and her hair is wet. It breaks my

> heart to think that the so called specialists said she was fine but

> were really just to lazy to do anything about it.....I am sorry I am

> going on like this.....I guess I should introduce ourselves....

>

> My name is Dominika...Domi for short....I am married to and we

> have two kids.... who just turned 3 and Aimee who is 10 months

> old on the 5th. We live in the Dallas area.

>

> Once again thank you to all of you for your support.

>

> Domi

>

>

>

>

>

>

[Guest guest]

Welcome back Domi!

When does Aimee go for her casting?

Kendra

Dominika wrote:

Hi everyone...I believe I had been a part of

this group back in

August when I was told by my daughters pediatrician that she needed

a

helmet. My daughter was then 6 months old.....We went to

the

craniofacial clinic here in Dallas, TX and were told after almost

3

weeks post a cat scan that my daughter did not have craniosynostosis

and that she didn't need a helmet....whew...what a relief right?

Well...as much as a relief that it was....last month at my daughters

9 month check up her pediatrician said...no no no...she needs a

helmet...So we are now at square one again. I just recieved

the

prescription for the doc band from the craniofacial place...after

waiting for them to do this for a MONTH....I am ticked to say the

least.....I am praying to God that the ins. will pay for this but

cranial technologies told me outright that it will be denied...so

I

don't have my hopes up in any way. So now my daughter is

10 months

old....and she has an elongated head. I seem to notice it

so much

when she is playing in the bath and her hair is wet. It breaks

my

heart to think that the so called specialists said she was fine

but

were really just to lazy to do anything about it.....I am sorry

I am

going on like this.....I guess I should introduce ourselves....

My name is Dominika...Domi for short....I am married to and

we

have two kids.... who just turned 3 and Aimee who is 10

months

old on the 5th. We live in the Dallas area.

Once again thank you to all of you for your support.

Domi

[Guest guest]

Not sure....insurance is giving me the run around right now and cranial technologies is waiting for all of the records from Dr. Genecov's office to be sent....soooo at the rate that they work I would say in a month or so...LOL....no really I hope sooner.....I am anxious for her to be in this......How long has your little one had the helmet?

domi

----- Original Message -----

From: & Kendra

Plagiocephalyegroups

Sent: Friday, November 03, 2000 5:36 PM

Subject: Re: Hi....Kinda new here....

Welcome back Domi! When does Aimee go for her casting? Kendra Dominika wrote: Hi everyone...I believe I had been a part of this group back in August when I was told by my daughters pediatrician that she needed a helmet. My daughter was then 6 months old.....We went to the craniofacial clinic here in Dallas, TX and were told after almost 3 weeks post a cat scan that my daughter did not have craniosynostosis and that she didn't need a helmet....whew...what a relief right? Well...as much as a relief that it was....last month at my daughters 9 month check up her pediatrician said...no no no...she needs a helmet...So we are now at square one again. I just recieved the prescription for the doc band from the craniofacial place...after waiting for them to do this for a MONTH....I am ticked to say the least.....I am praying to God that the ins. will pay for this but cranial technologies told me outright that it will be denied...so I don't have my hopes up in any way. So now my daughter is 10 months old....and she has an elongated head. I seem to notice it so much when she is playing in the bath and her hair is wet. It breaks my heart to think that the so called specialists said she was fine but were really just to lazy to do anything about it.....I am sorry I am going on like this.....I guess I should introduce ourselves.... My name is Dominika...Domi for short....I am married to and we have two kids.... who just turned 3 and Aimee who is 10 months old on the 5th. We live in the Dallas area. Once again thank you to all of you for your support. Domi

[Guest guest]

Domi--

Not to be butting in on your communication with others, but do you really

want to wait for insurance?? If we had waited on ins., we would definitely

still be waiting. . .

Dominika White wrote:

Not

sure....insurance is giving me the run around right now and cranial technologies

is waiting for all of the records from Dr. Genecov's office to be sent....soooo

at the rate that they work I would say in a month or so...LOL....no really

I hope sooner.....I am anxious for her to be in this......How long has

your little one had the helmet? domi

----- Original Message -----

From:

& Kendra

Plagiocephalyegroups

Sent: Friday, November 03, 2000 5:36

PM

Subject: Re: Hi....Kinda

new here....

Welcome back Domi!

When does Aimee go for her casting?

Kendra

Dominika wrote:

Hi everyone...I believe I had been a part of

this group back in

August when I was told by my daughters pediatrician that she needed

a

helmet. My daughter was then 6 months old.....We went to

the

craniofacial clinic here in Dallas, TX and were told after almost

3

weeks post a cat scan that my daughter did not have craniosynostosis

and that she didn't need a helmet....whew...what a relief right?

Well...as much as a relief that it was....last month at my daughters

9 month check up her pediatrician said...no no no...she needs a

helmet...So we are now at square one again. I just recieved

the

prescription for the doc band from the craniofacial place...after

waiting for them to do this for a MONTH....I am ticked to say the

least.....I am praying to God that the ins. will pay for this but

cranial technologies told me outright that it will be denied...so

I

don't have my hopes up in any way. So now my daughter is

10 months

old....and she has an elongated head. I seem to notice it

so much

when she is playing in the bath and her hair is wet. It breaks

my

heart to think that the so called specialists said she was fine

but

were really just to lazy to do anything about it.....I am sorry

I am

going on like this.....I guess I should introduce ourselves....

My name is Dominika...Domi for short....I am married to and

we

have two kids.... who just turned 3 and Aimee who is 10

months

old on the 5th. We live in the Dallas area.

Once again thank you to all of you for your support.

Domi

[Guest guest]

well, we aren't sure yet...dh and I are going to talk about it tonite.....ins. told me that they would cover it 100% BUT it has to be proven medically neccessary.....sooo more than likely we will do it ourselves.....Can you tell me how much the helmet costs? I have heard #'s ranging from 2500-3500 dollars. I am shocked by ins. companies not wanting to cover this especially since they could be affecting the health of children later in their lives.....okay...off my soap box....

Domi

----- Original Message -----

From: Mathis

Plagiocephalyegroups

Sent: Friday, November 03, 2000 5:51 PM

Subject: Re: Hi....Kinda new here....

Domi-- Not to be butting in on your communication with others, but do you really want to wait for insurance?? If we had waited on ins., we would definitely still be waiting. . . Dominika White wrote:

Not sure....insurance is giving me the run around right now and cranial technologies is waiting for all of the records from Dr. Genecov's office to be sent....soooo at the rate that they work I would say in a month or so...LOL....no really I hope sooner.....I am anxious for her to be in this......How long has your little one had the helmet? domi

----- Original Message -----

From: & Kendra

Plagiocephalyegroups

Sent: Friday, November 03, 2000 5:36 PM

Subject: Re: Hi....Kinda new here.... Welcome back Domi! When does Aimee go for her casting? Kendra Dominika wrote: Hi everyone...I believe I had been a part of this group back in August when I was told by my daughters pediatrician that she needed a helmet. My daughter was then 6 months old.....We went to the craniofacial clinic here in Dallas, TX and were told after almost 3 weeks post a cat scan that my daughter did not have craniosynostosis and that she didn't need a helmet....whew...what a relief right? Well...as much as a relief that it was....last month at my daughters 9 month check up her pediatrician said...no no no...she needs a helmet...So we are now at square one again. I just recieved the prescription for the doc band from the craniofacial place...after waiting for them to do this for a MONTH....I am ticked to say the least.....I am praying to God that the ins. will pay for this but cranial technologies told me outright that it will be denied...so I don't have my hopes up in any way. So now my daughter is 10 months old....and she has an elongated head. I seem to notice it so much when she is playing in the bath and her hair is wet. It breaks my heart to think that the so called specialists said she was fine but were really just to lazy to do anything about it.....I am sorry I am going on like this.....I guess I should introduce ourselves.... My name is Dominika...Domi for short....I am married to and we have two kids.... who just turned 3 and Aimee who is 10 months old on the 5th. We live in the Dallas area. Once again thank you to all of you for your support. Domi

[Guest guest]

$2600--$600 down and $500 a month. We are paying ourselves until

we work it out with ins. What ins. do you have?? We actually

don't have our denial yet, but from what everyone says, I am expecting

it any day now (how's that for being pessimistic!!) Can I join you

on your soapbox. . .?? :-)

Dominika White wrote:

well, we aren't

sure yet...dh and I are going to talk about it tonite.....ins. told me

that they would cover it 100% BUT it has to be proven medically neccessary.....sooo

more than likely we will do it ourselves.....Can you tell me how much the

helmet costs? I have heard #'s ranging from 2500-3500 dollars.

I am shocked by ins. companies not wanting to cover this especially since

they could be affecting the health of children later in their lives.....okay...off

my soap box.... Domi

----- Original Message -----

From:

Mathis

Plagiocephalyegroups

Sent: Friday, November 03, 2000 5:51

PM

Subject: Re: Hi....Kinda

new here....

Domi--

Not to be butting in on your communication with others, but do you really

want to wait for insurance?? If we had waited on ins., we would definitely

still be waiting. . .

Dominika White wrote:

Not

sure....insurance is giving me the run around right now and cranial technologies

is waiting for all of the records from Dr. Genecov's office to be sent....soooo

at the rate that they work I would say in a month or so...LOL....no really

I hope sooner.....I am anxious for her to be in this......How long has

your little one had the helmet? domi

----- Original Message -----

From:

& Kendra

Plagiocephalyegroups

Sent: Friday, November 03, 2000 5:36

PM

Subject: Re: Hi....Kinda

new here....

Welcome back Domi!

When does Aimee go for her casting?

Kendra

Dominika wrote:

Hi everyone...I believe I had been a part of

this group back in

August when I was told by my daughters pediatrician that she needed

a

helmet. My daughter was then 6 months old.....We went to

the

craniofacial clinic here in Dallas, TX and were told after almost

3

weeks post a cat scan that my daughter did not have craniosynostosis

and that she didn't need a helmet....whew...what a relief right?

Well...as much as a relief that it was....last month at my daughters

9 month check up her pediatrician said...no no no...she needs a

helmet...So we are now at square one again. I just recieved

the

prescription for the doc band from the craniofacial place...after

waiting for them to do this for a MONTH....I am ticked to say the

least.....I am praying to God that the ins. will pay for this but

cranial technologies told me outright that it will be denied...so

I

don't have my hopes up in any way. So now my daughter is

10 months

old....and she has an elongated head. I seem to notice it

so much

when she is playing in the bath and her hair is wet. It breaks

my

heart to think that the so called specialists said she was fine

but

were really just to lazy to do anything about it.....I am sorry

I am

going on like this.....I guess I should introduce ourselves....

My name is Dominika...Domi for short....I am married to and

we

have two kids.... who just turned 3 and Aimee who is 10

months

old on the 5th. We live in the Dallas area.

Once again thank you to all of you for your support.

Domi

[Guest guest]

Domi,

Is Dr. Genecov who told you Aimee didn't need a helmet?

Becky

[Guest guest]

Well,

First they said she had craniosynostosis....then when the CT came back the

nurse called and said Aimee is fine...I said...what about a helmet....she

says...oh no she doesn't need one of those either.....THEN i went to the

pediatrician whom I trust for her 9 month check and he said that aimee def.

needs a helmet.....Her head shape is that like if she had

sagittalsynostosis....long and narrow. If that helps any....

domi

----- Original Message -----

From: " Becky Keck " <becky@...>

<Plagiocephalyegroups>

Sent: Friday, November 03, 2000 6:31 PM

Subject: Re: Hi....Kinda new here....

>

> Domi,

>

> Is Dr. Genecov who told you Aimee didn't need a helmet?

>

> Becky

>

>

[Guest guest]

wow...

at least it isn't 3500....we have Cigna for our insurance and they have been super so far so I am praying to God that it goes through...BUT gut feeling says they won't...too many stories from people with this type of insurance claim has prepared me.....what about you? Oh and will ins. cover something if you start paying on it by yourself? I guess I should look into it....

domi

----- Original Message -----

From: Mathis

Plagiocephalyegroups

Sent: Friday, November 03, 2000 6:17 PM

Subject: Re: Hi....Kinda new here....

$2600--$600 down and $500 a month. We are paying ourselves until we work it out with ins. What ins. do you have?? We actually don't have our denial yet, but from what everyone says, I am expecting it any day now (how's that for being pessimistic!!) Can I join you on your soapbox. . .?? :-) Dominika White wrote: well, we aren't sure yet...dh and I are going to talk about it tonite.....ins. told me that they would cover it 100% BUT it has to be proven medically neccessary.....sooo more than likely we will do it ourselves.....Can you tell me how much the helmet costs? I have heard #'s ranging from 2500-3500 dollars. I am shocked by ins. companies not wanting to cover this especially since they could be affecting the health of children later in their lives.....okay...off my soap box.... Domi

----- Original Message -----

From: Mathis

Plagiocephalyegroups

Sent: Friday, November 03, 2000 5:51 PM

Subject: Re: Hi....Kinda new here.... Domi-- Not to be butting in on your communication with others, but do you really want to wait for insurance?? If we had waited on ins., we would definitely still be waiting. . . Dominika White wrote:

Not sure....insurance is giving me the run around right now and cranial technologies is waiting for all of the records from Dr. Genecov's office to be sent....soooo at the rate that they work I would say in a month or so...LOL....no really I hope sooner.....I am anxious for her to be in this......How long has your little one had the helmet? domi

----- Original Message -----

From: & Kendra

Plagiocephalyegroups

Sent: Friday, November 03, 2000 5:36 PM

Subject: Re: Hi....Kinda new here.... Welcome back Domi! When does Aimee go for her casting? Kendra Dominika wrote: Hi everyone...I believe I had been a part of this group back in August when I was told by my daughters pediatrician that she needed a helmet. My daughter was then 6 months old.....We went to the craniofacial clinic here in Dallas, TX and were told after almost 3 weeks post a cat scan that my daughter did not have craniosynostosis and that she didn't need a helmet....whew...what a relief right? Well...as much as a relief that it was....last month at my daughters 9 month check up her pediatrician said...no no no...she needs a helmet...So we are now at square one again. I just recieved the prescription for the doc band from the craniofacial place...after waiting for them to do this for a MONTH....I am ticked to say the least.....I am praying to God that the ins. will pay for this but cranial technologies told me outright that it will be denied...so I don't have my hopes up in any way. So now my daughter is 10 months old....and she has an elongated head. I seem to notice it so much when she is playing in the bath and her hair is wet. It breaks my heart to think that the so called specialists said she was fine but were really just to lazy to do anything about it.....I am sorry I am going on like this.....I guess I should introduce ourselves.... My name is Dominika...Domi for short....I am married to and we have two kids.... who just turned 3 and Aimee who is 10 months old on the 5th. We live in the Dallas area. Once again thank you to all of you for your support. Domi

[Guest guest]

Kathy at CT would be able to answer that--but I think (gosh, I hope!) that

they will pay even after treatment begins. My neighbor has Cigna

and they denied it initially--haven't asked her about the appeal lately.

Will try to call her and ask.

Dominika White wrote:

wow...at

least it isn't 3500....we have Cigna for our insurance and they have been

super so far so I am praying to God that it goes through...BUT gut feeling

says they won't...too many stories from people with this type of insurance

claim has prepared me.....what about you? Oh and will ins. cover

something if you start paying on it by yourself? I guess I should

look into it.... domi

----- Original Message -----

From:

Mathis

Plagiocephalyegroups

Sent: Friday, November 03, 2000 6:17

PM

Subject: Re: Hi....Kinda

new here....

$2600--$600 down and $500 a month. We are paying ourselves

until we work it out with ins. What ins. do you have?? We actually

don't have our denial yet, but from what everyone says, I am expecting

it any day now (how's that for being pessimistic!!) Can I join you

on your soapbox. . .?? :-)

Dominika White wrote:

well, we

aren't sure yet...dh and I are going to talk about it tonite.....ins. told

me that they would cover it 100% BUT it has to be proven medically neccessary.....sooo

more than likely we will do it ourselves.....Can you tell me how much the

helmet costs? I have heard #'s ranging from 2500-3500 dollars.

I am shocked by ins. companies not wanting to cover this especially since

they could be affecting the health of children later in their lives.....okay...off

my soap box.... Domi

----- Original Message -----

From:

Mathis

Plagiocephalyegroups

Sent: Friday, November 03, 2000 5:51

PM

Subject: Re: Hi....Kinda

new here....

Domi--

Not to be butting in on your communication with others, but do you really

want to wait for insurance?? If we had waited on ins., we would definitely

still be waiting. . .

Dominika White wrote:

Not

sure....insurance is giving me the run around right now and cranial technologies

is waiting for all of the records from Dr. Genecov's office to be sent....soooo

at the rate that they work I would say in a month or so...LOL....no really

I hope sooner.....I am anxious for her to be in this......How long has

your little one had the helmet? domi

----- Original Message -----

From:

& Kendra

Plagiocephalyegroups

Sent: Friday, November 03, 2000 5:36

PM

Subject: Re: Hi....Kinda

new here....

Welcome back Domi!

When does Aimee go for her casting?

Kendra

Dominika wrote:

Hi everyone...I believe I had been a part of

this group back in

August when I was told by my daughters pediatrician that she needed

a

helmet. My daughter was then 6 months old.....We went to

the

craniofacial clinic here in Dallas, TX and were told after almost

3

weeks post a cat scan that my daughter did not have craniosynostosis

and that she didn't need a helmet....whew...what a relief right?

Well...as much as a relief that it was....last month at my daughters

9 month check up her pediatrician said...no no no...she needs a

helmet...So we are now at square one again. I just recieved

the

prescription for the doc band from the craniofacial place...after

waiting for them to do this for a MONTH....I am ticked to say the

least.....I am praying to God that the ins. will pay for this but

cranial technologies told me outright that it will be denied...so

I

don't have my hopes up in any way. So now my daughter is

10 months

old....and she has an elongated head. I seem to notice it

so much

when she is playing in the bath and her hair is wet. It breaks

my

heart to think that the so called specialists said she was fine

but

were really just to lazy to do anything about it.....I am sorry

I am

going on like this.....I guess I should introduce ourselves....

My name is Dominika...Domi for short....I am married to and

we

have two kids.... who just turned 3 and Aimee who is 10

months

old on the 5th. We live in the Dallas area.

Once again thank you to all of you for your support.

Domi

[Guest guest]

Domi:

Hanna graduated at the end of September. She wore her band for

5 months. Her head is not perfect now, but much improved!

Kendra

Dominika White wrote:

Not

sure....insurance is giving me the run around right now and cranial technologies

is waiting for all of the records from Dr. Genecov's office to be sent....soooo

at the rate that they work I would say in a month or so...LOL....no really

I hope sooner.....I am anxious for her to be in this......How long has

your little one had the helmet? domi

----- Original Message -----

From:

& Kendra

Plagiocephalyegroups

Sent: Friday, November 03, 2000 5:36

PM

Subject: Re: Hi....Kinda

new here....

Welcome back Domi!

When does Aimee go for her casting?

Kendra

Dominika wrote:

Hi everyone...I believe I had been a part of

this group back in

August when I was told by my daughters pediatrician that she needed

a

helmet. My daughter was then 6 months old.....We went to

the

craniofacial clinic here in Dallas, TX and were told after almost

3

weeks post a cat scan that my daughter did not have craniosynostosis

and that she didn't need a helmet....whew...what a relief right?

Well...as much as a relief that it was....last month at my daughters

9 month check up her pediatrician said...no no no...she needs a

helmet...So we are now at square one again. I just recieved

the

prescription for the doc band from the craniofacial place...after

waiting for them to do this for a MONTH....I am ticked to say the

least.....I am praying to God that the ins. will pay for this but

cranial technologies told me outright that it will be denied...so

I

don't have my hopes up in any way. So now my daughter is

10 months

old....and she has an elongated head. I seem to notice it

so much

when she is playing in the bath and her hair is wet. It breaks

my

heart to think that the so called specialists said she was fine

but

were really just to lazy to do anything about it.....I am sorry

I am

going on like this.....I guess I should introduce ourselves....

My name is Dominika...Domi for short....I am married to and

we

have two kids.... who just turned 3 and Aimee who is 10

months

old on the 5th. We live in the Dallas area.

Once again thank you to all of you for your support.

Domi

[Guest guest]

Domi,

I know it's frustrating and I'm so sorry you are having to go through this. Please know that it's not too late for your daughter. My son was almost 10 months before he got the DOC Band and we have seen lots of improvement in the past 2 months. Also, I know that the DOC Band is very expensive (esp. if ins. won't pay) so you may want to look into the Starband made by Orthomerica. I know that other people in this group have had success with this band and that it costs much less than the DOC Band. It's worth looking into.

You may want to look in the files section, there is some information about ins. maybe someone with the same insurance provider has already won the battle!!

Your are in my thoughts and prayers!

(Hunter's mom)

nal Message-----

From: Dominika [sMTP:dominika@...]

Sent: Friday, November 03, 2000 1:37 PM

Plagiocephalyegroups

Subject: Hi....Kinda new here....

Hi everyone...I believe I had been a part of this group back in

August when I was told by my daughters pediatrician that she needed a

helmet. My daughter was then 6 months old.....We went to the

craniofacial clinic here in Dallas, TX and were told after almost 3

weeks post a cat scan that my daughter did not have craniosynostosis

and that she didn't need a helmet....whew...what a relief right?

Well...as much as a relief that it was....last month at my daughters

9 month check up her pediatrician said...no no no...she needs a

helmet...So we are now at square one again. I just recieved the

prescription for the doc band from the craniofacial place...after

waiting for them to do this for a MONTH....I am ticked to say the

least.....I am praying to God that the ins. will pay for this but

cranial technologies told me outright that it will be denied...so I

don't have my hopes up in any way. So now my daughter is 10 months

old....and she has an elongated head. I seem to notice it so much

when she is playing in the bath and her hair is wet. It breaks my

heart to think that the so called specialists said she was fine but

were really just to lazy to do anything about it.....I am sorry I am

going on like this.....I guess I should introduce ourselves....

My name is Dominika...Domi for short....I am married to and we

have two kids.... who just turned 3 and Aimee who is 10 months

old on the 5th. We live in the Dallas area.

Once again thank you to all of you for your support.

Domi

-------------------------- eGroups Sponsor -------------------------~-~>

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[Guest guest]

Thanks for the info on the star band...gonna look into it if ins. doesn't want to cover the DOC band.

Domi

----- Original Message -----

From: Cummings-Hall,

'Plagiocephalyegroups'

Sent: Monday, November 06, 2000 8:58 AM

Subject: RE: Hi....Kinda new here....

Domi,

I know it's frustrating and I'm so sorry you are having to go through this. Please know that it's not too late for your daughter. My son was almost 10 months before he got the DOC Band and we have seen lots of improvement in the past 2 months. Also, I know that the DOC Band is very expensive (esp. if ins. won't pay) so you may want to look into the Starband made by Orthomerica. I know that other people in this group have had success with this band and that it costs much less than the DOC Band. It's worth looking into.

You may want to look in the files section, there is some information about ins. maybe someone with the same insurance provider has already won the battle!!

Your are in my thoughts and prayers!

(Hunter's mom)

nal Message----- From: Dominika [sMTP:dominika@...] Sent: Friday, November 03, 2000 1:37 PM Plagiocephalyegroups Subject: Hi....Kinda new here....

Hi everyone...I believe I had been a part of this group back in August when I was told by my daughters pediatrician that she needed a helmet. My daughter was then 6 months old.....We went to the craniofacial clinic here in Dallas, TX and were told after almost 3 weeks post a cat scan that my daughter did not have craniosynostosis and that she didn't need a helmet....whew...what a relief right? Well...as much as a relief that it was....last month at my daughters 9 month check up her pediatrician said...no no no...she needs a helmet...So we are now at square one again. I just recieved the prescription for the doc band from the craniofacial place...after waiting for them to do this for a MONTH....I am ticked to say the least.....I am praying to God that the ins. will pay for this but cranial technologies told me outright that it will be denied...so I don't have my hopes up in any way. So now my daughter is 10 months old....and she has an elongated head. I seem to notice it so much when she is playing in the bath and her hair is wet. It breaks my heart to think that the so called specialists said she was fine but were really just to lazy to do anything about it.....I am sorry I am going on like this.....I guess I should introduce ourselves....

My name is Dominika...Domi for short....I am married to and we have two kids.... who just turned 3 and Aimee who is 10 months old on the 5th. We live in the Dallas area.

Once again thank you to all of you for your support.

Domi

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