Re: where to go from here?

January 29, 2005

I don't remember where you are located or what your disgnosis is. We may be able to suggest some docs who will help you. None of them are likely to be endos. . . .

Who is the endo who fired you? It would be good if you fill out the database form on this doc. You are completely anonymous when you do so. Not even the moderators can find out who rated a doc unless they tell us. mycatmiller wrote:

I got "fired" by my endo today. She said that she has done all that she can for me--"its not my thyroid". She thinks I have a mood disorder and told me to get a 2nd opinion from another endo. She said that if the 2nd opinion found something that she missed to let her know and she will apologize. What a comfort, huh?Also said that I might have to go to nutritional doctor (which I have gone to a homeopath nurse) that uses biodentical hormones and saliva testing. I read in my chart that she wrote "no follow up here". (Note: my saliva cortisol and DHEAS were elevated)I mentioned to her that I wanted my prolactin, ACTH, CRH and cortisol tested. I think she saw that I was doing my homework and didn't like it. She apparently doesn't want to deal with it. Sound

familiar?My TSH came back at 2.46. I asked her is she was aware that the levels have been lowered to 3.0. No comment. Maybe she is brainwashed by insurance companies, you think?I am taking .075 levoxyl and have tried Armour, by itself, and cytomel too. Both made me feel worse. I haven't tried Armour ALONG with the levoxyl, so I asked her if she could prescribe it. She said that she doesn't do the two together. Whats up with that?What do you think about ear nose and throat doc? My daughter's ENT said that he treats thyroid patients. Maybe he could do more lab work to solve this mystery as to why I don't feel so good.My TSH is still high, to me---where should I go from here?Thanks!__________________________________________________

January 29, 2005

I don't remember where you are located or what your disgnosis is. We may be able to suggest some docs who will help you. None of them are likely to be endos. . . .

Who is the endo who fired you? It would be good if you fill out the database form on this doc. You are completely anonymous when you do so. Not even the moderators can find out who rated a doc unless they tell us. mycatmiller wrote:

I got "fired" by my endo today. She said that she has done all that she can for me--"its not my thyroid". She thinks I have a mood disorder and told me to get a 2nd opinion from another endo. She said that if the 2nd opinion found something that she missed to let her know and she will apologize. What a comfort, huh?Also said that I might have to go to nutritional doctor (which I have gone to a homeopath nurse) that uses biodentical hormones and saliva testing. I read in my chart that she wrote "no follow up here". (Note: my saliva cortisol and DHEAS were elevated)I mentioned to her that I wanted my prolactin, ACTH, CRH and cortisol tested. I think she saw that I was doing my homework and didn't like it. She apparently doesn't want to deal with it. Sound

familiar?My TSH came back at 2.46. I asked her is she was aware that the levels have been lowered to 3.0. No comment. Maybe she is brainwashed by insurance companies, you think?I am taking .075 levoxyl and have tried Armour, by itself, and cytomel too. Both made me feel worse. I haven't tried Armour ALONG with the levoxyl, so I asked her if she could prescribe it. She said that she doesn't do the two together. Whats up with that?What do you think about ear nose and throat doc? My daughter's ENT said that he treats thyroid patients. Maybe he could do more lab work to solve this mystery as to why I don't feel so good.My TSH is still high, to me---where should I go from here?Thanks!__________________________________________________

January 29, 2005

I am in San . I have Hashimotos. Can you suggest someone?

Thanks for your help....I want to fill out database on this doc.

Thanks again!

> I got " fired " by my endo today. She said that she has done all

that

> she can for me-- " its not my thyroid " . She thinks I have a mood

> disorder and told me to get a 2nd opinion from another endo. She

> said that if the 2nd opinion found something that she missed to

let

> her know and she will apologize. What a comfort, huh?

>

> Also said that I might have to go to nutritional doctor (which I

> have gone to a homeopath nurse) that uses biodentical hormones and

> saliva testing. I read in my chart that she wrote " no follow up

> here " . (Note: my saliva cortisol and DHEAS were elevated)

>

> I mentioned to her that I wanted my prolactin, ACTH, CRH and

> cortisol tested. I think she saw that I was doing my homework and

> didn't like it. She apparently doesn't want to deal with it.

Sound

> familiar?

>

> My TSH came back at 2.46. I asked her is she was aware that the

> levels have been lowered to 3.0. No comment. Maybe she is

> brainwashed by insurance companies, you think?

>

> I am taking .075 levoxyl and have tried Armour, by itself, and

> cytomel too. Both made me feel worse. I haven't tried Armour

ALONG

> with the levoxyl, so I asked her if she could prescribe it. She

> said that she doesn't do the two together. Whats up with that?

>

> What do you think about ear nose and throat doc? My daughter's

ENT

> said that he treats thyroid patients. Maybe he could do more lab

> work to solve this mystery as to why I don't feel so good.

>

> My TSH is still high, to me---where should I go from here?

>

> Thanks!

> __________________________________________________

>

January 29, 2005

I am in San . I have Hashimotos. Can you suggest someone?

Thanks for your help....I want to fill out database on this doc.

Thanks again!

> I got " fired " by my endo today. She said that she has done all

that

> she can for me-- " its not my thyroid " . She thinks I have a mood

> disorder and told me to get a 2nd opinion from another endo. She

> said that if the 2nd opinion found something that she missed to

let

> her know and she will apologize. What a comfort, huh?

>

> Also said that I might have to go to nutritional doctor (which I

> have gone to a homeopath nurse) that uses biodentical hormones and

> saliva testing. I read in my chart that she wrote " no follow up

> here " . (Note: my saliva cortisol and DHEAS were elevated)

>

> I mentioned to her that I wanted my prolactin, ACTH, CRH and

> cortisol tested. I think she saw that I was doing my homework and

> didn't like it. She apparently doesn't want to deal with it.

Sound

> familiar?

>

> My TSH came back at 2.46. I asked her is she was aware that the

> levels have been lowered to 3.0. No comment. Maybe she is

> brainwashed by insurance companies, you think?

>

> I am taking .075 levoxyl and have tried Armour, by itself, and

> cytomel too. Both made me feel worse. I haven't tried Armour

ALONG

> with the levoxyl, so I asked her if she could prescribe it. She

> said that she doesn't do the two together. Whats up with that?

>

> What do you think about ear nose and throat doc? My daughter's

ENT

> said that he treats thyroid patients. Maybe he could do more lab

> work to solve this mystery as to why I don't feel so good.

>

> My TSH is still high, to me---where should I go from here?

>

> Thanks!

> __________________________________________________

>

January 29, 2005

After 3

years fighting with my endo and internist, I went to the Top Docs list on

About.Thyroid and got a list of names.

I wrote letters to each one and only one replied back. His name is Aydin Ozan. He’s an internist. He called me

personally and talked to me for a good half hour before setting up an

appointment. For the first time I’ve found someone

who listens and is not too arrogant to consider that I may know my body more

than a doctor. He’s been willing

to do any tests I’ve asked for. I’ve

been having trouble with thyroid, perimenopause, and anemia, and he’s has

tested me for all of these and organized a plan to bring me to optimum

health. I’ve been seeing him since

October and so far I’ve never felt better.

In

November my Dad died and I was a wreck.

I called and asked him for a Rx for a tranquilizer. Since it was the weekend I left a

message on the answering machine.

He checked his messages that day and called me on Sunday. He also gave me his cell phone number

in case I had trouble getting the Rx filled.

His office

is a good distance from my house and he doesn’t require me to come in everytime

I get labs done. I get the blood drawn at a nearby lab & he even said that

if it was cheaper I could get my labs done by one of the internet services and

just send a copy of the results to him.

Even though he doesn’t take my insurance his office only charged me my

usual co-pay for the first visit (which is always the most comprehensive and

expensive). Other than that the

usual charge is $70, but since he doesn’t make me come in each time (I get labs

every 3-4 weeks until all my stats stabilize), it doesn’t seem to expensive.

Does any

of this prove that he’s a good thyroid doc? Heck, he’s the only one who would give me the correct lab to

determine Graves and wasn’t afraid to confirm that I had been misdiagnosed four

years ago. I was told I had Graves

without the proper antibodies test and talked into having RAI ablation. I’ve been sick as a dog ever since. He’s really helping me and is very

patient. He’s got a very quiet and

sweet temperament. Sometimes I

think thyroid patients need that more than some arrogant endo who thinks he

knows it all and doesn’t give a flake about us as people. I’ve had two endos, the one who screwed

me over in Dallas and a “Top Doc” here in San . All the SA Top Doc wanted to do was

have my uterus ripped out. Fired

him after 3 years and told his nurse why.

He never responded.

Anyway, if

you want to check him out, his phone # is: . 10350 Bandera Rd., Suite 130, San Ant.

78250.

Good luck

& God bless.

Janet

January 30, 2005

Oh, I

forgot, Dr. Ozan, my current doc asked me when I originally spoke with him, if

anyone had ever suggested cytomel or armour as a treatment. Bowled me over!! When he transferred me

to the nurse to set up an appointment I asked her if he was an M.D. Sure enough he is and he DOES prescribe

natural hormones, both thyroid and female. At this time, until I get back on my feet and my other

hormones decide what they’re going to do, I’m going to stay on the

levoxyl. One step at a time!

Janet

January 30, 2005

Oh, I

forgot, Dr. Ozan, my current doc asked me when I originally spoke with him, if

anyone had ever suggested cytomel or armour as a treatment. Bowled me over!! When he transferred me

to the nurse to set up an appointment I asked her if he was an M.D. Sure enough he is and he DOES prescribe

natural hormones, both thyroid and female. At this time, until I get back on my feet and my other

hormones decide what they’re going to do, I’m going to stay on the

levoxyl. One step at a time!

Janet

January 30, 2005

I’m currently

taking levoxyl. I had been on

synthroid but did not do well. Too

many wild fluctuations from month to month. The endo here in SA wouldn’t even discuss Armour or

Natuthroid and I was too sick to argue with him at the time. There’s a very long story that goes

with all this, involving being on oral contraceptives, getting off, getting on

estradiol (unopposed), back on OC’s, off again. All in the past 15 months. This caused my TSH to go from hyper to hypo to hyper

again. The SA endo said to have a

hysterectomy. GYN says hysterectomy

not indicated. Internist said she

can’t deal with any of this, I just have to get endo and GYN to work together. To heck with that, I decided to find a

doctor who could handle the thyroid, hormones, anemia, and high blood pressure all at one time. That’s who I’m with now, with support

from the same Gyn, who’s a real sweetheart.

Anyway, to

answer your other questions: The

Dallas doc is a Dr. Lakhian, a female no less, in practice with a Dr. Sorsby,

whom I had originally sought out but was unavailable for months. I’d just had a hyperthyroid incident that landed me in

the emergency room, did not want to wait anymore. I believe they are the Endocrine Associates of Dallas or

North Texas, on Forest Lane.

The “Top Doc”

here in San is Dons.

Now I really liked him until he started pressuring me to have a

hysterectomy every time I saw him.

I asked him to stop but he did not. He’s also the one who put me on estradiol instead of

adjusting my thyroid meds in order to “tweak”, as he put it, my TSH. Almost bled to death and now am

bouncing back from some serious anemia.

Janet

January 30, 2005

I have heard bad reports on Lahkian and Sorsby. . . .and almost all of the endos in the DFW area. . . . .This includes those on Shomon's Top Doc List. Even the few who are willing to Rx Cytomel or Armour tend to keep their patients grossly undermedicated due to their religion: worship of the Holy TSH! The one DFW endo we are looking at who may be OK is Exstrum, but the jury is still out.

Please fill out the database for each of these docs. For the very worst ones, there is also a site where you can describe your experiences with these bozos. . . .

Here is that link:

List of Docs to AvoidRead and post about negative thyroid doctor experiences on this site.http://www.voy.com/171167/ Janet McConnell wrote:

I’m currently taking levoxyl. I had been on synthroid but did not do well. Too many wild fluctuations from month to month. The endo here in SA wouldn’t even discuss Armour or Natuthroid and I was too sick to argue with him at the time. There’s a very long story that goes with all this, involving being on oral contraceptives, getting off, getting on estradiol (unopposed), back on OC’s, off again. All in the past 15 months. This caused my TSH to go from hyper to hypo to hyper again. The SA endo said to have a

hysterectomy. GYN says hysterectomy not indicated. Internist said she can’t deal with any of this, I just have to get endo and GYN to work together. To heck with that, I decided to find a doctor who could handle the thyroid, hormones, anemia, and high blood pressure all at one time. That’s who I’m with now, with support from the same Gyn, who’s a real sweetheart.

Anyway, to answer your other questions: The Dallas doc is a Dr. Lakhian, a female no less, in practice with a Dr. Sorsby, whom I had originally sought out but was unavailable for months. I’d just had a hyperthyroid incident that landed me in the emergency room, did not want to wait anymore. I believe they are the Endocrine Associates of Dallas or North Texas, on Forest Lane.

The “Top Doc” here in San is Dons. Now I really liked him until he started pressuring me to have a hysterectomy every time I saw him. I asked him to stop but he did not. He’s also the one who put me on estradiol instead of adjusting my thyroid meds in order to “tweak”, as he put it, my TSH. Almost bled to death and now am bouncing back from some serious anemia.

Janet__________________________________________________

January 30, 2005

I have heard bad reports on Lahkian and Sorsby. . . .and almost all of the endos in the DFW area. . . . .This includes those on Shomon's Top Doc List. Even the few who are willing to Rx Cytomel or Armour tend to keep their patients grossly undermedicated due to their religion: worship of the Holy TSH! The one DFW endo we are looking at who may be OK is Exstrum, but the jury is still out.

Please fill out the database for each of these docs. For the very worst ones, there is also a site where you can describe your experiences with these bozos. . . .

Here is that link:

List of Docs to AvoidRead and post about negative thyroid doctor experiences on this site.http://www.voy.com/171167/ Janet McConnell wrote:

I’m currently taking levoxyl. I had been on synthroid but did not do well. Too many wild fluctuations from month to month. The endo here in SA wouldn’t even discuss Armour or Natuthroid and I was too sick to argue with him at the time. There’s a very long story that goes with all this, involving being on oral contraceptives, getting off, getting on estradiol (unopposed), back on OC’s, off again. All in the past 15 months. This caused my TSH to go from hyper to hypo to hyper again. The SA endo said to have a

hysterectomy. GYN says hysterectomy not indicated. Internist said she can’t deal with any of this, I just have to get endo and GYN to work together. To heck with that, I decided to find a doctor who could handle the thyroid, hormones, anemia, and high blood pressure all at one time. That’s who I’m with now, with support from the same Gyn, who’s a real sweetheart.

Anyway, to answer your other questions: The Dallas doc is a Dr. Lakhian, a female no less, in practice with a Dr. Sorsby, whom I had originally sought out but was unavailable for months. I’d just had a hyperthyroid incident that landed me in the emergency room, did not want to wait anymore. I believe they are the Endocrine Associates of Dallas or North Texas, on Forest Lane.

The “Top Doc” here in San is Dons. Now I really liked him until he started pressuring me to have a hysterectomy every time I saw him. I asked him to stop but he did not. He’s also the one who put me on estradiol instead of adjusting my thyroid meds in order to “tweak”, as he put it, my TSH. Almost bled to death and now am bouncing back from some serious anemia.

Janet__________________________________________________

January 30, 2005

His

credentials are exactly why I chose to write to him….no more endos for me! There’s nothing they can do, except the

radiology part of it, that any up-to-date internist can’t do, or GP for that

matter. Endos don’t seem to want

to deal with people they can’t easily treat and dismiss. Even Lakhian in Dallas told me that I

didn’t need her once I started meds (translate: I don’t want to see YOU anymore, can’t deal with it.) A teachable, well-informed and

compassionate internist is worth 1000 specialists as far as I’m concerned.

When I had

my last TSH I was down to .53 from 11.7.

Dr. Ozan said that this was in the normal range and that he’d really

like to concentrate on getting my anemia taken care of. When I explained what my optimal TSH

range is (1.2-1.7) and that I suffer significant symptoms when I go the

slightest bit out of 1.0 and 2.0, he immediately sat down and figured out how

to adjust my dose of levoxyl without causing another wild swing and told me to

get checked again in 4 weeks, (I respond very quickly to any changes in my

dose). My other doctors would not

have listened, would have offered antidepressants, and I would not be feeling

as good as I am today (not 100% yet, but feeling hopeful for the first time in

four years!)

I think

that with my experiences, all the research I’ve done, and communication with

other thyroid patients on Shomon’s site, I’m at a place where I can say, “Listen to ME, do the proper labs, write a proper

prescription. I’ll call you when I

need you.” Ozan fits

the bill for me.

BTW, you

have Dr. Noble in on your Top Doc list and I just want to give

him two “Thumbs Up!”. When I first

presented with thyroid symptoms my doctors were useless. I knew him from taking my kids to him

for allergy treatment. He wasn’t

on our insurance so I went just for a consultation and he told me immediately

that he strongly suspected hyperthyroid and told me to go back to my internist

(Dallas) and ask for the proper tests (for insurance coverage). He offered to contact her himself and

tell her what he thought. Well,

the correct tests were done and an apology was given. Unfortunately, I didn’t consult with Dr. Noble again after

my scan & uptake. I just went

willie-nillie back to Lakhian and had my thyroid nuked. Still kicking myself in the butt over

that one. When I moved here to SA

4 months later and couldn’t find a decent doctor or get my TSH to stay in a

decent range, I wrote to Noble telling him what was going on and he actually

called me long distance to give me guidance and encouragement!

Janet

January 30, 2005

This sounds so typical of San doctors ... an endo who thinks

he's a gynecologist. A gynecologist who doesn't want to touch

anybody's uterus. An internist who throws his hands up into the

air, and each one wanting to shuffle the patient off onto the next

one, and nobody wanting to work together for the welfare of the

patient. It's like a merry-go-round out there! Sorry, I just had

to jump in with my 2 cents after having gone round and round and

round with this. ARGH!

Why was Dr. Dons pushing for a hysterectomy?

All in the past 15 months. This caused my TSH to

> go from hyper to hypo to hyper again. The SA endo said to have a

> hysterectomy. GYN says hysterectomy not indicated. Internist

said she can'

> t deal with any of this, I just have to get endo and GYN to work

together.

> To heck with that, I decided to find a doctor who could handle the

thyroid,

> hormones, anemia, and high blood pressure all at one time.

That's who I'm

> with now, with support from the same Gyn, who's a real sweetheart.

>

> Anyway, to answer your other questions: The Dallas doc is a Dr.

Lakhian, a

> female no less, in practice with a Dr. Sorsby, whom I had

originally sought

> out but was unavailable for months. I'd just had a hyperthyroid

incident

> that landed me in the emergency room, did not want to wait

anymore. I

> believe they are the Endocrine Associates of Dallas or North

Texas, on

> Forest Lane.

>

> The " Top Doc " here in San is Dons. Now I really

liked him

> until he started pressuring me to have a hysterectomy every time I

saw him.

> I asked him to stop but he did not. He's also the one who put me

on

> estradiol instead of adjusting my thyroid meds in order

to " tweak " , as he

> put it, my TSH. Almost bled to death and now am bouncing back

from some

> serious anemia.

>

> Janet

January 30, 2005

Yes, please share with us who this endo is in San

who " fired " you. It's obvious from her treatment of you that anyone

in S.A. with thyroid problems should steer clear of this one. Let

us know what you decide to do. Maybe try Janet's new Dr. on

Bandera???

> > I got " fired " by my endo today. She said that she has done all

> that

> > she can for me-- " its not my thyroid " . She thinks I have a mood

> > disorder and told me to get a 2nd opinion from another endo.

She

> > said that if the 2nd opinion found something that she missed to

> let

> > her know and she will apologize. What a comfort, huh?

> >

> > Also said that I might have to go to nutritional doctor (which I

> > have gone to a homeopath nurse) that uses biodentical hormones

and

> > saliva testing. I read in my chart that she wrote " no follow up

> > here " . (Note: my saliva cortisol and DHEAS were elevated)

> >

> > I mentioned to her that I wanted my prolactin, ACTH, CRH and

> > cortisol tested. I think she saw that I was doing my homework

and

> > didn't like it. She apparently doesn't want to deal with it.

> Sound

> > familiar?

> >

> > My TSH came back at 2.46. I asked her is she was aware that the

> > levels have been lowered to 3.0. No comment. Maybe she is

> > brainwashed by insurance companies, you think?

> >

> > I am taking .075 levoxyl and have tried Armour, by itself, and

> > cytomel too. Both made me feel worse. I haven't tried Armour

> ALONG

> > with the levoxyl, so I asked her if she could prescribe it. She

> > said that she doesn't do the two together. Whats up with that?

> >

> > What do you think about ear nose and throat doc? My daughter's

> ENT

> > said that he treats thyroid patients. Maybe he could do more

lab

> > work to solve this mystery as to why I don't feel so good.

> >

> > My TSH is still high, to me---where should I go from here?

> >

> > Thanks!

> > __________________________________________________

> >

January 30, 2005

Yes, please share with us who this endo is in San

who " fired " you. It's obvious from her treatment of you that anyone

in S.A. with thyroid problems should steer clear of this one. Let

us know what you decide to do. Maybe try Janet's new Dr. on

Bandera???

> > I got " fired " by my endo today. She said that she has done all

> that

> > she can for me-- " its not my thyroid " . She thinks I have a mood

> > disorder and told me to get a 2nd opinion from another endo.

She

> > said that if the 2nd opinion found something that she missed to

> let

> > her know and she will apologize. What a comfort, huh?

> >

> > Also said that I might have to go to nutritional doctor (which I

> > have gone to a homeopath nurse) that uses biodentical hormones

and

> > saliva testing. I read in my chart that she wrote " no follow up

> > here " . (Note: my saliva cortisol and DHEAS were elevated)

> >

> > I mentioned to her that I wanted my prolactin, ACTH, CRH and

> > cortisol tested. I think she saw that I was doing my homework

and

> > didn't like it. She apparently doesn't want to deal with it.

> Sound

> > familiar?

> >

> > My TSH came back at 2.46. I asked her is she was aware that the

> > levels have been lowered to 3.0. No comment. Maybe she is

> > brainwashed by insurance companies, you think?

> >

> > I am taking .075 levoxyl and have tried Armour, by itself, and

> > cytomel too. Both made me feel worse. I haven't tried Armour

> ALONG

> > with the levoxyl, so I asked her if she could prescribe it. She

> > said that she doesn't do the two together. Whats up with that?

> >

> > What do you think about ear nose and throat doc? My daughter's

> ENT

> > said that he treats thyroid patients. Maybe he could do more

lab

> > work to solve this mystery as to why I don't feel so good.

> >

> > My TSH is still high, to me---where should I go from here?

> >

> > Thanks!

> > __________________________________________________

> >

January 30, 2005

Yes, please share with us who this endo is in San

who " fired " you. It's obvious from her treatment of you that anyone

in S.A. with thyroid problems should steer clear of this one. Let

us know what you decide to do. Maybe try Janet's new Dr. on

Bandera???

> > I got " fired " by my endo today. She said that she has done all

> that

> > she can for me-- " its not my thyroid " . She thinks I have a mood

> > disorder and told me to get a 2nd opinion from another endo.

She

> > said that if the 2nd opinion found something that she missed to

> let

> > her know and she will apologize. What a comfort, huh?

> >

> > Also said that I might have to go to nutritional doctor (which I

> > have gone to a homeopath nurse) that uses biodentical hormones

and

> > saliva testing. I read in my chart that she wrote " no follow up

> > here " . (Note: my saliva cortisol and DHEAS were elevated)

> >

> > I mentioned to her that I wanted my prolactin, ACTH, CRH and

> > cortisol tested. I think she saw that I was doing my homework

and

> > didn't like it. She apparently doesn't want to deal with it.

> Sound

> > familiar?

> >

> > My TSH came back at 2.46. I asked her is she was aware that the

> > levels have been lowered to 3.0. No comment. Maybe she is

> > brainwashed by insurance companies, you think?

> >

> > I am taking .075 levoxyl and have tried Armour, by itself, and

> > cytomel too. Both made me feel worse. I haven't tried Armour

> ALONG

> > with the levoxyl, so I asked her if she could prescribe it. She

> > said that she doesn't do the two together. Whats up with that?

> >

> > What do you think about ear nose and throat doc? My daughter's

> ENT

> > said that he treats thyroid patients. Maybe he could do more

lab

> > work to solve this mystery as to why I don't feel so good.

> >

> > My TSH is still high, to me---where should I go from here?

> >

> > Thanks!

> > __________________________________________________

> >

January 30, 2005

In 1998,

at age 44, I bled so heavily that I narrowly escaped a transfusion. I was put on birth control to

regulate my periods. I had a

really good GYN (Dallas) and she did every test imaginable and declared my

uterus healthy, however I had estrogen dominance and that’s what caused the

heavy, prolonged periods. After my

blood count returned to normal I tried Dr. Lee’s approach with natural

progesterone cream and got off the pill, but in 5 months it all came back.

Last October

(2003) my blood pressure started going up, so my new GYN (SA) took me off the

pill again and tested my hormone levels.

She also did ultrasounds and a biopsy and once again my uterus was

diagnosed as healthy. I was at the threshold of menopause.

Within one

month of getting off the pill my TSH went from 2.99 (too high for me) to .06

(way too low). My endo took me off

levoxyl for about 2 weeks, at the end of which time I went in to see him. He put me on a reduced dose of levoxyl

and told me that I should consider a hysterectomy because of my age (50 at the

time) and the effect that estrogen has on thyroid hormones. (So,

like no one has hormone problems after a hysterectomy???) In three months time on the reduced dose,

my TSH was still too low and I was having a lot of hyper symptoms. He didn’t want to change the levoxyl

dose, .100, so he figured a low dose of estrogen, unopposed, would “tweak” my

TSH.

Three

weeks after starting the estradiol I began to bleed with a vengeance. My ferritin bottomed out and I was

anemic again. The GYN said to get

back on the pill to regulate again and then we’d decide what to do once the

anemia was gone. She said that due

to my age and being so close to menopause, there was no reason for a

hysterectomy.

When I

talked to the endo about all this he said, “So,

when are you going to get that nasty old uterus taken out?” I swear that’s word for word. I told him that my GYN said there was

no need, that it is a healthy organ.

He said that he realized that he couldn’t talk me into it over the

phone….we’d discuss it at our next visit.

Well, I haven’t been back since.

I can’t see paying all that money to him just to argue over something

that’s none of his business.

That’s why, when my PCP worthless internist said that I need to get my

GYN and endo to work together, I dumped her too. Besides, I thought that was the PCP’s job! Pull it all together!

I love my

GYN and still see her, and she and my new internist will work well together if

need be. She’ll do all the below

the waist stuff and he does all the above the waist. I know that if either of them needs to question the other it

will be cool.

Janet

Actually,

the short answer to your question, why did Dr. Dons want me to have a hysterectomy?? NO PARTICULAR REASON!!

January 30, 2005

In 1998,

at age 44, I bled so heavily that I narrowly escaped a transfusion. I was put on birth control to

regulate my periods. I had a

really good GYN (Dallas) and she did every test imaginable and declared my

uterus healthy, however I had estrogen dominance and that’s what caused the

heavy, prolonged periods. After my

blood count returned to normal I tried Dr. Lee’s approach with natural

progesterone cream and got off the pill, but in 5 months it all came back.

Last October

(2003) my blood pressure started going up, so my new GYN (SA) took me off the

pill again and tested my hormone levels.

She also did ultrasounds and a biopsy and once again my uterus was

diagnosed as healthy. I was at the threshold of menopause.

Within one

month of getting off the pill my TSH went from 2.99 (too high for me) to .06

(way too low). My endo took me off

levoxyl for about 2 weeks, at the end of which time I went in to see him. He put me on a reduced dose of levoxyl

and told me that I should consider a hysterectomy because of my age (50 at the

time) and the effect that estrogen has on thyroid hormones. (So,

like no one has hormone problems after a hysterectomy???) In three months time on the reduced dose,

my TSH was still too low and I was having a lot of hyper symptoms. He didn’t want to change the levoxyl

dose, .100, so he figured a low dose of estrogen, unopposed, would “tweak” my

TSH.

Three

weeks after starting the estradiol I began to bleed with a vengeance. My ferritin bottomed out and I was

anemic again. The GYN said to get

back on the pill to regulate again and then we’d decide what to do once the

anemia was gone. She said that due

to my age and being so close to menopause, there was no reason for a

hysterectomy.

When I

talked to the endo about all this he said, “So,

when are you going to get that nasty old uterus taken out?” I swear that’s word for word. I told him that my GYN said there was

no need, that it is a healthy organ.

He said that he realized that he couldn’t talk me into it over the

phone….we’d discuss it at our next visit.

Well, I haven’t been back since.

I can’t see paying all that money to him just to argue over something

that’s none of his business.

That’s why, when my PCP worthless internist said that I need to get my

GYN and endo to work together, I dumped her too. Besides, I thought that was the PCP’s job! Pull it all together!

I love my

GYN and still see her, and she and my new internist will work well together if

need be. She’ll do all the below

the waist stuff and he does all the above the waist. I know that if either of them needs to question the other it

will be cool.

Janet

Actually,

the short answer to your question, why did Dr. Dons want me to have a hysterectomy?? NO PARTICULAR REASON!!

January 31, 2005

Janet,

Oh gosh, you poor thing! And I thought I had been through it! I

have never in my life heard of a doctor trying to " tweak " a TSH with

estrogen! Oh my goodness. Estrogen does bind with thyroid hormone

but I can't believe a doctor prescribing it to a patient with

estrogen dominant symptoms! I'm trying the natural progesterone

cream route too because of heavy bleeding and pelvic pain. I've had

two laparoscopic surgeries with no success. After the first lap, I

was told I have a " small " fibroid tumor and not to worry about it.

Last week, I went for my annual gyn exam and pap smear. She decided

to have an ultrasound done to check the lining of my uterus since I

had just had a period and it is not supposed to be thick. Well, the

ultrasound technician said my lining was VERY thick and that I had

substantial fibroids " everywhere, " even towards the back (and gee I

wonder why my lower back has been hurting for weeks). The doctor

was supposed to call me with the results and did leave one message

but I haven't been able to get ahold of her. Now what? I didn't

mean to interject with my own problems but I'm feeling kinda

panicky. Can't afford a THIRD surgery and where did all those

fibroids come from all of a sudden?!

Are you back on the pill now?

> In 1998, at age 44, I bled so heavily that I narrowly escaped a

transfusion.

> I was put on birth control to regulate my periods. I had a really

good GYN

> (Dallas) and she did every test imaginable and declared my uterus

healthy,

> however I had estrogen dominance and that's what caused the heavy,

prolonged

> periods. After my blood count returned to normal I tried Dr.

Lee's

> approach with natural progesterone cream and got off the pill, but

in 5

> months it all came back.

>

> Last October (2003) my blood pressure started going up, so my new

GYN (SA)

> took me off the pill again and tested my hormone levels. She also

did

> ultrasounds and a biopsy and once again my uterus was diagnosed

as healthy.

> I was at the threshold of menopause.

>

> Within one month of getting off the pill my TSH went from 2.99

(too high for

> me) to .06 (way too low). My endo took me off levoxyl for about 2

weeks, at

> the end of which time I went in to see him. He put me on a

reduced dose of

> levoxyl and told me that I should consider a hysterectomy because

of my age

> (50 at the time) and the effect that estrogen has on thyroid

hormones. (So,

> like no one has hormone problems after a hysterectomy???) In

three months

> time on the reduced dose, my TSH was still too low and I was

having a lot of

> hyper symptoms. He didn't want to change the levoxyl dose, .100,

so he

> figured a low dose of estrogen, unopposed, would " tweak " my TSH.

>

> Three weeks after starting the estradiol I began to bleed with a

vengeance.

> My ferritin bottomed out and I was anemic again. The GYN said to

get back

> on the pill to regulate again and then we'd decide what to do once

the

> anemia was gone. She said that due to my age and being so close to

> menopause, there was no reason for a hysterectomy.

>

> When I talked to the endo about all this he said, " So, when are

you going to

> get that nasty old uterus taken out? " I swear that's word for

word. I told

> him that my GYN said there was no need, that it is a healthy

organ. He said

> that he realized that he couldn't talk me into it over the

phone….we'd

> discuss it at our next visit. Well, I haven't been back since. I

can't see

> paying all that money to him just to argue over something that's

none of his

> business. That's why, when my PCP worthless internist said that I

need to

> get my GYN and endo to work together, I dumped her too. Besides,

I thought

> that was the PCP's job! Pull it all together!

>

> I love my GYN and still see her, and she and my new internist will

work well

> together if need be. She'll do all the below the waist stuff and

he does

> all the above the waist. I know that if either of them needs to

question

> the other it will be cool.

>

> Janet

>

> Actually, the short answer to your question, why did Dr. Dons want

me to

> have a hysterectomy?? NO PARTICULAR REASON!!

January 31, 2005