Re: Starting treatment

[Guest guest]

I can relate to the joint pains..as Ive had hep C prob 20 years and just turned 50. Went thru treatment and relapsed the month after the end of ribivarion- so wishing you well with it denise and , yew we are all in this together. AnnJackie on wrote: Well if you dont have to do it and have "other issues", I would wait too,, and keep us informed how you are doing,, WE are here for you hon jaxKATHRINE SWANSON wrote: I was going to start tx in Oct but did not because the liver biopsy came back pretty clean. I am glad I did not because of still recovering from brain injury. Things are good but I have trouble with

short-term memory and burning from nerve damage. The brain injury occurred the end of May and still having problems. Very hard to tell which is from the brain injury and which from hepc. So glad to have this group because the MDs don't seem to provide much info on either. I am on 900mg of Neurontin 4 times a day (3600 per day). Started having "break throughs" with the burning/tingling/freezing sensation on left side of body (worse on face, back and now hand). I really admire everyone on tx and what they are going through! KathyPS thanks for the special wish!Jackie on wrote: I totally know what you mean,,, I for years didnt know what was going on, but its the hep c,, hang in there,, have you dont tx yet or are you going to do it? hugs jaxKATHRINE SWANSON

wrote: Thanks for these postings. I have so much joint pain now it is amazing! I turned 51 today and did not know if this was part of the age. Hate to blame most of my problems on hepc but glad to know there is nothing new going bad.KathyJackie on wrote: Hi Mark Well bing 51 myself, NORMAL aging does not include joint pains at this age,, its the hep c ,, as there is a huge connection between hep c and arthritis and joint issues. Once you clear the virus, usually the joint issues are "supposed" to clear up. lol,, well thats what they say anyway... Keep us posted how you are doing hon... mark_pbms

wrote: Hi ,Glad to hear you cleared at 12 weeks, that's good news and hopefullythere will be no relapse to deal with.I've probably had this for over 20 years too. On my last visit withthe GI he actually mentioned continuing treatment beyond 24 weeks if Icleared also...just to be safe. I told him I'd like to wait until weget there to make that decision, see how I'm dealing with things first.LOL - I know what you mean about the joint pains. I'm almost 50 myselfand it will definitely be hard to tell which pains are the meds andwhich are normal aging. Thanks for the reply,Mark>> I had Type 2a for 20+ years with virtually no liver damage. My

doc> monitored me annually and wanted to wait for the Pegasys version of> the interferon to become available. He finally said last May "It's> time". > > I started tx in July, did my final shot last Friday and will take my> last dose of Riba tomorrow. I cleared at 12 weeks, and hope to stay> that way. Doc wanted me to do additional 8 weeks to insure against> relapse, but the insurance company said no. They will test me after> one month and have said if I'm going to relapse, it will probably be> in the first month. > > The side effects were manageable, but these past few weeks have been> rough with the arthritis/joint pain. I don't know how much of that is> the meds, or the cold weather - but I've never had this pain before! > (Of course I turned 50 in June.... LOL)> > I used Curascript mail order pharmacy, and they were very

good. The> meds were always delivered on time, and I was very happy with their> service. > > Jackie Jackie

Yahoo! DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

I can relate to the joint pains..as Ive had hep C prob 20 years and just turned 50. Went thru treatment and relapsed the month after the end of ribivarion- so wishing you well with it denise and , yew we are all in this together. AnnJackie on wrote: Well if you dont have to do it and have "other issues", I would wait too,, and keep us informed how you are doing,, WE are here for you hon jaxKATHRINE SWANSON wrote: I was going to start tx in Oct but did not because the liver biopsy came back pretty clean. I am glad I did not because of still recovering from brain injury. Things are good but I have trouble with

short-term memory and burning from nerve damage. The brain injury occurred the end of May and still having problems. Very hard to tell which is from the brain injury and which from hepc. So glad to have this group because the MDs don't seem to provide much info on either. I am on 900mg of Neurontin 4 times a day (3600 per day). Started having "break throughs" with the burning/tingling/freezing sensation on left side of body (worse on face, back and now hand). I really admire everyone on tx and what they are going through! KathyPS thanks for the special wish!Jackie on wrote: I totally know what you mean,,, I for years didnt know what was going on, but its the hep c,, hang in there,, have you dont tx yet or are you going to do it? hugs jaxKATHRINE SWANSON

wrote: Thanks for these postings. I have so much joint pain now it is amazing! I turned 51 today and did not know if this was part of the age. Hate to blame most of my problems on hepc but glad to know there is nothing new going bad.KathyJackie on wrote: Hi Mark Well bing 51 myself, NORMAL aging does not include joint pains at this age,, its the hep c ,, as there is a huge connection between hep c and arthritis and joint issues. Once you clear the virus, usually the joint issues are "supposed" to clear up. lol,, well thats what they say anyway... Keep us posted how you are doing hon... mark_pbms

wrote: Hi ,Glad to hear you cleared at 12 weeks, that's good news and hopefullythere will be no relapse to deal with.I've probably had this for over 20 years too. On my last visit withthe GI he actually mentioned continuing treatment beyond 24 weeks if Icleared also...just to be safe. I told him I'd like to wait until weget there to make that decision, see how I'm dealing with things first.LOL - I know what you mean about the joint pains. I'm almost 50 myselfand it will definitely be hard to tell which pains are the meds andwhich are normal aging. Thanks for the reply,Mark>> I had Type 2a for 20+ years with virtually no liver damage. My

doc> monitored me annually and wanted to wait for the Pegasys version of> the interferon to become available. He finally said last May "It's> time". > > I started tx in July, did my final shot last Friday and will take my> last dose of Riba tomorrow. I cleared at 12 weeks, and hope to stay> that way. Doc wanted me to do additional 8 weeks to insure against> relapse, but the insurance company said no. They will test me after> one month and have said if I'm going to relapse, it will probably be> in the first month. > > The side effects were manageable, but these past few weeks have been> rough with the arthritis/joint pain. I don't know how much of that is> the meds, or the cold weather - but I've never had this pain before! > (Of course I turned 50 in June.... LOL)> > I used Curascript mail order pharmacy, and they were very

good. The> meds were always delivered on time, and I was very happy with their> service. > > Jackie Jackie

Yahoo! DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

I am 'a little late to the party,' but I totally know whereof you type. I

too have both TBI and HCV, and it is no picnic. Either one is not for

wussies, and the combo is more than I would wish on my worst enemy.

I don't know what is what either. Neither do the Drs. No one does. Not

with the pain issues, not with the cognitive stuff. When someone has both,

that's just the way it is.

Hang in.

Wicked / Robin A. Vosburg, not doing Tx

" Because, sometimes, merely refusing to stop cultivating an unquenchable

lust for beauty and truth and orgasmic life is the most profound and

important thing you can resolve to do. " -- Mark Morford

-----Original Message-----

I'm also a TBI (traumatic brain injury) survivor [snip]

Rob

[Guest guest]

I am 'a little late to the party,' but I totally know whereof you type. I

too have both TBI and HCV, and it is no picnic. Either one is not for

wussies, and the combo is more than I would wish on my worst enemy.

I don't know what is what either. Neither do the Drs. No one does. Not

with the pain issues, not with the cognitive stuff. When someone has both,

that's just the way it is.

Hang in.

Wicked / Robin A. Vosburg, not doing Tx

" Because, sometimes, merely refusing to stop cultivating an unquenchable

lust for beauty and truth and orgasmic life is the most profound and

important thing you can resolve to do. " -- Mark Morford

-----Original Message-----

I'm also a TBI (traumatic brain injury) survivor [snip]

Rob

[Guest guest]

I am 'a little late to the party,' but I totally know whereof you type. I

too have both TBI and HCV, and it is no picnic. Either one is not for

wussies, and the combo is more than I would wish on my worst enemy.

I don't know what is what either. Neither do the Drs. No one does. Not

with the pain issues, not with the cognitive stuff. When someone has both,

that's just the way it is.

Hang in.

Wicked / Robin A. Vosburg, not doing Tx

" Because, sometimes, merely refusing to stop cultivating an unquenchable

lust for beauty and truth and orgasmic life is the most profound and

important thing you can resolve to do. " -- Mark Morford

-----Original Message-----

I'm also a TBI (traumatic brain injury) survivor [snip]

Rob