Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 , Perhaps someone has mentioned this to you already, but you should check out the web site about craniosynostosis (when sutures are fused) at http://www.caps2000.org. There is also a support group for cranio parents. Please keep us posted after your visit to the neurosurgeon. I am hoping that the radiologist was somehow wrong and that 's sutures are NOT fused. My thoughts are with you. Sharon & Evan (11-22-99) >HI EVERYONE: I HAD MAJOR COMPUTOR PROBLEMS!!!, BUT I'M BACK ON NOW.... I'VE >MISSED EVERYBODY!!!!!!!!! I HAD TO USE A NEW SCREEN NAME > " GRANDMOMOFSAM@... " DENISE-SAMANTHAS MOM... I COULDN'T GET ANY OF MY >E-MAILS FROM MY OLD SCREEN NAME " GRANDMANSAM " WELL, THE LAST I WROTE, >ACCORDING TO THE RADIOLOGIST REPORT, SAMANTHA HAS ONE SUTURE DEFINITLY FUSED, >AND POSSIBLY TWO MORE. MY HUSBAND AND I ARE FRANTIC!!! WE HAVE AN APPT. >WITH THE NEURO SURGEON ON OCT. 23. NOT SOON ENOUGH!!!!! I CAN REALLY USE >SOME ADVICE, AND EDUCATION ABOUT FUSED SUTURES, AND ANYONE ELSE WHO'S BEEN >THROUGH THIS. THANK YOU.... DENISE & SAMANTHA P.S. IT'S GREAT TO BE >BACK!! > > > Quote Link to comment Share on other sites More sharing options...
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