Re: Welcome to Plagiocephaly (FOR EVERYONE)

[Guest guest]

,

Perhaps someone has mentioned this to you already, but you should

check out the web site about craniosynostosis (when sutures are

fused) at http://www.caps2000.org. There is also a support group for

cranio parents. Please keep us posted after your visit to the

neurosurgeon. I am hoping that the radiologist was somehow wrong and

that 's sutures are NOT fused. My thoughts are with you.

Sharon & Evan (11-22-99)

>HI EVERYONE: I HAD MAJOR COMPUTOR PROBLEMS!!!, BUT I'M BACK ON NOW.... I'VE

>MISSED EVERYBODY!!!!!!!!! I HAD TO USE A NEW SCREEN NAME

> " GRANDMOMOFSAM@... " DENISE-SAMANTHAS MOM... I COULDN'T GET ANY OF MY

>E-MAILS FROM MY OLD SCREEN NAME " GRANDMANSAM " WELL, THE LAST I WROTE,

>ACCORDING TO THE RADIOLOGIST REPORT, SAMANTHA HAS ONE SUTURE DEFINITLY FUSED,

>AND POSSIBLY TWO MORE. MY HUSBAND AND I ARE FRANTIC!!! WE HAVE AN APPT.

>WITH THE NEURO SURGEON ON OCT. 23. NOT SOON ENOUGH!!!!! I CAN REALLY USE

>SOME ADVICE, AND EDUCATION ABOUT FUSED SUTURES, AND ANYONE ELSE WHO'S BEEN

>THROUGH THIS. THANK YOU.... DENISE & SAMANTHA P.S. IT'S GREAT TO BE

>BACK!!

>

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