Re: PSA prep

[Guest guest]

Hi ,

So glad to hear you are both home and doing well. In terms of the

website updates, I would highly recommend keeping the video clip of the

news story about Mehta visit on the home page where it is easy to find.

I always tell everyone to watch that first, then go the stories tab. The

news clip provides great info on the condition and the treatment. Since

most folks won't read a page of text or more, it is a great way to

convey the serious nature of the condition and key differences in the

Mehta style of treatment and the amazing things it can do in a fast,

multi media format that almost everyone will watch. I tell everyone

about it, not just those with children who may be effected. And then

when they meet someone who does, they can refer them to the site- which

is how Amy found me. I had told my daughter's gymnastics coach to watch

the clip and read Sophia's story on the website. Then when he found out

his co-worker Amy's daughter might be dealing with something similar, he

introduced us and told her about the site (which I think she had already

found). I then offered my help to Amy and gave her your contact

information. It really is a small world!

Then, once they have the framing and basic information from the news

clip on the home page, I send them to the " Stories " tab where it really

hits home and brings the story to life in a very emotional way for

everyone that I know has read it. In terms of updates, I can send you a

new picture of Sophia if you would like. Her last spine x-ray (August 4,

2009) shows she is still straight and no rotation. Her bracing ended May

1, 2009 (a little early because she outgrew the brace too fast) after 8

casts, the last being removed July 2008. She had her latest MRI this

week and it showed the very small syring is still there (very small

pocket of fluid in her spine T10 to conus or bellybutton range and down)

but maybe even a little smaller. Since it has never caused any problems,

is not getting larger, and her spine was able to be corrected and is

maintaining the correction for the scoliosis... we don't have to get

another MRI for 2 yrs!!! This is great news since we have been having to

get MRI with anesthesia very 3 months, then every 6 months, then every

year since she was 6 months old. At $10,000+ a piece, that was really

great news. She still has low muscle tone and lax ligaments, but we are

continuing with physical therapy every other week to keep her from

falling behind her peers with physical developmental milestones. If you

saw her with her peers today, you would never know there were issues.

She still has reflux, some gastic delay empying, and we believe still

some " penetration with possible aspiration " , but they have all improved

with Rx prevacid, switching to a regular solids diet from Pediasure and

just time and growth.

Please let me know what I can do to help with the website, or anything

else you need. I am not on the CAST board daily but you can always

e-mail me off-line or send me a message through Facebook (Tina Render

).

Thanks as always for all that you are and all that you do. I pray for

eveyone this holiday season and for us all to have happy, healthy

children and wonderful new year!

Tina (Mom to Sophia and Sam)

>

> Morning!

> Would like to get the PSA out asap but must make huge website

revisions

> first. Any new stories or updates that we can add? I know that many of

> you will have great suggestions/recommendations on how ISOP can

improve

> www.infantilescoliosis.org, so please send my way, so we can properly

> prepare for the new influx of families.

> We will add:

> -PSA

> -new stories/updates (Livs included....I think its been over 4

yrs....ooops)

> -pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....

> -new articles (print media/published)

> -any news footage

> -footage of kiddos living in casts

>

> What else? I know there are sooo many more revisions to be made. Let

me

> know.

> Have a great weekend. Thanks!

> H.

>

[Guest guest]

Awesome idea! The PSA will bring many people. Make the info easily assessible!

Subject: Re: PSA prepTo: infantile_scoliosis Date: Saturday, December 5, 2009, 5:33 PM

Hi !

I'm typing this, but this is Nick's suggestion: (More to follow, as we think!)

When people first visit the site, if they have Googled or seen the PSA on TV, YouTube, Facebook, etc...

Right on the home page, there should be a prominent note or box that reads something like "Welcome! If you are the parent, or know a baby or young child with a curvature of the spine, or a baby or young child who has been diagnosed with scoliosis, CLICK HERE to read about the initial steps you can take, to determine if your child can benefit and/or be cured by Mehta Method casting."

That would direct them to a page with a simple checklist of the most important info and steps, basically what to do first. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

From: "heather@infantiles coliosis. org" <heather@infantilesc oliosis.org>To: infantile_scoliosis @yahoogroups. comSent: Sat, December 5, 2009 7:52:58 AMSubject: [infantile_scoliosi s] PSA prep

Morning!Would like to get the PSA out asap but must make huge website revisionsfirst. Any new stories or updates that we can add? I know that many ofyou will have great suggestions/ recommendations on how ISOP can improvewww.infantilescolio sis.org, so please send my way, so we can properlyprepare for the new influx of families.We will add:-PSA-new stories/updates (Livs included.... I think its been over 4 yrs....ooops)-pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....-new articles (print media/published)-any news footage-footage of kiddos living in castsWhat else? I know there are sooo many more revisions to be made. Let meknow.Have a great weekend. Thanks!H.

[Guest guest]

Wonderful news about Sophia! I completely agree, great point, that news video should stay on the home page. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Sun, December 6, 2009 12:15:54 PMSubject: Re: PSA prep

Hi ,So glad to hear you are both home and doing well. In terms of thewebsite updates, I would highly recommend keeping the video clip of thenews story about Mehta visit on the home page where it is easy to find.I always tell everyone to watch that first, then go the stories tab. Thenews clip provides great info on the condition and the treatment. Sincemost folks won't read a page of text or more, it is a great way toconvey the serious nature of the condition and key differences in theMehta style of treatment and the amazing things it can do in a fast,multi media format that almost everyone will watch. I tell everyoneabout it, not just those with children who may be effected. And thenwhen they meet someone who does, they can refer them to the site- whichis how Amy found me. I had told my daughter's gymnastics coach to watchthe clip and read Sophia's story on the website. Then when he

found outhis co-worker Amy's daughter might be dealing with something similar, heintroduced us and told her about the site (which I think she had alreadyfound). I then offered my help to Amy and gave her your contactinformation. It really is a small world!Then, once they have the framing and basic information from the newsclip on the home page, I send them to the "Stories" tab where it reallyhits home and brings the story to life in a very emotional way foreveryone that I know has read it. In terms of updates, I can send you anew picture of Sophia if you would like. Her last spine x-ray (August 4,2009) shows she is still straight and no rotation. Her bracing ended May1, 2009 (a little early because she outgrew the brace too fast) after 8casts, the last being removed July 2008. She had her latest MRI thisweek and it showed the very small syring is still there (very smallpocket of fluid in her

spine T10 to conus or bellybutton range and down)but maybe even a little smaller. Since it has never caused any problems,is not getting larger, and her spine was able to be corrected and ismaintaining the correction for the scoliosis... we don't have to getanother MRI for 2 yrs!!! This is great news since we have been having toget MRI with anesthesia very 3 months, then every 6 months, then everyyear since she was 6 months old. At $10,000+ a piece, that was reallygreat news. She still has low muscle tone and lax ligaments, but we arecontinuing with physical therapy every other week to keep her fromfalling behind her peers with physical developmental milestones. If yousaw her with her peers today, you would never know there were issues.She still has reflux, some gastic delay empying, and we believe stillsome "penetration with possible aspiration", but they have all improvedwith Rx prevacid, switching to

a regular solids diet from Pediasure andjust time and growth.Please let me know what I can do to help with the website, or anythingelse you need. I am not on the CAST board daily but you can alwayse-mail me off-line or send me a message through Facebook (Tina Render).Thanks as always for all that you are and all that you do. I pray foreveyone this holiday season and for us all to have happy, healthychildren and wonderful new year!Tina (Mom to Sophia and Sam)>> Morning!> Would like to get the PSA out asap but must make huge websiterevisions> first. Any new stories or updates that we can add? I know that many of> you will have great suggestions/

recommendations on how ISOP canimprove> www.infantilescolio sis.org, so please send my way, so we can properly> prepare for the new influx of families.> We will add:> -PSA> -new stories/updates (Livs included.... I think its been over 4yrs....ooops)> -pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....> -new articles (print media/published)> -any news footage> -footage of kiddos living in casts>> What else? I know there are sooo many more revisions to be made. Letme> know.> Have a great weekend. Thanks!> H.>

[Guest guest]

Wonderful news about Sophia! I completely agree, great point, that news video should stay on the home page. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Sun, December 6, 2009 12:15:54 PMSubject: Re: PSA prep

Hi ,So glad to hear you are both home and doing well. In terms of thewebsite updates, I would highly recommend keeping the video clip of thenews story about Mehta visit on the home page where it is easy to find.I always tell everyone to watch that first, then go the stories tab. Thenews clip provides great info on the condition and the treatment. Sincemost folks won't read a page of text or more, it is a great way toconvey the serious nature of the condition and key differences in theMehta style of treatment and the amazing things it can do in a fast,multi media format that almost everyone will watch. I tell everyoneabout it, not just those with children who may be effected. And thenwhen they meet someone who does, they can refer them to the site- whichis how Amy found me. I had told my daughter's gymnastics coach to watchthe clip and read Sophia's story on the website. Then when he

found outhis co-worker Amy's daughter might be dealing with something similar, heintroduced us and told her about the site (which I think she had alreadyfound). I then offered my help to Amy and gave her your contactinformation. It really is a small world!Then, once they have the framing and basic information from the newsclip on the home page, I send them to the "Stories" tab where it reallyhits home and brings the story to life in a very emotional way foreveryone that I know has read it. In terms of updates, I can send you anew picture of Sophia if you would like. Her last spine x-ray (August 4,2009) shows she is still straight and no rotation. Her bracing ended May1, 2009 (a little early because she outgrew the brace too fast) after 8casts, the last being removed July 2008. She had her latest MRI thisweek and it showed the very small syring is still there (very smallpocket of fluid in her

spine T10 to conus or bellybutton range and down)but maybe even a little smaller. Since it has never caused any problems,is not getting larger, and her spine was able to be corrected and ismaintaining the correction for the scoliosis... we don't have to getanother MRI for 2 yrs!!! This is great news since we have been having toget MRI with anesthesia very 3 months, then every 6 months, then everyyear since she was 6 months old. At $10,000+ a piece, that was reallygreat news. She still has low muscle tone and lax ligaments, but we arecontinuing with physical therapy every other week to keep her fromfalling behind her peers with physical developmental milestones. If yousaw her with her peers today, you would never know there were issues.She still has reflux, some gastic delay empying, and we believe stillsome "penetration with possible aspiration", but they have all improvedwith Rx prevacid, switching to

a regular solids diet from Pediasure andjust time and growth.Please let me know what I can do to help with the website, or anythingelse you need. I am not on the CAST board daily but you can alwayse-mail me off-line or send me a message through Facebook (Tina Render).Thanks as always for all that you are and all that you do. I pray foreveyone this holiday season and for us all to have happy, healthychildren and wonderful new year!Tina (Mom to Sophia and Sam)>> Morning!> Would like to get the PSA out asap but must make huge websiterevisions> first. Any new stories or updates that we can add? I know that many of> you will have great suggestions/

recommendations on how ISOP canimprove> www.infantilescolio sis.org, so please send my way, so we can properly> prepare for the new influx of families.> We will add:> -PSA> -new stories/updates (Livs included.... I think its been over 4yrs....ooops)> -pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....> -new articles (print media/published)> -any news footage> -footage of kiddos living in casts>> What else? I know there are sooo many more revisions to be made. Letme> know.> Have a great weekend. Thanks!> H.>

[Guest guest]

Wonderful news about Sophia! I completely agree, great point, that news video should stay on the home page. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Sun, December 6, 2009 12:15:54 PMSubject: Re: PSA prep

Hi ,So glad to hear you are both home and doing well. In terms of thewebsite updates, I would highly recommend keeping the video clip of thenews story about Mehta visit on the home page where it is easy to find.I always tell everyone to watch that first, then go the stories tab. Thenews clip provides great info on the condition and the treatment. Sincemost folks won't read a page of text or more, it is a great way toconvey the serious nature of the condition and key differences in theMehta style of treatment and the amazing things it can do in a fast,multi media format that almost everyone will watch. I tell everyoneabout it, not just those with children who may be effected. And thenwhen they meet someone who does, they can refer them to the site- whichis how Amy found me. I had told my daughter's gymnastics coach to watchthe clip and read Sophia's story on the website. Then when he

found outhis co-worker Amy's daughter might be dealing with something similar, heintroduced us and told her about the site (which I think she had alreadyfound). I then offered my help to Amy and gave her your contactinformation. It really is a small world!Then, once they have the framing and basic information from the newsclip on the home page, I send them to the "Stories" tab where it reallyhits home and brings the story to life in a very emotional way foreveryone that I know has read it. In terms of updates, I can send you anew picture of Sophia if you would like. Her last spine x-ray (August 4,2009) shows she is still straight and no rotation. Her bracing ended May1, 2009 (a little early because she outgrew the brace too fast) after 8casts, the last being removed July 2008. She had her latest MRI thisweek and it showed the very small syring is still there (very smallpocket of fluid in her

spine T10 to conus or bellybutton range and down)but maybe even a little smaller. Since it has never caused any problems,is not getting larger, and her spine was able to be corrected and ismaintaining the correction for the scoliosis... we don't have to getanother MRI for 2 yrs!!! This is great news since we have been having toget MRI with anesthesia very 3 months, then every 6 months, then everyyear since she was 6 months old. At $10,000+ a piece, that was reallygreat news. She still has low muscle tone and lax ligaments, but we arecontinuing with physical therapy every other week to keep her fromfalling behind her peers with physical developmental milestones. If yousaw her with her peers today, you would never know there were issues.She still has reflux, some gastic delay empying, and we believe stillsome "penetration with possible aspiration", but they have all improvedwith Rx prevacid, switching to

a regular solids diet from Pediasure andjust time and growth.Please let me know what I can do to help with the website, or anythingelse you need. I am not on the CAST board daily but you can alwayse-mail me off-line or send me a message through Facebook (Tina Render).Thanks as always for all that you are and all that you do. I pray foreveyone this holiday season and for us all to have happy, healthychildren and wonderful new year!Tina (Mom to Sophia and Sam)>> Morning!> Would like to get the PSA out asap but must make huge websiterevisions> first. Any new stories or updates that we can add? I know that many of> you will have great suggestions/

recommendations on how ISOP canimprove> www.infantilescolio sis.org, so please send my way, so we can properly> prepare for the new influx of families.> We will add:> -PSA> -new stories/updates (Livs included.... I think its been over 4yrs....ooops)> -pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....> -new articles (print media/published)> -any news footage> -footage of kiddos living in casts>> What else? I know there are sooo many more revisions to be made. Letme> know.> Have a great weekend. Thanks!> H.>

[Guest guest]

Everything sounds great so far! Can't wait to see the new updates! I will update Hadley's story since a lot has changed, and all for the better since we've last updated it. When do you need that by? What videos are you looking for of the children? Whatever I can do, I am willing, please let me know!Shauna

From: heather@infantilesc oliosis.org <heather@infantilesc oliosis.org>Subject: [infantile_scoliosi s] PSA prepTo: infantile_scoliosis @yahoogroups. comDate: Saturday, December 5, 2009, 9:52 AM

Morning!Would like to get the PSA out asap but must make huge website revisionsfirst. Any new stories or updates that we can add? I know that many ofyou will have great suggestions/ recommendations on how ISOP can improvewww.infantilescolio sis.org, so please send my way, so we can properlyprepare for the new influx of families.We will add:-PSA-new stories/updates (Livs included.... I think its been over 4 yrs....ooops)-pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....-new articles (print media/published)-any news footage-footage of kiddos living in castsWhat else? I know there are sooo many more revisions to be made. Let meknow.Have a great weekend. Thanks!H.

[Guest guest]

Excellent ideas! Yes, please start writing " What to expect on the 1st day of

Early Treatment, " and we can revise/edit from there. Thanks!

Would anyone out there be willing to update/add to the Terms/Definitions Page of

the site? There are so many terms not listed, that should be....

Yes any/all footage is needed and will remain, for sure.

Keep the ideas coming!

Thanks!

H

>

>

> >From: heather@infantilesc oliosis.org <heather@infantilesc oliosis.org>

> >Subject: [infantile_scoliosi s] PSA prep

> >To: infantile_scoliosis @yahoogroups. com

> >Date: Saturday, December 5, 2009, 9:52 AM

> >

> >

> > 

> >Morning!

> >Would like to get the PSA out asap but must make huge website revisions

> >first. Any new stories or updates that we can add? I know that many of

> >you will have great suggestions/ recommendations on how ISOP can improve

> >www.infantilescolio sis.org, so please send my way, so we can properly

> >prepare for the new influx of families.

> >We will add:

> >-PSA

> >-new stories/updates (Livs included.... I think its been over 4 yrs....ooops)

> >-pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....

> >-new articles (print media/published)

> >-any news footage

> >-footage of kiddos living in casts

> >

> >What else? I know there are sooo many more revisions to be made. Let me

> >know.

> >Have a great weekend. Thanks!

> >H.

> >

> >

>

[Guest guest]

Excellent ideas! Yes, please start writing " What to expect on the 1st day of

Early Treatment, " and we can revise/edit from there. Thanks!

Would anyone out there be willing to update/add to the Terms/Definitions Page of

the site? There are so many terms not listed, that should be....

Yes any/all footage is needed and will remain, for sure.

Keep the ideas coming!

Thanks!

H

>

>

> >From: heather@infantilesc oliosis.org <heather@infantilesc oliosis.org>

> >Subject: [infantile_scoliosi s] PSA prep

> >To: infantile_scoliosis @yahoogroups. com

> >Date: Saturday, December 5, 2009, 9:52 AM

> >

> >

> > 

> >Morning!

> >Would like to get the PSA out asap but must make huge website revisions

> >first. Any new stories or updates that we can add? I know that many of

> >you will have great suggestions/ recommendations on how ISOP can improve

> >www.infantilescolio sis.org, so please send my way, so we can properly

> >prepare for the new influx of families.

> >We will add:

> >-PSA

> >-new stories/updates (Livs included.... I think its been over 4 yrs....ooops)

> >-pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....

> >-new articles (print media/published)

> >-any news footage

> >-footage of kiddos living in casts

> >

> >What else? I know there are sooo many more revisions to be made. Let me

> >know.

> >Have a great weekend. Thanks!

> >H.

> >

> >

>

[Guest guest]

Excellent ideas! Yes, please start writing " What to expect on the 1st day of

Early Treatment, " and we can revise/edit from there. Thanks!

Would anyone out there be willing to update/add to the Terms/Definitions Page of

the site? There are so many terms not listed, that should be....

Yes any/all footage is needed and will remain, for sure.

Keep the ideas coming!

Thanks!

H

>

>

> >From: heather@infantilesc oliosis.org <heather@infantilesc oliosis.org>

> >Subject: [infantile_scoliosi s] PSA prep

> >To: infantile_scoliosis @yahoogroups. com

> >Date: Saturday, December 5, 2009, 9:52 AM

> >

> >

> > 

> >Morning!

> >Would like to get the PSA out asap but must make huge website revisions

> >first. Any new stories or updates that we can add? I know that many of

> >you will have great suggestions/ recommendations on how ISOP can improve

> >www.infantilescolio sis.org, so please send my way, so we can properly

> >prepare for the new influx of families.

> >We will add:

> >-PSA

> >-new stories/updates (Livs included.... I think its been over 4 yrs....ooops)

> >-pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....

> >-new articles (print media/published)

> >-any news footage

> >-footage of kiddos living in casts

> >

> >What else? I know there are sooo many more revisions to be made. Let me

> >know.

> >Have a great weekend. Thanks!

> >H.

> >

> >

>

[Guest guest]

Will do! I'll put together a first draft of what to expect the first day of ET, and we can revise/modify it. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Mon, December 7, 2009 11:05:21 AMSubject: Re: PSA prep

Excellent ideas! Yes, please start writing "What to expect on the 1st day of Early Treatment," and we can revise/edit from there. Thanks! Would anyone out there be willing to update/add to the Terms/Definitions Page of the site? There are so many terms not listed, that should be....Yes any/all footage is needed and will remain, for sure. Keep the ideas coming!Thanks!H> > > >From: heather@infantilesc oliosis.org <heather@infantiles c oliosis.org>> >Subject: [infantile_scoliosi s] PSA prep> >To: infantile_scoliosis @yahoogroups. com> >Date: Saturday, December 5, 2009, 9:52 AM> >>

>> >Â > >Morning!> >Would like to get the PSA out asap but must make huge website revisions> >first. Any new stories or updates that we can add? I know that many of> >you will have great suggestions/ recommendations on how ISOP can improve> >www.infantilescoli o sis.org, so please send my way, so we can properly> >prepare for the new influx of families.> >We will add:> >-PSA> >-new stories/updates (Livs included.... I think its been over 4 yrs....ooops)> >-pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....> >-new articles (print media/published)> >-any news footage> >-footage of kiddos living in casts> >> >What else? I know there are sooo many more revisions to be made. Let me> >know.> >Have a great weekend.

Thanks!> >H.> >> >>

[Guest guest]

Will do! I'll put together a first draft of what to expect the first day of ET, and we can revise/modify it. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Mon, December 7, 2009 11:05:21 AMSubject: Re: PSA prep

Excellent ideas! Yes, please start writing "What to expect on the 1st day of Early Treatment," and we can revise/edit from there. Thanks! Would anyone out there be willing to update/add to the Terms/Definitions Page of the site? There are so many terms not listed, that should be....Yes any/all footage is needed and will remain, for sure. Keep the ideas coming!Thanks!H> > > >From: heather@infantilesc oliosis.org <heather@infantiles c oliosis.org>> >Subject: [infantile_scoliosi s] PSA prep> >To: infantile_scoliosis @yahoogroups. com> >Date: Saturday, December 5, 2009, 9:52 AM> >>

>> >Â > >Morning!> >Would like to get the PSA out asap but must make huge website revisions> >first. Any new stories or updates that we can add? I know that many of> >you will have great suggestions/ recommendations on how ISOP can improve> >www.infantilescoli o sis.org, so please send my way, so we can properly> >prepare for the new influx of families.> >We will add:> >-PSA> >-new stories/updates (Livs included.... I think its been over 4 yrs....ooops)> >-pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....> >-new articles (print media/published)> >-any news footage> >-footage of kiddos living in casts> >> >What else? I know there are sooo many more revisions to be made. Let me> >know.> >Have a great weekend.

Thanks!> >H.> >> >>

[Guest guest]

Will do! I'll put together a first draft of what to expect the first day of ET, and we can revise/modify it. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Mon, December 7, 2009 11:05:21 AMSubject: Re: PSA prep

Excellent ideas! Yes, please start writing "What to expect on the 1st day of Early Treatment," and we can revise/edit from there. Thanks! Would anyone out there be willing to update/add to the Terms/Definitions Page of the site? There are so many terms not listed, that should be....Yes any/all footage is needed and will remain, for sure. Keep the ideas coming!Thanks!H> > > >From: heather@infantilesc oliosis.org <heather@infantiles c oliosis.org>> >Subject: [infantile_scoliosi s] PSA prep> >To: infantile_scoliosis @yahoogroups. com> >Date: Saturday, December 5, 2009, 9:52 AM> >>

>> >Â > >Morning!> >Would like to get the PSA out asap but must make huge website revisions> >first. Any new stories or updates that we can add? I know that many of> >you will have great suggestions/ recommendations on how ISOP can improve> >www.infantilescoli o sis.org, so please send my way, so we can properly> >prepare for the new influx of families.> >We will add:> >-PSA> >-new stories/updates (Livs included.... I think its been over 4 yrs....ooops)> >-pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....> >-new articles (print media/published)> >-any news footage> >-footage of kiddos living in casts> >> >What else? I know there are sooo many more revisions to be made. Let me> >know.> >Have a great weekend.

Thanks!> >H.> >> >>

[Guest guest]

I believe this has been mentioned before, but is it possible to make the donations page easier? It's very complicated and confusing if you try to donate online.~Noah 4 1/2 years old9 months of casting in SLC; Currently on 1 1/2 years of bracing at 6* in braceAnd Mariella 11 months old - resolved Infantile Scoliosis

To: infantile_scoliosis From: heather@...Date: Mon, 7 Dec 2009 19:05:21 +0000Subject: Re: PSA prep

Excellent ideas! Yes, please start writing "What to expect on the 1st day of Early Treatment," and we can revise/edit from there. Thanks! Would anyone out there be willing to update/add to the Terms/Definitions Page of the site? There are so many terms not listed, that should be....Yes any/all footage is needed and will remain, for sure. Keep the ideas coming!Thanks!H> > > >From: heather@infantilesc oliosis.org <heather@infantilesc oliosis.org>> >Subject: [infantile_scoliosi s] PSA prep> >To: infantile_scoliosis @yahoogroups. com> >Date: Saturday, December 5, 2009, 9:52 AM> >> >> >Â > >Morning!> >Would like to get the PSA out asap but must make huge website revisions> >first. Any new stories or updates that we can add? I know that many of> >you will have great suggestions/ recommendations on how ISOP can improve> >www.infantilescolio sis.org, so please send my way, so we can properly> >prepare for the new influx of families.> >We will add:> >-PSA> >-new stories/updates (Livs included.... I think its been over 4 yrs....ooops)> >-pdf of Pediatrician Awareness Campaign/diagnostic manual, etc....> >-new articles (print media/published)> >-any news footage> >-footage of kiddos living in casts> >> >What else? I know there are sooo many more revisions to be made. Let me> >know.> >Have a great weekend. Thanks!> >H.> >> >>

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[Guest guest]

Jenn, I donated for my Mom's B-day that way, on Facebook- does anyone know if all of the money donated that way goes directly to ISOP? I gave a "tip" in the hopes it would...it was easy. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Fri, December 11, 2009 11:24:32 AMSubject: RE: Re: PSA prep

I completely agree, I have yet to figure it out. It is very simple to donate through facebook. You do not need a facebook account to do so. http://apps. facebook. com/causes/ 286432/92391341 is the link. It is very very simple.

Jenn

Mommy to Cole, 23 months, 3rd cast from rochester

[Guest guest]

Jenn, I donated for my Mom's B-day that way, on Facebook- does anyone know if all of the money donated that way goes directly to ISOP? I gave a "tip" in the hopes it would...it was easy. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Fri, December 11, 2009 11:24:32 AMSubject: RE: Re: PSA prep

I completely agree, I have yet to figure it out. It is very simple to donate through facebook. You do not need a facebook account to do so. http://apps. facebook. com/causes/ 286432/92391341 is the link. It is very very simple.

Jenn

Mommy to Cole, 23 months, 3rd cast from rochester