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Re: Digest Number 2901

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Hi ,

Oops, I clicked 'send' before I meant to, so I sent your message back to the

group.

I've been on Cyclosporin (morning 100 mg evening 75 mg) for about 16 months

because the Prednisone and Imuran weren't working for me. I am still on

Imuran (75 mg) also. I think the risks (ie cancer including skin cancer)

are similar to those of Imuran as they are both immuno suppressants. There

are various possible side effects including constipation, increased

potassium, gum growth, cholesterol, blood pressure, fever, nausea etc etc

which I'm sure the doctor would point out to . I have experienced

some side effects but I'm not sure if they have been caused by Cyclosporin

or by Prednisone - they include excessive hair growth (not as bad now I'm

off Prednisone), my gums have grown very slightly, constipation (only since

December). I haven't really noticed anything else, but the dose is fairly

low. When I have a blood test now they include a Cyclosporin level (low

level reading - just before my morning dose) and my Gastro wants it between

130 - 150 which is regarded as a therapeutic level according to the assays

used at the pathology lab I go to.

Has 's doctor considered Cellcept in place of Imuran. Cyclosporin

has more side effects I believe. I didn't want to go on it, but my doctor

would not put me on Cellcept until he had more evidence that it was proven

to work in controlling AIH. He is very conservative in that respect. I

don't like being on Cyclosporin but my liver function tests are under

control now although it took over 6 months for it to kick in.

Hope things improve for . Best of luck,

Bozena

> Message: 1

> Date: Thu, 13 Mar 2003 21:55:24 -0000

> From: " sauceycakes " <susan2886@...>

> Subject: Cyclosporine

>

> Hi! has been taking Imuran for 2 yrs now and it doesn't seem

> to be completely working on her. Her doctor talked about possibly

> changing her to cyclosporine. Is anyone on it. Is there any bad

> side effects????

>

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Dear Tracey,

I have been told to use antibiotics before dental work, too. But that has only been since I was placed on the tx list. I'm not sure what the difference except you can't have an infection of any kind when you get the transplant.

Amy

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Dear Patty,

I have been so happy to have you back on line! I know everyone gets fatigued and needs a break, but it is great to hear from you.

Yes, I feel like one of those pony rides where they are hooked up to a leader and can't go any farther away than that. And now since I'm doing so well, it sometimes feels like I'm in limbo forever. Unless something major creeps up, I could still be 2 years out now. I would love to work and not have to worry about that I only have 29 months of insurance but I know I couldn't teach the little ones with my energy and I don't really have any umpf for learning something new to be like a reading or math specialists - I've gotten behind these past few years in my professional reading and classes and those teachers are so sharp, you have to be right up with everything!

The saving grace is my husband, Dave. He supports me through this all with encouragement and humor. He believes what I do is important, even if it is resting or having lunch with friends. He even cooked a dinner and served it to my three co-workers when we had them over! It's hard on him because he misses the go-getter, involved in everything person I was and he worries. But we get by. My knitting group is great and both Dave and I started rug hooking so we go to that together.

So how am I emotionally, ask me any day and I'll have a different answer! Some days I feel so awful and tired I just stay in bed and read. Other days, like today, when I feel better I plan a few errands out but I try to save some energy for the evening so I'm not a complete slug! I'm holding it together and feel so honored to have such wonderful friends here, where I live and a family that really cares. It's kind of a kick when my 76 year-old mother and father-in-law hardly let me lift a finger when we visit - Dave and his mom do all the cooking and his dad cleans up! All of this is a very humbling experience, but I don't fight it - I let it roll and just keep on keeping on.

Sorry for rambling! I guess the errands will do me well and I'll work on my knitting during Oprah :o)

Wishing you warmth and happy moments,

Amy

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  • 1 year later...

In a message dated 9/13/2004 10:56:37 AM Pacific Standard Time,

writes:

From Claravale Farm's web site.

" Are Claravale Farm's cows totally pasture fed?

No. We feed our cows a traditional diet of hay, feeds, and pastures.

Claravale Farm is a traditionally run dairy and we don't think total pasture

feeding of dairy cattle is appropriate for a number of reasons. Contrary to

popular belief, total, year round pasture feeding is not natural for cattle

and is not the way in which dairy cattle have historically been managed.

More typical is for dairy cattle to get access to some pasture for a short

period of time during the natural growing season (winter and spring here)

and to be fed mostly hay, grain and other produce during the rest of the

year. This is what we do at Claravale. In this way, farmers have

historically taken advantage of natural yearly cycles of rainfall and

production. Year round pasture feeding of dairy cows requires the artificial

creation of year round pastures by intensive irrigation, which requires

energy and water, both limited resources in California. "

++++++++++++++++++++++++++++++++++++++++++

Organic Pastures feeds their cows 10 lbs. grain/day, as well. Heard it from

Dr. Ron.

B.

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