Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 - I just had to drop you a few lines, to address this problem. I often think about how hard it must be to have a child with an obvious disability. I guess it's kind of like racism. There are people who are black americans who look white. There are kids like Crystal who on 1st ( maybe even 2nd ) glance appear to be average kids. Appearances, in both instances, are very deceiving... Now the person who looks white, has a choice to make. They can just be themselves make sure that everyone knows their heritage. They could also choose to distance themselves from their heritage, just try to blend in with white society. I have never tried to hide my child's deficits. Now that she's over 3 years old, it's easier to see that she has rather serious developmental delays. But, I've never had to field the kind of totally assinine comments that you, others with children with microcephaly, have. I really feel for you. I also find it hard to find the right thing to say. I'm often torn between being afraid of saying something totally stupid myself ( if I've said something stupid in this e-mail, I had no intention to, believe me ) , or not saying anything at all. If you ever do think of something appropriate to say, that you wouldn't find offensive, but would open the door for a meaningful conversation - I'm ALL ears !!! There have been times that I've wanted to approach a family with a child in a wheel chair try to make contact. BUT - I really don't want them to think that I'm some kind of crazy or something !!! Very soon, our Crystal is going to have her very own Convaid Safari Tilt Stroller/pushchair... My hubby was a little wary about getting her a stroller that looks like a wheelchair. We looked at other models, but they didn't have the features that we needed so that Crystal would be comfortable. I say tough sh*t !!! If anyone wants to say something, let them. I might just be developing a hard skin right along with you { smile } ... I really admire you for your attitude tenacity. I think that life guard learned a very IMPORTANT lesson. I bet he thinks twice before approaching another parent with a handicapped child !!! Give the boys great big {{{ HUGS }}} kisses for us... Take care God bless you all.... - mommy of my Angel, Crystal Aquielle - 40 mos. old - Bilateral Perisylvian PMG... Quote Link to comment Share on other sites More sharing options...
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