Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Please send it to all of us if you do not mind. Lucas is going into kindergarten and I am getting nowhere with the schools. I have all the regs but do not know if I have the energy to fight another battle. BARBIE Lucas 5 dysgamm, hypogamm, IVIG, selective antx def. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Please send it to all of us if you do not mind. Lucas is going into kindergarten and I am getting nowhere with the schools. I have all the regs but do not know if I have the energy to fight another battle. BARBIE Lucas 5 dysgamm, hypogamm, IVIG, selective antx def. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 In a message dated 8/2/01 8:41:08 PM Pacific Daylight Time, MOTHER1544@... writes: > Please send it to all of us if you do not mind. Lucas is going into > kindergarten and I am getting nowhere with the schools. I have all the regs > but do not know if I have the energy to fight another battle. HI I think I missed something. What is it? Does it deal with school issues? Does anyone know about the 509 plan? We have not had a prob;em with school so far. But with going into the 6th grade GATE program (the teacher is known for the amount of work given!) and trailing off (he is having a hard time with fatigue) I think I need to be prepared. I also will be meeting with the teacher to discuss the work load. So if this dealt with school issues Im interested could you repost it. Thanks le 11, Selective Antibody Def., IVIG for 4 years, every 3 weeks. Syringomyelia 6 surgeries in two years before being diagnosed: 4 sinus, tonsil and adenoids removed, septic hip since IVIG 0 surgery needed! Trailing off IVIG 6/28/01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Belinda Rose, I was wondering if you had a copy of Cassie 504 plan? We are trying to get a better written one for my daughter going into the 6th grade. I would love to see it if you didn't mine, My home e-mail is llkraft@... Thanks Lorri (rachel 11 CVID) Re: Ursula > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Belinda Rose, I was wondering if you had a copy of Cassie 504 plan? We are trying to get a better written one for my daughter going into the 6th grade. I would love to see it if you didn't mine, My home e-mail is llkraft@... Thanks Lorri (rachel 11 CVID) Re: Ursula > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 le, I was reading your message about school issues and what we were talking about is the 504 plan. It is a federal program for students with medical issues. It is like an IEP (individualized program) but it is a form filled out that tells about your Childs need. If they need extra time for work etc.. The reason I am writing you is I found it interesting that my daughter in going into the 6th grade GATE program also. Where do you live. We live in Washington. Please e-mail me at home llkraft@.... is also always tired! Thanks Lorri ( 11 years CVID) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2001 Report Share Posted August 22, 2001 http://communities.msn.com/PediatricPrimaryImmuneDeficiency Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://maceyh.home.att.net Ursula Not to long ago you started another website for pedpid, my computer crashed and I lost my " favorite places " . Could you send that website address to me again? Diane, Mom to Kody, IgG subclass def. 2 & 3, seizure disorder, asthma, GIRD, acute sinus disease. Osteomylitis 2/2000, 4 sets ear tubes, port placement 1/2001, tonsils and adenoids 5/2001, IVIG since 6/2000. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2001 Report Share Posted August 22, 2001 http://communities.msn.com/PediatricPrimaryImmuneDeficiency Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://maceyh.home.att.net Ursula Not to long ago you started another website for pedpid, my computer crashed and I lost my " favorite places " . Could you send that website address to me again? Diane, Mom to Kody, IgG subclass def. 2 & 3, seizure disorder, asthma, GIRD, acute sinus disease. Osteomylitis 2/2000, 4 sets ear tubes, port placement 1/2001, tonsils and adenoids 5/2001, IVIG since 6/2000. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2001 Report Share Posted August 22, 2001 http://communities.msn.com/PediatricPrimaryImmuneDeficiency Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://maceyh.home.att.net Ursula Not to long ago you started another website for pedpid, my computer crashed and I lost my " favorite places " . Could you send that website address to me again? Diane, Mom to Kody, IgG subclass def. 2 & 3, seizure disorder, asthma, GIRD, acute sinus disease. Osteomylitis 2/2000, 4 sets ear tubes, port placement 1/2001, tonsils and adenoids 5/2001, IVIG since 6/2000. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 HI Ursula, Glad to hear that Macey did well with the surgery. Please give her a big hug from us. Autumn (Mark Cd5-Cd19 PID and ) Quote Link to comment Share on other sites More sharing options...
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