Re: the need to be pain free...

[Guest guest]

Ray, my dr. says I can take up to 300 mg. Ultram per day. I can't, of

course, because of nausea; don't see why you can't increase dosage ,if you

can tolerate it. You go for it!! You mentioned that you know when fronts

go thru; me, too. The drs. are beginning to listen, somewhat. I've had

nerve blocks, which help for a little while, but not enough for me to do it

very often. One of my favorite remedies is petting my cats, cos they give

me absolutely unconditional love(after they're fed, anyway!).One cat in

particular knows when I feel bad, and she's always right there, to get on my

lap or chest, and nuzzle my neck. Helps me a lot! Have a good Mom's Day`

) kay

Re: the need to be pain free...

>

>

>In response to your post to Mad (I'm just getting caught up with

>yesterday's posts) I completely understand your reluctance to give up

>pain medication and try to replace that with other manners of pain

>management. I'm having a hard time with it. So what do we do? It's

>like they are telling us that the pain we feel is somehow not " real " and

>that because it's not real we can magically whisk it away with

>bio-feedback. Sorry, but a storm front just came through and every

>muscle and joint in my body hurt. I used to laugh at my grandmother

>when she said she could tell the weather by how badly she felt, and how

>much arthritic pain she was in. Sure wish I could apologize to that

>lovely old woman! She wasn't crazy. Or if she was, so am I now. This

>stuff really hurts! I'm on 50 mg of Ultram once every 8 hours and

>Wygesic 65 one capsule every 8 hours. It's not working to control the

>pain. Oh, I'm fine for about 2-3 hours, i.e., I can act normal though

>the pain is only diminished and never gone, but waiting for the next

>dose is pure hell for me sometimes. I do try to follow the

>prescriptions as written, but find myself very resistant to doctors who

>won't let me take the pills every 4-6 hours per the PDR. Maximum dosage

>for Ultram is rated at 400 mg. Spread that out over the day and that

>could be two 50 mg tabs every six hours. What's the big deal? Even my

>wife says that Ultram is not a narcotic, and she's a doctor. (Note:

>Being married to a doctor does not mean you have access to more pain

>relievers. In fact it means, ethically, that you have access to fewer

>pain relievers since your spouse cannot treat you or prescribe for you

>in most states. If any of you think I'm dipping into pain med samples

>at her practice, they don't keep any around. A patient wanting a

>controlled pain relief medication must be seen in the office to receive

>a prescription. No refills by phone. It's extreme, but it permits them

>to " weed " out the folks who are addicted rather quickly and leaves them

>with the true chronic pain patients who will cooperate willingly to get

>the help they need. I " see " this subject from a rather unique

>viewpoint, but that doesn't mean it helps me any more than any of the

>rest of you who are not married to M.D.'s) My only hope is that my

>Rheumy will let the pain clinic doctor locally treat me as he sees fit

>without the 8 hour wait between meds. I'm very willing to do the other

> " stuff " , physical therapy, biofeedback, massage, aquatherapy, Behavior

>modification, counseling (nutritional and emotional), low impact aerobic

>Exercise, myofascial release, relaxation therapy/biofeedback,

>ultrasound, yoga, or other alternative methods. But don't make me do it

>without medication help.

>Ray

> Re: the need to be pain free...

>

>

>>

>>

>> Mad: The letter that I posted to the list was from the Pain Control

>Clinic

>> at the Hospital where they want me to go for a further eveluation.

>> I'm also not too thrilled about the drive over 1 1/2 hour

>> and then go through a day of torture, and then 1 1/2drive home, I will

>not

>> be a pleasant person to be around.

>> What I do not understand is that the key as i ahve ben told is to

>break the

>> pain cycle, and not just keep it to a tolerable level.

>> If they break the cycle then the need for increasingly stronger meds

>will be

>> avoided.

>>

>> I'm still not totally convinced that I will go through with this, as I

>do

>> not totally agree that this is the best solution for my condition.

>>

>> Thanks very much for the letter, it is great to see someone who is out

>> spoken as I am.

>>

>> Jeff

>> jkeith@...

>> & The Hounds of Hooterville

>>

>>

>>

>>

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[Guest guest]

In a message dated 5/9/99 6:34:12 PM Eastern Daylight Time, hrn@...

writes:

<< Kay, music therapy helps me relax. Bach's pieces are good. Some nice

quiet ish instrumental pieces. >>

Kay:

Also try " Enya " - any of her CDs; Relaxation tapes/CDs, and also those with

sounds of nature with music added. I have also found those especially

helpful.

Carol

" In the little decisions of life, use your mind; in the big decisions of

life, use your heart. " [author unknown]

[Guest guest]

Kay, music therapy helps me relax. Bach's pieces are good. Some nice

quiet ish instrumental pieces. Lots of others are good, too. Just

avoid the marches and stuff that's too stimulating.

Ray

Re: the need to be pain free...

> >

> >

> >>

> >>

> >> Mad: The letter that I posted to the list was from the Pain Control

> >Clinic

> >> at the Hospital where they want me to go for a further eveluation.

> >> I'm also not too thrilled about the drive over 1 1/2 hour

> >> and then go through a day of torture, and then 1 1/2drive home, I

will

> >not

> >> be a pleasant person to be around.

> >> What I do not understand is that the key as i ahve ben told is to

> >break the

> >> pain cycle, and not just keep it to a tolerable level.

> >> If they break the cycle then the need for increasingly stronger

meds

> >will be

> >> avoided.

> >>

> >> I'm still not totally convinced that I will go through with this,

as I

> >do

> >> not totally agree that this is the best solution for my condition.

> >>

> >> Thanks very much for the letter, it is great to see someone who is

out

> >> spoken as I am.

> >>

> >> Jeff

> >> jkeith@...

> >> & The Hounds of Hooterville

> >>

> >>

> >>

> >>

>

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> >> http://www.onelist.com

> >> It's a new incentive program at ONElist. See homepage for details.

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> >

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[Guest guest]

I many many times go to sleep with my CD Dick Man with the Canadian Brass

greatest hits playing. I can just relax and drift off till I really never

recall taking off the head set.

Jeff

jkeith@...

& The Hounds of Hooterville