new parents

[Guest guest]

We have had a few new parents of CMT kids join the last month. My heart really

goes out to you. I have been there done that 3 times. It will get easier.

Something I think of a lot is how strong my kids are on the inside. Not life as

I planned but a good life.

[Guest guest]

Thanks .

My husband and I did some deep grieving when we first got the diagnosis, but I

think we're in more of a problem solving mode

right now. It's hard, but it really helps to have a group like this

for support and so much info.

Sherry

[Guest guest]

In a message dated 10/22/2008 9:05:05 A.M. Pacific Daylight Time,

slloken@... writes:

<It's hard, but it really helps to have a group like this

for support and so much info.>

It really helped me too. Just having something in common with people made me

feel like my life was normal. Normal for a family with CMT it in anyway. I took

forever to grieve. Maybe because I had CMT X 3. At the time I felt horrible for

not dealing with it like everyone else and just moving on.