Jump to content
RemedySpot.com
Sign in to follow this  
Guest guest

Fwd: Unable to deliver your message

Rate this topic

Recommended Posts

Guest guest

Begin forwarded message:

> From: Clarence Grim <lowerbp2@...>

> Date: March 30, 2008 9:23:57 PM CDT

> hyperaldosteronism

> Subject: Fwd: Fwd: Unable to deliver your message

> Reply-hyperaldosteronism

>

>

>

> Begin forwarded message:

>

> > From: Clarence Grim <lowerbp2@...>

> > Date: March 30, 2008 9:11:16 PM CDT

> > hyperaldosteronism

> > Subject: Fwd: Fwd: Unable to deliver your

> message

> > Reply-hyperaldosteronism

> >

> >

> >

> > Begin forwarded message:

> >

> > > From: Clarence Grim <lowerbp2@...>

> > > Date: March 29, 2008 10:47:35 PM CDT

> > > hyperaldosteronism

> > > Subject: Fwd: Unable to deliver your message

> > > Reply-hyperaldosteronism

> > >

> > >

> > >

> > > Begin forwarded message:

> > >

> > > > From: <notify >

> > > > Date: March 29, 2008 10:32:22 PM CDT

> > > > LOWERBP2@...

> > > > Subject: Unable to deliver your message

> > > >

> > > >

> > > > We are unable to deliver the message from <LOWERBP2@...>

> > > > to <hyperaldosteronism >.

> > > >

> > > > The email address used to send your message is not subscribed to

> > > this

> > > > group. If you are a member of this group, please be aware that

> you

> > > may

> > > > only send messages to this group using the email address(es) you

> > > have

> > > > registered with .

> > > >

> > > > If you would like to subscribe to this group:

> > > > 1. visit

> > > > hyperaldosteronism/join

> > > > -OR-

> > > > 2. send email to hyperaldosteronism-subscribe

> > > >

> > > > For further assistance, please visit

> > > > http://help./l/us//groups/original/members/web/

> > > > index.html

> > > >

> > > > From: Clarence Grim <lowerbp2@...>

> > > > Date: March 29, 2008 10:32:30 PM CDT

> > > > hyperaldosteronism

> > > > Subject: Re: Aldo and sodium, panic &

> anxiety

> > > >

> > > >

> > > >

> > > > On Mar 29, 2008, at 3:03 PM, Valarie wrote:

> > > >

> > > >> Thanks, Dave, for the acknowledgment. After I unloaded last

> > night,

> > > I

> > > >> felt

> > > >> kinda' bad. I generally try to be better controlled and

> > deliberate.

> > > >>

> > > >> This morning, I had two eggs, 1 toast, 1 T Smart Start, 1/2 &

> 1/2

> > > >> (15 mg Na)

> > > >> in coffee - 395 mg Na total. The familiar " gripping " started. I

> > > took

> > > >> two

> > > >> Valerian Root and calmed down. I would rather use that than

> > Ativan.

> > > >

> > > > Suggest you find a lower Na bread.

> > > >>

> > > >> My bump up to mid 140's BP came after I ingested 1,400 mg Na

> one

> > > >> day. This

> > > >> morning, it was back down to mid 120's. I've been avoiding salt

> > > like

> > > >> the

> > > >> plague.

> > > >

> > > >

> > > > No salt IS the plague in most with HTN. Esp if they also have

> PA.

> > > >

> > > >> I am going to have to work with this and find some combination

> of

> > > >> sodium and spiro that works. In all honesty, I believe the

> level

> > of

> > > >> anxiety

> > > >> is lessening but I'm still not normal. I keep a log and try to

> > > record

> > > >> " anxiety " for the day (scale = 1 - 10). It is difficult because

> > the

> > > >> level

> > > >> varies so much from hour to hour. In general, however, I'm

> seeing

> > > >> fewer 7 -

> > > >> 10 levels than I was a few weeks ago. There were many days back

> > > from

> > > >> September through February, when the level was 10+ and fairly

> > > >> constant (BP

> > > >> was 160 - 210).

> > > >>

> > > >> I have said before here that anti-depressants are perhaps one

> of

> > > the

> > > >> worst

> > > >> drugs ever invented. When I went to CU Medical, that's the

> first

> > > >> thing they

> > > >> threw at me. In spite of sometimes unloading here, I am not an

> > > >> hysterical

> > > >> woman. I guess it is easier to mask symptoms than to find

> causes.

> > > >>

> > > >> Your mention of PA masking hypercalcemia, thyroid, etc is so

> > > >> interesting,

> > > >> and so, so lacking in research. I read a case study last night

> > > about

> > > >> a 50-yo

> > > >> woman presenting with significant stomach pain, hypertension,

> > > weight

> > > >> gain

> > > >> (40 lbs in three years), and generalized anxiety disorder.

> > > >> Ordinarily, I

> > > >> would presume, she would have been given Prozac, HCTZ, and be

> > told

> > > >> to eat

> > > >> less and take Prevacid. A stomach CT disclosed an incidentaloma

> > on

> > > >> her

> > > >> adrenal. AVS proved it to be an aldo-producing adenoma. Two

> years

> > > >> after

> > > >> surgery, she was well with normal BP. It didn't report on the

> > level

> > > >> of

> > > >> anxiety nor if there had been any weight loss. I think

> " anxiety "

> > is

> > > >> not

> > > >> regarded with much respect, even though its presence can be

> > > >> debilitating.

> > > >> Maybe I need to start describing it as " gripping " instead of

> > > >> " anxiety. "

> > > >

> > > > There is not a good anxiety scale that I know of. I suggest our

> > > group

> > > > work on this.

> > > >

> > > >

> > > >>

> > > >> I'm going to again start tracking every morsel that goes into

> my

> > > >> mouth. I

> > > >> will keep a graph for the next doc who says to " eat less. " I

> had

> > > been

> > > >> tracking it when I went to CU Medical. The young, flippant endo

> > > >> looked at

> > > >> it and said, " Looks like something's really out of balance. "

> End

> > of

> > > >> conversation. She had virtually no scientific curiosity.

> Perhaps

> > an

> > > >> affirmative action hire?

> > > >

> > > > Most likely has not recognized PA in her own Pts and not

> followed

> > > any

> > > > for a long time.

> > > >>

> > > >> In reading through old posts, I find recurring mention of

> > anxiety,

> > > >> sweats,

> > > >> hyped up, coffee high, etc. Surely, we're not all nuts.

> > > >>

> > > >> I just got 300- 25 mg spiro in the mail. Now, my husband can

> stop

> > > >> worrying

> > > >> about the truckers' strike :). I'm not going to take any

> > additional

> > > >> until I

> > > >> see where K is.

> > > >>

> > > >> Feel free to bounce stuff off me. I'll talk yur ear off :).

> Feel

> > > >> free to

> > > >> use any of my writing or ideas any way you want.

> > > >>

> > > >> BTW, back in my " nerves of stone " days, I had two " location

> > theory "

> > > >> articles

> > > >> published and even presented one at an economics conference. I

> > > >> traded that

> > > >> life for motherhood. That took nerves of stone, too - two

> > preemies,

> > > >> and an

> > > >> educational system that cultivates and lauds mediocrity.

> > > >>

> > > >> Val

> > > >>

> > > >> From: hyperaldosteronism

> > > >>

> > > >> [mailto:hyperaldosteronism ] On Behalf Of Dave

> > > >>

> > > >> Val this is such a great entry for the registry Dr Grim wants

> to

> > > >> make in

> > > >> here - but for a database expert. I am learning things from it

> in

> > > >> increasing amounts.

> > > >>

> > > >> If PA can mask hypercalcemia (which does not have to be where

> it

> > > >> should

> > > >> be - in the ones, hair, calming mechanisms, etc) and

> > hypothyroidism

> > > >> (as

> > > >> it did with me too), I wonder what else this systemic metabolic

> > > >> condition can do if left alone (or, neglected) long enough?

> > > >>

> > > >> There seem to be receptors left w/o aldo blocking action from

> > spiro

> > > >> or

> > > >> eplerenone. Calcium deposits, arthritic spines, Ca residue in

> > extra

> > > >> sweats, electrolyte problems (e.g. hypomagesia, already a food

> > > >> problem

> > > >> in industrial societies), temporary paralysis, pins and

> needles,

> > > >> positive Chvostek & Trousseau sign, parasthesias, kidney " funny

> > > >> labile

> > > >> function " (eg. nocturnal polyuria). Neurological

> (non-congestive)

> > > >> breathing stoppages, along with other autonomic problems. These

> > are

> > > >> among the things which seem to go on after the BP and potassium

> > are

> > > >> normalized --and called " anxiety " by some doctors.

> > > >>

> > > >> Before I can respond with a few things from my anxiety study, I

> > > will

> > > >> have to reconnoiter. Staying on-topic with PA seems easy in

> this

> > > >> subject area. One field in my qualitative research is

> > professional

> > > >> (lawyers and physicians) coping mechanisms (without getting too

> > > >> psychological). The most common reaction from professionals, in

> > our

> > > >> interview and participant observation ethnographies has been -

> > you

> > > >> guessed it - some variation of saying the client or patient is

> > > crazy,

> > > >> anxious, depressed, OCD, etc.

> > > >>

> > > >> If they don't know it, or it isn't easy to find, isn't in

> caselaw

> > > or

> > > >> practicum, or most of all - isn't yielding to their

> professional

> > > >> efforts

> > > >> - AHA! It's psychological (doesn't exist except in the client's

> > or

> > > >> pts'

> > > >> mind).

> > > >>

> > > >> More soon,

> > > >>

> > > >> Dave

> > > >>

> > > >> Valarie wrote:

> > > >> >

> > > >> > The anxiety I talk about is hard to explain, Dave. I will

> try.

> > > >> These are

> > > >> > numbered so when distorts them, they may retain some

> > > >> semblance of

> > > >> > order.

> > > >> >

> > > >> > When I eat too much salt,

> > > >> > 1) I can feel my muscles cramp up, especially back neck and

> > > >> shoulders;

> > > >> > sometimes in the front of my neck and chest.

> > > >> > 2) I get a terrible feeling of panic, like a vice is grabbing

> > my

> > > >> heart and

> > > >> > squeezing hard

> > > >> > 3) My heart feels " funny " like it is beating lightly (or

> maybe

> > > not

> > > >> even

> > > >> > beating) but I cannot discern that it is irregular. I used to

> > get

> > > >> heart

> > > >> > " flutters " but don't have them much right now.

> > > >> > 4) I don't breathe fully; sometimes I become aware that I'm

> > > almost

> > > >> holding

> > > >> > my breath. Paralysis of some sort?

> > > >> > 5) I am not hyperventilating.

> > > >> > 6) Sometimes, I try to take deep belly breaths and find I'm

> not

> > > in

> > > >> control

> > > >> > enough to do that.

> > > >> > 7) Sometimes, it beats really hard in my chest. I've had both

> > > >> sensations.

> > > >> > The hard beating usually happens directly after eating salt

> and

> > > >> > doesn't last

> > > >> > long.

> > > >> > 8) Imagine chewing on tinfoil - that's how my whole body

> feels.

> > > >> > 9) I've had two episodes of nighttime paralysis after eating

> > > salty

> > > >> > meals in

> > > >> > the last few months.

> > > >> > 10) Estradiol (transdermal) started giving me the sensations

> of

> > > >> the vice

> > > >> > grip. I quit it over a month ago, but don't want to stay off

> > > >> indefinitely.

> > > >> > 11) My heart rate highest was mid 90's. Since spiro, it has

> > gone

> > > >> down to

> > > >> > mostly the 70's.

> > > >> > 12) I do not get dizzy and certainly, have no hypotension

> > > >> >

> > > >> > Tonight we had salmon (from that yummy mail order place I

> > posted)

> > > >> and

> > > >> > shell

> > > >> > pasta salad w/broccoli (from the Healthy Heart Mart - 0 Mg

> > Na). I

> > > >> put a

> > > >> > tiny bit of salty marinade on the salmon and a few

> tablespoons

> > of

> > > >> mayo in

> > > >> > the salad. I had probably 400 mg Na and could feel the vice

> > grip

> > > >> for a

> > > >> > while. Sometimes, eating makes me feel better - especially a

> > > baked

> > > >> potato.

> > > >> > When I went to the CU Med School in 2005, I remember telling

> my

> > > >> doc that I

> > > >> > felt a real need to control my salt. She said she thought

> that

> > > >> might be a

> > > >> > good idea. The whole experience there was dismal, but I know

> > you

> > > >> know all

> > > >> > about dismal experiences.

> > > >> >

> > > >> > When the anxiety and sweats come in the early mornings, the

> > > >> foreboding

> > > >> > " thoughts " always get to me. Feelings of " out of control

> > > >> thoughts, " or

> > > >> > " flooding of

> > > >> > thoughts? " Yes! Ativan has helped me sleep longer and has

> > > >> generally calmed

> > > >> > the thoughts. I believe now, when the sweats come, I don't

> get

> > as

> > > >> anxious.

> > > >> > I hate depending on Ativan. I'm theorizing that the sweats

> are

> > my

> > > >> body's

> > > >> > attempt to dump potassium or salt or something.

> > > >> >

> > > >> > The other face of the anxiety is my complete inability to

> deal

> > > with

> > > >> > anything

> > > >> > even mildly upsetting. Mind you, I used to be a college

> > teacher.

> > > I

> > > >> could

> > > >> > whip 450 students into shape and make them learn economics

> in a

> > > >> huge

> > > >> > lecture

> > > >> > hall. They knew better than to give me any lip. Its as

> though I

> > > >> was born

> > > >> > knowing how to do it. They loved me. I raised five educated,

> > > >> successful

> > > >> > children. They love me too. I've managed political

> campaigns. I

> > > >> could

> > > >> > tear a rental apart and restore it to grand elegance. I built

> > > some

> > > >> of my

> > > >> > furniture. In 2004, I built my daughter a wedding dress with

> 54

> > > >> yards of

> > > >> > silk and 2,000,000 embroidery stitches (I was getting sick

> then

> > > >> but just

> > > >> > pushed through it). My point is that, before this ugly

> > disease, I

> > > >> was

> > > >> > powerful. I could do anything. I was not a wimp. Now, I am

> > > >> reclusive and

> > > >> > avoid talking to anyone or answering the telephone. I just

> > can't

> > > >> take any

> > > >> > pressure. I never shop anymore as I get too overwhelmed

> looking

> > > >> for what I

> > > >> > want or I get too weak. I make all my own clothes because I'm

> > too

> > > >> short to

> > > >> > buy anything. I can't sew right now and will soon be naked.

> > > >> >

> > > >> > Today, I tried to calm myself with 300 mg of Pantethine. It

> > sent

> > > me

> > > >> > into an

> > > >> > anxious sweat that lasted several hours. No luck there. Extra

> > > >> Vitamin D

> > > >> > increases the anxiety. I've become terribly sensitive to

> > > >> everything it

> > > >> > seems. The only thing that seems good is my cal/mag/D

> > > >> (1000/500/200). My

> > > >> > bones are bad so I'm grateful about that.

> > > >> >

> > > >> > My husband tries to be understanding and protective but he's

> > such

> > > >> a klutz.

> > > >> > He walked into my office a few minutes ago with the

> foreboding

> > > >> > pronouncement

> > > >> > that we're going to have to figure out how to stay alive for

> > the

> > > >> next

> > > >> > three

> > > >> > weeks. I immediately went into panic mode, everything

> tightened

> > > >> up, and I

> > > >> > was a nervous wreck. Then he gave me the rest of the story -

> a

> > > >> possible

> > > >> > trucker strike. He was thinking about how I will get spiro. I

> > > have

> > > >> not

> > > >> > cried through this but tonight it was the only way I cope.

> > > >> Irrational, I

> > > >> > know.

> > > >> >

> > > >> > This has been getting worse and worse since 2002. I'm sure a

> > good

> > > >> part of

> > > >> > the anxiety is the waiting and wondering and trying to figure

> > > >> things

> > > >> > out. I

> > > >> > was greatly relieved when my endo agreed with Dr. Grim that I

> > > have

> > > >> PA. I

> > > >> > was greatly relieved when my BP dropped down into the 120's

> > after

> > > >> > three days

> > > >> > of spiro. It has bumped back up now to the mid 140's for the

> > last

> > > >> > couple of

> > > >> > days. I need more spiro but endo is tight-fisted until she

> > gets a

> > > >> K level

> > > >> > next Thursday. I'm trying to get FitDay set up again so I can

> > > >> tract Na

> > > >> > precisely but haven't been able to concentrate on it.

> > > >> >

> > > >> > I was this somewhat this way back in 1999, trying to get an

> HMO

> > > >> doctor to

> > > >> > approve parathyroid surgery. I talked to Dr. Norman in Tampa

> > but

> > > >> > ultimately

> > > >> > concluded I was too weak and wracked to make the trip. Plus,

> > the

> > > >> damn HMO

> > > >> > would only pay 10%. Maybe anxiety is just my way of dealing

> > with

> > > >> any

> > > >> > stress. The thing is, I used to be tough as nails.

> > > >> >

> > > >> > You asked for an abstract and here, I've written a book.

> Sorry.

> > > >> >

> > > >> > I'm so sick of this.

> > > >> >

> > > >> > Val

> > > >> >

> > > >> > From: hyperaldosteronism

> > > >> <mailto:hyperaldosteronism%40>

> > > >> > <mailto:hyperaldosteronism%40>

> > > >> > [mailto:hyperaldosteronism

> > > >> <mailto:hyperaldosteronism%40>

> > > >> > <mailto:hyperaldosteronism%40>] On Behalf Of

> > Dave

> > > >> >

> > > >> > Val, this salt sensitivity you describe is something I have

> > also,

> > > >> and

> > > >> > have minimized through balancing my aldo-blocker and sodium

> > > >> intake. To

> > > >> > get sodium up to a little under 1500mg per day I had to

> spread

> > it

> > > >> out

> > > >> > (no more than 350-500mg per meal) and get my spiro to 37mg.

> > That

> > > >> was

> > > >> > my optimum. The reason I tried to stay at 1500mg sodium is

> that

> > > >> was my

> > > >> > sensitivity point at first. As time wore on, that was not

> > enough

> > > >> as I

> > > >> > got precisely the symptoms you mention, plus postural

> > hypotension

> > > >> dizzy

> > > >> > spells. So, tweaking again to about 2400mg sodium. Now inspra

> > at

> > > >> 75mg.

> > > >> >

> > > >> > Does your " anxiety " include suspiratory (fast, hard)

> in-breaths

> > > >> during

> > > >> > the start, middle or after? Any hyperventialation (faster,

> more

> > > >> > breaths)? Is there some tachycardia or disrhythmia - before,

> > > >> during or

> > > >> > after? Feelings of " out of control thoughts, " or " flooding of

> > > >> > thoughts? " I'm interested because of work on so-called panic

> > > >> attacks at

> > > >> > Stanford.

> > > >> >

> > > >> > My cardiologist worried about too little sodium in my stage 4

> > > case

> > > >> of PA

> > > >> > (25-30 yrs undiagnosed or treated) because my metabolism had

> > > >> adjusted to

> > > >> > so much more (probably 10-12 grams per day) for 30 years.

> > > >> >

> > > >> > Too little and my body complained.

> > > >> >

> > > >> > Dave

> > > >> >

> > > >> > Valarie wrote:

> > > >> > >

> > > >> > > I believe I've had a profound response to 50 mg spiro. My

> BP

> > is

> > > >> > running at

> > > >> > > about 126/79. Pulse has dropped from mid 80's to high 60's.

> > > >> That's on

> > > >> > > extremely low sodium (~800 mg/day). If I eat more than

> that,

> > BP

> > > >> > rises back

> > > >> > > up. After having lower BP for a few days, I ate about 1,000

> > mg

> > > >> of sodium

> > > >> > > last night. I'd had about 400 mg during the day. Within a

> few

> > > >> hours, BP

> > > >> > > was 143/80, anxiety was considerably heightened, heart

> > > pounding.

> > > >> I have

> > > >> > > been aware for at least four years that I am very sensitive

> > to

> > > >> salt.

> > > >> > Only

> > > >> > > recently, however, have I been carefully keeping it less

> than

> > > >> 800 mg.

> > > >> > > Before, I just didn't eat obviously salty food and never

> used

> > > >> the salt

> > > >> > > shaker. ly, I don't want to have to maintain on less

> > than

> > > >> 800 mg.

> > > >> > > so I

> > > >> > > guess I need a bit more spiro.

> > > >> > >

> > > >> > > I am thinking more and more about getting AVS at Mayo. I

> want

> > > the

> > > >> > > chance to

> > > >> > > be well. If I don't at least try, I'll spend the rest of my

> > > years

> > > >> > > wondering

> > > >> > > if I could have felt really well, just once. I've spent so

> > many

> > > >> years

> > > >> > > being

> > > >> > > sick (hyperparathyroid, hypothyroid).

> > > >> > >

> > > >> > > Still having sweats. Maybe my doc can figure them out. I'm

> > > going

> > > >> to

> > > >> > pursue

> > > >> > > MEN 1 genetic testing.

> > > >>

> > > >>

Share this post


Link to post
Share on other sites
Guest guest

On Mar 30, 2008, at 9:23 PM, Clarence Grim wrote:

>

>

> Begin forwarded message:

>

> > From: Clarence Grim <lowerbp2@...>

> > Date: March 30, 2008 9:11:16 PM CDT

> > hyperaldosteronism

> > Subject: Fwd: Fwd: Unable to deliver your

> message

> > Reply-hyperaldosteronism

> >

> >

> >

> > Begin forwarded message:

> >

> > > From: Clarence Grim <lowerbp2@...>

> > > Date: March 29, 2008 10:47:35 PM CDT

> > > hyperaldosteronism

> > > Subject: Fwd: Unable to deliver your message

> > > Reply-hyperaldosteronism

> > >

> > >

> > >

> > > Begin forwarded message:

> > >

> > > > From: <notify >

> > > > Date: March 29, 2008 10:32:22 PM CDT

> > > > LOWERBP2@...

> > > > Subject: Unable to deliver your message

> > > >

> > > >

> > > > We are unable to deliver the message from <LOWERBP2@...>

> > > > to <hyperaldosteronism >.

> > > >

> > > > The email address used to send your message is not subscribed to

> > > this

> > > > group. If you are a member of this group, please be aware that

> you

> > > may

> > > > only send messages to this group using the email address(es) you

> > > have

> > > > registered with .

> > > >

> > > > If you would like to subscribe to this group:

> > > > 1. visit

> > > > hyperaldosteronism/join

> > > > -OR-

> > > > 2. send email to hyperaldosteronism-subscribe

> > > >

> > > > For further assistance, please visit

> > > > http://help./l/us//groups/original/members/web/

> > > > index.html

> > > >

> > > > From: Clarence Grim <lowerbp2@...>

> > > > Date: March 29, 2008 10:32:30 PM CDT

> > > > hyperaldosteronism

> > > > Subject: Re: Aldo and sodium, panic &

> anxiety

> > > >

> > > >

> > > >

> > > > On Mar 29, 2008, at 3:03 PM, Valarie wrote:

> > > >

> > > >> Thanks, Dave, for the acknowledgment. After I unloaded last

> > night,

> > > I

> > > >> felt

> > > >> kinda' bad. I generally try to be better controlled and

> > deliberate.

> > > >>

> > > >> This morning, I had two eggs, 1 toast, 1 T Smart Start, 1/2 &

> 1/2

> > > >> (15 mg Na)

> > > >> in coffee - 395 mg Na total. The familiar " gripping " started. I

> > > took

> > > >> two

> > > >> Valerian Root and calmed down. I would rather use that than

> > Ativan.

> > > >

> > > > Suggest you find a lower Na bread.

> > > >>

> > > >> My bump up to mid 140's BP came after I ingested 1,400 mg Na

> one

> > > >> day. This

> > > >> morning, it was back down to mid 120's. I've been avoiding salt

> > > like

> > > >> the

> > > >> plague.

> > > >

> > > >

> > > > No salt IS the plague in most with HTN. Esp if they also have

> PA.

> > > >

> > > >> I am going to have to work with this and find some combination

> of

> > > >> sodium and spiro that works. In all honesty, I believe the

> level

> > of

> > > >> anxiety

> > > >> is lessening but I'm still not normal. I keep a log and try to

> > > record

> > > >> " anxiety " for the day (scale = 1 - 10). It is difficult because

> > the

> > > >> level

> > > >> varies so much from hour to hour. In general, however, I'm

> seeing

> > > >> fewer 7 -

> > > >> 10 levels than I was a few weeks ago. There were many days back

> > > from

> > > >> September through February, when the level was 10+ and fairly

> > > >> constant (BP

> > > >> was 160 - 210).

> > > >>

> > > >> I have said before here that anti-depressants are perhaps one

> of

> > > the

> > > >> worst

> > > >> drugs ever invented. When I went to CU Medical, that's the

> first

> > > >> thing they

> > > >> threw at me. In spite of sometimes unloading here, I am not an

> > > >> hysterical

> > > >> woman. I guess it is easier to mask symptoms than to find

> causes.

> > > >>

> > > >> Your mention of PA masking hypercalcemia, thyroid, etc is so

> > > >> interesting,

> > > >> and so, so lacking in research. I read a case study last night

> > > about

> > > >> a 50-yo

> > > >> woman presenting with significant stomach pain, hypertension,

> > > weight

> > > >> gain

> > > >> (40 lbs in three years), and generalized anxiety disorder.

> > > >> Ordinarily, I

> > > >> would presume, she would have been given Prozac, HCTZ, and be

> > told

> > > >> to eat

> > > >> less and take Prevacid. A stomach CT disclosed an incidentaloma

> > on

> > > >> her

> > > >> adrenal. AVS proved it to be an aldo-producing adenoma. Two

> years

> > > >> after

> > > >> surgery, she was well with normal BP. It didn't report on the

> > level

> > > >> of

> > > >> anxiety nor if there had been any weight loss. I think

> " anxiety "

> > is

> > > >> not

> > > >> regarded with much respect, even though its presence can be

> > > >> debilitating.

> > > >> Maybe I need to start describing it as " gripping " instead of

> > > >> " anxiety. "

> > > >

> > > > There is not a good anxiety scale that I know of. I suggest our

> > > group

> > > > work on this.

> > > >

> > > >

> > > >>

> > > >> I'm going to again start tracking every morsel that goes into

> my

> > > >> mouth. I

> > > >> will keep a graph for the next doc who says to " eat less. " I

> had

> > > been

> > > >> tracking it when I went to CU Medical. The young, flippant endo

> > > >> looked at

> > > >> it and said, " Looks like something's really out of balance. "

> End

> > of

> > > >> conversation. She had virtually no scientific curiosity.

> Perhaps

> > an

> > > >> affirmative action hire?

> > > >

> > > > Most likely has not recognized PA in her own Pts and not

> followed

> > > any

> > > > for a long time.

> > > >>

> > > >> In reading through old posts, I find recurring mention of

> > anxiety,

> > > >> sweats,

> > > >> hyped up, coffee high, etc. Surely, we're not all nuts.

> > > >>

> > > >> I just got 300- 25 mg spiro in the mail. Now, my husband can

> stop

> > > >> worrying

> > > >> about the truckers' strike :). I'm not going to take any

> > additional

> > > >> until I

> > > >> see where K is.

> > > >>

> > > >> Feel free to bounce stuff off me. I'll talk yur ear off :).

> Feel

> > > >> free to

> > > >> use any of my writing or ideas any way you want.

> > > >>

> > > >> BTW, back in my " nerves of stone " days, I had two " location

> > theory "

> > > >> articles

> > > >> published and even presented one at an economics conference. I

> > > >> traded that

> > > >> life for motherhood. That took nerves of stone, too - two

> > preemies,

> > > >> and an

> > > >> educational system that cultivates and lauds mediocrity.

> > > >>

> > > >> Val

> > > >>

> > > >> From: hyperaldosteronism

> > > >>

> > > >> [mailto:hyperaldosteronism ] On Behalf Of Dave

> > > >>

> > > >> Val this is such a great entry for the registry Dr Grim wants

> to

> > > >> make in

> > > >> here - but for a database expert. I am learning things from it

> in

> > > >> increasing amounts.

> > > >>

> > > >> If PA can mask hypercalcemia (which does not have to be where

> it

> > > >> should

> > > >> be - in the ones, hair, calming mechanisms, etc) and

> > hypothyroidism

> > > >> (as

> > > >> it did with me too), I wonder what else this systemic metabolic

> > > >> condition can do if left alone (or, neglected) long enough?

> > > >>

> > > >> There seem to be receptors left w/o aldo blocking action from

> > spiro

> > > >> or

> > > >> eplerenone. Calcium deposits, arthritic spines, Ca residue in

> > extra

> > > >> sweats, electrolyte problems (e.g. hypomagesia, already a food

> > > >> problem

> > > >> in industrial societies), temporary paralysis, pins and

> needles,

> > > >> positive Chvostek & Trousseau sign, parasthesias, kidney " funny

> > > >> labile

> > > >> function " (eg. nocturnal polyuria). Neurological

> (non-congestive)

> > > >> breathing stoppages, along with other autonomic problems. These

> > are

> > > >> among the things which seem to go on after the BP and potassium

> > are

> > > >> normalized --and called " anxiety " by some doctors.

> > > >>

> > > >> Before I can respond with a few things from my anxiety study, I

> > > will

> > > >> have to reconnoiter. Staying on-topic with PA seems easy in

> this

> > > >> subject area. One field in my qualitative research is

> > professional

> > > >> (lawyers and physicians) coping mechanisms (without getting too

> > > >> psychological). The most common reaction from professionals, in

> > our

> > > >> interview and participant observation ethnographies has been -

> > you

> > > >> guessed it - some variation of saying the client or patient is

> > > crazy,

> > > >> anxious, depressed, OCD, etc.

> > > >>

> > > >> If they don't know it, or it isn't easy to find, isn't in

> caselaw

> > > or

> > > >> practicum, or most of all - isn't yielding to their

> professional

> > > >> efforts

> > > >> - AHA! It's psychological (doesn't exist except in the client's

> > or

> > > >> pts'

> > > >> mind).

> > > >>

> > > >> More soon,

> > > >>

> > > >> Dave

> > > >>

> > > >> Valarie wrote:

> > > >> >

> > > >> > The anxiety I talk about is hard to explain, Dave. I will

> try.

> > > >> These are

> > > >> > numbered so when distorts them, they may retain some

> > > >> semblance of

> > > >> > order.

> > > >> >

> > > >> > When I eat too much salt,

> > > >> > 1) I can feel my muscles cramp up, especially back neck and

> > > >> shoulders;

> > > >> > sometimes in the front of my neck and chest.

> > > >> > 2) I get a terrible feeling of panic, like a vice is grabbing

> > my

> > > >> heart and

> > > >> > squeezing hard

> > > >> > 3) My heart feels " funny " like it is beating lightly (or

> maybe

> > > not

> > > >> even

> > > >> > beating) but I cannot discern that it is irregular. I used to

> > get

> > > >> heart

> > > >> > " flutters " but don't have them much right now.

> > > >> > 4) I don't breathe fully; sometimes I become aware that I'm

> > > almost

> > > >> holding

> > > >> > my breath. Paralysis of some sort?

> > > >> > 5) I am not hyperventilating.

> > > >> > 6) Sometimes, I try to take deep belly breaths and find I'm

> not

> > > in

> > > >> control

> > > >> > enough to do that.

> > > >> > 7) Sometimes, it beats really hard in my chest. I've had both

> > > >> sensations.

> > > >> > The hard beating usually happens directly after eating salt

> and

> > > >> > doesn't last

> > > >> > long.

> > > >> > 8) Imagine chewing on tinfoil - that's how my whole body

> feels.

> > > >> > 9) I've had two episodes of nighttime paralysis after eating

> > > salty

> > > >> > meals in

> > > >> > the last few months.

> > > >> > 10) Estradiol (transdermal) started giving me the sensations

> of

> > > >> the vice

> > > >> > grip. I quit it over a month ago, but don't want to stay off

> > > >> indefinitely.

> > > >> > 11) My heart rate highest was mid 90's. Since spiro, it has

> > gone

> > > >> down to

> > > >> > mostly the 70's.

> > > >> > 12) I do not get dizzy and certainly, have no hypotension

> > > >> >

> > > >> > Tonight we had salmon (from that yummy mail order place I

> > posted)

> > > >> and

> > > >> > shell

> > > >> > pasta salad w/broccoli (from the Healthy Heart Mart - 0 Mg

> > Na). I

> > > >> put a

> > > >> > tiny bit of salty marinade on the salmon and a few

> tablespoons

> > of

> > > >> mayo in

> > > >> > the salad. I had probably 400 mg Na and could feel the vice

> > grip

> > > >> for a

> > > >> > while. Sometimes, eating makes me feel better - especially a

> > > baked

> > > >> potato.

> > > >> > When I went to the CU Med School in 2005, I remember telling

> my

> > > >> doc that I

> > > >> > felt a real need to control my salt. She said she thought

> that

> > > >> might be a

> > > >> > good idea. The whole experience there was dismal, but I know

> > you

> > > >> know all

> > > >> > about dismal experiences.

> > > >> >

> > > >> > When the anxiety and sweats come in the early mornings, the

> > > >> foreboding

> > > >> > " thoughts " always get to me. Feelings of " out of control

> > > >> thoughts, " or

> > > >> > " flooding of

> > > >> > thoughts? " Yes! Ativan has helped me sleep longer and has

> > > >> generally calmed

> > > >> > the thoughts. I believe now, when the sweats come, I don't

> get

> > as

> > > >> anxious.

> > > >> > I hate depending on Ativan. I'm theorizing that the sweats

> are

> > my

> > > >> body's

> > > >> > attempt to dump potassium or salt or something.

> > > >> >

> > > >> > The other face of the anxiety is my complete inability to

> deal

> > > with

> > > >> > anything

> > > >> > even mildly upsetting. Mind you, I used to be a college

> > teacher.

> > > I

> > > >> could

> > > >> > whip 450 students into shape and make them learn economics

> in a

> > > >> huge

> > > >> > lecture

> > > >> > hall. They knew better than to give me any lip. Its as

> though I

> > > >> was born

> > > >> > knowing how to do it. They loved me. I raised five educated,

> > > >> successful

> > > >> > children. They love me too. I've managed political

> campaigns. I

> > > >> could

> > > >> > tear a rental apart and restore it to grand elegance. I built

> > > some

> > > >> of my

> > > >> > furniture. In 2004, I built my daughter a wedding dress with

> 54

> > > >> yards of

> > > >> > silk and 2,000,000 embroidery stitches (I was getting sick

> then

> > > >> but just

> > > >> > pushed through it). My point is that, before this ugly

> > disease, I

> > > >> was

> > > >> > powerful. I could do anything. I was not a wimp. Now, I am

> > > >> reclusive and

> > > >> > avoid talking to anyone or answering the telephone. I just

> > can't

> > > >> take any

> > > >> > pressure. I never shop anymore as I get too overwhelmed

> looking

> > > >> for what I

> > > >> > want or I get too weak. I make all my own clothes because I'm

> > too

> > > >> short to

> > > >> > buy anything. I can't sew right now and will soon be naked.

> > > >> >

> > > >> > Today, I tried to calm myself with 300 mg of Pantethine. It

> > sent

> > > me

> > > >> > into an

> > > >> > anxious sweat that lasted several hours. No luck there. Extra

> > > >> Vitamin D

> > > >> > increases the anxiety. I've become terribly sensitive to

> > > >> everything it

> > > >> > seems. The only thing that seems good is my cal/mag/D

> > > >> (1000/500/200). My

> > > >> > bones are bad so I'm grateful about that.

> > > >> >

> > > >> > My husband tries to be understanding and protective but he's

> > such

> > > >> a klutz.

> > > >> > He walked into my office a few minutes ago with the

> foreboding

> > > >> > pronouncement

> > > >> > that we're going to have to figure out how to stay alive for

> > the

> > > >> next

> > > >> > three

> > > >> > weeks. I immediately went into panic mode, everything

> tightened

> > > >> up, and I

> > > >> > was a nervous wreck. Then he gave me the rest of the story -

> a

> > > >> possible

> > > >> > trucker strike. He was thinking about how I will get spiro. I

> > > have

> > > >> not

> > > >> > cried through this but tonight it was the only way I cope.

> > > >> Irrational, I

> > > >> > know.

> > > >> >

> > > >> > This has been getting worse and worse since 2002. I'm sure a

> > good

> > > >> part of

> > > >> > the anxiety is the waiting and wondering and trying to figure

> > > >> things

> > > >> > out. I

> > > >> > was greatly relieved when my endo agreed with Dr. Grim that I

> > > have

> > > >> PA. I

> > > >> > was greatly relieved when my BP dropped down into the 120's

> > after

> > > >> > three days

> > > >> > of spiro. It has bumped back up now to the mid 140's for the

> > last

> > > >> > couple of

> > > >> > days. I need more spiro but endo is tight-fisted until she

> > gets a

> > > >> K level

> > > >> > next Thursday. I'm trying to get FitDay set up again so I can

> > > >> tract Na

> > > >> > precisely but haven't been able to concentrate on it.

> > > >> >

> > > >> > I was this somewhat this way back in 1999, trying to get an

> HMO

> > > >> doctor to

> > > >> > approve parathyroid surgery. I talked to Dr. Norman in Tampa

> > but

> > > >> > ultimately

> > > >> > concluded I was too weak and wracked to make the trip. Plus,

> > the

> > > >> damn HMO

> > > >> > would only pay 10%. Maybe anxiety is just my way of dealing

> > with

> > > >> any

> > > >> > stress. The thing is, I used to be tough as nails.

> > > >> >

> > > >> > You asked for an abstract and here, I've written a book.

> Sorry.

> > > >> >

> > > >> > I'm so sick of this.

> > > >> >

> > > >> > Val

> > > >> >

> > > >> > From: hyperaldosteronism

> > > >> <mailto:hyperaldosteronism%40>

> > > >> > <mailto:hyperaldosteronism%40>

> > > >> > [mailto:hyperaldosteronism

> > > >> <mailto:hyperaldosteronism%40>

> > > >> > <mailto:hyperaldosteronism%40>] On Behalf Of

> > Dave

> > > >> >

> > > >> > Val, this salt sensitivity you describe is something I have

> > also,

> > > >> and

> > > >> > have minimized through balancing my aldo-blocker and sodium

> > > >> intake. To

> > > >> > get sodium up to a little under 1500mg per day I had to

> spread

> > it

> > > >> out

> > > >> > (no more than 350-500mg per meal) and get my spiro to 37mg.

> > That

> > > >> was

> > > >> > my optimum. The reason I tried to stay at 1500mg sodium is

> that

> > > >> was my

> > > >> > sensitivity point at first. As time wore on, that was not

> > enough

> > > >> as I

> > > >> > got precisely the symptoms you mention, plus postural

> > hypotension

> > > >> dizzy

> > > >> > spells. So, tweaking again to about 2400mg sodium. Now inspra

> > at

> > > >> 75mg.

> > > >> >

> > > >> > Does your " anxiety " include suspiratory (fast, hard)

> in-breaths

> > > >> during

> > > >> > the start, middle or after? Any hyperventialation (faster,

> more

> > > >> > breaths)? Is there some tachycardia or disrhythmia - before,

> > > >> during or

> > > >> > after? Feelings of " out of control thoughts, " or " flooding of

> > > >> > thoughts? " I'm interested because of work on so-called panic

> > > >> attacks at

> > > >> > Stanford.

> > > >> >

> > > >> > My cardiologist worried about too little sodium in my stage 4

> > > case

> > > >> of PA

> > > >> > (25-30 yrs undiagnosed or treated) because my metabolism had

> > > >> adjusted to

> > > >> > so much more (probably 10-12 grams per day) for 30 years.

> > > >> >

> > > >> > Too little and my body complained.

> > > >> >

> > > >> > Dave

> > > >> >

> > > >> > Valarie wrote:

> > > >> > >

> > > >> > > I believe I've had a profound response to 50 mg spiro. My

> BP

> > is

> > > >> > running at

> > > >> > > about 126/79. Pulse has dropped from mid 80's to high 60's.

> > > >> That's on

> > > >> > > extremely low sodium (~800 mg/day). If I eat more than

> that,

> > BP

> > > >> > rises back

> > > >> > > up. After having lower BP for a few days, I ate about 1,000

> > mg

> > > >> of sodium

> > > >> > > last night. I'd had about 400 mg during the day. Within a

> few

> > > >> hours, BP

> > > >> > > was 143/80, anxiety was considerably heightened, heart

> > > pounding.

> > > >> I have

> > > >> > > been aware for at least four years that I am very sensitive

> > to

> > > >> salt.

> > > >> > Only

> > > >> > > recently, however, have I been carefully keeping it less

> than

> > > >> 800 mg.

> > > >> > > Before, I just didn't eat obviously salty food and never

> used

> > > >> the salt

> > > >> > > shaker. ly, I don't want to have to maintain on less

> > than

> > > >> 800 mg.

> > > >> > > so I

> > > >> > > guess I need a bit more spiro.

> > > >> > >

> > > >> > > I am thinking more and more about getting AVS at Mayo. I

> want

> > > the

> > > >> > > chance to

> > > >> > > be well. If I don't at least try, I'll spend the rest of my

> > > years

> > > >> > > wondering

> > > >> > > if I could have felt really well, just once. I've spent so

> > many

> > > >> years

> > > >> > > being

> > > >> > > sick (hyperparathyroid, hypothyroid).

> > > >> > >

> > > >> > > Still having sweats. Maybe my doc can figure them out. I'm

> > > going

> > > >> to

> > > >> > pursue

> > > >> > > MEN 1 genetic testing.

> > > >>

> > > >>

Share this post


Link to post
Share on other sites
Guest guest

Begin forwarded message:

> From: <notify >

> Date: March 31, 2008 12:14:40 PM CDT

> LOWERBP2@...

> Subject: Unable to deliver your message

>

>

> We are unable to deliver the message from <LOWERBP2@...>

> to <hyperaldosteronism >.

>

> The email address used to send your message is not subscribed to this

> group. If you are a member of this group, please be aware that you may

> only send messages to this group using the email address(es) you have

> registered with .

>

> If you would like to subscribe to this group:

> 1. visit

> hyperaldosteronism/join

> -OR-

> 2. send email to hyperaldosteronism-subscribe

>

> For further assistance, please visit

> http://help./l/us//groups/original/members/web/

> index.html

>

> From: Clarence Grim <lowerbp2@...>

> Date: March 31, 2008 12:13:33 PM CDT

> hyperaldosteronism

> Subject: Re: Re: New file uploaded to

> hyperaldosteronism

>

>

> Some folks seem to get by with once a day.

>

>

> On Mar 31, 2008, at 12:32 AM, airlinerg wrote:

>

>> This file is also located on the original website at

>>

>> http://www.emedicine.com/MED/topic3193.htm

>>

>> from Emedicine website sponsored by WebMD

>>

>> I am surprised it has no mention of the DASH diet and talks very

>> little about the role of diet in hyperaldosteronsim and puts the

>> primary emphasis on medication.

>>

>> It says the maximum dose of Inspra should be 100 mg per day with the

>> average dose of Inspra 50 mg per day. I am taking quadruple that

>> amount, and I know that Inspra is needed at least every 12 hours for

>> blood pressure control if not 3 or 4 times a day if I had the

>> patience to divide it up.

>>

>> Inspra is definitely not a time released drug and its effect will

>> wear off completely in 12 hours. That is what I discovered from a

>> few years of using it.

>>

>> Airlinerg

>>

>>

>> >

>> >

>> > Hello,

>> >

>> > This email message is a notification to let you know that

>> > a file has been uploaded to the Files area of the

>> hyperaldosteronism

>> > group.

>> >

>> > File : / Primary Hyperaldosteronism

>> > Uploaded by : airlinerg <airlinerg@...>

>> > Description : Author I Uwaifo MBBS, Clinical and

>> Research Attending, MedStar Clinical Research Center, Assistant

>> Professor of Medicine and Endocrinology, The MedStar Research

>> Institute and the Washington Hospital Center

>> >

>> > You can access this file at the URL:

>> > hyperaldosteronism/files/%20Primary%

>> 20Hyperaldosteronism

>> >

>> > To learn more about file sharing for your group, please visit:

>> >

>> http://help./l/us//groups/original/members/web/index.ht

>> mlfiles

>> >

>> > Regards,

>> >

>> > airlinerg <airlinerg@...>

>> >

>>

>>

> May your pressure be low!

>

> CE Grim BS, MS, MD

> High Blood Pressure Consulting

> Specializing in Difficult to Manage High Blood Pressure

> Consult the following at for details

> bloodpressureline

> hyperaldosteronism

>

>

>

May your pressure be low!

CE Grim BS, MS, MD

High Blood Pressure Consulting

Specializing in Difficult to Manage High Blood Pressure

Consult the following at for details

bloodpressureline

hyperaldosteronism

Share this post


Link to post
Share on other sites
Guest guest

Begin forwarded message:

> From: <notify >

> Date: April 2, 2008 11:35:27 AM CDT

> LOWERBP2@...

> Subject: Unable to deliver your message

>

>

> We are unable to deliver the message from <LOWERBP2@...>

> to <hyperaldosteronism >.

>

> The email address used to send your message is not subscribed to this

> group. If you are a member of this group, please be aware that you may

> only send messages to this group using the email address(es) you have

> registered with .

>

> If you would like to subscribe to this group:

> 1. visit

> hyperaldosteronism/join

> -OR-

> 2. send email to hyperaldosteronism-subscribe

>

> For further assistance, please visit

> http://help./l/us//groups/original/members/web/

> index.html

>

> From: Clarence Grim <lowerbp2@...>

> Date: April 2, 2008 11:35:46 AM CDT

> hyperaldosteronism

> Subject: Re: Wild Rice

>

>

> Will check our prices here. Seems to me the MN brand is much darker

> than brown rice and I may have mispoke re black.

>

> On Apr 2, 2008, at 11:24 AM, kimsstay wrote:

>

>> Hey Dr. Grim & others:

>>

>> If you like wild rice, we grow some of the best here in northern MN.

>> I

>> have friends who market some that is locally processed in the native

>> american fashion (by canoe, parched, etc.), no additives. It is not

>> black, the black is commercially paddy grown. I find that the natural

>> wild rice doesn't take as long to cook and tastes 'nuttier'. If you

>> are interested I can see if they will ship to you, they sell it for

>> $7.50 per pound.

>>

>> Kim in MN

>>

>>

> May your pressure be low!

>

> CE Grim BS, MS, MD

> High Blood Pressure Consulting

> Specializing in Difficult to Manage High Blood Pressure

> Consult the following at for details

> bloodpressureline

> hyperaldosteronism

>

>

>

May your pressure be low!

CE Grim BS, MS, MD

High Blood Pressure Consulting

Specializing in Difficult to Manage High Blood Pressure

Consult the following at for details

bloodpressureline

hyperaldosteronism

Share this post


Link to post
Share on other sites
Guest guest

Begin forwarded message:

> From: <notify >

> Date: April 12, 2008 8:40:07 PM CDT

> LOWERBP2@...

> Subject: Unable to deliver your message

>

>

> We are unable to deliver the message from <LOWERBP2@...>

> to <hyperaldosteronism >.

>

> The email address used to send your message is not subscribed to this

> group. If you are a member of this group, please be aware that you may

> only send messages to this group using the email address(es) you have

> registered with .

>

> If you would like to subscribe to this group:

> 1. visit

> hyperaldosteronism/join

> -OR-

> 2. send email to hyperaldosteronism-subscribe

>

> For further assistance, please visit

> http://help./l/us//groups/original/members/web/

> index.html

>

> From: Clarence Grim <lowerbp2@...>

> Date: April 12, 2008 8:40:40 PM CDT

> hyperaldosteronism

> Subject: Re: What does supine mean with an aldo

> test

>

>

>

> On Apr 12, 2008, at 8:28 PM, Valarie wrote:

>

>> Cortisol might as well have been ascertained as " high " ; it was ~8:30A

>> and I was not feeling stressed in the least; value was 21.4 (range

>> 3.1-22.4 ug/dl)

>

> This is a normal cortisol. Cortisol does not correlate with feeling

> stressed.

>>

>> Renin, plasma - 1.22 upright 1.31-3.95; supine .15-2.33 ng/ml/hr

>> Aldosterone - 17.1 upright; supine 1.0 - 16.0

>

> renin is low and aldo is high. She has PA early stage.

>

>

>> Again, LabCorps is supposed to note position and apparently they went

>> by recumbent or " supine " . Either way, something is off.

>>

> May your pressure be low!

>

> CE Grim BS, MS, MD

> High Blood Pressure Consulting

> Specializing in Difficult to Manage High Blood Pressure

> Consult the following at for details

> bloodpressureline

> hyperaldosteronism

>

>

>

May your pressure be low!

CE Grim BS, MS, MD

High Blood Pressure Consulting

Specializing in Difficult to Manage High Blood Pressure

Consult the following at for details

bloodpressureline

hyperaldosteronism

Share this post


Link to post
Share on other sites
Guest guest

Begin forwarded message:

> From: <notify >

> Date: April 12, 2008 8:31:24 PM CDT

> LOWERBP2@...

> Subject: Unable to deliver your message

>

>

> We are unable to deliver the message from <LOWERBP2@...>

> to <hyperaldosteronism >.

>

> The email address used to send your message is not subscribed to this

> group. If you are a member of this group, please be aware that you may

> only send messages to this group using the email address(es) you have

> registered with .

>

> If you would like to subscribe to this group:

> 1. visit

> hyperaldosteronism/join

> -OR-

> 2. send email to hyperaldosteronism-subscribe

>

> For further assistance, please visit

> http://help./l/us//groups/original/members/web/

> index.html

>

> From: Clarence Grim <lowerbp2@...>

> Date: April 12, 2008 8:31:35 PM CDT

> hyperaldosteronism

> Subject: Re: Val's story (cont)

>

>

> LVH can be detected lower by 2 weeks of diuretics or low sodium diet.

>

> If you look at Kempner's 1944 pubs he saw complete reversal in 2-3

> months by chest xray and by EKG with the rice fruit diet.

>

> I think we have uploaded my slides on this one time.

>

>

> Need to get my talk on this in ppt so folks can view it. But dont

> know how to publish it on the web.

>

>

> On Apr 12, 2008, at 6:27 PM, Valarie wrote:

>

>> Dave, I'm not a baby. I want full information about everything. I

>> hardly

>> understand what you're saying so will study. Thanks.

>>

>> Val

>>

>> From: hyperaldosteronism

>>

>> [mailto:hyperaldosteronism ] On Behalf Of Dave

>>

>> Mine was 26mm. Took tow years of low BP to shrink to 17mm, at the

>> line

>> of statistical risk

>>

>> You know the difference between our " non-specific " (translation : we

>> don't know yet) cardiac patterns including (but not limited to) PVC's

>> and the (usually thought) " more serious " arrhythmias with lower

>> ejection

>> fractions (the ones that qualify - and have comensatory

>> defibrillating

>> programs written for - I.C.D.'s)? Our " non-specific " left ventricle

>> myopathies?

>>

>> If not please look it up. I just don't have, um; the heart to tell

>> you. No other expense will be in front of it in line. Some

>> cardiologists don't say anything; ignoring it and others figure

>> " she/he

>> will never know. " So most won't tell you.

>>

>> However, you don't strike me as someone who wants to be treated like

>> a

>> child or have things withheld. . .it is pat of the mathematical " by

>> the

>> numbers " risk medicine, so controversial, but I personally want to

>> take

>> any known precaution.

>>

>> dave

>>

>> Valarie wrote:

>> >

>> > How long did yours take to shrink? How bad was it? Will continue

>> to look

>> > for my records but am way behind today in book work and other

>> > necessities of

>> > life.

>> >

>> > Val

>> >

>> > From: hyperaldosteronism

>> <mailto:hyperaldosteronism%40>

>> > <mailto:hyperaldosteronism%40>

>> > [mailto:hyperaldosteronism

>> <mailto:hyperaldosteronism%40>

>> > <mailto:hyperaldosteronism%40>] On Behalf Of Dave

>> >

>> > The echo was nine years ago? Some left ventricular thickening? I'd

>> do

>> > it again now, and stick with the spiro to keep BP low. LVH (a

>> > condition of untreated HTN) can shrink back if you keep your BP

>> low. I

>> > shrank mine and stopped the arrhythmias.

>> >

>> > Dave

>> >

>> > Valarie wrote:

>> > >

>> > > I had an echo in 1999, just before PTH surgery. The technician

>> was

>> > amazed

>> > > with the strength. The radiologist noted a " slight LV

>> thickening " but

>> > > called the echo normal.

>> >

>>

>>

Share this post


Link to post
Share on other sites
Guest guest

Begin forwarded message:

> From: <notify >

> Date: April 13, 2008 8:12:30 PM CDT

> LOWERBP2@...

> Subject: Unable to deliver your message

>

>

> We are unable to deliver the message from <LOWERBP2@...>

> to <hyperaldosteronism >.

>

> The email address used to send your message is not subscribed to this

> group. If you are a member of this group, please be aware that you may

> only send messages to this group using the email address(es) you have

> registered with .

>

> If you would like to subscribe to this group:

> 1. visit

> hyperaldosteronism/join

> -OR-

> 2. send email to hyperaldosteronism-subscribe

>

> For further assistance, please visit

> http://help./l/us//groups/original/members/web/

> index.html

>

> From: Clarence Grim <lowerbp2@...>

> Date: April 13, 2008 8:12:57 PM CDT

> hyperaldosteronism

> Subject: Re: What does supine mean with an aldo

> test

>

>

> If her BP was always 90 and now is 139 I would recommend DASH.

>

>

> On Apr 12, 2008, at 9:11 PM, Valarie wrote:

>

>> I will invite her to join our group. How is early stage PA treated

>> with a

>> BP as low as hers?

>> >

>> > renin is low and aldo is high. She has PA early stage.

>>

>>

Share this post


Link to post
Share on other sites
Guest guest

Begin forwarded message:

> From: <notify >

> Date: April 19, 2008 8:12:53 PM CDT

> LOWERBP2@...

> Subject: Unable to deliver your message

>

>

> We are unable to deliver the message from <LOWERBP2@...>

> to <hyperaldosteronism >.

>

> The email address used to send your message is not subscribed to this

> group. If you are a member of this group, please be aware that you may

> only send messages to this group using the email address(es) you have

> registered with .

>

> If you would like to subscribe to this group:

> 1. visit

> hyperaldosteronism/join

> -OR-

> 2. send email to hyperaldosteronism-subscribe

>

> For further assistance, please visit

> http://help./l/us//groups/original/members/web/

> index.html

>

> From: Clarence Grim <lowerbp2@...>

> Date: April 19, 2008 8:12:52 PM CDT

> hyperaldosteronism

> Subject: Re: New file uploaded to

> hyperaldosteronism

>

>

> Can we create folders or update the file when new items are added by

> pasting into the first doc so that there is not a docuement for each

> article?

>

>

> On Apr 19, 2008, at 3:17 PM, hyperaldosteronism wrote:

>

>>

>> Hello,

>>

>> This email message is a notification to let you know that

>> a file has been uploaded to the Files area of the hyperaldosteronism

>> group.

>>

>> File : /HTN & Thyroid Metabolism/DIFFERENT EFFECTS OF BETA

>> BLOCKERS.doc

>> Uploaded by : val1198 <val@...>

>> Description : Beta blockers and thyroid

>>

>> You can access this file at the URL:

>> hyperaldosteronism/files/

>> HTN%20%26%20Thyroid%20Metabolism/

>> DIFFERENT%20EFFECTS%20OF%20BETA%20BLOCKERS.doc

>>

>> To learn more about file sharing for your group, please visit:

>> http://help./l/us//groups/original/members/web/

>> index.htmlfiles

>>

>> Regards,

>>

>> val1198 <val@...>

>>

>>

>>

> May your pressure be low!

>

> CE Grim BS, MS, MD

> High Blood Pressure Consulting

> Specializing in Difficult to Manage High Blood Pressure

> Consult the following at for details

> bloodpressureline

> hyperaldosteronism

>

>

>

May your pressure be low!

CE Grim BS, MS, MD

High Blood Pressure Consulting

Specializing in Difficult to Manage High Blood Pressure

Consult the following at for details

bloodpressureline

hyperaldosteronism

Share this post


Link to post
Share on other sites
Guest guest

Begin forwarded message:

> From: <notify >

> Date: May 7, 2008 5:01:08 PM CDT

> LOWERBP2@...

> Subject: Unable to deliver your message

>

>

> We are unable to deliver the message from <LOWERBP2@...>

> to <hyperaldosteronism >.

>

> The email address used to send your message is not subscribed to this

> group. If you are a member of this group, please be aware that you may

> only send messages to this group using the email address(es) you have

> registered with .

>

> If you would like to subscribe to this group:

> 1. visit

> hyperaldosteronism/join

> -OR-

> 2. send email to hyperaldosteronism-subscribe

>

> For further assistance, please visit http://help./l/us/

> /groups/original/members/web/index.html

>

> From: lowerbp2@...

> Date: May 7, 2008 5:01:02 PM CDT

> hyperaldosteronism

> Subject: Re: Changes to Hyperaldosteronism Group

>

>

>

> I am happy to become a co-owner if this is possible.

>

> Hope you will still keep us on our toes and share your expertise.

>

>

>

>

> From now on contact me at lowerbp2@...

>

>

>

> Changes to Hyperaldosteronism Group

>

>

>

>

>

>

> With great reluctance I have decided that I can no longer remain

> the " owner " of this group. Luckily Randy, one of the moderators, has

> volunteered to take over from me for which I am extremely grateful.

>

> Helen in Scotland

>

>

>

>

>

>

Share this post


Link to post
Share on other sites
Guest guest

Begin forwarded message:

> From: Clarence Grim <lowerbp2@...>

> Date: May 7, 2008 7:56:16 PM CDT

> hyperaldosteronism

> Subject: Fwd: Unable to deliver your message

> Reply-hyperaldosteronism

>

>

>

> Begin forwarded message:

>

> > From: <notify >

> > Date: May 7, 2008 5:01:08 PM CDT

> > LOWERBP2@...

> > Subject: Unable to deliver your message

> >

> >

> > We are unable to deliver the message from <LOWERBP2@...>

> > to <hyperaldosteronism >.

> >

> > The email address used to send your message is not subscribed to

> this

> > group. If you are a member of this group, please be aware that

> you may

> > only send messages to this group using the email address(es) you

> have

> > registered with .

> >

> > If you would like to subscribe to this group:

> > 1. visit

> > hyperaldosteronism/join

> > -OR-

> > 2. send email to hyperaldosteronism-subscribe

> >

> > For further assistance, please visit http://help./l/us/

> > /groups/original/members/web/index.html

> >

> > From: lowerbp2@...

> > Date: May 7, 2008 5:01:02 PM CDT

> > hyperaldosteronism

> > Subject: Re: Changes to Hyperaldosteronism

> Group

> >

> >

> >

> > I am happy to become a co-owner if this is possible.

> >

> > Hope you will still keep us on our toes and share your expertise.

> >

> >

> >

> >

> > From now on contact me at lowerbp2@...

> >

> >

> >

> > Changes to Hyperaldosteronism Group

> >

> >

> >

> >

> >

> >

> > With great reluctance I have decided that I can no longer remain

> > the " owner " of this group. Luckily Randy, one of the moderators, has

> > volunteered to take over from me for which I am extremely grateful.

> >

> > Helen in Scotland

> >

> >

> >

> >

> >

> >

>

>

Share this post


Link to post
Share on other sites
Guest guest

Note: forwarded message attached.

We are unable to deliver the message from <bostamrules@...>

to <kenyaaids >.

Your message was sent to a group that does not exist. Please check

to make sure you spelled the group name correctly.

For further assistance, please visit

http://help./l/us//groups/original/members/web/index.html

This aristocratic tradition of "population control" found its expression in America in the early 20th Century with the formation in 1904 of what was then known as the "Station for Experimental Evolution."Funded by generous grants from Carnegie—who stated publicly that he was a hearty supporter of Malthus' ideas on "population control"—Cornelius Vanderbilt, J. P. and D. Rockefeller, the Station conducted experiments involving different races. One of their goals was to learn how to curb the rapid birth rate of blacks and other "coloreds." As outrageous as it may sound now, this was a goal that was very much on the minds of the Eastern rich in America. They were as frightened of being overrun by the masses—particularly the blacks—as the British had been of the natives they ruled in their colonies.In 1910, Mrs. E. H. Harriman donated 80 acres of land

at Cold Spring Harbor, Long Island, and $300,000 to the Station for Experimental Evolution to establish a "Eugenics Records Office." The widow of the man who created America's first great railroad fortune—the man who bankrolled the posse clever enough to track Butch Cassidy and the Sundance Kid, frightening them off to South America—her fortune was estimated at somewhere around a half billion dollars. The newspapers called her the richest woman in the world, and she became a driving force behind eugenics research in America. (Eugenics is defined as "the study of hereditary improvement by genetic control.") The thrust of the research conducted at Cold Spring Harbor was to improve the superiority of the white race. Mrs. Harriman wanted a world-wide campaign of sterilization of defectives "to make race perfect." The creation of a Master Race, in other words. The records of that era which are still available

indicate that this was a socially acceptable view among the rich who supported Cold Spring Harbor. They were determinedly making plans to halt the birth rate of blacks and colored people—Indians and Asians—especially in Africa and the United States. A typical attitude among this group was expressed publicly by the vice president of the Immigration Restriction League, Madison Grant, a friend of Teddy Roosevelt's and a trustee of the Museum of Natural History: "In Europe today, the amount of Nordic blood in each nation is a very fair measure of its strength in war and its standing in civilization. In the City of New York, and elsewhere in the United States there is a native American Aristocracy resting upon layer upon layer of immigrants of lower races…It has taken us 50 years to learn that speaking English, wearing good clothes and going to school and church does not transform a Negro into a white man…Americans will have a

similar experience with the Polish Jew, whose dwarf stature, peculiar mentality and ruthless concentration on self-interests are being grafted upon the stock of the nation. Indiscriminate efforts to preserve babies among the lower classes often results in serious injury to the race." Grant was a worthy heir to the spiritual tradition of Malthus—and he summarized nicely the world view of those who poured their money into the eugenics work of Cold Spring Harbor, both then and in the future. From 1915 until shortly before World War II, the Olympians opened the facilities at Cold Spring Harbor to many of Germany's leading genetic scientists. They conducted extensive research into the origins of various races and designed eugenics experiments to rid the world of the mentally retarded—who were called

"undesirables" or "defectives." Cold Spring Harbor gained the reputation as the world's leader in eugenics research. The scions of the most respected American families, such as the Harrimans, funded these experiments—which continue until this day and led to the creation of the AIDS virus.

Share this post


Link to post
Share on other sites
Guest guest

Note: forwarded message attached.

We are unable to deliver the message from <bostamrules@...>

to <kenyaaids >.

Your message was sent to a group that does not exist. Please check

to make sure you spelled the group name correctly.

For further assistance, please visit

http://help./l/us//groups/original/members/web/index.html

This aristocratic tradition of "population control" found its expression in America in the early 20th Century with the formation in 1904 of what was then known as the "Station for Experimental Evolution."Funded by generous grants from Carnegie—who stated publicly that he was a hearty supporter of Malthus' ideas on "population control"—Cornelius Vanderbilt, J. P. and D. Rockefeller, the Station conducted experiments involving different races. One of their goals was to learn how to curb the rapid birth rate of blacks and other "coloreds." As outrageous as it may sound now, this was a goal that was very much on the minds of the Eastern rich in America. They were as frightened of being overrun by the masses—particularly the blacks—as the British had been of the natives they ruled in their colonies.In 1910, Mrs. E. H. Harriman donated 80 acres of land

at Cold Spring Harbor, Long Island, and $300,000 to the Station for Experimental Evolution to establish a "Eugenics Records Office." The widow of the man who created America's first great railroad fortune—the man who bankrolled the posse clever enough to track Butch Cassidy and the Sundance Kid, frightening them off to South America—her fortune was estimated at somewhere around a half billion dollars. The newspapers called her the richest woman in the world, and she became a driving force behind eugenics research in America. (Eugenics is defined as "the study of hereditary improvement by genetic control.") The thrust of the research conducted at Cold Spring Harbor was to improve the superiority of the white race. Mrs. Harriman wanted a world-wide campaign of sterilization of defectives "to make race perfect." The creation of a Master Race, in other words. The records of that era which are still available

indicate that this was a socially acceptable view among the rich who supported Cold Spring Harbor. They were determinedly making plans to halt the birth rate of blacks and colored people—Indians and Asians—especially in Africa and the United States. A typical attitude among this group was expressed publicly by the vice president of the Immigration Restriction League, Madison Grant, a friend of Teddy Roosevelt's and a trustee of the Museum of Natural History: "In Europe today, the amount of Nordic blood in each nation is a very fair measure of its strength in war and its standing in civilization. In the City of New York, and elsewhere in the United States there is a native American Aristocracy resting upon layer upon layer of immigrants of lower races…It has taken us 50 years to learn that speaking English, wearing good clothes and going to school and church does not transform a Negro into a white man…Americans will have a

similar experience with the Polish Jew, whose dwarf stature, peculiar mentality and ruthless concentration on self-interests are being grafted upon the stock of the nation. Indiscriminate efforts to preserve babies among the lower classes often results in serious injury to the race." Grant was a worthy heir to the spiritual tradition of Malthus—and he summarized nicely the world view of those who poured their money into the eugenics work of Cold Spring Harbor, both then and in the future. From 1915 until shortly before World War II, the Olympians opened the facilities at Cold Spring Harbor to many of Germany's leading genetic scientists. They conducted extensive research into the origins of various races and designed eugenics experiments to rid the world of the mentally retarded—who were called

"undesirables" or "defectives." Cold Spring Harbor gained the reputation as the world's leader in eugenics research. The scions of the most respected American families, such as the Harrimans, funded these experiments—which continue until this day and led to the creation of the AIDS virus.

Share this post


Link to post
Share on other sites
Guest guest

---------- Forwarded message ----------

From: <notify >

Date: Wed, Oct 15, 2008 at 4:14 PM

Subject: Unable to deliver your message

hbotruth@...

We are unable to deliver the message from <hbotruth@...>

to <neuroHBOT >.

You are not allowed to send email to this group. There are two possible

reasons for this:

1. This group may only accept postings from moderators.

2. The moderator of this group may have removed your ability to post to

this group.

To contact the group moderator, send mail to NeuroHBOT-owner

For further assistance, please visit

http://help./l/us//groups/original/members/web/index.html

---------- Forwarded message ----------

From: " Hbo Truth " <hbotruth@...>

djolly@..., lisa@..., abreiner@...,

texas@..., fscramer2000@..., vhhmahopac@...,

tfox194026@..., gaudenziogarozzo@..., goldench@...,

mums@..., paulharchmd@..., clhmaxwell@...,

denise@..., oxyinfo@...,

lea.kueppers@..., pierremaroismd@...,

wsm@..., mcdaniel@...,

.Moffit@..., brm@..., arun@...,

jorient@..., danpavel@..., potkinr@...,

info@..., csanchez@..., info@...,

samhas@..., ninasubbotina@..., jtoole@...,

kvanmeter@..., wasnch@..., neuroch@...,

darrylwerner@..., jwhitaker@...,

valerie@..., neuroHBOT ,

medicaid , HBOTech ,

hbot , HDOTherapyforAutism ,

HBOTforStroke , hot4cp ,

HBOTnow , HBOT_MyChoice

Date: Wed, 15 Oct 2008 16:14:15 -0400

Subject: hbo truth blog

The HBO truth blog is now the homepage at hbotruth.com . I will try to make

daily updates.

Thanks to inaugural contributions from Drs. Maxfield and Harch.

If there are papers or studies you feel should be listed or noted please let

me know.

--

http://www.hbotruth.com

The complete, honest truth about hyperbaric oxygen for brain injury.

--

http://www.hbotruth.com

The complete, honest truth about hyperbaric oxygen for brain injury.

Share this post


Link to post
Share on other sites
Guest guest

>

> Celebrex is a 2 Inhibitor and not an anti-inflammatory as the

> others are. These thin one's blood and blood loss is something that

> needs to be controlled prior to surgery. Bone surgery is especially

> prone to excess blood loss since the bones can't be cauterized and

> therefore it is especially important that one's blood be able to

> clot as well as possible -- " thinning " inhibits clot formation which

> is why aspirin is prescribed to prevent heart attacks and one is

> advised to take aspirin immediately after a heart attack -- there

> may be other benefits to the heart and circulatory system as well.

>

> On Nov 30, 2008, at 9:03 AM, Eddiegr wrote:

>

>> I'm having RTHR surgery on December 8.

>> My Doctor's PA said to discontinue Advil, Aspirin and other NSAID's 7

>> days prior to surgery, but that I could continue Celebrex right up

>> until the day before surgery.

>> Has anyone else been told this?

>> Ed

>

>

>

Share this post


Link to post
Share on other sites
Guest guest

HIV/AIDS and Communication - DB Click - The Communication Initiative

DB Click: HIV/AIDS

January 2009

For people seeking to address HIV/AIDS issues and opportunities.

DB CLICK: HIV/AIDS updates you on recent HIV/AIDS initiatives including programme activities, awards, evaluation and research results, networks, books, other materials, planning ideas, change theories and other information recently placed on The Communication Initiative website.

DB CLICK: HIV/AIDS complements The Drum Beat through a specific focus on HIV/AIDS and development. It will be published bimonthly (every second month).

DB CLICK: HIV/AIDS Community: 11,762

CI Portal User Sessions, past 12 months: 2,529,192

If you have been forwarded this newsletter by a colleague or friend and would like to subscribe to the DB Click: HIV/AIDS and The Drum Beat, please send an email to drumbeat@... requesting to " subscribe: HIV " .

===

See also the HIV/AIDS Theme Site - Where communication and media are central to HIV/AIDS - http://ww

w.comminit.com/en/hiv-aids.html

===

1.

Changes in Sexual Behaviour Leading to the Decline in the Prevalence of HIV in Uganda: Confirmation from Multiple Sources of Evidence

This paper details an approach to identifying the changes in sexual behaviour that led to an observed dramatic reduction in the prevalence of HIV in Uganda in the early 1990s. Rather than present the evidence from one scientific method, this paper reviews 7 kinds of evidence and examines the consistency among them...

http://www.comminit.com/en/node/280349/347

2. Texts Tackle HIV in South Africa

Project Masiluleke, a text messaging project in South Africa, intends to tackle the problem of slowing the progress of HIV, in a country with an estimated 6 million people living with HIV, by encouraging people to seek testing and treatment. It is scheduled to send (beginning December 1 2008) one million free text messages a day to push people to be tested and treated...

http://www.comminit.com/en/node/280430/347

3. Girls' Education and HIV Prevention

This advocacy briefing note addresses the centrality of educating girls to HIV prevention worldwide. The note opens with statistics designed to give context and explain the motivation for stepping up efforts to achieve the Education for All (EFA) and Millennium Development Goals (MDGs)...

http://www.com

minit.com/en/node/280776/347

4. HIV and AIDS Education in Emergencies

This advocacy briefing note explores the role that HIV and AIDS education can play in preventing the rapid spread of HIV in post-conflict settings. It begins with an outline of some recent statistics that illustrate the complex relationship between HIV/AIDS and humanitarian crisis...

http://www.comminit.com/en/node/280789/347

5. Mainstreaming HIV in Education

This advocacy briefing note presents the framework of a sector-wide approach that mainstreams HIV and AIDS into existing education sector programmes. The current challenge noted here is that HIV/AIDS continues to be seen predominantly as a health issue, rather than a priority to be mainstreamed into overarching educational plans...

http://www.comminit.com/en/node/280802/347

6. Structural Approaches to HIV Prevention

This report builds on evidence and experience to address gaps affecting use of the structural approach to HIV prevention. The authors begin by defining structural factors and approaches; then they describe the available evidence on their effectiveness and discuss methodological challenges to the assessment of these efforts to reduce HIV risk and vulnerability...

http://www.comminit.com/en/node/281429/34

7

7. UNAIDS Combination Prevention Briefs

This series of briefs is designed to offer an overview of the key interventions needed as part of a combination prevention approach in the countries of Eastern and Southern Africa with high HIV prevalence. The briefs focus on the following 4 areas: modes of transmission, multiple concurrent partnerships, vulnerabilities of women and girls, and male circumcision...

http://www.comminit.com/en/node/280404/347

8. Behavior Change and HIV Prevention: (Re)Considerations for the 21st Century

This paper is the result of an examination of research and analysis of practices by the Global HIV Prevention Working Group. From the Executive Summary: " Recent results from clinical trials of potential new HIV prevention interventions underscore what we have known for decades: Wider delivery of effective behavior change strategies is central to reversing the global HIV epidemic... "

http://www.comminit.com/en/node/281663/347

9. Cross-Generational Sex: Risks and Opportunities

This brief is based on a larger review entitled, " Addressing Cross-Generational Sex: A Desk Review of Research and Programs, " as well as discussions with experts about the findings of this review. The brief is designed to broaden the understanding of cross-generational sex, look at how many young girls it affects, describe frameworks that guide current thinking about the behaviour, and propose lessons for improving future interventions...

http://www.comminit.com/en/node/281093/347

10. Battling Old Behaviour the New Front in AIDS Fight

This article looks at the impact of multiple concurrent partners on the HIV pandemic in Uganda, as well as a new campaign initiated by Population Services International (PSI) that aims to discourage the " Sugar Daddy " phenomenon. The article argues that a new resurgence in HIV infection in Uganda has been spurred on by an increase in multiple concurrent partnerships...

http://www.comminit.com/en/node/281402/347

===

Please VOTE in our NEW HIV/AIDS POLL:

Which of the following comparisons in the effect on HIV increase by country would you most like to see graphed by the Gapminder method - http://www.comminit.com/en/node/274070/347 - of demonstrating statistical change?

* Increase/decrease in personal wealth of women related to rate of HIV.

* Increase/decrease in employment of women related to rate of HIV.

* Increase/decrease of condom use related to rate of HIV.

* Increase/decrease of personal wealth of men related to rate of HIV.

* Increase/decrease of employment of men related to rate of HIV.

VOTE and COMMENT at htt

p://www.comminit.com/en/node/283063/347

=

==

RESULTS of the most recent HIV/AIDS Poll:

If culturally delicate HIV/AIDS factors such as male circumcision or fewer multiple concurrent partners are to be effectively addressed, which communication strategies are most required?

More...

21%: Education campaigns

16%: Information

13%: Public debate

12%: Social marketing

11%: Individual/partner counselling

11%: Media focus

8%: Private dialogue

6%: Skills training

2%: Other

Total votes: 286

Selected comments included:

" Since they are sensitive topics, and cultural as well, there is need for traditional media to be used for example circumcision is male specific and there are fora, for example the dare in Zimbabwe were men gather by the fire to discuss issues. This could be at occasions such as weddings, funerals or other gatherings. To disseminate information, there may be a need to have opinion leaders within the community who will be able to convince people of the need. "

" it is vital to ensure that our communities do not mis-interprete the messages brought forth by our campaigns. They must be clear and easily understandable in common languages! "

" None of these will work unless reforms increase the power of women to control their bodies and their lives. "

" I think there has been less focus on the 3 items I have ticked [social marketing, public debate, skills training] compared to the res

t. I consider the 3 items crucial in=2

0complementing what is already happening. "

" These campaigns should be linked to trusted institutions in the community - such as churches, traditional leaders etc. "

" Grassroots organizations need to talk with all stakeholders on a one on one and community basis to re-inform and re-educate communities as well as creating strategic alliances with the stakeholders of such cultural factors (ie re-educating village elders)in order to create a new social awareness within the community, or at least pockets of such resistance and change. "

" It is really necessary to get the factors related to these out in the open and talked about - be that in public fora or around a meal. "

===

11. Soul City Institute Regional Programme 2002 - 2007 Impact Evaluation Summary

This is an evaluation of the Soul City Regional Programme (SCRP), an HIV/AIDS communication project which involves 8 southern African countries and combined the adaptation of local communication materials with a large-scale capacity building programme. The aim of this evaluation was to investigate the impact of the local communication interventions in each country on individuals and communities...

http://www.comminit.com/en/node/280976/347

12. HIV and AIDS Training Toolkit

This educational resource from the World Association of Girl Guides and Girl Scouts (WAGGGS) includes training bo

oklets, activities, and newsletters about projects from five member organisations in Brazil, India, Kenya, Malawi, and Peru. It is written for youth leaders, teachers, and other trainers working with children and youth...

http://www.comminit.com/en/node/282173/347

13. The Balanced Counseling Strategy Plus: A Toolkit for Family Planning Service Providers Working in High HIV/STI Prevalence Settings

This toolkit is described as an interactive, client-friendly approach for improving counseling on family planning and prevention, detection, and treatment of sexually transmitted infections (STIs) including HIV. The toolkit, developed and tested in Kenya and South Africa, provides the information and materials needed for health care facility directors, supervisors, and service providers to implement the Balanced Counseling Strategy Plus (BCS+) approach in their family planning services...

http://www.comminit.com/en/node/282178/347

14. Keeping the Promise: An Agenda for Action on Women and AIDS

This publication advocates for increased attention to the particular ways in which women worldwide are vulnerable to HIV and AIDS. It provides statistics designed to illustrate the fact that AIDS is affecting women and girls worldwide in increasing numbers...

http://www.comminit.com/en/node/282183/347

15. Religion - a D

ouble-Edged Sword in HIV Fight

Th

is article discusses the positive and negative role of religion in HIV and AIDS prevention and treatment. As stated here: " The contribution of faith-based organisations to the treatment and care of people living with HIV and AIDS is well known, but it is less clear whether religion is an aid or a barrier when it comes to HIV prevention efforts... "

http://www.comminit.com/en/node/282450/347

16. Join-In Circuit on AIDS, Love, and Sexuality - Global

Initially developed by the German Federal Centre for Health Education (BZgA), the " Join-In Circuit on AIDS, Love, and Sexuality " is an adaptable HIV prevention tool that has been tailored to the local context within 18 countries worldwide. It centres around a workshop with 5 or more stations at which facilitators help participants to learn critical information about HIV through interactive problem-solving, games, and conversation...

http://www.comminit.com/en/node/282300/347

17. Boosting Prevention: The Join In-Circuit on AIDS, Love, and Sexuality

This publication describes the " Join-In Circuit on AIDS, Love, and Sexuality " workshop at which trained facilitators help participants learn critical information about HIV. Throughout each 75-minute session, facilitators engage youth in lively forms of dialogue about how HIV is transmitted, how to talk about sexuality and love, condom use, non-verbal communicati

on, living with HIV, and so on - all the while emphasising 3 main messages: " Be informed; protect yourself and others; show solidarity... "

http://www.comminit.com/en/node/282313/347

18. Condom, Condom! Campaign - India

Launched in December 2007, the BBC World Service Trust (WST)'s 1-year-long " Condom, Condom! " campaign promotes condom use among young men in India. The safe sex campaign seeks to change attitudes and behaviour through television, radio, and online public service advertisements (PSAs)...

http://www.comminit.com/en/node/282510/347

19. India: Ganjam's Prejudice Turns to Pride

This Women's Feature Service (WFS) piece looks at emerging positive changes among HIV-positive women in the high-migration Ganjam district of Orissa in India. Author Manipadma Jena celebrates the fact that HIV-positive widows are declaring their positive status and helping in campaigns and among collectives to spread awareness about the epidemic...

http://www.comminit.com/en/node/282660/347

===

Send us information about your HIV/AIDS communication case studies, reports, evaluations, thinking, and resources. Send to Deborah Heimann at dheimann@...

===

Access all information on the issues you choose through a

Theme Site on The CI:=0

D

Polio - http://www.comminit.com/en/polio.html

ICT4D - http://www.comminit.com/en/ict4d.html

Democracy and Governance - http://www.comminit.com/en/demandgov.html

Early Child Development - http://www.comminit.com/en/earlychild.html

Media Development - http://www.comminit.com/en/mediadev.html

Avian Influenza - http://www.comminit.com/en/avianinfluenza.html

Natural Resource Management - http://www.comminit.com/en/nrm.html

HIV/AIDS - http://www.comminit.com/en/hiv-aids.html

===

If you have colleagues who might wish to receive The Drum Beat and DB Click: HIV/AIDS please ask them to access http://www.comminit.com/en/user/register and complete the brief registration/subscriber form. Thank you. ===

from The Communication Initiative...where communication and media are central to social and economic development...

Partners: ANDI, BBC World Service Trust, Bernard van Leer Foundation, Calandria, CFSC Consortium, CIDA, DFID, FAO, Fundación Nuevo Periodismo Iberoa

mericano, Ford Foundatio

n, Healthlink Worldwide, Inter-American Development Bank, International Institute for Communication and Development, s Hopkins Bloomberg School of Public Health Center for Communication Programs, MISA, PAHO, The Panos Institute, The Rockefeller Foundation, SAfAIDS, Sesame Workshop, Soul City, Swiss Agency for Development and ation, UNAIDS, UNDP, UNICEF, USAID, WHO, W.K. Kellogg Foundation.

Website: http://www.comminit.com

Share this post


Link to post
Share on other sites
Guest guest

HIV/AIDS and Communication - DB Click - The Communication Initiative

DB Click: HIV/AIDS

January 2009

For people seeking to address HIV/AIDS issues and opportunities.

DB CLICK: HIV/AIDS updates you on recent HIV/AIDS initiatives including programme activities, awards, evaluation and research results, networks, books, other materials, planning ideas, change theories and other information recently placed on The Communication Initiative website.

DB CLICK: HIV/AIDS complements The Drum Beat through a specific focus on HIV/AIDS and development. It will be published bimonthly (every second month).

DB CLICK: HIV/AIDS Community: 11,762

CI Portal User Sessions, past 12 months: 2,529,192

If you have been forwarded this newsletter by a colleague or friend and would like to subscribe to the DB Click: HIV/AIDS and The Drum Beat, please send an email to drumbeat@... requesting to " subscribe: HIV " .

===

See also the HIV/AIDS Theme Site - Where communication and media are central to HIV/AIDS - http://ww

w.comminit.com/en/hiv-aids.html

===

1.

Changes in Sexual Behaviour Leading to the Decline in the Prevalence of HIV in Uganda: Confirmation from Multiple Sources of Evidence

This paper details an approach to identifying the changes in sexual behaviour that led to an observed dramatic reduction in the prevalence of HIV in Uganda in the early 1990s. Rather than present the evidence from one scientific method, this paper reviews 7 kinds of evidence and examines the consistency among them...

http://www.comminit.com/en/node/280349/347

2. Texts Tackle HIV in South Africa

Project Masiluleke, a text messaging project in South Africa, intends to tackle the problem of slowing the progress of HIV, in a country with an estimated 6 million people living with HIV, by encouraging people to seek testing and treatment. It is scheduled to send (beginning December 1 2008) one million free text messages a day to push people to be tested and treated...

http://www.comminit.com/en/node/280430/347

3. Girls' Education and HIV Prevention

This advocacy briefing note addresses the centrality of educating girls to HIV prevention worldwide. The note opens with statistics designed to give context and explain the motivation for stepping up efforts to achieve the Education for All (EFA) and Millennium Development Goals (MDGs)...

http://www.com

minit.com/en/node/280776/347

4. HIV and AIDS Education in Emergencies

This advocacy briefing note explores the role that HIV and AIDS education can play in preventing the rapid spread of HIV in post-conflict settings. It begins with an outline of some recent statistics that illustrate the complex relationship between HIV/AIDS and humanitarian crisis...

http://www.comminit.com/en/node/280789/347

5. Mainstreaming HIV in Education

This advocacy briefing note presents the framework of a sector-wide approach that mainstreams HIV and AIDS into existing education sector programmes. The current challenge noted here is that HIV/AIDS continues to be seen predominantly as a health issue, rather than a priority to be mainstreamed into overarching educational plans...

http://www.comminit.com/en/node/280802/347

6. Structural Approaches to HIV Prevention

This report builds on evidence and experience to address gaps affecting use of the structural approach to HIV prevention. The authors begin by defining structural factors and approaches; then they describe the available evidence on their effectiveness and discuss methodological challenges to the assessment of these efforts to reduce HIV risk and vulnerability...

http://www.comminit.com/en/node/281429/34

7

7. UNAIDS Combination Prevention Briefs

This series of briefs is designed to offer an overview of the key interventions needed as part of a combination prevention approach in the countries of Eastern and Southern Africa with high HIV prevalence. The briefs focus on the following 4 areas: modes of transmission, multiple concurrent partnerships, vulnerabilities of women and girls, and male circumcision...

http://www.comminit.com/en/node/280404/347

8. Behavior Change and HIV Prevention: (Re)Considerations for the 21st Century

This paper is the result of an examination of research and analysis of practices by the Global HIV Prevention Working Group. From the Executive Summary: " Recent results from clinical trials of potential new HIV prevention interventions underscore what we have known for decades: Wider delivery of effective behavior change strategies is central to reversing the global HIV epidemic... "

http://www.comminit.com/en/node/281663/347

9. Cross-Generational Sex: Risks and Opportunities

This brief is based on a larger review entitled, " Addressing Cross-Generational Sex: A Desk Review of Research and Programs, " as well as discussions with experts about the findings of this review. The brief is designed to broaden the understanding of cross-generational sex, look at how many young girls it affects, describe frameworks that guide current thinking about the behaviour, and propose lessons for improving future interventions...

http://www.comminit.com/en/node/281093/347

10. Battling Old Behaviour the New Front in AIDS Fight

This article looks at the impact of multiple concurrent partners on the HIV pandemic in Uganda, as well as a new campaign initiated by Population Services International (PSI) that aims to discourage the " Sugar Daddy " phenomenon. The article argues that a new resurgence in HIV infection in Uganda has been spurred on by an increase in multiple concurrent partnerships...

http://www.comminit.com/en/node/281402/347

===

Please VOTE in our NEW HIV/AIDS POLL:

Which of the following comparisons in the effect on HIV increase by country would you most like to see graphed by the Gapminder method - http://www.comminit.com/en/node/274070/347 - of demonstrating statistical change?

* Increase/decrease in personal wealth of women related to rate of HIV.

* Increase/decrease in employment of women related to rate of HIV.

* Increase/decrease of condom use related to rate of HIV.

* Increase/decrease of personal wealth of men related to rate of HIV.

* Increase/decrease of employment of men related to rate of HIV.

VOTE and COMMENT at htt

p://www.comminit.com/en/node/283063/347

=

==

RESULTS of the most recent HIV/AIDS Poll:

If culturally delicate HIV/AIDS factors such as male circumcision or fewer multiple concurrent partners are to be effectively addressed, which communication strategies are most required?

More...

21%: Education campaigns

16%: Information

13%: Public debate

12%: Social marketing

11%: Individual/partner counselling

11%: Media focus

8%: Private dialogue

6%: Skills training

2%: Other

Total votes: 286

Selected comments included:

" Since they are sensitive topics, and cultural as well, there is need for traditional media to be used for example circumcision is male specific and there are fora, for example the dare in Zimbabwe were men gather by the fire to discuss issues. This could be at occasions such as weddings, funerals or other gatherings. To disseminate information, there may be a need to have opinion leaders within the community who will be able to convince people of the need. "

" it is vital to ensure that our communities do not mis-interprete the messages brought forth by our campaigns. They must be clear and easily understandable in common languages! "

" None of these will work unless reforms increase the power of women to control their bodies and their lives. "

" I think there has been less focus on the 3 items I have ticked [social marketing, public debate, skills training] compared to the res

t. I consider the 3 items crucial in=2

0complementing what is already happening. "

" These campaigns should be linked to trusted institutions in the community - such as churches, traditional leaders etc. "

" Grassroots organizations need to talk with all stakeholders on a one on one and community basis to re-inform and re-educate communities as well as creating strategic alliances with the stakeholders of such cultural factors (ie re-educating village elders)in order to create a new social awareness within the community, or at least pockets of such resistance and change. "

" It is really necessary to get the factors related to these out in the open and talked about - be that in public fora or around a meal. "

===

11. Soul City Institute Regional Programme 2002 - 2007 Impact Evaluation Summary

This is an evaluation of the Soul City Regional Programme (SCRP), an HIV/AIDS communication project which involves 8 southern African countries and combined the adaptation of local communication materials with a large-scale capacity building programme. The aim of this evaluation was to investigate the impact of the local communication interventions in each country on individuals and communities...

http://www.comminit.com/en/node/280976/347

12. HIV and AIDS Training Toolkit

This educational resource from the World Association of Girl Guides and Girl Scouts (WAGGGS) includes training bo

oklets, activities, and newsletters about projects from five member organisations in Brazil, India, Kenya, Malawi, and Peru. It is written for youth leaders, teachers, and other trainers working with children and youth...

http://www.comminit.com/en/node/282173/347

13. The Balanced Counseling Strategy Plus: A Toolkit for Family Planning Service Providers Working in High HIV/STI Prevalence Settings

This toolkit is described as an interactive, client-friendly approach for improving counseling on family planning and prevention, detection, and treatment of sexually transmitted infections (STIs) including HIV. The toolkit, developed and tested in Kenya and South Africa, provides the information and materials needed for health care facility directors, supervisors, and service providers to implement the Balanced Counseling Strategy Plus (BCS+) approach in their family planning services...

http://www.comminit.com/en/node/282178/347

14. Keeping the Promise: An Agenda for Action on Women and AIDS

This publication advocates for increased attention to the particular ways in which women worldwide are vulnerable to HIV and AIDS. It provides statistics designed to illustrate the fact that AIDS is affecting women and girls worldwide in increasing numbers...

http://www.comminit.com/en/node/282183/347

15. Religion - a D

ouble-Edged Sword in HIV Fight

Th

is article discusses the positive and negative role of religion in HIV and AIDS prevention and treatment. As stated here: " The contribution of faith-based organisations to the treatment and care of people living with HIV and AIDS is well known, but it is less clear whether religion is an aid or a barrier when it comes to HIV prevention efforts... "

http://www.comminit.com/en/node/282450/347

16. Join-In Circuit on AIDS, Love, and Sexuality - Global

Initially developed by the German Federal Centre for Health Education (BZgA), the " Join-In Circuit on AIDS, Love, and Sexuality " is an adaptable HIV prevention tool that has been tailored to the local context within 18 countries worldwide. It centres around a workshop with 5 or more stations at which facilitators help participants to learn critical information about HIV through interactive problem-solving, games, and conversation...

http://www.comminit.com/en/node/282300/347

17. Boosting Prevention: The Join In-Circuit on AIDS, Love, and Sexuality

This publication describes the " Join-In Circuit on AIDS, Love, and Sexuality " workshop at which trained facilitators help participants learn critical information about HIV. Throughout each 75-minute session, facilitators engage youth in lively forms of dialogue about how HIV is transmitted, how to talk about sexuality and love, condom use, non-verbal communicati

on, living with HIV, and so on - all the while emphasising 3 main messages: " Be informed; protect yourself and others; show solidarity... "

http://www.comminit.com/en/node/282313/347

18. Condom, Condom! Campaign - India

Launched in December 2007, the BBC World Service Trust (WST)'s 1-year-long " Condom, Condom! " campaign promotes condom use among young men in India. The safe sex campaign seeks to change attitudes and behaviour through television, radio, and online public service advertisements (PSAs)...

http://www.comminit.com/en/node/282510/347

19. India: Ganjam's Prejudice Turns to Pride

This Women's Feature Service (WFS) piece looks at emerging positive changes among HIV-positive women in the high-migration Ganjam district of Orissa in India. Author Manipadma Jena celebrates the fact that HIV-positive widows are declaring their positive status and helping in campaigns and among collectives to spread awareness about the epidemic...

http://www.comminit.com/en/node/282660/347

===

Send us information about your HIV/AIDS communication case studies, reports, evaluations, thinking, and resources. Send to Deborah Heimann at dheimann@...

===

Access all information on the issues you choose through a

Theme Site on The CI:=0

D

Polio - http://www.comminit.com/en/polio.html

ICT4D - http://www.comminit.com/en/ict4d.html

Democracy and Governance - http://www.comminit.com/en/demandgov.html

Early Child Development - http://www.comminit.com/en/earlychild.html

Media Development - http://www.comminit.com/en/mediadev.html

Avian Influenza - http://www.comminit.com/en/avianinfluenza.html

Natural Resource Management - http://www.comminit.com/en/nrm.html

HIV/AIDS - http://www.comminit.com/en/hiv-aids.html

===

If you have colleagues who might wish to receive The Drum Beat and DB Click: HIV/AIDS please ask them to access http://www.comminit.com/en/user/register and complete the brief registration/subscriber form. Thank you. ===

from The Communication Initiative...where communication and media are central to social and economic development...

Partners: ANDI, BBC World Service Trust, Bernard van Leer Foundation, Calandria, CFSC Consortium, CIDA, DFID, FAO, Fundación Nuevo Periodismo Iberoa

mericano, Ford Foundatio

n, Healthlink Worldwide, Inter-American Development Bank, International Institute for Communication and Development, s Hopkins Bloomberg School of Public Health Center for Communication Programs, MISA, PAHO, The Panos Institute, The Rockefeller Foundation, SAfAIDS, Sesame Workshop, Soul City, Swiss Agency for Development and ation, UNAIDS, UNDP, UNICEF, USAID, WHO, W.K. Kellogg Foundation.

Website: http://www.comminit.com

Share this post


Link to post
Share on other sites
Guest guest

Begin forwarded message:From: <notify >Date: 28 July 2010 18:45:58 GMT+01:00dee@...Subject: Unable to deliver your messageWe are unable to deliver the message from <dee@...>to < s >.Your message was sent to a group that does not exist. Please checkto make sure you spelled the group name correctly.For further assistance, please visit http://help./l/us//groups/original/members/forms/general.htmlFrom: Dorothy Fitzpatrick <dee@...>Date: 28 July 2010 18:42:33 GMT+01:00 s Subject: dog with PFOh dear <lol> ! Yes my dog has perianal furunculosis which is a horrible disease where the bacteria from the gut has got into the anal tissue. He has had loads of ABX's which didn't work at all and just made his coat fall out. He is having a tacrolimus cream which is applied externally and I am cleaning the area with colloidal silver and diluted food grade peroxide. Also spraying with colloidal silver and DMSO. So far, it is contained and is even a little better, but it is still weeping evil smelling gunk so I thought I would check out MMS as I had heard it was so good. Thank you for any help. dee

Share this post


Link to post
Share on other sites
Guest guest

Thereason It wouldn't go through is you added an extra "S'. See Red below.

Cheers, D

dog with PFOh dear <lol> ! Yes my dog has perianal furunculosis which is a horrible disease where the bacteria from the gut has got into the anal tissue. He has had loads of ABX's which didn't work at all and just made his coat fall out. He is having a tacrolimus cream which is applied externally and I am cleaning the area with colloidal silver and diluted food grade peroxide. Also spraying with colloidal silver and DMSO. So far, it is contained and is even a little better, but it is still weeping evil smelling gunk so I thought I would check out MMS as I had heard it was so good. Thank you for any help. dee

Share this post


Link to post
Share on other sites
Guest guest

Thanks. dee

On 30 Jul 2010, at 07:29, Murray wrote:

>

>

> Thereason It wouldn't go through is you added an extra " S'. See Red below.

> Cheers, D

> dog with PF

>>

>>

>> Oh dear <lol> ! Yes my dog has perianal furunculosis which is a horrible

disease where the bacteria from the gut has got into the anal tissue. He has

had loads of ABX's which didn't work at all and just made his coat fall out. He

is having a tacrolimus cream which is applied externally and I am cleaning the

area with colloidal silver and diluted food grade peroxide. Also spraying with

colloidal silver and DMSO. So far, it is contained and is even a little better,

but it is still weeping evil smelling gunk so I thought I would check out MMS as

I had heard it was so good. Thank you for any help. dee

>>

>

>

>

>

>

Share this post


Link to post
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
Sign in to follow this  

×
×
  • Create New...