Be your own Advocate

[Guest guest]

Mandy,

I have type IA. And do read your chart! You have to be your own advocate!

2 months ago I had both knees replaced. The anesthesiologist tried to do a

nerve block by stimulating the nerves with his hands. I had told him I had CMT

and he thought that only meant a Charcot foot!

I then enlightened him as to how CMT was a peripheral neuropathy and asked if he

had Nerve Conduction or EMG equipment handy. Well no. End result was no nerve

block but that worked out ok too. I had no uncontrollable pain post-op and

already my gait and endurance are much improved.

Anyway, we have to be aware of our own bodies and not let others either scare us

or discourage us . Keep up the good work. Remember when you get down you can

all join my BMW club. (Bitch, moan and whine!)

Penny