Guest guest Posted February 29, 2008 Report Posted February 29, 2008 They contacted me yesterday because I inquired. I have an appt. next Tuesday with the research team. I have to be up there for an appt. with a Neurologist, so I told them I would meet with them before I meet with the Neurologists. I live in the Keys so it is only a 2hr drive for me and they stated they would make the whole process very convenient since we are doing them the favor of participating. I'll keep you posted. Quote
Guest guest Posted March 8, 2008 Report Posted March 8, 2008 Hi Dawn, Our genetics specialist, Benke MD, referred us to them. But you can fax an introduction letter and medical records directly, following up with an email. This is their information: Stephan Züchner, MD Associate Professor of Medicine Director, Center for Human Molecular Genomics University of Miami School of Medicine Miami Institute for Human Genomics Clinical Research Building Room 810 1120 N.W. 14th Street Miami , FL 33136 Phone: +1-305-243-2281 1-877-686-6444 Fax: +1-305-243-2396 e-mail: szuchner@... mailto:szuchner@... The CMT Coordinator is ez, and his email address is rmartinez1@... Good luck! Quote
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