Experiences

[Guest guest]

Hi everyone,

I just wanted to share my experiences with having Charcot Marie Tooth.

I'm now 33 and I was diagnosed with Charcot when I was 16 years old. My doctor

says that this is a progressive disease and I believe him based on my

experiences. For now, I'm having difficulty climbing up the stairs (I have to

have something to hold on to) and I feel that my leg muscles are starting to

weaken. My right toes are also starting to claw that's why I'm having a hard

time looking for shoes that are comfortable. I can't walk longer than before.

I have to stop and sit for a while to catch my breath. I can also no longer

carry heavy stuff because I can't balance and afraid that I might fall.

I can also feel something differently with my hands. To sum things up, I can no

longer do the things that I was doing before and I know that this will get

worse... but I'm stil hopeful since I would like to travel more and meet other

people.

For now, I just do what I can do and try to live my life to the fullest.

Thanks and God Bless!!!

Mylah