Re: Thanks for the info

[Guest guest]

Sharon thanks for teh information I will check him out..I appreciate all your help..Love BettySharon wrote:

Dear ,I know he only has two stills patients but he is very nice. He is a very good doctor. He always calls back when I need him. I have been seeing him almost 2 years. His office is at Einstein hospital in Philadelphia. His name is Doctor Pappu. His phone numbers are or .My name is Sharon . If you need anything else please dont hesitate to ask!! good luck!!love Sharon> Sharon : How long have you had this Doctor?..Is he open to your > questions and truly involve in your care 100%?..Please, send me his > address and phone number..This might be a good choice for me..thanks a > bunch...Betty>> Sharon wrote:>> Dear <> It sounds like your doctor is

having some ego issues that are not your> fault. I have a doc in philadelphia who is great, maybe he can help!> If you would like his phone number let me know. You don't need your> doctor causing this stress for you- you deserve better. I also think> that some doctors don't like being told by the patient something is> wrong w/ us. I guess its an ego thing which is not your fault. I had a> doctor that insisted that I was making things up! Off to the curb he> went! lol. be kind to yourself and please try someone new. it is> important to feel a comfortable relationship w/ your doctor.> love and well wishes!> shar> >> > I just cannot believe what happened to me..I went to my> > rheumatologist yesterday for a check up, I have been really > declining> > fast with all the side effects from MXT, embrel and

Prednisone. I > have> > a GI ulcer, feel dizzy (even though my husband said he has known > that> > your years..<01.gif>Funny guy.) feel totally weak and wiped out, my> > Hematocrit, Hemoglobin are dropping, my sed rate is raising and I am> > in pain most of the time..So when I went to my apt, I had written > down> > some questions for him,,which I thought it was the right thing to> > do?..He said ""If the MXT makes you sick stop it"", then he quickly> > proceeded to barely take my blood pressure and told me that I need > to> > see my family doctor , because none of the above were related to the> > treatment he had prescribed..I said, very nicely...But my family> > doctor told me on Monday to come and see you...?..When I question> > about the dizziness w embrel and MXT he went nuts..he said " I am a> > national expert an I had never

heard of such a thing.." I told him> > that in our group , some other people had expressed to me that they> > had the same symptoms and he totally ignored me, then he said maybe > we> > need to try cymbalta..and I said, that might not be a bad idea, > there> > is a lady in our group that is taking that and find it very> > helpful..as soon as I said that he just said.".read more about> > it...?...????" then he offered to put me on vicodin 3 times a> > day..Well, there is a little problem, I am a nurse, and I do home > care> > managing, that means I am driving all the time and vicodin and > driving> > do not mix...I did not get it...?..anyway, I said the problem is > that> > I am down from the pain , my spirits are down, I feel depressed from> > been in discomfort and pain all the time, and I really do not know > if>

> the meds are worth the side effects?..at that point, he just about> > screamed at me and said.."stop everything and come and see me when> > you are ready to try again"" I left his office so upset, he even had> > the nerve to wish me a happy holiday.(.my thoughts were not too kind> > at point<15.gif>.) He told his receptionist that there was no > further> > apt needed...I went to my car and cry...I called my wonderful > husband> > at work ..(poor thing he thought I was hurt in an accident ,because> > of how upset I was.). I feel that none of the doctors that I deal> > with, really understand.. I am not disrespectful to anyone, but I > do > > believe that I have the right to be involve in my medical care and > ask> > questions, seek options..is this too much to ask?..After that I felt> > worse all day,

got a headache, my eyes were all red ( my poor > patients> > probably were thinking I was getting too much eggnog> > somewhere<03.gif>). and when I got home , I went straight to > bed..this> > is not right I have two boys that need me..they are still little and> > it is hard for them to understand why Mom get so tired all the> > time..they call it the "Red Cheeks Disease"<01.gif>..But anyway..I > do> > not know what next..I still have some embrel to get me throught the> > holidays and ultracet for everyday ..but I think that I need to find> > someone who will not have such a great ego that is willing to talk> > with me..Sorry for venting so much..this has been one of the most> > upsetting experience since I was diagnosed. Does anyone knows any> > doctors in PA area..I live in Lancaster PA..willing to go to D.C. ,> > Philly ,

Baltimore..?..if you know of anyone let me know..I saw a > name> > of a doctor in PA in the list of MD that was giving to me when I > first> > joined, I might try him..Mark Lopatin?..does anyone know him..Funny > my> > EX rhumatologist name is not in the list even though, he said he is > a> > national expert?..Oh, well enough..I need to be kind around the> > holiday times at least...thanks for listening and reading.. I am> > sorry about my spelling, typing and grammar..I am not an American by> > birth and English in my second language...take care.. Peace and love> > to all.> > Betty> >> > __________________________________________________> >

[Guest guest]

BOd Thanks for the inof on Dr Briggee's I am have so many responses, I feel that I need now to set up interviews with all of these doctors and check them out..It is a good feeling to bea able to have choices and all because of this wonderful group...Thanks a bunch. BettyBob Himes wrote:

Hi Betty:

Her is Doctor Biggee's address and telephone number:

Dr. Beth Ann Biggee

Tuft's/New England Medical Center

Washington Street,

Boston, MA

Tel:

Hope this helps and thanks Joe for telling her about the Doc! Take care now and be PAIN FREE! Love Y'all!

WE WILL WIN

Love Y'all

"NEVER FIGHT FAIR"

Carole & Bob

Mom & Dad

Panama City, FL

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