Hello Everyone

[Guest guest]

Kinsey, so glad to hear you are on the other side. You have a great

attitude. Remember our mantra: sip, sip, sip, nibble, nibble,

nibble, walk, walk, walk!!! Keep us updated and best wishes, Susie

> hi everyone! I may not be able to post a long message because I am

> still a bit weak. I am Kinsey/glenda, had my surgery on the 3rd of

> Feb. I had wonderful care from Dr.K and his staff! The nurses who

> took care of me were ALL wonderful and yes I had a few favorites!

My

> pain was monitored and taken care of, I had a fever and they were

> around the clock taking care of me. I met a few of you on the list

> (giant smile), recieved a beautiful rose, my partner was up and down

> with me all the time. I wanted to walk every two hours please I

asked

> them.

> Two beautiful angels (Liz and Arthur)stopped in to see me while my

> partner had to go home unexpectedly. My (young on Ford look

> alike) son took care of me a couple of days and was also helpful to

> some other Dr. K patients staying at the same motel. It was

wonderful

> the treatment I recieved from the health care and from strangers I

had

> never met before.

> While in the hospital I had fever and we battled it as best as we

> could but a few days out of the hospital we discovered an

infection.

> The only way this has slowed me down was feeling weak.

> I am sure that some people heard me when my tubes were removed....

> ahhhh yes extremely painful I belive because of my infection but as

> all others have said it is over in a moment and then it is out of

your

> mind.

> Dr. K was kind and caring that day and was helpful to my son who was

> in the room with me, looking quite pale. There also was a nurse

there

> I can't remember her name but she was so kind and caring... I will

> never forget her words and kindness to me.

> I still walk alot today, eat the right things and boy do I crave

> protein. So far I am doing well with what I can eat.

> I don't mean to ramble but I wanted to say that I felt so good on

the

> day of the support group meeting that I insisted on going. My

partner

> took me and I felt so at home. Many of you.... too many to

post

> came over to me and said who you were and where you were from and

> wished me well. I was so tickled to meet all of you. I wondered

if I

> would ever meet Mrs.K so someone pointed her out to me and I had a

> brief conversation with her.

> Dr.Keshishian, Dawn, Dee, the entire staff they employ and Delano

> Regional Medical Center Bariatric unit are tops and I thank them so

> much for what they have done for me.

> To all of you on the list that I had the pleasure to meet..... thank

> you... you mean something to me also!

>

> Kind regards,

> a weak but cheerful,

> Kinsey

[Guest guest]

Kinsey, so glad to hear you are on the other side. You have a great

attitude. Remember our mantra: sip, sip, sip, nibble, nibble,

nibble, walk, walk, walk!!! Keep us updated and best wishes, Susie

> hi everyone! I may not be able to post a long message because I am

> still a bit weak. I am Kinsey/glenda, had my surgery on the 3rd of

> Feb. I had wonderful care from Dr.K and his staff! The nurses who

> took care of me were ALL wonderful and yes I had a few favorites!

My

> pain was monitored and taken care of, I had a fever and they were

> around the clock taking care of me. I met a few of you on the list

> (giant smile), recieved a beautiful rose, my partner was up and down

> with me all the time. I wanted to walk every two hours please I

asked

> them.

> Two beautiful angels (Liz and Arthur)stopped in to see me while my

> partner had to go home unexpectedly. My (young on Ford look

> alike) son took care of me a couple of days and was also helpful to

> some other Dr. K patients staying at the same motel. It was

wonderful

> the treatment I recieved from the health care and from strangers I

had

> never met before.

> While in the hospital I had fever and we battled it as best as we

> could but a few days out of the hospital we discovered an

infection.

> The only way this has slowed me down was feeling weak.

> I am sure that some people heard me when my tubes were removed....

> ahhhh yes extremely painful I belive because of my infection but as

> all others have said it is over in a moment and then it is out of

your

> mind.

> Dr. K was kind and caring that day and was helpful to my son who was

> in the room with me, looking quite pale. There also was a nurse

there

> I can't remember her name but she was so kind and caring... I will

> never forget her words and kindness to me.

> I still walk alot today, eat the right things and boy do I crave

> protein. So far I am doing well with what I can eat.

> I don't mean to ramble but I wanted to say that I felt so good on

the

> day of the support group meeting that I insisted on going. My

partner

> took me and I felt so at home. Many of you.... too many to

post

> came over to me and said who you were and where you were from and

> wished me well. I was so tickled to meet all of you. I wondered

if I

> would ever meet Mrs.K so someone pointed her out to me and I had a

> brief conversation with her.

> Dr.Keshishian, Dawn, Dee, the entire staff they employ and Delano

> Regional Medical Center Bariatric unit are tops and I thank them so

> much for what they have done for me.

> To all of you on the list that I had the pleasure to meet..... thank

> you... you mean something to me also!

>

> Kind regards,

> a weak but cheerful,

> Kinsey

[Guest guest]

Kinsey, so glad to hear you are on the other side. You have a great

attitude. Remember our mantra: sip, sip, sip, nibble, nibble,

nibble, walk, walk, walk!!! Keep us updated and best wishes, Susie

> hi everyone! I may not be able to post a long message because I am

> still a bit weak. I am Kinsey/glenda, had my surgery on the 3rd of

> Feb. I had wonderful care from Dr.K and his staff! The nurses who

> took care of me were ALL wonderful and yes I had a few favorites!

My

> pain was monitored and taken care of, I had a fever and they were

> around the clock taking care of me. I met a few of you on the list

> (giant smile), recieved a beautiful rose, my partner was up and down

> with me all the time. I wanted to walk every two hours please I

asked

> them.

> Two beautiful angels (Liz and Arthur)stopped in to see me while my

> partner had to go home unexpectedly. My (young on Ford look

> alike) son took care of me a couple of days and was also helpful to

> some other Dr. K patients staying at the same motel. It was

wonderful

> the treatment I recieved from the health care and from strangers I

had

> never met before.

> While in the hospital I had fever and we battled it as best as we

> could but a few days out of the hospital we discovered an

infection.

> The only way this has slowed me down was feeling weak.

> I am sure that some people heard me when my tubes were removed....

> ahhhh yes extremely painful I belive because of my infection but as

> all others have said it is over in a moment and then it is out of

your

> mind.

> Dr. K was kind and caring that day and was helpful to my son who was

> in the room with me, looking quite pale. There also was a nurse

there

> I can't remember her name but she was so kind and caring... I will

> never forget her words and kindness to me.

> I still walk alot today, eat the right things and boy do I crave

> protein. So far I am doing well with what I can eat.

> I don't mean to ramble but I wanted to say that I felt so good on

the

> day of the support group meeting that I insisted on going. My

partner

> took me and I felt so at home. Many of you.... too many to

post

> came over to me and said who you were and where you were from and

> wished me well. I was so tickled to meet all of you. I wondered

if I

> would ever meet Mrs.K so someone pointed her out to me and I had a

> brief conversation with her.

> Dr.Keshishian, Dawn, Dee, the entire staff they employ and Delano

> Regional Medical Center Bariatric unit are tops and I thank them so

> much for what they have done for me.

> To all of you on the list that I had the pleasure to meet..... thank

> you... you mean something to me also!

>

> Kind regards,

> a weak but cheerful,

> Kinsey

[Guest guest]

Kinsey,

It was good to meet you at the meeting. I popped in the next Thursday to

see you, but you weren't in your room; so I missed you. I'm so glad you

are doing so well, and that you are home. And, I'm sorry I missed your

on Ford son! We should hook him up with Cindee (Sindee). After

all, she likes whips. LOL

Any way, my new friend, I'm glad everything is going well for you.

Jim

hello everyone

hi everyone! I may not be able to post a long message because I am

still a bit weak. I am Kinsey/glenda, had my surgery on the 3rd of

Feb. I had wonderful care from Dr.K and his staff! The nurses who

took care of me were ALL wonderful and yes I had a few favorites! My

pain was monitored and taken care of, I had a fever and they were around

the clock taking care of me. I met a few of you on the list (giant

smile), recieved a beautiful rose, my partner was up and down with me

all the time. I wanted to walk every two hours please I asked them. Two

beautiful angels (Liz and Arthur)stopped in to see me while my partner

had to go home unexpectedly. My (young on Ford look

alike) son took care of me a couple of days and was also helpful to some

other Dr. K patients staying at the same motel. It was wonderful the

treatment I recieved from the health care and from strangers I had never

met before. While in the hospital I had fever and we battled it as best

as we could but a few days out of the hospital we discovered an

infection.

The only way this has slowed me down was feeling weak.

I am sure that some people heard me when my tubes were removed.... ahhhh

yes extremely painful I belive because of my infection but as all others

have said it is over in a moment and then it is out of your mind. Dr. K

was kind and caring that day and was helpful to my son who was in the

room with me, looking quite pale. There also was a nurse there I can't

remember her name but she was so kind and caring... I will never forget

her words and kindness to me. I still walk alot today, eat the right

things and boy do I crave protein. So far I am doing well with what I

can eat.

I don't mean to ramble but I wanted to say that I felt so good on the

day of the support group meeting that I insisted on going. My partner

took me and I felt so at home. Many of you.... too many to post

came over to me and said who you were and where you were from and wished

me well. I was so tickled to meet all of you. I wondered if I would

ever meet Mrs.K so someone pointed her out to me and I had a brief

conversation with her. Dr.Keshishian, Dawn, Dee, the entire staff they

employ and Delano Regional Medical Center Bariatric unit are tops and I

thank them so much for what they have done for me. To all of you on the

list that I had the pleasure to meet..... thank you... you mean

something to me also!

Kind regards,

a weak but cheerful,

Kinsey

[Guest guest]

Kinsey,

It was good to meet you at the meeting. I popped in the next Thursday to

see you, but you weren't in your room; so I missed you. I'm so glad you

are doing so well, and that you are home. And, I'm sorry I missed your

on Ford son! We should hook him up with Cindee (Sindee). After

all, she likes whips. LOL

Any way, my new friend, I'm glad everything is going well for you.

Jim

hello everyone

hi everyone! I may not be able to post a long message because I am

still a bit weak. I am Kinsey/glenda, had my surgery on the 3rd of

Feb. I had wonderful care from Dr.K and his staff! The nurses who

took care of me were ALL wonderful and yes I had a few favorites! My

pain was monitored and taken care of, I had a fever and they were around

the clock taking care of me. I met a few of you on the list (giant

smile), recieved a beautiful rose, my partner was up and down with me

all the time. I wanted to walk every two hours please I asked them. Two

beautiful angels (Liz and Arthur)stopped in to see me while my partner

had to go home unexpectedly. My (young on Ford look

alike) son took care of me a couple of days and was also helpful to some

other Dr. K patients staying at the same motel. It was wonderful the

treatment I recieved from the health care and from strangers I had never

met before. While in the hospital I had fever and we battled it as best

as we could but a few days out of the hospital we discovered an

infection.

The only way this has slowed me down was feeling weak.

I am sure that some people heard me when my tubes were removed.... ahhhh

yes extremely painful I belive because of my infection but as all others

have said it is over in a moment and then it is out of your mind. Dr. K

was kind and caring that day and was helpful to my son who was in the

room with me, looking quite pale. There also was a nurse there I can't

remember her name but she was so kind and caring... I will never forget

her words and kindness to me. I still walk alot today, eat the right

things and boy do I crave protein. So far I am doing well with what I

can eat.

I don't mean to ramble but I wanted to say that I felt so good on the

day of the support group meeting that I insisted on going. My partner

took me and I felt so at home. Many of you.... too many to post

came over to me and said who you were and where you were from and wished

me well. I was so tickled to meet all of you. I wondered if I would

ever meet Mrs.K so someone pointed her out to me and I had a brief

conversation with her. Dr.Keshishian, Dawn, Dee, the entire staff they

employ and Delano Regional Medical Center Bariatric unit are tops and I

thank them so much for what they have done for me. To all of you on the

list that I had the pleasure to meet..... thank you... you mean

something to me also!

Kind regards,

a weak but cheerful,

Kinsey

[Guest guest]

Kinsey,

It was good to meet you at the meeting. I popped in the next Thursday to

see you, but you weren't in your room; so I missed you. I'm so glad you

are doing so well, and that you are home. And, I'm sorry I missed your

on Ford son! We should hook him up with Cindee (Sindee). After

all, she likes whips. LOL

Any way, my new friend, I'm glad everything is going well for you.

Jim

hello everyone

hi everyone! I may not be able to post a long message because I am

still a bit weak. I am Kinsey/glenda, had my surgery on the 3rd of

Feb. I had wonderful care from Dr.K and his staff! The nurses who

took care of me were ALL wonderful and yes I had a few favorites! My

pain was monitored and taken care of, I had a fever and they were around

the clock taking care of me. I met a few of you on the list (giant

smile), recieved a beautiful rose, my partner was up and down with me

all the time. I wanted to walk every two hours please I asked them. Two

beautiful angels (Liz and Arthur)stopped in to see me while my partner

had to go home unexpectedly. My (young on Ford look

alike) son took care of me a couple of days and was also helpful to some

other Dr. K patients staying at the same motel. It was wonderful the

treatment I recieved from the health care and from strangers I had never

met before. While in the hospital I had fever and we battled it as best

as we could but a few days out of the hospital we discovered an

infection.

The only way this has slowed me down was feeling weak.

I am sure that some people heard me when my tubes were removed.... ahhhh

yes extremely painful I belive because of my infection but as all others

have said it is over in a moment and then it is out of your mind. Dr. K

was kind and caring that day and was helpful to my son who was in the

room with me, looking quite pale. There also was a nurse there I can't

remember her name but she was so kind and caring... I will never forget

her words and kindness to me. I still walk alot today, eat the right

things and boy do I crave protein. So far I am doing well with what I

can eat.

I don't mean to ramble but I wanted to say that I felt so good on the

day of the support group meeting that I insisted on going. My partner

took me and I felt so at home. Many of you.... too many to post

came over to me and said who you were and where you were from and wished

me well. I was so tickled to meet all of you. I wondered if I would

ever meet Mrs.K so someone pointed her out to me and I had a brief

conversation with her. Dr.Keshishian, Dawn, Dee, the entire staff they

employ and Delano Regional Medical Center Bariatric unit are tops and I

thank them so much for what they have done for me. To all of you on the

list that I had the pleasure to meet..... thank you... you mean

something to me also!

Kind regards,

a weak but cheerful,

Kinsey

[Guest guest]

Hi Kinsey!

So glad to hear you're recovering! Sorry to hear about the

infection but it sounds like it's under control.

And aren't Liz and Arthur wonderful? They took such good care of me

when I was there for my surgery. Here's hoping your recovery will

be smooth from here on!

Tracey

> hi everyone! I may not be able to post a long message because I am

> still a bit weak. I am Kinsey/glenda, had my surgery on the 3rd of

> Feb. I had wonderful care from Dr.K and his staff!

>

> Kind regards,

> a weak but cheerful,

> Kinsey

[Guest guest]

Hi Kinsey!

So glad to hear you're recovering! Sorry to hear about the

infection but it sounds like it's under control.

And aren't Liz and Arthur wonderful? They took such good care of me

when I was there for my surgery. Here's hoping your recovery will

be smooth from here on!

Tracey

> hi everyone! I may not be able to post a long message because I am

> still a bit weak. I am Kinsey/glenda, had my surgery on the 3rd of

> Feb. I had wonderful care from Dr.K and his staff!

>

> Kind regards,

> a weak but cheerful,

> Kinsey

[Guest guest]

Hi Kinsey!

So glad to hear you're recovering! Sorry to hear about the

infection but it sounds like it's under control.

And aren't Liz and Arthur wonderful? They took such good care of me

when I was there for my surgery. Here's hoping your recovery will

be smooth from here on!

Tracey

> hi everyone! I may not be able to post a long message because I am

> still a bit weak. I am Kinsey/glenda, had my surgery on the 3rd of

> Feb. I had wonderful care from Dr.K and his staff!

>

> Kind regards,

> a weak but cheerful,

> Kinsey

[Guest guest]

Hi ie. I'll give you some idea of what to expect from treatment.

I can only speak for myself.

Before treatment, the clinic wouldn't go into great detail about

symptoms. I assumed 20% couldn't hack and quit, and 20% felt little or

nothing. Then the day of my first shot they told me that no one feels

absolutely nothing.

For me day one was the worst. First few hours were ok, then flu

symptoms set in for one awful night. But then things got much better

to where now shot night is nothing at all. Interferon doesn't bother

me, it's the Ribavarin that is starting to bother me after two months

of treatment. Hard to sleep, less able to enjoy food, constantly

having to drink water, a feeling of embalming fluid running through my

veins, etc.

One thing that helps is meeting friends. It takes my mind off the

treatment. It is harder to enjoy things in general, but for some

reason meeting people helps more than just enjoying regular hobbies.

Another thing that seems true for me is that being a slender person,

and possibly taking a Riba dose that's too high for my weight, I feel

it helps to make myself exercise and sweat to help eliminate the Riba.

Since my liver is doing better (I cleared the virus at week 4,

genotype 1b), I'm able to get more use out of my muscles, though the

Riba makes me fatigued and anemic.

Also, be prepared to let yourself just bide away the time, without

challenging yourself to do anything major. It's probably a good time

to hybernate as much as possible.

Hope this helps.

Pete

'We get by with a little help from our friends.'

[Guest guest]

Welcome to the group,, I hope we can help you and that you will feel supported here,, jaxdante_rae2002 wrote: I'm new to the group but not to Hep C. I have had it for about 15 yrs. now. I tried the treatment once but got so sick I quit right away. My husband, who has Hep C also has taken the treatment and so far, so good. It's been a year since he finished. I'm getting ready to try the treatment again in January and am scared to death after the first try. I have a different Dr. who I think will be more sympathetic and work with me more than the first one did. Hopefully I'll make it all the way through this time. Any advice would be greatly appreciated. Thanks Jackie

[Guest guest]

Welcome to the group,, I hope we can help you and that you will feel supported here,, jaxdante_rae2002 wrote: I'm new to the group but not to Hep C. I have had it for about 15 yrs. now. I tried the treatment once but got so sick I quit right away. My husband, who has Hep C also has taken the treatment and so far, so good. It's been a year since he finished. I'm getting ready to try the treatment again in January and am scared to death after the first try. I have a different Dr. who I think will be more sympathetic and work with me more than the first one did. Hopefully I'll make it all the way through this time. Any advice would be greatly appreciated. Thanks Jackie

[Guest guest]

BioEra has a PDA software interface. I'm not sure what unit's they support that might have GSR channels, but you could effectively develop a simple recording app in BioEra for you PDA to record if there is a GSR device supported.

Otherwise- hmmm...

If you have a 60 feet radius you can work within, then you can set a laptop up in a safe place to capture. Buy a BraInquiry GSR PET and transmit your signal directly to the computer.

Empower. Employ, ENJOY!!!!

Hello everyone

Hi I'm new here. I work for the railroad as a signalman, been doing it for quite a while now.Can someone steer me in the right direction? I'm looking for a particular type of GSR device that I can wear on my body during the day and then download the recorded information to my computer. The computer display should depict the various events of the day with date and time stamp. Also, if possible, there would be synchronized audio on the time line.I'm not sure if this is asking for to much so if there is something out there similar to what I described, I'm willing to look.Thanks

[Guest guest]

Hi Caz

I am Caz too (Caroline!). I think you are right its all very

overwhelming and its difficult to figure out whats what. I think you

have to remember that you just do your best.

I dont buy everyting organic because It would be so costly so I try

to do what i can. With diet, removing the junk costs nothing (its the

replacements which are expensive)if you cook from scratch and your

child will take soups casseroles etc they do stretch quite far. I

guess as well we are lucky cos doesnt eat any baked things so

we dont have that expense.

I think the basics are good diet, probiotics (we use CP1 - Customs

Probiotics), a good vitamin and mineral supplement and some

antifungal treatment if your child showed high yeast. Many on the

list dont use a Consultant but we have alsways found that helpful but

I know it does cost. If you get Caudwell tat might be someting to

consider.

There are so many other treatments its impossible to list whats most

important for your child.

If you search back on this list saying SCD or specific carbohydrate

diet you should throw up lots of recipes that people have put in in

the past.

Joining Treating Autism is quite worthwhile cos you can borrow all

the books you need for free and that really saves you buying them. I

suggest you read Gut and Psycholgy Syndrome by Natasha

McBride because that tells you all about the SCD diet and theres lots

of really good recipes in it too.

The treating autism website is good and TACA (Talk About Curing

Autism)in the US has a very good website on begining with dietary

intervention too.

Please ask if theres things you need to know cos we have all started

out at one point. Maybe theres also a TA Local group where you live

too which will put you in touch with other mums doing biomed with

their children.

I think you have it twice to go through as your 2 children wont recat

to the same supplements in the same way.

Lots of Luck.

Caroline, Aberdeenshire

xx

[Guest guest]

Hi Caz

I am Caz too (Caroline!). I think you are right its all very

overwhelming and its difficult to figure out whats what. I think you

have to remember that you just do your best.

I dont buy everyting organic because It would be so costly so I try

to do what i can. With diet, removing the junk costs nothing (its the

replacements which are expensive)if you cook from scratch and your

child will take soups casseroles etc they do stretch quite far. I

guess as well we are lucky cos doesnt eat any baked things so

we dont have that expense.

I think the basics are good diet, probiotics (we use CP1 - Customs

Probiotics), a good vitamin and mineral supplement and some

antifungal treatment if your child showed high yeast. Many on the

list dont use a Consultant but we have alsways found that helpful but

I know it does cost. If you get Caudwell tat might be someting to

consider.

There are so many other treatments its impossible to list whats most

important for your child.

If you search back on this list saying SCD or specific carbohydrate

diet you should throw up lots of recipes that people have put in in

the past.

Joining Treating Autism is quite worthwhile cos you can borrow all

the books you need for free and that really saves you buying them. I

suggest you read Gut and Psycholgy Syndrome by Natasha

McBride because that tells you all about the SCD diet and theres lots

of really good recipes in it too.

The treating autism website is good and TACA (Talk About Curing

Autism)in the US has a very good website on begining with dietary

intervention too.

Please ask if theres things you need to know cos we have all started

out at one point. Maybe theres also a TA Local group where you live

too which will put you in touch with other mums doing biomed with

their children.

I think you have it twice to go through as your 2 children wont recat

to the same supplements in the same way.

Lots of Luck.

Caroline, Aberdeenshire

xx

[Guest guest]

Hi and welcome,

there are no guides and rules simply because every kid is different but there are general guideliness and things that most kids do well on but always and with everything keep in mind that you kid may be that one in 100 that responds badly to something, so always keep an open eye and open mind.

generally getting rids of toxic stuff around the house, cutting sugars and dropping artificial foods helps – not just with autistic kids.

main supplements that most do well on are fish oils, enzymes and probiotics. Also things like mb12 and folic/folinic acid. Also DMG or TMG.

I agree with Caroline, so worth applying for Caudwell funding, they have been our life boat. You can also apply for separate things and treatments, so say one application for supplements and testings (you have to have a doc beforehand) and then another say for hbot treatments or whatever. Do ask here if you have more detailed questions.

www.treatingautism.co.uk is a great site for beginners.

btw one child on this list had lots of aggressive episodes, they diminished greatly after adding chromium p. (? Vicky?) supplement.

natasa x

I have two children on the autistic spectrum. One 12 year old girl

HFA the other a 9 year old non=verbal boisterous boy who has

boundless amounts of energy. I took him to a DAN nutritionist a

stool sample test showed high levels of candida in his gut. In

October last year I implemented the GF/CF diet but have been doing

this alone. Because of the candida issues I am looking to go onto

the SCD diet but can only find sites which are based in USA the diet

seems so restrictive and from the research I have done the only thing

my son will eat on this diet is bananas. I am usign gut enzymes

Zycarb to help him break down his food and a product called Unique B-

12 which is a sublingual form of B12 problem is he eats it, it only

stays in his mouth for a few chews. The gf.cf diet seems to have

cleared the brain fog my son suffered from but his aggression is

still there (methinks linked to candida). I guess I am suffering

from info overload, is there any place that can give a parent a

simple breakdown of the steps with biomed. Unfortunately I am a

single parent on a very limited budget. I cannot afford to pay

consultants/tests etc. on top the treatment. I will apply to the

cauldwell trust but in the meantime I need to try and help my son

alone. The financial cost of implemeting biomedical treatment is

crippling for many families following the diet has doubled my weekly

shopping bill as I am having to buy alternatives and organic foods.

I know there is no price that surmounts the wellbeing of a childs

health. There is so much information on top of caring for a child on

the spectrum not many parents have the time to digest it all. I am

by no means unintelligent but I do sometimes look at things and pull

my hair out in frustration. I know that no two children are the same

and therein lies the problem. My two are like chalk and cheese. Is

there anywhere that I can find a step by step " GUIDE " to biomed

treatment in an autistic child. Surely there are some general things

people can try? Can biomed be put into simple laymans terms in order

to reach those parents who are busy trying to survive day to day. I

am no longer able to afford the consultantation and tests plus having

two children who need help so I may need to do this alone (if funding

is not agreed).

Sorry I hope this post doesnt come across too negatively but I am

posting from my own experiences. I just want a simple step by step

guide especailly about doing the SCD diet in the UK or a way of

tackling the candida overgrowth.

Thanks everyone Caz

[Guest guest]

Hi there Caz, I totally understand where you are coming from , I am to a single parent of a 6yr old boy,and it is really hard, I am doing aba with him and I have started him on a gf/cf diet. and my shopping bill has doubled!! I have an appointment with a dan doctor in breakspear hsp this week . But I just need someone to break things down for me in simple terms. SO I am looking forward to this consultation.

Kind Regards..

Parveen Waris

Subject: Re: Hello everyoneTo: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Saturday, 31 January, 2009, 9:24 PM

Hi and welcome,there are no guides and rules simply because every kid is different but there are general guideliness and things that most kids do well on but always and with everything keep in mind that you kid may be that one in 100 that responds badly to something, so always keep an open eye and open mind.generally getting rids of toxic stuff around the house, cutting sugars and dropping artificial foods helps – not just with autistic kids. main supplements that most do well on are fish oils, enzymes and probiotics. Also things like mb12 and folic/folinic acid. Also DMG or TMG.I agree with Caroline, so worth applying for Caudwell funding, they have been our life boat. You can also apply for separate things and treatments, so say one application for supplements and testings (you have to have a doc beforehand) and then another say for hbot treatments or

whatever. Do ask here if you have more detailed questions.www.treatingautism. co.uk is a great site for beginners.btw one child on this list had lots of aggressive episodes, they diminished greatly after adding chromium p. (? Vicky?) supplement.natasa x I have two children on the autistic spectrum. One 12 year old girl HFA the other a 9 year old non=verbal boisterous boy who has boundless amounts of energy. I took him to a DAN nutritionist a stool sample test showed high levels of candida in his gut. In October last year I implemented the GF/CF diet but have been doing this alone. Because of the candida issues I am looking to go onto the SCD diet but can only find sites which are based in USA the diet seems so restrictive and from the research I have done the only thing my son will eat on this diet is bananas. I am usign gut

enzymes Zycarb to help him break down his food and a product called Unique B-12 which is a sublingual form of B12 problem is he eats it, it only stays in his mouth for a few chews. The gf.cf diet seems to have cleared the brain fog my son suffered from but his aggression is still there (methinks linked to candida). I guess I am suffering from info overload, is there any place that can give a parent a simple breakdown of the steps with biomed. Unfortunately I am a single parent on a very limited budget. I cannot afford to pay consultants/ tests etc. on top the treatment. I will apply to the cauldwell trust but in the meantime I need to try and help my son alone. The financial cost of implemeting biomedical treatment is crippling for many families following the diet has doubled my weekly shopping bill as I am having to buy alternatives and organic foods. I know

there is no price that surmounts the wellbeing of a childs health. There is so much information on top of caring for a child on the spectrum not many parents have the time to digest it all. I am by no means unintelligent but I do sometimes look at things and pull my hair out in frustration. I know that no two children are the same and therein lies the problem. My two are like chalk and cheese. Is there anywhere that I can find a step by step "GUIDE" to biomed treatment in an autistic child. Surely there are some general things people can try? Can biomed be put into simple laymans terms in order to reach those parents who are busy trying to survive day to day. I am no longer able to afford the consultantation and tests plus having two children who need help so I may need to do this alone (if funding is not agreed). Sorry I hope this post

doesnt come across too negatively but I am posting from my own experiences. I just want a simple step by step guide especailly about doing the SCD diet in the UK or a way of tackling the candida overgrowth.Thanks everyone Caz

[Guest guest]

We're starting to think about B12 injections, IV glutathione andchelation now. We'll go to Breakspear I geuss, in Hemel Hempstead. If anyone's got any opinions on them, I'd love to hear!

>>I don't think IV glutathione is useful or safe, certain Medics at Breakspear are threatening parents who won't do dangerous and uninformative challenge tests or use the high dose DAN protocol.

Why not try transdermal and or oral MB12 and see if you need to go the route of IM, give supps that recycle glutathione or use Andy Cutlers chelation protocol with DMSA.

Using DMSA has been shown to normalise Glutathione. Jon is familiar with AC protocol but still nervous about it as he is about any chelation.

JMHO FWIW

Mandi x

[Guest guest]

We're starting to think about B12 injections, IV glutathione andchelation now. We'll go to Breakspear I geuss, in Hemel Hempstead. If anyone's got any opinions on them, I'd love to hear!

>>I don't think IV glutathione is useful or safe, certain Medics at Breakspear are threatening parents who won't do dangerous and uninformative challenge tests or use the high dose DAN protocol.

Why not try transdermal and or oral MB12 and see if you need to go the route of IM, give supps that recycle glutathione or use Andy Cutlers chelation protocol with DMSA.

Using DMSA has been shown to normalise Glutathione. Jon is familiar with AC protocol but still nervous about it as he is about any chelation.

JMHO FWIW

Mandi x

[Guest guest]

We're starting to think about B12 injections, IV glutathione andchelation now. We'll go to Breakspear I geuss, in Hemel Hempstead. If anyone's got any opinions on them, I'd love to hear!

>>I don't think IV glutathione is useful or safe, certain Medics at Breakspear are threatening parents who won't do dangerous and uninformative challenge tests or use the high dose DAN protocol.

Why not try transdermal and or oral MB12 and see if you need to go the route of IM, give supps that recycle glutathione or use Andy Cutlers chelation protocol with DMSA.

Using DMSA has been shown to normalise Glutathione. Jon is familiar with AC protocol but still nervous about it as he is about any chelation.

JMHO FWIW

Mandi x

[Guest guest]

Mandi do you have some links regarding " glutathione/Andy Cutlers

chelation protocol with DMSA. " . I am not quite sure what they are

*sorry*.

I am using sub-lingual B12 (which my son chews on) and B12 patches.

In the meantime will go to " database " on here so I can understand

the " lingo " better lol.

>

thanks x

>

>

> In a message dated 02/02/2009 16:23:30 GMT Standard Time,

CBrehm@...

> writes:

>

> We're starting to think about B12 injections, IV glutathione and

> chelation now. We'll go to Breakspear I geuss, in Hemel Hempstead.

> If anyone's got any opinions on them, I'd love to hear!

>

>

>

> >>I don't think IV glutathione is useful or safe, certain Medics

at

> Breakspear are threatening parents who won't do dangerous and

uninformative challenge

> tests or use the high dose DAN protocol.

>

> Why not try transdermal and or oral MB12 and see if you need to go

the route

> of IM, give supps that recycle glutathione or use Andy Cutlers

chelation

> protocol with DMSA.

>

> Using DMSA has been shown to normalise Glutathione. Jon is familiar

with AC

> protocol but still nervous about it as he is about any chelation.

>

> JMHO FWIW

>

> Mandi x

>

[Guest guest]

Mandi do you have some links regarding " glutathione/Andy Cutlers

chelation protocol with DMSA. " . I am not quite sure what they are

*sorry*.

I am using sub-lingual B12 (which my son chews on) and B12 patches.

In the meantime will go to " database " on here so I can understand

the " lingo " better lol.

>

thanks x

>

>

> In a message dated 02/02/2009 16:23:30 GMT Standard Time,

CBrehm@...

> writes:

>

> We're starting to think about B12 injections, IV glutathione and

> chelation now. We'll go to Breakspear I geuss, in Hemel Hempstead.

> If anyone's got any opinions on them, I'd love to hear!

>

>

>

> >>I don't think IV glutathione is useful or safe, certain Medics

at

> Breakspear are threatening parents who won't do dangerous and

uninformative challenge

> tests or use the high dose DAN protocol.

>

> Why not try transdermal and or oral MB12 and see if you need to go

the route

> of IM, give supps that recycle glutathione or use Andy Cutlers

chelation

> protocol with DMSA.

>

> Using DMSA has been shown to normalise Glutathione. Jon is familiar

with AC

> protocol but still nervous about it as he is about any chelation.

>

> JMHO FWIW

>

> Mandi x

>

[Guest guest]

I am a female with Autism- The Aspergers kind. I live in a group home in

Charlotte, North Carolina. I am not getting any money at all to get haircuts at

all .I cut my own hair recently because I do not get any money for haircuts and

the group home staff yelled at me . I want to get my hair straightened out and

the group home will not let me get a Haircut At All.The Group home is neglecting

the fact I still need haircuts. My Parents also yelled at me because I cut my

hair and is neglecting the fact I still need haircuts. What Can I do? My Job

which is an on Call only Job is not calling me in up to where I am not getting a

Paycheck at all. Any money that I get from the Social Security Administration

and Special Assistance all goes to pay for my Rent up to where I do not get any

money for haircuts. Other Than not getting any money for haircuts I am not

getting any money to get things like:

1.Postage Stamps

2.toiletrys like: Shampoo, Bar Soap, Baby Powder, Mouthwash, Toothpaste

3.Typeing paper

4.envelopes

5.Pens

6.Pencils

7.Clothes

8.CD-R Discs

9.Notebook Paper

10.ETC...

What Can I Do? I Need Help.

Questions I have:

1.Can someone help me have some money so I can have haircuts?

2.Can someone please send me some postage Stamps I am needing some Stamps?

3.Can someone please Send me a gift Card to Walmart so I can have things like

toiletrys, typeing paper, envelopes, Pens, Pencils, etc.. that I need

If you know the answers please e-mail me at :

CHANNING28105@...

CHANNING28270@...

CHANCHAN79@...

Channing

[Guest guest]

This woman has posted here 9 times before;

Oct 11, 2006

Nov 15, 2006

Dec 14, 2006 In this posting she states her age as 35,

June 8, 2007

Jan 27, 2008

Aug 11, 2008

Oct 18,2008

Nov 21, 2008

Dec 20, 2008

I have seen her postings on other groups as well. I believe that she is looking

for friends and or sponsors to help her with what she believes to be her needs.

I also believe that her true needs should be taken care of out of the money that

goes to the residence where she lives.

This is of course just my own 2 cents worth, and can be taken however anyone

wants to take it.

>

>

> Subject: Hello Everyone

> To: AutismBehaviorProblems

> Date: Thursday, April 30, 2009, 8:39 AM

>

>

>

>

>

>

>

>

> I am a female with Autism- The Aspergers kind. I live in a group home in

Charlotte, North Carolina. I am not getting any money at all to get haircuts at

all .I cut my own hair recently because I do not get any money for haircuts and

the group home staff yelled at me . I want to get my hair straightened out and

the group home will not let me get a Haircut At All.The Group home is neglecting

the fact I still need haircuts. My Parents also yelled at me because I cut my

hair and is neglecting the fact I still need haircuts. What Can I do? My Job

which is an on Call only Job is not calling me in up to where I am not getting a

Paycheck at all. Any money that I get from the Social Security Administration

and Special Assistance all goes to pay for my Rent up to where I do not get any

money for haircuts. Other Than not getting any money for haircuts I am not

getting any money to get things like:

> 1.Postage Stamps

> 2.toiletrys like: Shampoo, Bar Soap, Baby Powder, Mouthwash, Toothpaste

> 3.Typeing paper

> 4.envelopes

> 5.Pens

> 6.Pencils

> 7.Clothes

> 8.CD-R Discs

> 9.Notebook Paper

> 10.ETC...

> What Can I Do? I Need Help.

> Questions I have:

> 1.Can someone help me have some money so I can have haircuts?

> 2.Can someone please send me some postage Stamps I am needing some Stamps?

> 3.Can someone please Send me a gift Card to Walmart so I can have things like

toiletrys, typeing paper, envelopes, Pens, Pencils, etc.. that I need

>

> If you know the answers please e-mail me at :

>

> CHANNING28105@ LYCOS.COM

> CHANNING28270@ GMAIL.COM

> CHANCHAN79@KITTYMAI L.COM

>

> Channing

>

[Guest guest]

Hi,

I do remember her posting before. I think maybe it is the whole lack of social skills and awareness that we see in our own kids. If we didn't have what we needed we would ask at the home or find a new job etc... It would never occur to me to post asking strangers for help but I can see why if you had no social skills you would. Maybe she is thinking I need this and they have it so I'll ask them... I guess one way to teach this social skill is to just ignore it but I do hope she isn't giving our her info to lots of strangers as that is dangerous. I do think someone should be monitoring her email as she could get herself into trouble. Kellie

To: AutismBehaviorProblems Sent: Friday, May 1, 2009 6:01:10 PMSubject: Re: Hello Everyone

This woman has posted here 9 times before;Oct 11, 2006Nov 15, 2006Dec 14, 2006 In this posting she states her age as 35,June 8, 2007Jan 27, 2008Aug 11, 2008Oct 18,2008Nov 21, 2008Dec 20, 2008I have seen her postings on other groups as well. I believe that she is looking for friends and or sponsors to help her with what she believes to be her needs. I also believe that her true needs should be taken care of out of the money that goes to the residence where she lives.This is of course just my own 2 cents worth, and can be taken however anyone wants to take it.> > From: Channing Ashbaugh <channing28270@ ...>> Subject: Hello Everyone> To: AutismBehaviorProbl emsyahoogroups (DOT) com> Date: Thursday, April 30, 2009, 8:39 AM> > > > > > > > > I am a female with Autism- The Aspergers kind. I live in a group home in Charlotte,

North Carolina. I am not getting any money at all to get haircuts at all .I cut my own hair recently because I do not get any money for haircuts and the group home staff yelled at me . I want to get my hair straightened out and the group home will not let me get a Haircut At All.The Group home is neglecting the fact I still need haircuts. My Parents also yelled at me because I cut my hair and is neglecting the fact I still need haircuts. What Can I do? My Job which is an on Call only Job is not calling me in up to where I am not getting a Paycheck at all. Any money that I get from the Social Security Administration and Special Assistance all goes to pay for my Rent up to where I do not get any money for haircuts. Other Than not getting any money for haircuts I am not getting any money to get things like:> 1.Postage Stamps> 2.toiletrys like: Shampoo, Bar Soap, Baby Powder, Mouthwash, Toothpaste> 3.Typeing paper>

4.envelopes> 5.Pens> 6.Pencils> 7.Clothes> 8.CD-R Discs> 9.Notebook Paper> 10.ETC...> What Can I Do? I Need Help.> Questions I have:> 1.Can someone help me have some money so I can have haircuts?> 2.Can someone please send me some postage Stamps I am needing some Stamps?> 3.Can someone please Send me a gift Card to Walmart so I can have things like toiletrys, typeing paper, envelopes, Pens, Pencils, etc.. that I need> > If you know the answers please e-mail me at :> > CHANNING28105@ LYCOS.COM> CHANNING28270@ GMAIL.COM> CHANCHAN79@KITTYMAI L.COM> > Channing>