Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Hello i have felt the same way like my leg were giong to give out and they felt almost like they were knumb. It was really weird and hard to explain. I was also in the middle of a flare.Sorry to hear about your dad.Just try to take it easy and put your feet up. I know it is hard to relaxe in times like this but remember you also have to take care of yourself.Take care and i hope you feel better soon. Joanne in New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 I did experience this my legs felt weak and heavy and generally did not coperate.Alot my problems were also muscle pain and fatigue within the muscle itself,sorry your experiencing this right now.I hope when things calm down so will the Stills,take care. d.Canada Question, update Hi everyone. I really dont know what is going on with me today. I wanted to ask if anyone has ever had the feeling of their legs just wanting to give out on them and be in soo much pain? It is a weird feeling actually, it is like my legs are soo weak, and hurt but I dont have enough in my legs to help me do anything.. It is not like cutting off circulation, it is way different. I tried to explain it to mom today and I get so frustrated because I just cant really explain it. I do know I am fighting a flare, for the last month since dad died I think I have only really rested twice, I just feel bad because I dont want mom to have to do everything on her own. I am getting frustrated with my body as well. Which I know I need to take it easy. Things will get easier once I (we) have finished up with my house, that should be this weekend. I still have things to unpack here but those can wait. Sorry I am just frustrated an Love and (((((((((((((Hugs))))))))))))) Kelley in Colorado Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Thank you Joann and for answering back.. I plan on trying to take it easy for the next few days. I would also like to thank everyone for their well wishes and sympathy with my dad, it has meant alot to me and my mom. You all take care and I hope we all feel better Kelley in Colorado -- Re: Question, update Hello i have felt the same way like my leg were giong to give out and they felt almost like they were knumb. It was really weird and hard to explain. I was also in the middle of a flare.Sorry to hear about your dad.Just try to take it easy and put your feet up. I know it is hard to relaxe in times like this but remember you also have to take care of yourself.Take care and i hope you feel better soon.Joanne in New York Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Hi Kelley, I can't delete any more of the message for some reason. YES! I get that same feeling. I told my doctors it was like my legs were jello under a weight too heavy for it to hold solid, or that my legs felt like they were "Eyore's tail". I can see that they are attached to my body but they don't belong to me because I can't make them work right. Missing a few connections so to speak. Things that happen to me: I am walking and can't move my legs, can't take another step. I am trying to stand up by my legs feel shakey and make me nervous because I feel like I am going to fall down. My legs from the knees down tingle when I walk. Lately, when I try to stand up, I start sweating and shaking to death. My doctor says she thinks I have used too much energy and I need to rest so I have been and I agree with her. I have done too much and I am too tired. Resting is helping. I have also had MRI of my brain to my spine tailbone about a year ago and need to do it again soon due to the Syrnx in my brain and T12 spinal column, and the radiculopathy in my L4, L5, S1. The thigh muscle biopsy showed I have Rhabdomyolisis (exercise induced muscle disease) which is a rare side effect of Stills. The muscles are spitting out CK like it was going out of style. The Kineret has helped tone that down quite a bit but I have to rest more. Yeah right, that's all I do. You can tell because I have not been here much the past 2 months. I've been resting. LOL So, I have what you describe, got it checked out and told you what they found on me. I hope you can get to the bottom of your issues. Smiles, Caroline Empress of Everything Wierd Healthwise OR CUSkelley knight wrote: Hi everyone. I really dont know what is going on with me today. I wanted to ask if anyone has ever had the feeling of their legs just wanting to give out on them and be in soo much pain? It is a weird feeling actually, it is like my legs are soo weak, and hurt but I dont have enough in my legs to help me do anything.. It is not like cutting off circulation, it is way different. I tried to explain it to mom today and I get so frustrated because I just cant really explain it. I do know I am fighting a flare, for the last month since dad died I think I have only really rested twice, I just feel bad because I dont want mom to have to do everything on her own. I am getting frustrated with my body as well. Which I know I need to take it easy. Things will get easier once I (we) have finished up with my house, that should be this weekend. I still have things to unpack here but those can wait. Sorry I am just frustrated and not understanding what is happening. I should fully be back on the group hopefully by next week. I do go see the Dr in Denver again on Tuesday, but I wanted to see if anyone else has ever had this problem first. Love and miss you all lots. Will keep in better touch soon, promise. Will try to make chat tomorrow night .. Love and (((((((((((((Hugs))))))))))))) Kelley in Colorado (Beautiful Southern Oregon, USA) We may not be able to change the direction of the wind, but we can adjust our sails. May you have enough happiness to make you kind, enough trials to make you strong, enough sorrow to keep you human, enough hope to make you happy. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 , I am not sure if this is related, but I have found that if I am on a boat (fishing) and the water is rough, I can not walk afterwards, and the pain is unbearable. I attribute it to the continual shifting of weight from leg to leg to keep my balance. I had a few tournaments this year where I could not stand in the boat after as little as 45 minutes. Aside from fishing my legs are a constant source of pain, whether it be muscle related or joints. I hate this! Kirk Question, update Hi everyone. I really dont know what is going on with me today. I wanted to ask if anyone has ever had the feeling of their legs just wanting to give out on them and be in soo much pain? It is a weird feeling actually, it is like my legs are soo weak, and hurt but I dont have enough in my legs to help me do anything.. It is not like cutting off circulation, it is way different. I tried to explain it to mom today and I get so frustrated because I just cant really explain it. I do know I am fighting a flare, for the last month since dad died I think I have only really rested twice, I just feel bad because I dont want mom to have to do everything on her own. I am getting frustrated with my body as well. Which I know I need to take it easy. Things will get easier once I (we) have finished up with my house, that should be this weekend. I still have things to unpack here but those can wait. Sorry I am just frustrated and not understanding what is happening. I should fully be back on the group hopefully by next week. I do go see the Dr in Denver again on Tuesday, but I wanted to see if anyone else has ever had this problem first. Love and miss you all lots. Will keep in better touch soon, promise. Will try to make chat tomorrow night .. Love and (((((((((((((Hugs))))))))))))) Kelley in Colorado Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
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