Re: Informal survery sweating/rash/itching

[Guest guest]

Hi Lynn,I have always been a terrible Sweater at least now its back normal

again :-).Anyhow when my disease was active in 2002 it was pretty much

constant but did get worse with the Fever(which came 4 times day,could

almost set your watch by it).My rash only itched when it first

appeared,weirdest thing was that the Rash itself seemed to trap

heat.Whenever I leaned on my back while sitting on couch,itstantly I would

feel hot lean forward it would go away so weird.I did have the rash biopsied

3 times,came back Non-specific each time tested.Take care. d.Canada

Informal survery sweating/rash/itching

>

> Hi all,

> Just wondering how many out there sweat during the day like I do and not

> primarily at night? I sweat the worst during the morning and then get so

> cold and have to bundle up all afternoon, then super hot again later in

> the

> evening and my face, and legs get beet red.

>

> Also wondering how many have itching with our without the " rash " ? and how

> do you know if your rash is not just " flushing " if it does not have a

> definite rash pattern to it? I look sunburned a lot but I consider that

> more to be more flushed than rashed.

>

> One last thing, how many out there have had the rash biopsied and had any

> conclusive results?

>

> Just wondering

> Lynn

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

> The materials and information contained in this message are not intended

> to replace the services of a trained health professional or to be a

> substitute for medical advice of physicians and/or other health care

> professionals. The International Still's Disease Foundation is not engaged

> in rendering medical or professional medical services. You should consult

> your physician on specific medical questions, particularly in matters

> requiring diagnosis or medical attention. The International Still's

> Disease Foundation makes no representations or warranties with respect to

> any treatment, action, application, medication or preparation by any

> person following the information offered or provided within this support

> form.

>

> ion by any person following the information offered or provided within

> this support form.

>

>

>

[Guest guest]

Hi Lynn, hey I do the same thing!!! I get so cold I need blankets and then so hot I have to change my clothes. I sweet so bad. Yes I also itch and there may not even be a rash. But one last thing I also do is peal. My skin peals alot too. Only on my fingers or side of the hand.

I have asked every doctor what the freezing cold then hotter then hot is and they all don't know not even my Rhumey. Then I get real hot legs. Mostly at night but they get so hot it feels like a lighter. My knees look shinny but not really very red but all the leg is hot, not just the knees. No one seems to know about that or the skin pealing or why I itch so much. One doctor sugested it was allergy. LOL Let me know what you find out if anything.

Hugs; GingerLynn D wrote:

Hi all, Just wondering how many out there sweat during the day like I do and notprimarily at night? I sweat the worst during the morning and then get socold and have to bundle up all afternoon, then super hot again later in theevening and my face, and legs get beet red.Also wondering how many have itching with our without the "rash" ? and howdo you know if your rash is not just "flushing" if it does not have adefinite rash pattern to it? I look sunburned a lot but I consider thatmore to be more flushed than rashed.One last thing, how many out there have had the rash biopsied and had anyconclusive results?Just wonderingLynnVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials

and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

I don't know if I have "the rash", but when I am in a great amount of pain, my face, forehead, neck & shoulders (sometimes chest and upper back get "purple". Sometime it is blotchy, sometimes it is solid..

As far as sweating, sometimes I sweat like hell, than freeze, although I haven't had a temperature in a month or so. I usually go to bed with wool pajamas and about 6 sheets and quilts as I am usually freezing, than I wind up waking up with most of the covers off to the side and my clothes drenched.

One has to love it!

Kirk (The Chronically ******!)

Informal survery sweating/rash/itching

Hi all, Just wondering how many out there sweat during the day like I do and notprimarily at night? I sweat the worst during the morning and then get socold and have to bundle up all afternoon, then super hot again later in theevening and my face, and legs get beet red. Also wondering how many have itching with our without the "rash" ? and howdo you know if your rash is not just "flushing" if it does not have adefinite rash pattern to it? I look sunburned a lot but I consider thatmore to be more flushed than rashed. One last thing, how many out there have had the rash biopsied and had anyconclusive results? Just wondering LynnVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

Hi Lynn,

I get the rash at intermittently. Feeling cold is more common for me than hot.

I recall laying in the hospital bed being prepped for eye surgery. The nurse

asked if the rash on my neck was common for me. I didn't realize a rash was on

my neck, but told her rashes on various body parts is common. The rash itching

is more common when it is hot. That irritates my systemic vasculitis, a

different problem. It seems there are a couple others on the site who have SD &

systemic vasculitis.

When I first became ill and was hospitalized, they biopsied 2 separate rash

sites. Neither were rashes from Stills, they were hives from vasculitis. They

sent them to a lab at UCLA and the report stated positive for Lupus. No blood

labs ever done on me have indicated positive for Lupus. That, and lack of

knowledge from local Rheumatologists is the reason I was misdiagnosed and

treated for Lupus for 10 years. Systemic Lupus cannot be diagnosed by a skin

test.

As far as sweats go, mine are only at night. Must be due to Lexapro. Pleasant

feeling to wake up to at 3 a.m. Yuck!

Peace,

Barbara

[Guest guest]

Hi lynn, I too have sweating, it is very embarassing. and people look at you

like your weird. I wish I knew why it occurs, but I don't. I also had a skin

biopsy of my rash, they said it had lupusy like cells, but it wasn't lupus.

(whatever that means) I think most of us with Still's know the true meaning of

" practice' when it comes to Dr's. Best wishes, B