Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 I really need help!! My son is 6 and he is not talking! I have tried a lot of medication, currently he is taking Tigervites, sea veggies, calcium supplement, acyclovir and NCD for chelation. My DAN does not really want to prescribe Valtrex, because he says its not a drug to be used by a child. We have also tried the Vitamin B12 shots. When my son was 3 and 4 and just knew he would be talking by now. He does babble just a little bit more, but no real words. He still has out of control behaviors which seem worse because hes older and hes so big. Are there any other medications that I can try that are over the counter. I truly believe there is a medication out there to cure our children! Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 Hi from Sue, I just heard from a parent recently whose 4 yr. old is doing better in speech therapy after using the LW glutathione patches. ( Since Glutathione chelates viruses as well as heavy metals and toxins, it makes sense that it would have similar effects as using Valtrex. and other antivirals.)--but also has the added benefit of building immunityand much more..like methylation etc. It certainly helped my husband's Shingles ( a Herpe's virus.). As with anything --- different people respond to different treatments... not one fits all. Another thing that is very promising for speech is Carnosine. If you google... Double blind studies for Carnosine for Autism you will see the studies Dr. Chez has done which have resulted in better speech, language, motor skills, and socialization. Carnaware is one pill product used. We have chosen the LW Y-age boosters which comes in "new packaging" on LW website = 15 Glutathione boosters plus 15 Carnosine Boosters for 69.95 member price or 89.95 retail which is ONLY listed in the shopping area of the websites at this time. It is found at www.lifewave.com/fundingASDresearch in care of T. These NON-transdermal patches have a better delivery system (activating the body's own glutathione production ) than pill forms. You can see the double blind studies on the site under SKIN Care patches...since the glutathione boosters sold alone are packaged as Skin care patches...and the studies are in the chart on that page,etc. They are the same as the Y-age glutathione boosters... just different options. =together or separate. Hope that helps, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 Thank you for your response. Ive read several of your emails before and you explain things very well. Thanks so much for your advice! Abid Khan wrote: First and most important -- if you doctor is not open-minded enough to try Valtrex -- you need a new doctor. My belief is that language will come when the toxins and viruses come out. You need to try valtrex. Try MB12. Then try to chelate, chelate, chelate. Naturals include fish oil & folic acid. So much you can try but no guarantees with anything. My son is 6 and also non-verbal. He can say words but communicates by pointing. This can be so depressing and difficult. You are not alone in your struggle. Guilford <teacher41198> wrote: I really need help!! My son is 6 and he is not talking! I have tried a lot of medication, currently he is taking Tigervites, sea veggies, calcium supplement, acyclovir and NCD for chelation. My DAN does not really want to prescribe Valtrex, because he says its not a drug to be used by a child. We have also tried the Vitamin B12 shots. When my son was 3 and 4 and just knew he would be talking by now. He does babble just a little bit more, but no real words. He still has out of control behaviors which seem worse because hes older and hes so big. Are there any other medications that I can try that are over the counter. I truly believe there is a medication out there to cure our children! Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 He eats regular food, some GFCF here and there! We did the B12 shots for about 2 months.bnana wrote: What does he eat? How long did you try MB12? Guilford <teacher41198> wrote: I really need help!! My son is 6 and he is not talking! I have tried a lot of medication, currently he is taking Tigervites, sea veggies, calcium supplement, acyclovir and NCD for chelation. My DAN does not really want to prescribe Valtrex, because he says its not a drug to be used by a child. We have also tried the Vitamin B12 shots. When my son was 3 and 4 and just knew he would be talking by now. He does babble just a little bit more, but no real words. He still has out of control behaviors which seem worse because hes older and hes so big. Are there any other medications that I can try that are over the counter. I truly believe there is a medication out there to cure our children! Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 , so many children do badly on calcium supplementation, I would try stopping that one first of all! Have you tried digestive enzymes? There is a yahoo list, also this site is very good, you can order K DeFeliceÕs book, highly recommended: http://www.enzymestuff.com/ Natasa > > I really need help!! My son is 6 and he is not talking! I have tried a lot of medication, currently he is taking Tigervites, sea veggies, calcium supplement, acyclovir and NCD for chelation. My DAN does not really want to prescribe Valtrex, because he says its not a drug to be used by a child. We have also tried the Vitamin B12 shots. > > When my son was 3 and 4 and just knew he would be talking by now. He does babble just a little bit more, but no real words. He still has out of control behaviors which seem worse because hes older and hes so big. Are there any other medications that I can try that are over the counter. I truly believe there is a medication out there to cure our children! > > > > > --------------------------------- > Ahhh...imagining that irresistible " new car " smell? > Check outnew cars at Yahoo! Autos. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 We saw nothing with Transfer Factor and we used it for months. We are using LDN now and not seeing anything either except that if I go above 3 lines he gets up at 2am for the day, and if we try to stop using it by decreasing lines he wets the bed several times a night. I tried transfer factor with him. this was 2 years ago. After about 3 weeks I got sick. I thought it was good because it meant my system was killing something off. That was until my joints started to ached and one day I woke up and couldn't walk. Seems I have rheumatoid arthritis. My doctor said it is something that is there in your system and just needs a trigger. I believe the Transfer Factor was that trigger. I threw out a full bottle and neither of us have touched it since. Kerrie n a message dated 4/25/2007 10:16:28 A.M. Eastern Daylight Time, a_bit_solutions@... writes: s helped autistic kids. The product is called TRANSFER FACTOR. It's a 10 week trial and we started last night. The product supposedly boosts the immune system of these kids by "re-educating" the immune system. I'm not sure if I believe this yet or not but according to this nice women I am working with from Transfer Factor, the product has improved 7 out of 7 kids who tried it. If anyone else wnats to participate, I will provide you with a contact email. I really feel that the immune system is screwed up in these kids. Some of the kids who do not respond or respond slowly like my boy need something to improve the immune system. Autism, I believe, is not just a toxicity issue, but an autoimmune issue. Next, I will try LDN. Here is some info regarding Transfer Factor from the internet: What are transfer factors and how do they work? Transfer Factor XF is a safe substance for people of all ages, especially children.* Transfer factors are the primary communications mechanism used by your immune system to defend your body against harmful microbial threats. Transfer factors are small molecules that consist of specific sequences of amino acids. These small compounds naturally occur in all mammals and are passed on from mother to newborn through the mother's first milk called colostrum. These small transfer factor molecules start to educate the newborn's naive immune system, which in turn helps protect them from the microbial threats they encounter all their life. If it helps my son, I will be supporting the product. If not, I will say that also. Ultmately, a company wants to become rich with this product. If the product helps my boy and others, I will help them. See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 sometimes it depends on the type of calcium supplementation. We stopped the powdered and changed to liquid and that made all the fdifference in the world. You have to try the idffferent types first because calcium is soooo important. maurinenatasa778 wrote: , so many children do badly on calcium supplementation, I would trystopping that one first of all! Have you tried digestive enzymes? Thereis a yahoo list, also this site is very good, you can order KDeFeliceÕs book, highly recommended:http://www.enzymestuff.com/Natasa--- In mb12 valtrex , Guilford wrote:>> I really need help!! My son is 6 and he is not talking! I have tried alot of medication, currently he is taking Tigervites, sea veggies,calcium supplement, acyclovir and NCD for chelation. My DAN does notreally want to prescribe Valtrex, because he says its not a drug to beused by a child. We have also tried the Vitamin B12 shots.>> When my son was 3 and 4 and just knew he would be talking by now. Hedoes babble just a little bit more, but no real words. He still has outof control behaviors which seem worse because hes older and hes so big.Are there any other medications that I can try that are over thecounter. I truly believe there is a medication out there to cure ourchildren!>> >>> ---------------------------------> Ahhh...imagining that irresistible "new car" smell?> Check outnew cars at Yahoo! Autos.> Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Thank You Im definitely going to try this out!!J Thorpe wrote: Hi from Sue, I just heard from a parent recently whose 4 yr. old is doing better in speech therapy after using the LW glutathione patches. ( Since Glutathione chelates viruses as well as heavy metals and toxins, it makes sense that it would have similar effects as using Valtrex. and other antivirals.)--but also has the added benefit of building immunityand much more..like methylation etc. It certainly helped my husband's Shingles ( a Herpe's virus.). As with anything --- different people respond to different treatments... not one fits all. Another thing that is very promising for speech is Carnosine. If you google... Double blind studies for Carnosine for Autism you will see the studies Dr. Chez has done which have resulted in better speech, language, motor skills, and socialization. Carnaware is one pill product used. We have chosen the LW Y-age boosters which comes in "new packaging" on LW website = 15 Glutathione boosters plus 15 Carnosine Boosters for 69.95 member price or 89.95 retail which is ONLY listed in the shopping area of the websites at this time. It is found at www.lifewave.com/fundingASDresearch in care of T. These NON-transdermal patches have a better delivery system (activating the body's own glutathione production ) than pill forms. You can see the double blind studies on the site under SKIN Care patches...since the glutathione boosters sold alone are packaged as Skin care patches...and the studies are in the chart on that page,etc. They are the same as the Y-age glutathione boosters... just different options. =together or separate. Hope that helps, Sue Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 I would shop for another doctor immediately! As parents, we need support, and it seems as if you may have wasted a lot of time on this one...Maurine Meleck wrote: sometimes it depends on the type of calcium supplementation. We stopped the powdered and changed to liquid and that made all the fdifference in the world. You have to try the idffferent types first because calcium is soooo important. maurinenatasa778 <nenodalmaholidays (DOT) co.uk> wrote: , so many children do badly on calcium supplementation, I would trystopping that one first of all! Have you tried digestive enzymes? Thereis a yahoo list, also this site is very good, you can order KDeFeliceÕs book, highly recommended:http://www.enzymestuff.com/Natasa--- In mb12 valtrex , Guilford wrote:>> I really need help!! My son is 6 and he is not talking! I have tried alot of medication, currently he is taking Tigervites, sea veggies,calcium supplement, acyclovir and NCD for chelation. My DAN does notreally want to prescribe Valtrex, because he says its not a drug to beused by a child. We have also tried the Vitamin B12 shots.>> When my son was 3 and 4 and just knew he would be talking by now. Hedoes babble just a little bit more, but no real words. He still has outof control behaviors which seem worse because hes older and hes so big.Are there any other medications that I can try that are over thecounter. I truly believe there is a medication out there to cure ourchildren!>> >>> ---------------------------------> Ahhh...imagining that irresistible "new car" smell?> Check outnew cars at Yahoo! Autos.> Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Monitor blood and urine essential elements calcium. I'm not recommending this but my son has not been on any type of calcium for over 2 years and yes we are GFCF. I do watch his calcium in testing > > , so many children do badly on calcium supplementation, I would try > stopping that one first of all! Have you tried digestive enzymes? There > is a yahoo list, also this site is very good, you can order K > DeFeliceÕs book, highly recommended: > http://www.enzymestuff.com/ > > Natasa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 I have tried enzymes, but we have to do is take the pill a loose and sprinkle it in his food when he is not looking, because he will not swall pills. I will definitely go to this website thanks!natasa778 wrote: , so many children do badly on calcium supplementation, I would trystopping that one first of all! Have you tried digestive enzymes? Thereis a yahoo list, also this site is very good, you can order KDeFeliceÕs book, highly recommended:http://www.enzymestuff.com/Natasa--- In mb12 valtrex , Guilford wrote:>> I really need help!! My son is 6 and he is not talking! I have tried alot of medication, currently he is taking Tigervites, sea veggies,calcium supplement, acyclovir and NCD for chelation. My DAN does notreally want to prescribe Valtrex, because he says its not a drug to beused by a child. We have also tried the Vitamin B12 shots.>> When my son was 3 and 4 and just knew he would be talking by now. Hedoes babble just a little bit more, but no real words. He still has outof control behaviors which seem worse because hes older and hes so big.Are there any other medications that I can try that are over thecounter. I truly believe there is a medication out there to cure ourchildren!>> >>> ---------------------------------> Ahhh...imagining that irresistible "new car" smell?> Check outnew cars at Yahoo! Autos.> Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Yasko recommends chamomile and nettles for calcium. From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine Meleck Sent: Wednesday, April 25, 2007 7:52 AM To: mb12 valtrex Subject: Re: Re: I really need some help!!! sometimes it depends on the type of calcium supplementation. We stopped the powdered and changed to liquid and that made all the fdifference in the world. You have to try the idffferent types first because calcium is soooo important. maurine natasa778 <nenodalmaholidays (DOT) co.uk> wrote: , so many children do badly on calcium supplementation, I would try stopping that one first of all! Have you tried digestive enzymes? There is a yahoo list, also this site is very good, you can order K DeFeliceÕs book, highly recommended: http://www.enzymestuff.com/ Natasa > > I really need help!! My son is 6 and he is not talking! I have tried a lot of medication, currently he is taking Tigervites, sea veggies, calcium supplement, acyclovir and NCD for chelation. My DAN does not really want to prescribe Valtrex, because he says its not a drug to be used by a child. We have also tried the Vitamin B12 shots. > > When my son was 3 and 4 and just knew he would be talking by now. He does babble just a little bit more, but no real words. He still has out of control behaviors which seem worse because hes older and hes so big. Are there any other medications that I can try that are over the counter. I truly believe there is a medication out there to cure our children! > > > > > --------------------------------- > Ahhh...imagining that irresistible " new car " smell? > Check outnew cars at Yahoo! Autos. >  Ahhh...imagining that irresistible " new car " smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 , GF/CF has to be all the way or nothing. Believe me I know how hard it is. My son has many food allergies and we were avoiding just about everything but rotating grains and would get gluten here and there. After completely getting rid of gluten, months later he got into gluten (he stole it from my 3yr old) he threw up for 2 days. A month later he figured out how to get into the locked area where gluten items are and, 2 separate occasions, with very little maybe 2 bites, he had absence seizures. None of his allergy tests or even IGG were high, scratch, blood and biopsy said no allergy to gluten, BUT after removal and seeing what happened with infraction, I KNOW I was sooo wrong about not taking gluten completely out sooner. Starting with the gut is definitely what needs to happen with these kids. Strict, not so-so. I am definitely not discounting how hard it is. Good luck, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Guilford Sent: Tuesday, April 24, 2007 10:43 PM To: mb12 valtrex Subject: Re: I really need some help!!! He eats regular food, some GFCF here and there! We did the B12 shots for about 2 months. bnana <thisiskathys> wrote: What does he eat? How long did you try MB12? Guilford <teacher41198> wrote: I really need help!! My son is 6 and he is not talking! I have tried a lot of medication, currently he is taking Tigervites, sea veggies, calcium supplement, acyclovir and NCD for chelation. My DAN does not really want to prescribe Valtrex, because he says its not a drug to be used by a child. We have also tried the Vitamin B12 shots. When my son was 3 and 4 and just knew he would be talking by now. He does babble just a little bit more, but no real words. He still has out of control behaviors which seem worse because hes older and hes so big. Are there any other medications that I can try that are over the counter. I truly believe there is a medication out there to cure our children! Ahhh...imagining that irresistible " new car " smell? Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible " new car " smell? Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible " new car " smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 GF/CF wasn't even enough for my grandson and we switched to SCD 9 months ago. A better diet for him. I believe that the diet is the groundfloor for all of this-before you can build upward you need to have the diet in place---at least to try the diet for 6 months and see if any changes. 2 months of B12 shots is not very long. MaurineChap 'n Ali wrote: , GF/CF has to be all the way or nothing. Believe me I know how hard it is. My son has many food allergies and we were avoiding just about everything but rotating grains and would get gluten here and there. After completely getting rid of gluten, months later he got into gluten (he stole it from my 3yr old) he threw up for 2 days. A month later he figured out how to get into the locked area where gluten items are and, 2 separate occasions, with very little maybe 2 bites, he had absence seizures. None of his allergy tests or even IGG were high, scratch, blood and biopsy said no allergy to gluten, BUT after removal and seeing what happened with infraction, I KNOW I was sooo wrong about not taking gluten completely out sooner. Starting with the gut is definitely what needs to happen with these kids. Strict, not so-so. I am definitely not discounting how hard it is. Good luck, From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of GuilfordSent: Tuesday, April 24, 2007 10:43 PMTo: mb12 valtrex Subject: Re: I really need some help!!! He eats regular food, some GFCF here and there! We did the B12 shots for about 2 months.bnana <thisiskathys> wrote: What does he eat? How long did you try MB12? Guilford <teacher41198> wrote: I really need help!! My son is 6 and he is not talking! I have tried a lot of medication, currently he is taking Tigervites, sea veggies, calcium supplement, acyclovir and NCD for chelation. My DAN does not really want to prescribe Valtrex, because he says its not a drug to be used by a child. We have also tried the Vitamin B12 shots. When my son was 3 and 4 and just knew he would be talking by now. He does babble just a little bit more, but no real words. He still has out of control behaviors which seem worse because hes older and hes so big. Are there any other medications that I can try that are over the counter. I truly believe there is a medication out there to cure our children! Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 & Anyone Else, My son is part of a project to try out a new supplement. The makers claim it has helped autistic kids. The product is called TRANSFER FACTOR. It's a 10 week trial and we started last night. The product supposedly boosts the immune system of these kids by "re-educating" the immune system. I'm not sure if I believe this yet or not but according to this nice women I am working with from Transfer Factor, the product has improved 7 out of 7 kids who tried it. If anyone else wnats to participate, I will provide you with a contact email. I really feel that the immune system is screwed up in these kids. Some of the kids who do not respond or respond slowly like my boy need something to improve the immune system. Autism, I believe, is not just a toxicity issue, but an autoimmune issue. Next, I will try LDN. Here is some info regarding Transfer Factor from the internet: What are transfer factors and how do they work? Transfer Factor XF is a safe substance for people of all ages, especially children.* Transfer factors are the primary communications mechanism used by your immune system to defend your body against harmful microbial threats. Transfer factors are small molecules that consist of specific sequences of amino acids. These small compounds naturally occur in all mammals and are passed on from mother to newborn through the mother's first milk called colostrum. These small transfer factor molecules start to educate the newborn's naive immune system, which in turn helps protect them from the microbial threats they encounter all their life. If it helps my son, I will be supporting the product. If not, I will say that also. Ultmately, a company wants to become rich with this product. If the product helps my boy and others, I will help them. Regards, Guilford wrote: Thank you for your response. Ive read several of your emails before and you explain things very well. Thanks so much for your advice! Abid Khan <a_bit_solutions> wrote: First and most important -- if you doctor is not open-minded enough to try Valtrex -- you need a new doctor. My belief is that language will come when the toxins and viruses come out. You need to try valtrex. Try MB12. Then try to chelate, chelate, chelate. Naturals include fish oil & folic acid. So much you can try but no guarantees with anything. My son is 6 and also non-verbal. He can say words but communicates by pointing. This can be so depressing and difficult. You are not alone in your struggle. Guilford <teacher41198> wrote: I really need help!! My son is 6 and he is not talking! I have tried a lot of medication, currently he is taking Tigervites, sea veggies, calcium supplement, acyclovir and NCD for chelation. My DAN does not really want to prescribe Valtrex, because he says its not a drug to be used by a child. We have also tried the Vitamin B12 shots. When my son was 3 and 4 and just knew he would be talking by now. He does babble just a little bit more, but no real words. He still has out of control behaviors which seem worse because hes older and hes so big. Are there any other medications that I can try that are over the counter. I truly believe there is a medication out there to cure our children! Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Isn't this always the way it is....we love TF just love it and we think it helped her overcome some viruses. We still pulse it a couple of days a month. I know some people who would be interested in participating in the TF trial. Re: I really need some help!!! We saw nothing with Transfer Factor and we used it for months. We are using LDN now and not seeing anything either except that if I go above 3 lines he gets up at 2am for the day, and if we try to stop using it by decreasing lines he wets the bed several times a night. I tried transfer factor with him. this was 2 years ago. After about 3 weeks I got sick. I thought it was good because it meant my system was killing something off. That was until my joints started to ached and one day I woke up and couldn't walk. Seems I have rheumatoid arthritis. My doctor said it is something that is there in your system and just needs a trigger. I believe the Transfer Factor was that trigger. I threw out a full bottle and neither of us have touched it since. Kerrie n a message dated 4/25/2007 10:16:28 A.M. Eastern Daylight Time, a_bit_solutions@... writes: s helped autistic kids. The product is called TRANSFER FACTOR. It's a 10 week trial and we started last night. The product supposedly boosts the immune system of these kids by "re-educating" the immune system. I'm not sure if I believe this yet or not but according to this nice women I am working with from Transfer Factor, the product has improved 7 out of 7 kids who tried it. If anyone else wnats to participate, I will provide you with a contact email. I really feel that the immune system is screwed up in these kids. Some of the kids who do not respond or respond slowly like my boy need something to improve the immune system. Autism, I believe, is not just a toxicity issue, but an autoimmune issue. Next, I will try LDN. Here is some info regarding Transfer Factor from the internet: What are transfer factors and how do they work? Transfer Factor XF is a safe substance for people of all ages, especially children.* Transfer factors are the primary communications mechanism used by your immune system to defend your body against harmful microbial threats. Transfer factors are small molecules that consist of specific sequences of amino acids. These small compounds naturally occur in all mammals and are passed on from mother to newborn through the mother's first milk called colostrum. These small transfer factor molecules start to educate the newborn's naive immune system, which in turn helps protect them from the microbial threats they encounter all their life. If it helps my son, I will be supporting the product. If not, I will say that also. Ultmately, a company wants to become rich with this product. If the product helps my boy and others, I will help them. See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Hi Maurine from Sue, I love liquid supplements as they absorb so much more quickly and are easy to take. Where do you get your liquid calcium..and what brand? Thanks ahead! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 from our DAN docs office-M-M calcium(mini-minerals) 1-(the manufacturer. lakeside, Ca J Thorpe wrote: Hi Maurine from Sue, I love liquid supplements as they absorb so much more quickly and are easy to take. Where do you get your liquid calcium..and what brand? Thanks ahead! Sue Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 It could have been coincidence, but the fact that TF affects your immune system and I was diagnosed with an autoimmune disorder after using it just seems odd to me. If anyone else in my family had rheumatoid arthritis and I knew I may have had a genetic predisposition to it, I probably wouldn't have tried it to begin with. No one else in my family on either side has it luckily though. My son had no effect from it. I also wonder about his immune system though because he's very rarely sick. He has had 2 ear infections in his whole life, the first at about 2 1/2 years old, and has had one bout of bronchitis. He rarely gets colds. He had one recently and that was the first time we had a sick visit with the doctor in probably 2 years.He gets sick so rarely that whenever he runs a fever I panic and race him to the doctor!! Someone else mentioned social gains with Transfer Factor which has me intrigued. No matter what we try that works for others in the area of social gains, we see nothing. Social is my son's absolute worst area, followed closely by lack of conversational speech/receptive speech. I'm tempted to try it again, and scared at the thought also. If RA has a genetic component, and TF triggered mine, I am so not willing to risk doing that to my son. I couldn't imagine my pain and not being able to tell people what is wrong with me to get treated. Luckily after 6 months of horrible pain and suffering because of insurance company red tape, I started Enbrel and for the last 18 months have been relatively symptom free. I have bad days here and there but for the most part I am symptom free and do everything I could do before. Kerrie Kerrie, I don't know what to say. Your experience seems to discourage me from going forward. Only thing I can think of -- certain therapies work on certain kids and certain therapies don't work. I need to keep trying and trying ... See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Kerrie, I don't know what to say. Your experience seems to discourage me from going forward. Only thing I can think of -- certain therapies work on certain kids and certain therapies don't work. I need to keep trying and trying ...ratlenhum@... wrote: We saw nothing with Transfer Factor and we used it for months. We are using LDN now and not seeing anything either except that if I go above 3 lines he gets up at 2am for the day, and if we try to stop using it by decreasing lines he wets the bed several times a night. I tried transfer factor with him. this was 2 years ago. After about 3 weeks I got sick. I thought it was good because it meant my system was killing something off. That was until my joints started to ached and one day I woke up and couldn't walk. Seems I have rheumatoid arthritis. My doctor said it is something that is there in your system and just needs a trigger. I believe the Transfer Factor was that trigger. I threw out a full bottle and neither of us have touched it since. Kerrie n a message dated 4/25/2007 10:16:28 A.M. Eastern Daylight Time, a_bit_solutions writes: s helped autistic kids. The product is called TRANSFER FACTOR. It's a 10 week trial and we started last night. The product supposedly boosts the immune system of these kids by "re-educating" the immune system. I'm not sure if I believe this yet or not but according to this nice women I am working with from Transfer Factor, the product has improved 7 out of 7 kids who tried it. If anyone else wnats to participate, I will provide you with a contact email. I really feel that the immune system is screwed up in these kids. Some of the kids who do not respond or respond slowly like my boy need something to improve the immune system. Autism, I believe, is not just a toxicity issue, but an autoimmune issue. Next, I will try LDN. Here is some info regarding Transfer Factor from the internet: What are transfer factors and how do they work? Transfer Factor XF is a safe substance for people of all ages, especially children.* Transfer factors are the primary communications mechanism used by your immune system to defend your body against harmful microbial threats. Transfer factors are small molecules that consist of specific sequences of amino acids. These small compounds naturally occur in all mammals and are passed on from mother to newborn through the mother's first milk called colostrum. These small transfer factor molecules start to educate the newborn's naive immune system, which in turn helps protect them from the microbial threats they encounter all their life. If it helps my son, I will be supporting the product. If not, I will say that also. Ultmately, a company wants to become rich with this product. If the product helps my boy and others, I will help them. See what's free at AOL.com. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Abid, I'd like to know more details about the study. My email is lgrahamgarza@.... thanks, Re: I really need some help!!! & Anyone Else, My son is part of a project to try out a new supplement. The makers claim it has helped autistic kids. The product is called TRANSFER FACTOR. It's a 10 week trial and we started last night. The product supposedly boosts the immune system of these kids by "re-educating" the immune system. I'm not sure if I believe this yet or not but according to this nice women I am working with from Transfer Factor, the product has improved 7 out of 7 kids who tried it. If anyone else wnats to participate, I will provide you with a contact email. I really feel that the immune system is screwed up in these kids. Some of the kids who do not respond or respond slowly like my boy need something to improve the immune system. Autism, I believe, is not just a toxicity issue, but an autoimmune issue. Next, I will try LDN. Here is some info regarding Transfer Factor from the internet: What are transfer factors and how do they work? Transfer Factor XF is a safe substance for people of all ages, especially children.* Transfer factors are the primary communications mechanism used by your immune system to defend your body against harmful microbial threats. Transfer factors are small molecules that consist of specific sequences of amino acids. These small compounds naturally occur in all mammals and are passed on from mother to newborn through the mother's first milk called colostrum. These small transfer factor molecules start to educate the newborn's naive immune system, which in turn helps protect them from the microbial threats they encounter all their life. If it helps my son, I will be supporting the product. If not, I will say that also. Ultmately, a company wants to become rich with this product. If the product helps my boy and others, I will help them. Regards, Guilford <teacher41198> wrote: Thank you for your response. Ive read several of your emails before and you explain things very well. Thanks so much for your advice! Abid Khan <a_bit_solutions> wrote: First and most important -- if you doctor is not open-minded enough to try Valtrex -- you need a new doctor. My belief is that language will come when the toxins and viruses come out. You need to try valtrex. Try MB12. Then try to chelate, chelate, chelate. Naturals include fish oil & folic acid. So much you can try but no guarantees with anything. My son is 6 and also non-verbal. He can say words but communicates by pointing. This can be so depressing and difficult. You are not alone in your struggle. Guilford <teacher41198> wrote: new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 & Anyone Else, My son is part of a project to try out a new supplement. The makers claim it has helped autistic kids. The product is called TRANSFER FACTOR. It's a 10 week trial and we started last night. The product supposedly boosts the immune system of these kids by "re-educating" the immune system. I'm not sure if I believe this yet or not but according to this nice women I am working with from Transfer Factor, the product has improved 7 out of 7 kids who tried it. If anyone else wnats to participate, I will provide you with a contact email. I really feel that the immune system is screwed up in these kids. Some of the kids who do not respond or respond slowly like my boy need something to improve the immune system. Autism, I believe, is not just a toxicity issue, but an autoimmune issue. Next, I will try LDN. Here is some info regarding Transfer Factor from the internet: What are transfer factors and how do they work? Transfer Factor XF is a safe substance for people of all ages, especially children.* Transfer factors are the primary communications mechanism used by your immune system to defend your body against harmful microbial threats. Transfer factors are small molecules that consist of specific sequences of amino acids. These small compounds naturally occur in all mammals and are passed on from mother to newborn through the mother's first milk called colostrum. These small transfer factor molecules start to educate the newborn's naive immune system, which in turn helps protect them from the microbial threats they encounter all their life. If it helps my son, I will be supporting the product. If not, I will say that also. Ultmately, a company wants to become rich with this product. If the product helps my boy and others, I will help them. Regards, Guilford <teacher41198> wrote: Thank you for your response. Ive read several of your emails before and you explain things very well. Thanks so much for your advice! Abid Khan <a_bit_solutions> wrote: First and most important -- if you doctor is not open-minded enough to try Valtrex -- you need a new doctor. My belief is that language will come when the toxins and viruses come out. You need to try valtrex. Try MB12. Then try to chelate, chelate, chelate. Naturals include fish oil & folic acid. So much you can try but no guarantees with anything. My son is 6 and also non-verbal. He can say words but communicates by pointing. This can be so depressing and difficult. You are not alone in your struggle. Guilford <teacher41198> wrote: I really need help!! My son is 6 and he is not talking! I have tried a lot of medication, currently he is taking Tigervites, sea veggies, calcium supplement, acyclovir and NCD for chelation. My DAN does not really want to prescribe Valtrex, because he says its not a drug to be used by a child. We have also tried the Vitamin B12 shots. When my son was 3 and 4 and just knew he would be talking by now. He does babble just a little bit more, but no real words. He still has out of control behaviors which seem worse because hes older and hes so big. Are there any other medications that I can try that are over the counter. I truly believe there is a medication out there to cure our children! Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Hi , My son is seven and also does not talk. He is completely nonverbal. He does not respond to most biomedical intervention, including Valtrex. We’ve been at it for four years. We’ve just changed DAN! doctors. Have you explored alternative communication device. My son is working with a rental Tango device currently. The website for the device is www.blink-twice.com Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Guilford Sent: Tuesday, April 24, 2007 1:58 PM To: mb12 valtrex Subject: I really need some help!!! I really need help!! My son is 6 and he is not talking! I have tried a lot of medication, currently he is taking Tigervites, sea veggies, calcium supplement, acyclovir and NCD for chelation. My DAN does not really want to prescribe Valtrex, because he says its not a drug to be used by a child. We have also tried the Vitamin B12 shots. When my son was 3 and 4 and just knew he would be talking by now. He does babble just a little bit more, but no real words. He still has out of control behaviors which seem worse because hes older and hes so big. Are there any other medications that I can try that are over the counter. I truly believe there is a medication out there to cure our children! Ahhh...imagining that irresistible " new car " smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Pam, I’ve seen your story posted many times and it breaks my heart. Have you done the Yasko panel yet? Also, I have a friend whose son is completely non verbal and I get a real instinct that the ability to utilize vitamin A has been separated. Have you done Bethanocol/Megson protocal? I apologize if you have already answered these questions. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Pamela Leigh Sent: Thursday, April 26, 2007 7:38 AM To: mb12 valtrex Subject: RE: I really need some help!!! Hi , My son is seven and also does not talk. He is completely nonverbal. He does not respond to most biomedical intervention, including Valtrex. We’ve been at it for four years. We’ve just changed DAN! doctors. Have you explored alternative communication device. My son is working with a rental Tango device currently. The website for the device is www.blink-twice.com Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Guilford Sent: Tuesday, April 24, 2007 1:58 PM To: mb12 valtrex Subject: I really need some help!!! I really need help!! My son is 6 and he is not talking! I have tried a lot of medication, currently he is taking Tigervites, sea veggies, calcium supplement, acyclovir and NCD for chelation. My DAN does not really want to prescribe Valtrex, because he says its not a drug to be used by a child. We have also tried the Vitamin B12 shots. When my son was 3 and 4 and just knew he would be talking by now. He does babble just a little bit more, but no real words. He still has out of control behaviors which seem worse because hes older and hes so big. Are there any other medications that I can try that are over the counter. I truly believe there is a medication out there to cure our children! Ahhh...imagining that irresistible " new car " smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 I will definitely jump on board!! Thanks Abid!!"Dr. Graham-Garza" wrote: Abid, I'd like to know more details about the study. My email is lgrahamgarzahouston (DOT) rr.com. thanks, Re: I really need some help!!! & Anyone Else, My son is part of a project to try out a new supplement. The makers claim it has helped autistic kids. The product is called TRANSFER FACTOR. It's a 10 week trial and we started last night. The product supposedly boosts the immune system of these kids by "re-educating" the immune system. I'm not sure if I believe this yet or not but according to this nice women I am working with from Transfer Factor, the product has improved 7 out of 7 kids who tried it. If anyone else wnats to participate, I will provide you with a contact email. I really feel that the immune system is screwed up in these kids. Some of the kids who do not respond or respond slowly like my boy need something to improve the immune system. Autism, I believe, is not just a toxicity issue, but an autoimmune issue. Next, I will try LDN. Here is some info regarding Transfer Factor from the internet: What are transfer factors and how do they work? Transfer Factor XF is a safe substance for people of all ages, especially children.* Transfer factors are the primary communications mechanism used by your immune system to defend your body against harmful microbial threats. Transfer factors are small molecules that consist of specific sequences of amino acids. These small compounds naturally occur in all mammals and are passed on from mother to newborn through the mother's first milk called colostrum. These small transfer factor molecules start to educate the newborn's naive immune system, which in turn helps protect them from the microbial threats they encounter all their life. If it helps my son, I will be supporting the product. If not, I will say that also. Ultmately, a company wants to become rich with this product. If the product helps my boy and others, I will help them. Regards, Guilford <teacher41198> wrote: Thank you for your response. Ive read several of your emails before and you explain things very well. Thanks so much for your advice! Abid Khan <a_bit_solutions> wrote: First and most important -- if you doctor is not open-minded enough to try Valtrex -- you need a new doctor. My belief is that language will come when the toxins and viruses come out. You need to try valtrex. Try MB12. Then try to chelate, chelate, chelate. Naturals include fish oil & folic acid. So much you can try but no guarantees with anything. My son is 6 and also non-verbal. He can say words but communicates by pointing. This can be so depressing and difficult. You are not alone in your struggle. Guilford <teacher41198> wrote: new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
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