Diet

February 24, 2001

Charlotte,We started my 3.5 yr daughter on GF/CF diet last July.She has done

well on it and I havent noticed an increase in thirst.She did drink a lot of

milk before and now has only a veggie fruit juice cut with water and very

rarely a soda as a special treat.She does prefer salty things like GF

pretzels and chips.She is on a liquid multi vitamin.She eats fruits ,no

veggies except french fries,lots of pasta and tapioca bread.I've found lots

of cookies at our local health food store.Her diet is limited but we're

trying to stick it out for at least a year.

Regards, Jo

February 24, 2001

Charlotte,We started my 3.5 yr daughter on GF/CF diet last July.She has done

well on it and I havent noticed an increase in thirst.She did drink a lot of

milk before and now has only a veggie fruit juice cut with water and very

rarely a soda as a special treat.She does prefer salty things like GF

pretzels and chips.She is on a liquid multi vitamin.She eats fruits ,no

veggies except french fries,lots of pasta and tapioca bread.I've found lots

of cookies at our local health food store.Her diet is limited but we're

trying to stick it out for at least a year.

Regards, Jo

February 24, 2001

Charlotte,We started my 3.5 yr daughter on GF/CF diet last July.She has done

well on it and I havent noticed an increase in thirst.She did drink a lot of

milk before and now has only a veggie fruit juice cut with water and very

rarely a soda as a special treat.She does prefer salty things like GF

pretzels and chips.She is on a liquid multi vitamin.She eats fruits ,no

veggies except french fries,lots of pasta and tapioca bread.I've found lots

of cookies at our local health food store.Her diet is limited but we're

trying to stick it out for at least a year.

Regards, Jo

February 25, 2001

--- MMHJConley@... wrote:

> Charlotte,We started my 3.5 yr daughter on GF/CF

> diet last July.She has done

> well on it and I havent noticed an increase in

> thirst.She did drink a lot of

> milk before and now has only a veggie fruit juice

> cut with water and very

> rarely a soda as a special treat.She does prefer

> salty things like GF

> pretzels and chips.She is on a liquid multi

> vitamin.She eats fruits ,no

> veggies except french fries,lots of pasta and

> tapioca bread.I've found lots

> of cookies at our local health food store.Her diet

> is limited but we're

> trying to stick it out for at least a year.

> Regards, Jo

>

Jo,

Thank you for your input. Rowan has the same kind of

diet. I make her breads and cookies. She does eat a

lot of fruit. I make her eat some veggies. She cries

but she eats them. Sounds mean but it is the only way

she will eat them.

She recently got the thirst problem. Last week. I

think it is because she started the liquid vitamin's

along with the liquid Lactobacillus and Acidophilus, 2

weeks ago.

I am going to try adding some cod liver oil and

primrose oil as suggested by another person.

Thank you

Charlotte

__________________________________________________

February 25, 2001

--- MMHJConley@... wrote:

> Charlotte,We started my 3.5 yr daughter on GF/CF

> diet last July.She has done

> well on it and I havent noticed an increase in

> thirst.She did drink a lot of

> milk before and now has only a veggie fruit juice

> cut with water and very

> rarely a soda as a special treat.She does prefer

> salty things like GF

> pretzels and chips.She is on a liquid multi

> vitamin.She eats fruits ,no

> veggies except french fries,lots of pasta and

> tapioca bread.I've found lots

> of cookies at our local health food store.Her diet

> is limited but we're

> trying to stick it out for at least a year.

> Regards, Jo

>

Jo,

Thank you for your input. Rowan has the same kind of

diet. I make her breads and cookies. She does eat a

lot of fruit. I make her eat some veggies. She cries

but she eats them. Sounds mean but it is the only way

she will eat them.

She recently got the thirst problem. Last week. I

think it is because she started the liquid vitamin's

along with the liquid Lactobacillus and Acidophilus, 2

weeks ago.

I am going to try adding some cod liver oil and

primrose oil as suggested by another person.

Thank you

Charlotte

__________________________________________________

February 25, 2001

--- MMHJConley@... wrote:

> Charlotte,We started my 3.5 yr daughter on GF/CF

> diet last July.She has done

> well on it and I havent noticed an increase in

> thirst.She did drink a lot of

> milk before and now has only a veggie fruit juice

> cut with water and very

> rarely a soda as a special treat.She does prefer

> salty things like GF

> pretzels and chips.She is on a liquid multi

> vitamin.She eats fruits ,no

> veggies except french fries,lots of pasta and

> tapioca bread.I've found lots

> of cookies at our local health food store.Her diet

> is limited but we're

> trying to stick it out for at least a year.

> Regards, Jo

>

Jo,

Thank you for your input. Rowan has the same kind of

diet. I make her breads and cookies. She does eat a

lot of fruit. I make her eat some veggies. She cries

but she eats them. Sounds mean but it is the only way

she will eat them.

She recently got the thirst problem. Last week. I

think it is because she started the liquid vitamin's

along with the liquid Lactobacillus and Acidophilus, 2

weeks ago.

I am going to try adding some cod liver oil and

primrose oil as suggested by another person.

Thank you

Charlotte

__________________________________________________

February 6, 2003

What wrote is true but I think from our prior postings you already

know this. The thing is that because of the thyroid dx and other problems

you have written about, it would be best if you also had a DAN! nutritionist

on board. Now, how many of us can do that or even find one? If kids w/o

thyroid problems, need the clo, flex seeds, avocado oil, coconut oil..., for

the essential fatty acids once milk is removed, I don't know if your children

would require more? There are exceptions to everything. Yes, the diet works

great for my son but for it to continue working for him now that he is

turning 7, I need to be his shadow because my husband and my daughter or not

GFCF and he has been getting into their food lately. It was much easier when

he was 4. I don't even add milk to my coffee for fear he will get into it

but for me to insist the same of my husband, well, the neuro said not to

stress him out because he could have another optic neuritis (sp) or maybe

even worse.

Just think about it if you can try it, it possibly could calm them down to

where no more midnight pan banging. All it took for me to see the difference

in my son was one week and I thought I was seeing a miracle. One week of

rice, potatoes and corn (fortunately these were not allergens for him).

> Subj: re: diet

> Date: 2/6/03 5:34:37 PM Eastern Standard Time

> From: <A

HREF= " mailto:cynthiasingleton@... " >cynthiasingleton@...</A>

> Reply-to: <A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> To: <A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> Sent from the Internet

>

> Tammy--

>

> Not to beat a dead horse. . . . but the diet here means restrict the kinds

> of things that your kids will eat, not the amount. They can still eat 3

> healthy meals and 3 healthy snacks or more if they want it, and a lot of

> what you mention you feed them is on the diet.

>

> Often times it's very easy to see a difference after just taking out milk.

> Before we took milk out of my son's diet, he went through 1 gallon of milk,

> 1 quart of yogurt (sometimes more), 1 block of cheese, and 1 quart of

> cottage cheese by himself every week. After one week of taking it out, my

> dad asked me if we were giving him a tranquilizer because he was so much

> calmer. He went from running and jumping around like a spastic ping pong

> ball from the minute he got up in the morning until he went to sleep at

> night to being able to sit down and look at a book.

>

> ly the way your kids crave certain foods is reminiscent of the way my

> son craved milk. It was a drug for him. It is not normal for children to

> get into food cabinets and eat like in such large quantities all the time.

> A

> growth spurt is one thing--I've got a child who can eat too when he's on a

> roll, but what you're describing goes beyond what's normal. ly, I

> would also have your doctor check her for parasites.

>

> The diet doesn't work as dramatically for everyone--that is very true.

> However, it does work for more people than it doesn't. There are many ways

> to do it more cheaply if you're willing to cook from scratch a little.

> What

> if it would work dramatically for yours? What if Angel would stopped

> screaming and banging pots just because you took all dairy out of her diet?

>

> People are usually passionate about this diet because it has dramatically

> helped their child, and they would like to help others.

>

February 6, 2003

In a message dated 2/6/2003 4:34:29 PM Central Standard Time,

cynthiasingleton@... writes:

> Tammy--

>

> Not to beat a dead horse. . . . but the diet here means restrict the kinds

> of things that your kids will eat, not the amount. They can still eat 3

> healthy meals and 3 healthy snacks or more if they want it, and a lot of

> what you mention you feed them is on the diet.

>

> Often times it's very easy to see a difference after just taking out milk.

> Before we took milk out of my son's diet, he went through 1 gallon of milk,

> 1 quart of yogurt (sometimes more), 1 block of cheese, and 1 quart of

> cottage cheese by himself every week. After one week of taking it out, my

> dad asked me if we were giving him a tranquilizer because he was so much

> calmer. He went from running and jumping around like a spastic ping pong

> ball from the minute he got up in the morning until he went to sleep at

> night to being able to sit down and look at a book.

>

> ly the way your kids crave certain foods is reminiscent of the way my

> son craved milk. It was a drug for him. It is not normal for children to

> get into food cabinets and eat like in such large quantities all the time.

> A

> growth spurt is one thing--I've got a child who can eat too when he's on a

> roll, but what you're describing goes beyond what's normal. ly, I

> would also have your doctor check her for parasites.

>

> The diet doesn't work as dramatically for everyone--that is very true.

> However, it does work for more people than it doesn't. There are many ways

> to do it more cheaply if you're willing to cook from scratch a little.

> What

> if it would work dramatically for yours? What if Angel would stopped

> screaming and banging pots just because you took all dairy out of her diet?

>

> People are usually passionate about this diet because it has dramatically

> helped their child, and they would like to help others.

>

wow thanks check for parasite see that is something I haven't tried yet

but I would think that if that was the case Rebekah would be stick thin

instead if she kept going she would be a house all by herself as of with my

restrictions she is perfect. My girls did milk and milk products like this.

I do not allow them to have this much milk though anymore if it were mother's

milk it would be one thing but it's cows milk that is made for calfs while

some makes them healthy to much can be unhealthy so yes we have an agreement

and also with my income I cannot afford to let them indulge so it's not casin

I promise you. With Angel she fixates on one thing one day and another the

next. If she asks for pizza and I give her spaghetti because I can't afford

a pizza and I have all the stuff for spaghetti then she chunks it plate and

all. She has broken many dishes and cause many stains that I can't just

repaint cause I am in an apartment I cannot alter the apartment if I then

give her pizza even as she is screaming for pizza she has already gone off

and will not eat anything so she launches that too this is not healthy for

her broken dishes are dangerous and the foods that the throws well no amount

of cleaning can truely remove it all from carpets and stuff so eventually

this will cause mold and make us sick she does the same thing with drinks, I

cannot give sippy cups because she is too old and due to Rieger's syndrome

her teeth are already awful I don't want to make them worse. She gets very

little milk if any I give her more water than anything and more hamburger

meats and things that are cleaner than pizza and spaghetti. I cannot keep

cheese or ice cream because the will gorge and that is not good for their

intestines if they have any milk products its like one cheese stick from the

dollar store, I take them out for an ice cream at the local MC s etc.

So casin is not the answer.

Tammy

February 6, 2003

Just as scientist know there is more to the skies than the planets we have

found an named I am sure that this diet is great for some of your children I

do not doubt that I know you trying to help but there are folks on this list

who have tried the diet it didn't work and then there are some of us who

cannot try it at this moment I am glad to be educated in the diet but please

give me and others on this list other attainable ideas that will even work

for those of us who have low income. Epsom salt is cool but what other ideas

are there. Melatonin is great but it's not enough and even with a drs

blessing to combine it with sleeping pills, benedryl etc it doesn't work.

Some of these combinations have just made things worse by causing her to

sleep walk.

Tammy

February 6, 2003

Tammy--

Not to beat a dead horse. . . . but the diet here means restrict the kinds

of things that your kids will eat, not the amount. They can still eat 3

healthy meals and 3 healthy snacks or more if they want it, and a lot of

what you mention you feed them is on the diet.

Often times it's very easy to see a difference after just taking out milk.

Before we took milk out of my son's diet, he went through 1 gallon of milk,

1 quart of yogurt (sometimes more), 1 block of cheese, and 1 quart of

cottage cheese by himself every week. After one week of taking it out, my

dad asked me if we were giving him a tranquilizer because he was so much

calmer. He went from running and jumping around like a spastic ping pong

ball from the minute he got up in the morning until he went to sleep at

night to being able to sit down and look at a book.

ly the way your kids crave certain foods is reminiscent of the way my

son craved milk. It was a drug for him. It is not normal for children to

get into food cabinets and eat like in such large quantities all the time. A

growth spurt is one thing--I've got a child who can eat too when he's on a

roll, but what you're describing goes beyond what's normal. ly, I

would also have your doctor check her for parasites.

The diet doesn't work as dramatically for everyone--that is very true.

However, it does work for more people than it doesn't. There are many ways

to do it more cheaply if you're willing to cook from scratch a little. What

if it would work dramatically for yours? What if Angel would stopped

screaming and banging pots just because you took all dairy out of her diet?

People are usually passionate about this diet because it has dramatically

helped their child, and they would like to help others.

June 18, 2004

A gluten free diet is essential if the person involved has celiac

disease. This is an inherited intolerance for the proteins in wheat,

rye, oats and barley.

In some other adults and children with autism, the gluten free and/or

casein free diet seems to address other intestinal issues, and to make

it easier for those people to function. The only way to know if the

diet will have an effect is to try it for a while.

Since I am gluten free and mostly casein free, you are welcome to email

me directly about the diet I use.

You can find a lot of information on the web site of the local autism

society: http://www.asaga.com

Patty

http://www.autistics.cc

haleynekol wrote:

> I am fairly new to this. My son was diagnose just a month ago with

> infantile autism and disorder of the nervous system. I am reading all

> that I can on autism and right now I am reading Facing Autism by Lynn

> Hamilton. In this book she talks about a gluten-free/casein-free

> diet. Has anyone tried this and have you had good results?

June 18, 2004

Anyone interested in this diet and biomedical

interventions may contact me as well or call

. We are 100% GFCF and have seen dramatic

changes.

Beauvais

Check out unlockingautism.org

gnd.org then click on Autism

--- " E. "

wrote:

> A gluten free diet is essential if the person

> involved has celiac

> disease. This is an inherited intolerance for the

> proteins in wheat,

> rye, oats and barley.

>

> In some other adults and children with autism, the

> gluten free and/or

> casein free diet seems to address other intestinal

> issues, and to make

> it easier for those people to function. The only

> way to know if the

> diet will have an effect is to try it for a while.

>

> Since I am gluten free and mostly casein free, you

> are welcome to email

> me directly about the diet I use.

>

> You can find a lot of information on the web site of

> the local autism

> society: http://www.asaga.com

>

> Patty

> http://www.autistics.cc

>

> haleynekol wrote:

> > I am fairly new to this. My son was diagnose just

> a month ago with

> > infantile autism and disorder of the nervous

> system. I am reading all

> > that I can on autism and right now I am reading

> Facing Autism by Lynn

> > Hamilton. In this book she talks about a

> gluten-free/casein-free

> > diet. Has anyone tried this and have you had good

> results?

>

__________________________________________________

June 18, 2004

Anyone interested in this diet and biomedical

interventions may contact me as well or call

. We are 100% GFCF and have seen dramatic

changes.

Beauvais

Check out unlockingautism.org

gnd.org then click on Autism

--- " E. "

wrote:

> A gluten free diet is essential if the person

> involved has celiac

> disease. This is an inherited intolerance for the

> proteins in wheat,

> rye, oats and barley.

>

> In some other adults and children with autism, the

> gluten free and/or

> casein free diet seems to address other intestinal

> issues, and to make

> it easier for those people to function. The only

> way to know if the

> diet will have an effect is to try it for a while.

>

> Since I am gluten free and mostly casein free, you

> are welcome to email

> me directly about the diet I use.

>

> You can find a lot of information on the web site of

> the local autism

> society: http://www.asaga.com

>

> Patty

> http://www.autistics.cc

>

> haleynekol wrote:

> > I am fairly new to this. My son was diagnose just

> a month ago with

> > infantile autism and disorder of the nervous

> system. I am reading all

> > that I can on autism and right now I am reading

> Facing Autism by Lynn

> > Hamilton. In this book she talks about a

> gluten-free/casein-free

> > diet. Has anyone tried this and have you had good

> results?

>

__________________________________________________

June 19, 2004

melissa millhollin wrote:

> 5) Find a good doctor. Not one that will tell you

> that " this is the way he'll always be " (That's what

> ours told us...she is no longer our doctor!!!) Our

> new doctor is willing to try things as long as it

> won't hurt him and she has been very helpful, sending

> articles and information...

So true. People with autism do develop. They are slow on some

milestones, but that does not mean they have stopped developing. The

majority actually do speak by 8 or 9 years of age. And speech is not

the only means of communication. Alternatives (keyboarding, sign

language) can decrease the frustration inherent in being autistic and

allow faster learning.

> Patty

June 19, 2004

melissa millhollin wrote:

> 5) Find a good doctor. Not one that will tell you

> that " this is the way he'll always be " (That's what

> ours told us...she is no longer our doctor!!!) Our

> new doctor is willing to try things as long as it

> won't hurt him and she has been very helpful, sending

> articles and information...

So true. People with autism do develop. They are slow on some

milestones, but that does not mean they have stopped developing. The

majority actually do speak by 8 or 9 years of age. And speech is not

the only means of communication. Alternatives (keyboarding, sign

language) can decrease the frustration inherent in being autistic and

allow faster learning.

> Patty

June 19, 2004

I personally feel this is a MUST TRY!! However, if you do decide

you want to do it, you must do it. You've got to get it all out -

Be careful with medicines and supplements and even soaps, shampoos

etc.. I have heard of people that said, I tried it for a week or so

and nothing happened. Although after questioning them, they only

cut down or back on intake. Plus there is some bad information out

there especially on message boards. Early on someone put on a

message board that they were using rice crispies and rice dream

milk. Neither are GF! The most imporatant thing too, is do not let

ANYONE tell you your crazy!!! Early on I had to do battle with my

husband he thought it was crazy and " she will be malnurished " . This

was ridiculous since she ALREADY was malnurished and that was one of

the biggest cause of her symptoms. Now he sees that she does still

get grains just mainly rice and rice products.

Hannah, although she was more in the mild range since by the time we

got her evaluated and diagnosed she was already turning around, made

almost immediate improvements I was concerned she was even going to

qualify for special needs classes once she was too old for Babies

Can't Wait. Her eye contact, awareness, cognition, speech etc. was

so improved her case worker said I should write a book on all the

treatments I was doing with her.

My daughter Hannah had severe maldigestion and chronic diarrhea.

Since I have an autoimmune disease (Thyroiditis) her

Gastroenterologist was concerned that she did in fact have celiac.

After tests, we discovered that she was positive for one of the

antibodies (typically celiac patients will have both.) Her Doctor

did not even know how to interpret this because it is so rare. He

told us that he felt this just made her a carrier for it and she did

not actually have it. I couldn't leave this alone because in my

heart I believed she did in fact have it and then I realized she was

already GF. So the next week called her Dr. back to inquire if this

would alter the test. Since he was out of town and his RN was out

of town during a lot of the back and forth questions, she wasn't

comfortable answering my questions and didn't want to give a canned

response. She asked all the Drs and RNs (some of which have been in

GI medicine for 30+ years) and they had never seen this either.

Bless her heart she called the head of immunology at Quest to find

out how to interpret the test. He said if she is symptomatic (which

since it is not part of regualar screening in the US he assumed she

must) they need to treat it that she does have it and to confirm the

diagnosis she would need to be scoped. If the scope revealed she

didn't currently have it will still never be " safe " to give her

Gluten because if we continue to challenge her she would most likely

develop it. However, he doctor was not pushing to do the scope (and

truth be known, I'm not even sure he knows the outcome of his nurses

conversations with the immunologist) and since she was still so

fragile at the time and the scope would require her to be put under,

we were terrified she couldn't handle another toxic assalt! That

was all I needed to hear - She has been GF (and CF) ever since.

As others have said, it gets easy to implement once you have an idea

what you are doing. First I think I would read " Unraveling the

Mystery of Autism and Pervasive Developmental Disorder: A Mother's

Story of Research and Recovery by Karyn Seroussi " . This book reads

like a mystery and she really goes into the why you should try the

diet. Then I'd suggest you get Special Diets for Special Kids, Two

by " (I think 2 has been receipes).

Once you've got the diet out of the way, I personally think

that " The Natural Medicine Guide to Autism by Marohn " is

the best at letting you know what is available out there as far as

different biomedical approaches. I am currently rereading this book

since the first time around many things went right over my head and

have learned so much since then that some of it makes a lot more

sense.

> I am fairly new to this. My son was diagnose just a month ago with

> infantile autism and disorder of the nervous system. I am reading

all

> that I can on autism and right now I am reading Facing Autism by

Lynn

> Hamilton. In this book she talks about a gluten-free/casein-free

> diet. Has anyone tried this and have you had good results?

June 19, 2004