RE: A Success Story

[Guest guest]

You might have an adrenal insufficiency. I had uncontrollable asthma and bad IBS for 9 years.. Then I figured out that I had 's disease (the ultimate adrenal insufficiency). I have the secondary form of the disease (pituitary is the cause). I have been on prednisolone (synthetic cortisol) to make up for the lack of cortisol that is produced in the adrenals. Asthma is 99% gone for 6 months now, I made it through the winter like it was nothing and that is the worse time of the year for me. Haven't taken inhalers in months. IBS is 95% gone, I can eat anything I want almost. If I eat something I shouldn't have, I don't get the terrible gas and other stuff, just might be a little annoying.

Cortisol deficiencys (doesn't have to be as bad as 's) can cause and perpetuate IBS, asthma and Post Traumatic Stress disorder.

You should ask to have an ACTH stimulation test. It measures the cortisol level before and after stim (artificially stresses adrenals to make more cortisol), cortisol level should double. This is the gold standard for testing adrenals, accept no substitutes. Unfortunately, most docs look strictly at what the tests say. Post the results and I'll tell you what I think (even if doc says ok). If you are right on the edge of the range, they may tell you "nothing wrong with you see a shrink." Endocrinologist are famous for this. An Environmental doctor diagnosed and is treating me (I saw two endos both told me nothing wrong, see shrink) for secondary 's, secondary hypothyroid, and secondary hypogonad (all cause by pituitary). Best money I ever spent on a doc. Wish I found him 20 years ago.

Whether or not adrenals are problem the Environmental doc is a good one to help treat Fibro/CFS. They look for causes, they don't just treat the symptoms. See these links to help you find one near you and see me docs web site and stories of how he has helped people.

http://www.aaem.com/Referable_Physicians.htm

http://www.ehacstl.com/

http://www.ehacstl.com/Success_Stories.html

I have read that people have good luck with osteopaths also.

I know this is a lot to take in, but research what I put in this reply, it may be an eyeopener.

Hang in there,

Chris

de Seton wrote:

I realise that your success story will be very different to mine and at this point the success is only partially here :-))Today I went to see Joanne, Practice Nurse at /Doc clinic because I thought I might be doing something wrong with the turbuhaler - I'm not but I want now to relate to you all why I feel I'm a success healthwise.For probably the last 15yrs I have been slowing down the tubes to full-blown Asthma but I didn't know. I have had a number of breathless episodes that have always been put down to this and that.......could find reasons why they happened and managed to somehow get through them! Not good but that is what hindsight does for you.About 10years ago I got very sick - major liver dysfunction ---> glandular fever --->broncho-pneumonia all at ONCE. And sent me for a chest Xray to confirm

the pneumonia. The results came back positive but also mentioned that I would need further investigations when the GF abated as there was something wrong. So 3mths later back to Chest Clinic and it was found that my lungs showed a ?growth......the young specialist went overboard [Human Rights about giving patients all options] and said I would need a proper scan and that it was probably Cancer or some other diseases that were life threatening. I was shocked but with s' help I managed to wait until the results were in. It was found that the growth was part of me and not to worry.Before I went to Chest Clinic had diagnosed that I had CFIDS/ME/CFS or whatever you call it wherever you live in the world and that was the undoing as such for Asthma diagnosis to ever come about as such.ME [i'll call it now] is a chronic illness to which there is no mainstream medical help as such. Nothing to really help but lots of

things that could help with the various symptoms that float to the front from time to time. I have lived with the illness for 10yrs - a bloody awful maze of problems - that wax and wane and just when you think things are better for one reason or other another miserable thing appears!!As I said hindsight is a wonderful thing........I've had lots of it in the last 9wks since those 4 life threatening episodes that I had no idea were life threatening let alone know exactly what they were........you see I had, had 'em before! Yes folks a few spread about over the 15yrs!! But you can always work out why and you carry on. What kickstarted them big time I will probably never know but it may have something to do with how my/our brain works "OK I've had it up to here with this problem so to make you sit up and take notice this is my plan!!!" says brain.One of the main symptoms of ME is a fatigue - not the sort that are fixed

by an early night and less burning of the candle. You have to know them to know what I mean AND that is sort of linked to Asthma - if you can look outside the box! Lack of oxygen circulating around the body system.Now to success part - there is help for Asthma from mainstream medical world and I'm loving already the slowly progressing Peak Flow and more power to all cylinders. Yes there are always dangers with anything you take into your body that is not regular fuel/liquid but if I can have a LIFE again I will feel it's worth it.The other success is the things I've apparently been allergic to which would NOT have been helping. OK there are a lot of new things to take on board and I'm working through it but boy I FEEL GREAT and I'm looking forward to much more happening for the rest of a SUCCESSFUL LIFE when my personal best steps forward - when I learn how to cope and work with the steroids/longacting

bronchodilator/reliever etc. in West Auckland, NZCyber Hugs for today/yesterday/tomorrow

[Guest guest]

I realise that your success story will be very different to mine and at

this point the success is only partially here :-))

Today I went to see Joanne, Practice Nurse at /Doc clinic because I

thought I might be doing something wrong with the turbuhaler - I'm not but

I want now to relate to you all why I feel I'm a success healthwise.

For probably the last 15yrs I have been slowing down the tubes to

full-blown Asthma but I didn't know. I have had a number of breathless

episodes that have always been put down to this and that.......could find

reasons why they happened and managed to somehow get through them! Not good

but that is what hindsight does for you.

About 10years ago I got very sick - major liver dysfunction ---> glandular

fever --->broncho-pneumonia all at ONCE. And sent me for a chest Xray

to confirm the pneumonia. The results came back positive but also mentioned

that I would need further investigations when the GF abated as there was

something wrong. So 3mths later back to Chest Clinic and it was found that

my lungs showed a ?growth......the young specialist went overboard [Human

Rights about giving patients all options] and said I would need a proper

scan and that it was probably Cancer or some other diseases that were life

threatening. I was shocked but with s' help I managed to wait until the

results were in. It was found that the growth was part of me and not to worry.

Before I went to Chest Clinic had diagnosed that I had CFIDS/ME/CFS or

whatever you call it wherever you live in the world and that was the

undoing as such for Asthma diagnosis to ever come about as such.

ME [i'll call it now] is a chronic illness to which there is no mainstream

medical help as such. Nothing to really help but lots of things that could

help with the various symptoms that float to the front from time to time. I

have lived with the illness for 10yrs - a bloody awful maze of problems -

that wax and wane and just when you think things are better for one reason

or other another miserable thing appears!!

As I said hindsight is a wonderful thing........I've had lots of it in the

last 9wks since those 4 life threatening episodes that I had no idea were

life threatening let alone know exactly what they were........you see I

had, had 'em before! Yes folks a few spread about over the 15yrs!! But you

can always work out why and you carry on. What kickstarted them big time I

will probably never know but it may have something to do with how my/our

brain works " OK I've had it up to here with this problem so to make

you sit up and take notice this is my plan!!! " says brain.

One of the main symptoms of ME is a fatigue - not the sort that are fixed

by an early night and less burning of the candle. You have to know them to

know what I mean AND that is sort of linked to Asthma - if you can look

outside the box! Lack of oxygen circulating around the body system.

Now to success part - there is help for Asthma from mainstream medical

world and I'm loving already the slowly progressing Peak Flow and more

power to all cylinders. Yes there are always dangers with anything you

take into your body that is not regular fuel/liquid but if I can have a

LIFE again I will feel it's worth it.

The other success is the things I've apparently been allergic to which

would NOT have been helping. OK there are a lot of new things to take on

board and I'm working through it but boy I FEEL GREAT and I'm looking

forward to much more happening for the rest of a SUCCESSFUL LIFE when my

personal best steps forward - when I learn how to cope and work with the

steroids/longacting bronchodilator/reliever etc.

in West Auckland, NZ

Cyber Hugs for today/yesterday/tomorrow

[Guest guest]

Thank you for sharing your story!!

It is so wonderful that you received such blessings on your vacation and in

your life.

Don't tell God how big your storm is. ...

Tell the storm how big your God is. !

[Guest guest]

Beth,

It sounds like you all had a real vacation. Congrats.

A Success Story

> Hello everyone,

> I don't post very often, but I am always encouraged by success

> stories, so I thought I'd share ours!

> Our son Tanner is 9 and is fairly high functioing. We just returned

> from our vacation to Florida and all went well. We

> flew....something I said I would never do again.....but we did and

> Tanner did great on the plane. He was awesome on the way

> there.....slightly edgy on the way back - but even sat through a one

> hour delay on the plane due to a storm!!! I feel like the world has

> opened up for us!!! I typed up a little flyer that I gave to each

> flight attendant before we took off and also to the people sitting

> in direct contact with us - we got every positive responses from

> that - this is what I typed up....

> =======================

> We are traveling today with our son who has autism. We anticipate

> that he will enjoy the flight and we have brought many things with

> us to keep him happy and entertained. There is a slight chance that

> something may upset him or over-stimulate him. Sometimes, no matter

> how well we prepare, he may unpredictably get upset. If this should

> happen, we will do everything in our power to calm him.

> We are committed to teaching our son how to function in the

> community and we appreciate your patience and compassion.

>

> Autism is a brain disorder that affects a person's ability to

> communicate, to reason and to interact with others. It is a spectrum

> disorder that affects individuals differently and to varying degrees

> of severity.

>

> One out of 166 children today has some type of autism. This means

> that 1.5 million Americans have autism and another 15 million are

> directly impacted by this disorder.

>

> If you would like more information, please go to www.autism-

> society.org.

>

> ===========================

>

>

> Tanner really enjoyed our vacation. He likes going to a hotel and

> being with the whole family. When we got home on Tuesday, he kept

> getting the suitcases that I just unpacked and putting them in the

> living room and kept saying airplane!! Very cute!

>

> The amazing story - at Universal Studios, I took Tanner to the

> Barney show (which we had seen two years ago). At the end of the

> show, I knew that I would need to make a beeline to the gift shop to

> get in line for pictures with Barney. But an employee came up to

> Tanner and I and said, " Would he like to have his picture made with

> Barney? " I said, " of course " and she said to just wait here for a

> moment.

>

> It took me a few moments to realize what was happening, but what

> they did was select a few families from the audience that had

> special needs kids. I was absolutely amazed that they picked

> Tanner....as you know autism is the invisible disability!!! But the

> lady said she noticed him covering his ears during the show!

> Anyway, there we were, about 5 or 6 families and they had

> Barney come back out and he took as much time with each family that

> they wanted and they took our pictures and I just sat there and

> cried the whole time. I was so moved. It was quiet and calm and

> very respectful for all involved! I was so amazed by the whole

> thing! AWESOME!

>

> I hope that you all have a great day!

>

> Beth Gotwalt

>

>

>

>

>

>

>

>

>

>

> Texas Autism Advocacy

> www.TexasAutismAdvocacy.org

>

> Texas Disability Network

> Calendar of Events

> www.TexasAutismAdvocacy.org

>

[Guest guest]

That is so amazing! The flyer is a great idea. I must say we had many

WONDERFUL experiences at DisneyWorld too. The staff at Disney is so well

trained. They are fabulous and very accomodating. We had a much easier

time with our son with a disability than we did with our typical four year

old.

A Success Story

Hello everyone,

I don't post very often, but I am always encouraged by success

stories, so I thought I'd share ours!

Our son Tanner is 9 and is fairly high functioing. We just returned

from our vacation to Florida and all went well. We

flew....something I said I would never do again.....but we did and

Tanner did great on the plane. He was awesome on the way

there.....slightly edgy on the way back - but even sat through a one

hour delay on the plane due to a storm!!! I feel like the world has

opened up for us!!! I typed up a little flyer that I gave to each

flight attendant before we took off and also to the people sitting

in direct contact with us - we got every positive responses from

that - this is what I typed up....

=======================

We are traveling today with our son who has autism. We anticipate

that he will enjoy the flight and we have brought many things with

us to keep him happy and entertained. There is a slight chance that

something may upset him or over-stimulate him. Sometimes, no matter

how well we prepare, he may unpredictably get upset. If this should

happen, we will do everything in our power to calm him.

We are committed to teaching our son how to function in the

community and we appreciate your patience and compassion.

Autism is a brain disorder that affects a person's ability to

communicate, to reason and to interact with others. It is a spectrum

disorder that affects individuals differently and to varying degrees

of severity.

One out of 166 children today has some type of autism. This means

that 1.5 million Americans have autism and another 15 million are

directly impacted by this disorder.

If you would like more information, please go to www.autism-

society.org.

===========================

Tanner really enjoyed our vacation. He likes going to a hotel and

being with the whole family. When we got home on Tuesday, he kept

getting the suitcases that I just unpacked and putting them in the

living room and kept saying airplane!! Very cute!

The amazing story - at Universal Studios, I took Tanner to the

Barney show (which we had seen two years ago). At the end of the

show, I knew that I would need to make a beeline to the gift shop to

get in line for pictures with Barney. But an employee came up to

Tanner and I and said, " Would he like to have his picture made with

Barney? " I said, " of course " and she said to just wait here for a

moment.

It took me a few moments to realize what was happening, but what

they did was select a few families from the audience that had

special needs kids. I was absolutely amazed that they picked

Tanner....as you know autism is the invisible disability!!! But the

lady said she noticed him covering his ears during the show!

Anyway, there we were, about 5 or 6 families and they had

Barney come back out and he took as much time with each family that

they wanted and they took our pictures and I just sat there and

cried the whole time. I was so moved. It was quiet and calm and

very respectful for all involved! I was so amazed by the whole

thing! AWESOME!

I hope that you all have a great day!

Beth Gotwalt

[Guest guest]

Yes, the staff at Disney was great. Be careful though if you have a

sound sensitive child. My normally happy go lucky kid totally freaked

out at Disney. The music coming from the trees and shrubs and the visual

stimuli along with the people had him screaming in fright at the gate.

We nearly didn't get him in. We stuck it out for 4 days for the benefit

of my other kids (and yes Barney was great) but to this day if we ask

Matt if he wants to go to Disney he says " NO!!!! GO To School? " Anything

but back to Disney poor kid. It's funny that other theme parks like

Fiesta Texas and SeaWorld do not affect him this way. Weird. Trina

A Success Story

Hello everyone,

I don't post very often, but I am always encouraged by success

stories, so I thought I'd share ours!

Our son Tanner is 9 and is fairly high functioing. We just returned

from our vacation to Florida and all went well. We

flew....something I said I would never do again.....but we did and

Tanner did great on the plane. He was awesome on the way

there.....slightly edgy on the way back - but even sat through a one

hour delay on the plane due to a storm!!! I feel like the world has

opened up for us!!! I typed up a little flyer that I gave to each

flight attendant before we took off and also to the people sitting

in direct contact with us - we got every positive responses from

that - this is what I typed up....

=======================

We are traveling today with our son who has autism. We anticipate

that he will enjoy the flight and we have brought many things with

us to keep him happy and entertained. There is a slight chance that

something may upset him or over-stimulate him. Sometimes, no matter

how well we prepare, he may unpredictably get upset. If this should

happen, we will do everything in our power to calm him.

We are committed to teaching our son how to function in the

community and we appreciate your patience and compassion.

Autism is a brain disorder that affects a person's ability to

communicate, to reason and to interact with others. It is a spectrum

disorder that affects individuals differently and to varying degrees

of severity.

One out of 166 children today has some type of autism. This means

that 1.5 million Americans have autism and another 15 million are

directly impacted by this disorder.

If you would like more information, please go to www.autism-

society.org.

===========================

Tanner really enjoyed our vacation. He likes going to a hotel and

being with the whole family. When we got home on Tuesday, he kept

getting the suitcases that I just unpacked and putting them in the

living room and kept saying airplane!! Very cute!

The amazing story - at Universal Studios, I took Tanner to the

Barney show (which we had seen two years ago). At the end of the

show, I knew that I would need to make a beeline to the gift shop to

get in line for pictures with Barney. But an employee came up to

Tanner and I and said, " Would he like to have his picture made with

Barney? " I said, " of course " and she said to just wait here for a

moment.

It took me a few moments to realize what was happening, but what

they did was select a few families from the audience that had

special needs kids. I was absolutely amazed that they picked

Tanner....as you know autism is the invisible disability!!! But the

lady said she noticed him covering his ears during the show!

Anyway, there we were, about 5 or 6 families and they had

Barney come back out and he took as much time with each family that

they wanted and they took our pictures and I just sat there and

cried the whole time. I was so moved. It was quiet and calm and

very respectful for all involved! I was so amazed by the whole

thing! AWESOME!

I hope that you all have a great day!

Beth Gotwalt

Texas Autism Advocacy

www.TexasAutismAdvocacy.org

Texas Disability Network

Calendar of Events

www.TexasAutismAdvocacy.org