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Re: reintroduction

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Dear Barbara,

Nice to meet you. I thought that the lung problems are from Stills? I since my last flair have heart and lung problems. I have asthma and because of my lungs not expanding or what ever he said, I don't get in the air I should. I have been using a nebulizer(sp) for the past year now. I really can't say if it helps. When ever I get a cold it goes right to my lungs.

Hugs; Gingerbarbara gardner wrote:

Hi Everyone,

My name is Barbara Gardner and I was a member of this wonderful group years ago. This disease is not new to me, it will have its 16th birthday this August. Still, many things have changed and the need for support and keeping up-to-date are important.

I was misdiagnosed with Lupus the first 10 years and treated accordingly. Some physicians disagreed with that diagnosis because lab tests did not match. They were right. When I became ill wiith Stills 16 years ago, Systemic Vasculitis joined in and raged.

Prior to proper diagnosis, temporal lobe epilepsy joined in and created frightful feelings and behavior. Thank God it's under control. Soon, this was joined by asthma.

In 1996, I had a serious stroke and almost didn't make it. Since then there have been 2 more milder strokes.

Polyneuritis comes from disc problems in the cervical spine, L/S spines, and bone loss. And last, it was discovered cataracts are in both eyes, explaining visual problems. I'm 45 years old.

My husband, , and I had a short Anniversary trip to Las Vegas last year. Then Bob told me we would be there during part of the Stills Convention. I was elated! The gathering was warm, wonderful, and made me cry, coming and going! truly enjoyed everyone we met.

My intention was to reintroduce myself before now, but nearly every member understands how busy it is with family, doctor appointments and living life. I tried to be brief here, but it didn't work. Many have more on their plate than me, so I don't feel sorry for myself. I'm here to catch up on new information, and hopefully make new friends.

Feel free to email me personally or on the Stills site!

Thanks for reading,

Barbara Gardner Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person

following the information offered or provided within this support form.

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Hi Babara, It is good to see you on the computer again. My comp. has been down since we got back from L.V. It was great meeting you and all the other stilligan's. You all were a treasure of information and support. I'm looking forward to meeting again. B

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Well hi there, ! It was delightful to meet you and your husband! With your computer down, you must have needed a great deal of catch-up, like me, and , probably, too. Sorry about the reintroduction. That was intended for my files and was clicked into the wrong place. Oh well, we're among friends, but I was still embarrassed, LOL!

I hope we meet again next year. It was a fun time. Always too short, though

loaded the pictures into our computer and I'll be posting them soon. I don't want anyone mad at me ("that was awful of me, how could you?"). I have a few like that of me!!

I loved my scooter and no "punishment" was dealt out to me after the trip. That was a treat. That's the way to go. I could have used one yesterday when I went shopping with my daughter and granddaughter. It was fun, but UGH!

Thanks for writing. Good to see you back on the computer, too.

Love,

Barbara

PS: Say hi to the hubby! He's a great guy.

Hi Babara, It is good to see you on the computer again. My comp. has been down since we got back from L.V. It was great meeting you and all the other stilligan's. You all were a treasure of information and support. I'm looking forward to meeting again. B

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