Help!

February 20, 2008

Thank you so much Elias. I will look him up as soon

as I've moved out of here (sigh. once again).

There is another thing I could use some help with.

Are you well versed on how to find a " safe " home,

when you have to use the rental market? Can you give

me some guidelines on what to look for or watch out

for? I haven't had much luck, and it's getting kinda

critical.

Thank you,

Michal

--- E E <photoguys2003@...> wrote:

> Hi,

> THere is a doc 20 minutes north of san fransisco

> that has experience treating patients with mold

> exposure. His name and number is

> Dr Camp

> 415-383-9903

> His first appointment is $325 which is cheap

> compared to other mold Docs.

>

> Tell him Elias sent you. let me know if you need

> some more help. God Bless!!

> p.s. what type of mold were you exposed to?

>

> michalvictoria <michalvictoria@...> wrote:

> Folks,

>

> My last place developed mold. I moved in September,

> to a place that seemed " safe " , then as

> soon as the rains came, I started developing all the

> symptoms. And my hair is falling out

> again. With an air purifier and a dehumidifier it is

> better, but I know I have to move again.

> Because I have been ill for so long, I have been

> low-income, and have been living with mold

> for years and years-out of one frying pan into

> another fire!

>

> Here is my question: when renting, how can I be sure

> the next place will be " safe " ? Please

> keep in mind I am existing on disablility, and have

> to get a landlord to agree to take my Sec.

> 8.(thank god I'm charming

> What should I look for? What should be on my

> checklist?

>

> Secondly, can anyone recommend some " mold doctors? "

> I live in Northern California, but I'm

> willing to find a way to travel for the right

> doctor.

>

> PS-Just to head you off at the pass, I have no

> family or friends that are able to have me stay

> with them.

>

> [Non-text portions of this message have been

> removed]

>

________________________________________________________________________________\

____

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http://www./r/hs

February 20, 2008

Oh by the way, Elias, I never got so far as to have

the mold(s) I was exposed to analyzed. I was so sick

it was all I could do just to hold my mind together

while I was trying to get out.

I think the mold in one place I was living in was

black-that was the time I almost checked into a mental

hospital. I was hallucinating and paranoid. It was

awful. I was too low-income to afford places that

were kept up well, and it made it harder to move when

I needed too. It really should be crime-to take

advantage of those with less money by renting a place

that is not well built enough to offer a mold-free

environment. (or as mold-free as nature will allow)

--- E E <photoguys2003@...> wrote:

> Hi,

> THere is a doc 20 minutes north of san fransisco

> that has experience treating patients with mold

> exposure. His name and number is

> Dr Camp

> 415-383-9903

> His first appointment is $325 which is cheap

> compared to other mold Docs.

>

> Tell him Elias sent you. let me know if you need

> some more help. God Bless!!

> p.s. what type of mold were you exposed to?

>

> michalvictoria <michalvictoria@...> wrote:

> Folks,

>

> My last place developed mold. I moved in September,

> to a place that seemed " safe " , then as

> soon as the rains came, I started developing all the

> symptoms. And my hair is falling out

> again. With an air purifier and a dehumidifier it is

> better, but I know I have to move again.

> Because I have been ill for so long, I have been

> low-income, and have been living with mold

> for years and years-out of one frying pan into

> another fire!

>

> Here is my question: when renting, how can I be sure

> the next place will be " safe " ? Please

> keep in mind I am existing on disablility, and have

> to get a landlord to agree to take my Sec.

> 8.(thank god I'm charming

> What should I look for? What should be on my

> checklist?

>

> Secondly, can anyone recommend some " mold doctors? "

> I live in Northern California, but I'm

> willing to find a way to travel for the right

> doctor.

>

> PS-Just to head you off at the pass, I have no

> family or friends that are able to have me stay

> with them.

>

> [Non-text portions of this message have been

> removed]

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

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February 20, 2008

OH wow!! This is weird and reminded me of an article I

read about a long time ago!! There was a house and the

owners kept getting a green mold. Some of the family

members were having bad mental issues and in and out

of mental hospitals. Come to find out to the newer

owners, years before, the previous owners were

arrested for growing mushrooms in the house, the kind

that people use as illegal drugs to get high. I never

linked the folks in the article with the mental

illness with the former owners illegal mushroom

growing..I just linked the green on the wall in the

story with mushrooms!! This is another reason why a

house in which an illegal activity took place, needs

to be documented for future tenants or owners...this

is a major reason why crack houses and meth labs need

to be torn down or burned..same for most houses with

mold!

--- Michal <michalvictoria@...> wrote:

> Oh by the way, Elias, I never got so far as to have

> the mold(s) I was exposed to analyzed. I was so

> sick

> it was all I could do just to hold my mind together

> while I was trying to get out.

>

> I think the mold in one place I was living in was

> black-that was the time I almost checked into a

> mental

> hospital. I was hallucinating and paranoid. It was

> awful. <SNIP>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

November 28, 2008

Hi Toni,

I am so sorry about your illness, and that you are feeling so scared

right now. I'm so glad you found the group.

I have not had a CD4 test. I did do a quick read-up on it just now

and it looks like people w/an over-load to their immune system will

have a low CD4 count. I think some of us already have underlying

health issues when we get our implants and we don't even know it -

that's what happened to me. Then after I got them my body just shut

down. My immune system just couldn't take anymore. This may be what

is happening to you. Or it could be that you were perfectly healthy

and your body is just out-right rejecting the implants. That could

also explain your immune system going crazy like that.

Fungal infections (thrush, yeast, candida) are pretty common for

women with implants. They are opportunistic organisms and when our

immune system is compromised they try to take over. That is one of

the chronic problems that I deal with, too. But since I got the

implants out, I feel like my body is stronger and my immune system is

working much better.

Don't worry, you can recover from this. I know how scary and

overwhelming it is. I was so afraid and depressed when I got really

sick. But there is hope! So, did you discuss your implants with

your doctor? If so, I'm sure he probably told you that wasn't the

problem. I don't know much about this, but if you have insurance and

your doctor will state that your implants could be making you sick,

you could get some coverage for the explant surgery. Other ladies

here might be better at helping you with that.

In the meantime, there are some things you can begin doing to get

better. First of all, I'd advise cutting out simple carbs and

sugar. And there are natural anti-fungals that work really well.

But don't combine them w/prescription anti-fungals, if you are taking

any. I take olive leaf and it does wonders for me. It even comes in

a spray that you could spray in your mouth to help w/the thrush. I

can let you know where to get it if you're interested. Beyond that,

a good probiotic would also help.

I'm sorry if this is too much information. There are some files in

the top left corner on this site that talk about diet and anti-

fungals if you want to learn more. And feel free to ask all the

questions you need, that's why we're here.

Don't be discouraged. There are many women who have been sick like

you, and even worse, and have completely recovered. I am on the road

to being totally well, myself. It takes time and some effort, but

you CAN get better.

Saying a prayer for you,

April

http://mourning-to-dancing.blogspot.com

December 3, 2008

Dear Toni,

Thank you for sharing with us your diffculties with your health since

you received your saline implants. It sounds like you got sick fairly

quickly, and had a reprieve....I am sorry you have now started to

struggle again and in full force! This is terrible news.

I am not sure what the CD4 blood count is about, but I had a low C3

complement. It was never fully explained to me, and to my knowledge,

has never returned to normal. I have healed, however, and it was not

through the help of doctors...I found that they don't really know what

the heck is going on. I avoid doctors for the most part, because I

don't believe that the drugs they want to give us are the answer. For

me, the answer was in natural healing and detoxing.

Toni, have you considered removing your implants as soon as possible?

Please let us know how we can help you.

Patty

>

> Hello Everyone,

> My name is antonija (toni for short) and this is my first post to

> this message board. i got saline implants 4 1/2 years ago and a few

> weeks after i got them i suffered the following symptoms:

>

> -nausea

> -loss of appetite

> -dry gagging cough

> -exteme muscle/joint pain

> -burning sensation of my skin

> -thursh in the mouth

> -white lines in the inside of my cheeks and the sides of my tongue

> -canker sores

> -rashes on my chest

> -difficulty swallowing

> -acid feeling creeping up from the stomach into the throat

> -brusing easy

> -pale skin

> -shakiness

> -i get pink eye quite alot

>

> this symptoms lasted for around 4-5 months then subsided. I went from

> doctor to doctor and none of them had any answers all the tests came

> back perfect except for a low CD4 blood count. Has anyone else had

> any of these symptoms and also has anyone else ever had a CD4 count

> test done and it came out low? or had any other immune system cell

> tests done? Last tuesday all of the above symptoms returned full

> force after 4 1/2 years and i'm feeling very scared and alone..

>

> i look forward to hearing from you as I feel so alone, sick, and

> scared.

>

> sincerely,

> toni

>

December 3, 2008

Hi Toni,

I was a quick reactor, too, and I had my implants removed after six

months.

Here's the symptoms I shared with you:

nausea

loss of appetite

exteme muscle/joint pain

white lines in the inside of my cheeks >

acid feeling creeping up from the stomach into the throat

pale skin (my skin was actually a gray color)

shakiness

I had other symptoms as well, sore swollen lymph nodes, digestive

issues, bulging veins in my fingers, pain in the side of my head,

neck pain, headaches, anxiety attacks, high blood pressure, numb

finger tips and toes, dizziness, blurry vision.

Sis

Ho

> >

> > Hello Everyone,

> > My name is antonija (toni for short) and this is my first post

to

> > this message board. i got saline implants 4 1/2 years ago and a

few

> > weeks after i got them i suffered the following symptoms:

> >

> > -nausea

> > -loss of appetite

> > -dry gagging cough

> > -exteme muscle/joint pain

> > -burning sensation of my skin

> > -thursh in the mouth

> > -white lines in the inside of my cheeks and the sides of my

tongue

> > -canker sores

> > -rashes on my chest

> > -difficulty swallowing

> > -acid feeling creeping up from the stomach into the throat

> > -brusing easy

> > -pale skin

> > -shakiness

> > -i get pink eye quite alot

> >

> > this symptoms lasted for around 4-5 months then subsided. I went

from

> > doctor to doctor and none of them had any answers all the tests

came

> > back perfect except for a low CD4 blood count. Has anyone else

had

> > any of these symptoms and also has anyone else ever had a CD4

count

> > test done and it came out low? or had any other immune system

cell

> > tests done? Last tuesday all of the above symptoms returned

full

> > force after 4 1/2 years and i'm feeling very scared and alone..

> >

> > i look forward to hearing from you as I feel so alone, sick, and

> > scared.

> >

> > sincerely,

> > toni

> >

>

September 22, 2009

Hi Psycho:

Welcome to our wonderful support group. I am sure you will get lots of replies

to your letter.

First, I would definately see your Rheumy. See what he suggests for pain, and

to get your flare under control.

My feet and ankles were hit the hardest with RA. There were many days that I

could not stand or walk on them, as the pain was unbearable. I also have a

large RA nodule on the outside of my right arch and it can be very painful. I

went to a Podiatrist, and I bought 2 diff. shoe inserts. One pair is for when

my feet are fine, and the second pair is for when my feet are very, very

painful. They cost me $35.00 a pair and well for worth it. The second pair is

made of a Tempur pedic foam and so very comfortable. I also had to buy running

shoes instead of walkers. He also had me buy one size larger, remove the

inserts that came with them, and insert my new ones. They are truly wonderful

and my feet are very happy. I had several brands of shoes to choose from, and I

love Rebok's best running shoes. They cost about $75-79 a pair, but I went to

the outlet during a sale, and got 3 pairs for $99.00. They are the most

comfortable shoes I have

ever owned.

I have been on Pred. daily for over 6 1/2 years. My daily dose is 10 mg. but

can be higher in a bad flare. My RA meds. are the max. doses each day:

Sulfasalazine, Placquenil. I inject. MTX each week, the dose is .80. 12 hours

later I take 2 Leucovorin pills. I have diff. doses of pain meds, as well as

diff. types. I take these when needed.

Sincel last Nov. I have been in a medicine induced remission. It has taken 6

years to achieve this. How long it lasts I don't know, but I am very grateful

for this respite.

I hope my information helps you. I have never been to a pain management center,

but I have heard it really is a great place to get help with pain.

Wishing you pain free days ahead. It takes time to find the right " cocktail " of

meds. and I hope you find yours. Hang in there.

Hugs,

Barbara

From: psycho4chitown <psycho4chitown@...>

Subject: [ ] Help!

Date: Tuesday, September 22, 2009, 12:37 AM

i am new to this group but need some solicited advice.

What works for pain??????? $64M question I know. I stopped going to my rheumy 2

yrs ago. I have an appt with him next week-if i keep it. We came to a standstill

at that point because I had tried it all and was either allergic to the meds or

they were not helpful even in various combinations. Now I would settle just for

pain relief.

I have been on prednisone for most of the last 20 yrs in one dose or another. i

can't get shots because they send me spiraling into deep depressions to the

point of suicidal thinking.

Just recently I have started having tremendous pain in my feet and ankles to

which nothing helps except to not stand or walk!! That doesn't work.

Any pain relief suggestions? And do you think it would be worth it to see the

rheumy or should I go to a pain mgmt clinic?

psycho

October 29, 2009

My son is currently eating a small piece of sourdough toast with the

slightest smear of butter and nitrite-free sausage for breakfast.

For lunch, nitrite-free hot dogs or a plain hamburger patty, carrot sticks

or apple slices, 8-10 small pretzels, sheep's milk or goat's milk cheese, a

little juice (no sugar added), maybe a fruit leather (the kind with 1-2

ingredients). I don't give him buns or condiments with his hot dogs or

hamburgers.

For dinner, whatever meat selection we are eating (grilled chicken, fish,

steak or pork), carrot sticks, juice. Occasionally he will have taquitos or

fish sticks.

Very simple, and he tends to eat the same foods over and over because he

prefers them and it's easier for me.

All of his foods are preservative-free, dye-free, nitrite-free, no refined

sugar, no high fructose corn-syrup, dairy-free, and soy-free. He gets very

limited gluten and corn. I mostly shop at Trader Joe's and Costco.

Kristy

From: [mailto: ] On Behalf Of

chrisline1@...

Sent: Sunday, October 25, 2009 5:20 PM

Subject: Help!

I am sure this has been covered before but I am asking again. We are new to

the diet. We know the items we are NOT suppose to eat but we are having

trouble with the items we CAN eat. I realized Dr. G recommends eating cold

cereal in the morning. This just won't work for my son. What I am really

looking for is a simple meal plan just to get us started. Any help would be

so great!!

January 12, 2010

Doreen,

I'm so sorry you are feeling so bad. Only thing I can suggest is

something that a lot of people even yourself may be against. But, if you can't

get

any relief from the doctor's, what else are you going to do? I've been so

many times in pain and my doctors wouldn't give me anything any stronger

than Vicodin. I was begging for help and they wouldn't do anything. I was

minutes away from blowing myself away because the pain was so bad and I

just wanted to rid of it.

I ended up taking many peoples advice that I held off for the longest time

and tried marijuana. I didn't think it would help but it did help me go

to sleep for a while pain free. I couldn't believe it. So it is only a

suggestion to you from me. ONLY because there is nothing else I could think

of. I'm sorry if I offended anyone here. I just feel for you Doreen and

want you to be out of the pain, if not only for a little while.

Praying for pain free days for you,

Michigan

From: Mimi <_mimi212@..._ (mailto:mimi212@...) >

Subject: [ ] HELP!

_ @groRA-SUPP_ (mailto: )

Date: Tuesday, January 12, 2010, 11:18 AM

I guess putting that all in caps makes things look like a 911 situation,

but I don't think it is. This IS a question that I just don't know where

else to go with. I take MTX, Minocycline and Enbrel for my RA. I take

Neurontin for my Fibro.

I've had two surgeries in my right shoulder - one for a benign bone cyst

and the other to remove bone spurs from the head of the humerus bone in my

shoulder socket.

I've had several MRI's over the years for low back pain - nothing shows

with the exception of Degenerative Disc changes and mild scattered bony

degenerative changes. My Ortho said I am not a candidate for surgery.

I take 10/325mg of Percocet 3-4 times a day for pain. Today I added 400mg

(2) Advil to one of the Percs because the pain is so bad. Its not helping.

When I stand, the pain is so bad I can't hardly stand it. The pain covers a

wide section of my lower back from my tailbone up. If I stand too long

(>5mins), the burning, numbness and sometimes cold feeling on my skin takes

forever to ease up.

I guess what I'm asking for here is any suggestions. Prednisone doesn't

help and the last time I took it, I felt flushed and my heart felt like it

was doing flip flops in my chest. What and where to go from here?

I've not been around in a bit because of this. I feel like a whiner at

home as if everyone is sick and tired of hearing what is going on with me - as

if no one takes me seriously. The only relief I seem to get is by sleeping

- and sometimes I wonder if it is really sleep or have I just finally

passed out with the pain? My PC keeps focusing on my weight - she keeps talking

about taking me OFF the pain meds. My Rheumy doesn't seem to care either.

I've thought of going to the ER, but what are they going to do? I don't

think I could drive at this point and I don't have insurance, so an ambulance

is out of the question. I don't want to be a burden to anyone and its rare

that anyone comes over anymore anyway.

So, how do you handle your severe pain when nothing else seems to be

cutting it?? Thanks for reading my vent. I'm sorry to have made it so long.....

Doreen

January 12, 2010

" I guess what I'm asking for here is any suggestions. Prednisone doesn't help

and the last time I took it, I felt flushed and my heart felt like it was doing

flip flops in my chest. What and where to go from here? "

That is what it does to me too. I can't take it. My suggestion would be

considering alternative therapies such as acupuncture and what not. Water

exercise is helpful for me. I know no one likes hearing it but really...

exercise does help with stiffness, pain, and improvement in quality of life. It

doesn't have to be high-impact.

~ Graves

[ ] HELP!

I guess putting that all in caps makes things look like a 911 situation,

but I don't think it is. This IS a question that I just don't know where else to

go with. I take MTX, Minocycline and Enbrel for my RA. I take Neurontin for my

Fibro.

I've had two surgeries in my right shoulder - one for a benign bone cyst and the

other to remove bone spurs from the head of the humerus bone in my shoulder

socket.

I've had several MRI's over the years for low back pain - nothing shows with the

exception of Degenerative Disc changes and mild scattered bony degenerative

changes. My Ortho said I am not a candidate for surgery.

I take 10/325mg of Percocet 3-4 times a day for pain. Today I added 400mg (2)

Advil to one of the Percs because the pain is so bad. Its not helping. When I

stand, the pain is so bad I can't hardly stand it. The pain covers a wide

section of my lower back from my tailbone up. If I stand too long (>5mins), the

burning, numbness and sometimes cold feeling on my skin takes forever to ease

up.

I guess what I'm asking for here is any suggestions. Prednisone doesn't help and

the last time I took it, I felt flushed and my heart felt like it was doing flip

flops in my chest. What and where to go from here?

I've not been around in a bit because of this. I feel like a whiner at home as

if everyone is sick and tired of hearing what is going on with me - as if no one

takes me seriously. The only relief I seem to get is by sleeping - and sometimes

I wonder if it is really sleep or have I just finally passed out with the pain?

My PC keeps focusing on my weight - she keeps talking about taking me OFF the

pain meds. My Rheumy doesn't seem to care either. I've thought of going to the

ER, but what are they going to do? I don't think I could drive at this point and

I don't have insurance, so an ambulance is out of the question. I don't want to

be a burden to anyone and its rare that anyone comes over anymore anyway.

So, how do you handle your severe pain when nothing else seems to be cutting

it?? Thanks for reading my vent. I'm sorry to have made it so long.....

Doreen

January 12, 2010

I'm sorry you are feeling this pain in your back. I too suffer from lower back

pain. It took about 11 years for any doctor to do an MRI. I was told it was just

muscles and to drop the weight. I would tell them when I first had problems I

was only 130 and it had nothing to do with the weight. I guess now that I'm WAY

over that weight it could be an issue but whatever. It is what it is. I'm not

dropping the weight so deal with me now and fix it. Lol. Anyway, they did find

that I too had degenerative disc. My father had this also. They are saying since

my dad had the exact thing I might have gotten it from him. It is rare that they

link it to a family history. I tried physical therapy, pain killers, anti

inflammatory pills, heat and ice, muscle relaxers, and steroid packs. Nothing

works. The steroid packs have helped when my back was completely out and could

not get out of bed. It helped me move again but the pain was still there. When I

was pregnant it went out and the only thing they gave me was T3. It was candy.

It didn't work. I can't stand for a long time or I feel the pain. I can't sit

long or I feel the pain. Now when I stand long I feel pain in the back of my

knees but I don't get the shooting pain down the legs. I find it helpful when I

wear my gym shoes in the house when I walk anywhere. I don't wear boots outside

unless I really have too. I bought a sleep numbers bed (select comfort) it has

helped out a lot. It cost is 3,000 when we finally completed the set. This bed

has been the best treatment for my back next to MOBIC. My hubby had a few

samples of Mobic so I thought I would try one and it helped so I went to my

doctor and told him what I did. He gave me the 3rd degree and then said good

find. Lol. I'm not sure what you can do to help your back but this is my

journey. I just wanted to let you know I'm right there with you. I don't think I

helped much but I do feel your pain. If I can help in anyway please let me know.

Cheli

[ ] HELP!

I guess putting that all in caps makes things look like a 911 situation, but I

don't think it is. This IS a question that I just don't know where else to go

with. I take MTX, Minocycline and Enbrel for my RA. I take Neurontin for my