New to the group

[Guest guest]

Those are called Motivational Thoughts I'm proned to passing them along

for the benefit of others in hopes that it may help someone achieve their

goals and dreams.

More will follow later.

Thanks

Walt

[Guest guest]

Dear Casaria, I live in Portland and am familiar with the two pediatric

rheumatologists here. My daughter is 13 with Still's or systemic JRA. You

can email me privately if you want. Please try to make an appointment as

soon as you can with a pediatric rheumatologist. Your little one doesn't

need to suffer. If you have any questions , just ask. We have been dealing

with this disease for two and a half years now.

william.e.price@...

New to the group

Hello everyone. I send a big hello and lot's of luck to everyone going

through this. My name is Casaria, my daughter Tasie who will be 3 in May

has been diagnosed with Still's. We finally managed to get a diagnosis in

February after fighting the " she has a cold " diagnosis for 2yrs. We are

constantly battling the fevers of 103+ (which now has become her normal

temperature), aches and pains in her knees and arms, and horrible eye pain.

She was also born with clubfeet so it is making her walking even more

difficult.

We are not on any kind of medicinal treatment yet. Which makes things very

difficult. She is constantly getting lung infections after the first week

of her fevers. Fevers last 3wks, then we get a couple of days of normalcy,

then right back at it.

It is really pretty hard dealing with this in a 2 1/2 yr old little girl.

She is such an angel and I keep asking why this happened. But we are all

learning to deal with it, live with it.

I am a single mom, trying to go to school as time allows. We recently moved

back home with my parents, so as to have a little extra help.

My birthday is 01-31 I am 22yrs

Tasie's birthday is 5-20-99 almost 3.

I am so happy to be a part of this group. I hope that together we can all

continue to gain more knowledge and grow with this.

Sincerely,

Casaria Tuttle

Salem, Oregon

---------------------------------

[Guest guest]

Dear Casaria, I live in Portland and am familiar with the two pediatric

rheumatologists here. My daughter is 13 with Still's or systemic JRA. You

can email me privately if you want. Please try to make an appointment as

soon as you can with a pediatric rheumatologist. Your little one doesn't

need to suffer. If you have any questions , just ask. We have been dealing

with this disease for two and a half years now.

william.e.price@...

New to the group

Hello everyone. I send a big hello and lot's of luck to everyone going

through this. My name is Casaria, my daughter Tasie who will be 3 in May

has been diagnosed with Still's. We finally managed to get a diagnosis in

February after fighting the " she has a cold " diagnosis for 2yrs. We are

constantly battling the fevers of 103+ (which now has become her normal

temperature), aches and pains in her knees and arms, and horrible eye pain.

She was also born with clubfeet so it is making her walking even more

difficult.

We are not on any kind of medicinal treatment yet. Which makes things very

difficult. She is constantly getting lung infections after the first week

of her fevers. Fevers last 3wks, then we get a couple of days of normalcy,

then right back at it.

It is really pretty hard dealing with this in a 2 1/2 yr old little girl.

She is such an angel and I keep asking why this happened. But we are all

learning to deal with it, live with it.

I am a single mom, trying to go to school as time allows. We recently moved

back home with my parents, so as to have a little extra help.

My birthday is 01-31 I am 22yrs

Tasie's birthday is 5-20-99 almost 3.

I am so happy to be a part of this group. I hope that together we can all

continue to gain more knowledge and grow with this.

Sincerely,

Casaria Tuttle

Salem, Oregon

---------------------------------

[Guest guest]

Hi Casaria

Just a short note to say welcome to the group! I know you will find lots of

support and help here when you need it, so don't hesitate to post.

Even though a lot older than your daughter, I am now 17, and was diagnosed

with Stills when i was 15, so like your daughter would be classed as having

the systemic juvenille RA, so if there is anything you'd like to know id be

pleased to try and help. It won't be easy for little Tasie but she will

grow up to be a strong determined girl, for sure. Good luck and lots of

love....Kate xxx

>

>Reply-To: Stillsdisease

>To: stillsdisease

>Subject: New to the group

>Date: Thu, 28 Mar 2002 12:31:07 -0800 (PST)

>

>

>Hello everyone. I send a big hello and lot's of luck to everyone going

>through this. My name is Casaria, my daughter Tasie who will be 3 in May

>has been diagnosed with Still's. We finally managed to get a diagnosis in

>February after fighting the " she has a cold " diagnosis for 2yrs. We are

>constantly battling the fevers of 103+ (which now has become her normal

>temperature), aches and pains in her knees and arms, and horrible eye pain.

> She was also born with clubfeet so it is making her walking even more

>difficult.

>

>We are not on any kind of medicinal treatment yet. Which makes things very

>difficult. She is constantly getting lung infections after the first week

>of her fevers. Fevers last 3wks, then we get a couple of days of normalcy,

>then right back at it.

>

>It is really pretty hard dealing with this in a 2 1/2 yr old little girl.

>She is such an angel and I keep asking why this happened. But we are all

>learning to deal with it, live with it.

>

>I am a single mom, trying to go to school as time allows. We recently

>moved back home with my parents, so as to have a little extra help.

>

>My birthday is 01-31 I am 22yrs

>

>Tasie's birthday is 5-20-99 almost 3.

>

>I am so happy to be a part of this group. I hope that together we can all

>continue to gain more knowledge and grow with this.

>

>Sincerely,

>

>Casaria Tuttle

>

>Salem, Oregon

>

>

>

>---------------------------------

>

[Guest guest]

Hi Casaria

Just a short note to say welcome to the group! I know you will find lots of

support and help here when you need it, so don't hesitate to post.

Even though a lot older than your daughter, I am now 17, and was diagnosed

with Stills when i was 15, so like your daughter would be classed as having

the systemic juvenille RA, so if there is anything you'd like to know id be

pleased to try and help. It won't be easy for little Tasie but she will

grow up to be a strong determined girl, for sure. Good luck and lots of

love....Kate xxx

>

>Reply-To: Stillsdisease

>To: stillsdisease

>Subject: New to the group

>Date: Thu, 28 Mar 2002 12:31:07 -0800 (PST)

>

>

>Hello everyone. I send a big hello and lot's of luck to everyone going

>through this. My name is Casaria, my daughter Tasie who will be 3 in May

>has been diagnosed with Still's. We finally managed to get a diagnosis in

>February after fighting the " she has a cold " diagnosis for 2yrs. We are

>constantly battling the fevers of 103+ (which now has become her normal

>temperature), aches and pains in her knees and arms, and horrible eye pain.

> She was also born with clubfeet so it is making her walking even more

>difficult.

>

>We are not on any kind of medicinal treatment yet. Which makes things very

>difficult. She is constantly getting lung infections after the first week

>of her fevers. Fevers last 3wks, then we get a couple of days of normalcy,

>then right back at it.

>

>It is really pretty hard dealing with this in a 2 1/2 yr old little girl.

>She is such an angel and I keep asking why this happened. But we are all

>learning to deal with it, live with it.

>

>I am a single mom, trying to go to school as time allows. We recently

>moved back home with my parents, so as to have a little extra help.

>

>My birthday is 01-31 I am 22yrs

>

>Tasie's birthday is 5-20-99 almost 3.

>

>I am so happy to be a part of this group. I hope that together we can all

>continue to gain more knowledge and grow with this.

>

>Sincerely,

>

>Casaria Tuttle

>

>Salem, Oregon

>

>

>

>---------------------------------

>

[Guest guest]

Dear Casaria & Tasie,

Your story is heartbreaking and makes me realize how lucky I am that I have this

horrible disease and not one of my children or a loved one. It must be so hard

to watch your daughter experience such pain and be powerless over it. Casaria,

I will keep you both in my prayers. Please keep in touch with us. This is one

amazing group of individuals. You will find so much support here. I have been

out of touch lately due to my own illness, but I hope I can soon rejoin the

group on a more regular basis. I miss them all so much when I'm out of touch,

but it's so hard when you don't feel well enough to type or even walk across the

room to the computer, which seems like miles away. I always feel so much love

and support when I'm here though. I hope you keep in touch so that you may

experience the same. You are an amazing mother to have been so persistant with

the doctors. You knew that it was more than a " cold " and your daughter is so

blessed to have a mother to fight for her the way you have.

Take good Care...Lots of love and many hugs,

Kim

---------------------------------

[Guest guest]

Dear Casaria & Tasie,

Your story is heartbreaking and makes me realize how lucky I am that I have this

horrible disease and not one of my children or a loved one. It must be so hard

to watch your daughter experience such pain and be powerless over it. Casaria,

I will keep you both in my prayers. Please keep in touch with us. This is one

amazing group of individuals. You will find so much support here. I have been

out of touch lately due to my own illness, but I hope I can soon rejoin the

group on a more regular basis. I miss them all so much when I'm out of touch,

but it's so hard when you don't feel well enough to type or even walk across the

room to the computer, which seems like miles away. I always feel so much love

and support when I'm here though. I hope you keep in touch so that you may

experience the same. You are an amazing mother to have been so persistant with

the doctors. You knew that it was more than a " cold " and your daughter is so

blessed to have a mother to fight for her the way you have.

Take good Care...Lots of love and many hugs,

Kim

---------------------------------

[Guest guest]

Carly, my name is Patty and welcome to our group. Congratulations on the

graduation, that is an amazing accomplishment even with the best of

circumstances.

We shall look forward to knowing you better. So, until soon, new friend,

Pattymelt

New to the Group

> Hello all!

> I just wanted to quickly introduce myself to the

> group. I just joined a few days ago. I became ill 1

> 1/2 years ago and was officially dianosed with AOSD

> just over one year ago, but I didn't know about this

> group until recently. I have posted comments on the

> message board in the past, however. When I became ill

> in December of 2000 I was about to start my last

> semester of college. As all of you know, especially

> at the onset of this disease, I was unable to finish.

> I had to move home and recoup for about 6 months. In

> August I was able to return to school but it's taken

> me two semesters to finish (I didn't want to overdo it

> when I first returned to the real world). But, I'm

> graduating from Brigham Young University in just 3

> days! I'm currently on 12mg Prednisone (recently

> tapered down from 15), 20mg MTX per week, 2 Enbrel

> injections/week and then of course the fun meds to

> counteract the side affects of the Prednisone. I'm

> highly functioning compared to where I was a year ago,

> but I'm not in remission yet and getting rather

> impatient. My body has been doing fairly well, but my

> hands and my wrists have problems frequently. I can't

> seem to drop below 12mg of Prednisone. Everytime I

> do, my body freaks out and I'm forced to go back up.

> My Dr doesn't know what's taking so long to get me

> into remission and would like to start me on Remicade

> but my family can't afford that huge cost right now as

> my dad has been out of a job for a year now.

> Enough about me, though. I wanted to thank everyone

> on this list and let you know how impressed I've been

> by the love and support each of you gives to the

> others in the group. I know that I've gone through

> some pretty hard times since diagnosed and I wish that

> I had known about this group back then. I just wanted

> to share with someone my excitement about finally

> graduating!

> Also, for those that have been experiencing dizziness,

> I actually experienced a lot of this at the onset of

> the disease. Before I even knew I was sicked I lost

> consciousness for just a few seconds one night, but I

> was standing so I fell and cut my lip. My Dr was

> never able to tell me whether it was related or not.

> Thanks to those who take the time to read this email.

> I look forward to getting to know each of you a little

> better. To those who are struggling physically and

> emotionally, I send my love and prayers for each of

> you. We're all here for you and may not understand

> everything you're going through, but we care and can

> offer a listening ear.

> Lots of love,

> Carly

>

> __________________________________________________

>

[Guest guest]

Hi Carly,

Welcome to the group and good luck on your Graduation. Question, are drugs

expensive in America? Here in England, they cost about £5.00 odd per

prescription. However, as I'm a mature student at University, we get an

income supplement and therefore our prescriptions are free until such time as

our income expands. Is this the way things work in the States?

Take care, we wish you health and happiness,

a and Oliver (Oliver is the one with Stills-aged 5)

[Guest guest]

Hi

Welcome to the group. Im Kate, 18 from England. Where do you live?

You will find lots of help here, ask all the questions you need to, there

are some members very knowledgeable about Stills and always friendly and

willing to listen and help. Take care both you and your father, love Kate

xxx

>

>Reply-To: Stillsdisease

>To: Stillsdisease

>Subject: new to the group

>Date: Wed, 24 Apr 2002 07:29:59 -0700 (PDT)

>

>Hello,

> my name is Soutar, and i have recently

>joined the group and after a week of observing i am

>making my presence known.

> Actually i do not have Stills but my father

>was diagnosed last year. The past year has been a

>real adjustment for him. Also it has been a bit

>lonely having no one to share with, being the only

>documented case of stills in my country. I came upon

>this site recently and had to join not only for me as

>a concerned family member but on behalf of my father.

>So many times although you will be seeing my name i

>will be typing on behalf of him.(pain in the wrists)

> Since his diagnosis he has been on Celebrex

>as his main medication but since two weeks ago it was

>changed to Prednisone and since then he has suffered

>his first full relapse in a year.

>

>__________________________________________________

>

[Guest guest]

Hi

Welcome to the group. Im Kate, 18 from England. Where do you live?

You will find lots of help here, ask all the questions you need to, there

are some members very knowledgeable about Stills and always friendly and

willing to listen and help. Take care both you and your father, love Kate

xxx

>

>Reply-To: Stillsdisease

>To: Stillsdisease

>Subject: new to the group

>Date: Wed, 24 Apr 2002 07:29:59 -0700 (PDT)

>

>Hello,

> my name is Soutar, and i have recently

>joined the group and after a week of observing i am

>making my presence known.

> Actually i do not have Stills but my father

>was diagnosed last year. The past year has been a

>real adjustment for him. Also it has been a bit

>lonely having no one to share with, being the only

>documented case of stills in my country. I came upon

>this site recently and had to join not only for me as

>a concerned family member but on behalf of my father.

>So many times although you will be seeing my name i

>will be typing on behalf of him.(pain in the wrists)

> Since his diagnosis he has been on Celebrex

>as his main medication but since two weeks ago it was

>changed to Prednisone and since then he has suffered

>his first full relapse in a year.

>

>__________________________________________________

>

[Guest guest]

Dear & Dad,

I want to welcome you to our wonderful support group. We are here for you

both, all of us. My name is Sue, known here as Sue #2, and I live in

Connecticut. I found out I had stills almost two years ago, after a three

year battle of questions, many doctors, millions of tests and mis-diagnosis.

Please tell your dad , that his feelings are very validated, and I

completely understand the feelings of being alone through all of this. It

is a very hard disease to accept and deal with on a daily basis until you

can " fall " into some kind of remission. The people here are very caring and

understanding, because we are going through what you are facing also. I

have learned so much about this disease since I joined here, that at times,

I feel that I know more than my doctor. I am also on Celebrex. I am also

on a drug called Plaquenil. I am also on prednisone, colchicine and other

small meds. A lot of people are on different drugs here, because we are all

at different stages of this disease. I hope that you will much comfort here

My best to both of you and I look forward to talking more with you.

Sincerely, Sue #2

-- new to the group

Hello,

my name is Soutar, and i have recently

joined the group and after a week of observing i am

making my presence known.

Actually i do not have Stills but my father

was diagnosed last year. The past year has been a

real adjustment for him. Also it has been a bit

lonely having no one to share with, being the only

documented case of stills in my country. I came upon

this site recently and had to join not only for me as

a concerned family member but on behalf of my father.

So many times although you will be seeing my name i

will be typing on behalf of him.(pain in the wrists)

Since his diagnosis he has been on Celebrex

as his main medication but since two weeks ago it was

changed to Prednisone and since then he has suffered

his first full relapse in a year.

__________________________________________________

[Guest guest]

Dear & Dad,

I want to welcome you to our wonderful support group. We are here for you

both, all of us. My name is Sue, known here as Sue #2, and I live in

Connecticut. I found out I had stills almost two years ago, after a three

year battle of questions, many doctors, millions of tests and mis-diagnosis.

Please tell your dad , that his feelings are very validated, and I

completely understand the feelings of being alone through all of this. It

is a very hard disease to accept and deal with on a daily basis until you

can " fall " into some kind of remission. The people here are very caring and

understanding, because we are going through what you are facing also. I

have learned so much about this disease since I joined here, that at times,

I feel that I know more than my doctor. I am also on Celebrex. I am also

on a drug called Plaquenil. I am also on prednisone, colchicine and other

small meds. A lot of people are on different drugs here, because we are all

at different stages of this disease. I hope that you will much comfort here

My best to both of you and I look forward to talking more with you.

Sincerely, Sue #2

-- new to the group

Hello,

my name is Soutar, and i have recently

joined the group and after a week of observing i am

making my presence known.

Actually i do not have Stills but my father

was diagnosed last year. The past year has been a

real adjustment for him. Also it has been a bit

lonely having no one to share with, being the only

documented case of stills in my country. I came upon

this site recently and had to join not only for me as

a concerned family member but on behalf of my father.

So many times although you will be seeing my name i

will be typing on behalf of him.(pain in the wrists)

Since his diagnosis he has been on Celebrex

as his main medication but since two weeks ago it was

changed to Prednisone and since then he has suffered

his first full relapse in a year.

__________________________________________________

[Guest guest]

Welcome and dad. There are a few members that are here in support

of others. We look forward to knowing you both, till soon, Patty also Melt

:0)

new to the group

> Hello,

> my name is Soutar, and i have recently

> joined the group and after a week of observing i am

> making my presence known.

> Actually i do not have Stills but my father

> was diagnosed last year. The past year has been a

> real adjustment for him. Also it has been a bit

> lonely having no one to share with, being the only

> documented case of stills in my country. I came upon

> this site recently and had to join not only for me as

> a concerned family member but on behalf of my father.

> So many times although you will be seeing my name i

> will be typing on behalf of him.(pain in the wrists)

> Since his diagnosis he has been on Celebrex

> as his main medication but since two weeks ago it was

> changed to Prednisone and since then he has suffered

> his first full relapse in a year.

>

> __________________________________________________

>

[Guest guest]

Hi, this is Caroline. Welcome, and sorry to hear about your dad. Are you saying

they took him off Celebrex and put him on Prednisone? or that they added

Prednisone to his Celebrex? I thought you could take both at the same time. I

take Relefin ( a similar product), Prednisone, and Methotrexate injections for

the Stills. What kind of relapse? and how severe? How can we help?

Smiles, and cheers to you for loving your father enough to be involved in his

pain and illness with him.

Caroline

Soutar wrote: Hello,

my name is Soutar, and i have recently

joined the group and after a week of observing i am

making my presence known.

Actually i do not have Stills but my father

was diagnosed last year. The past year has been a

real adjustment for him. Also it has been a bit

lonely having no one to share with, being the only

documented case of stills in my country. I came upon

this site recently and had to join not only for me as

a concerned family member but on behalf of my father.

So many times although you will be seeing my name i

will be typing on behalf of him.(pain in the wrists)

Since his diagnosis he has been on Celebrex

as his main medication but since two weeks ago it was

changed to Prednisone and since then he has suffered

his first full relapse in a year.

__________________________________________________

[Guest guest]

Hi, this is Caroline. Welcome, and sorry to hear about your dad. Are you saying

they took him off Celebrex and put him on Prednisone? or that they added

Prednisone to his Celebrex? I thought you could take both at the same time. I

take Relefin ( a similar product), Prednisone, and Methotrexate injections for

the Stills. What kind of relapse? and how severe? How can we help?

Smiles, and cheers to you for loving your father enough to be involved in his

pain and illness with him.

Caroline

Soutar wrote: Hello,

my name is Soutar, and i have recently

joined the group and after a week of observing i am

making my presence known.

Actually i do not have Stills but my father

was diagnosed last year. The past year has been a

real adjustment for him. Also it has been a bit

lonely having no one to share with, being the only

documented case of stills in my country. I came upon

this site recently and had to join not only for me as

a concerned family member but on behalf of my father.

So many times although you will be seeing my name i

will be typing on behalf of him.(pain in the wrists)

Since his diagnosis he has been on Celebrex

as his main medication but since two weeks ago it was

changed to Prednisone and since then he has suffered

his first full relapse in a year.

__________________________________________________

[Guest guest]

Carly,

Congratulations to you for finishing up your degree. You should be so proud of

yourself. I had to drop out with only 3 class to finish before obtaining my

degree. It was a hard decision to make and it still causes me a lot of pain at

times. I think I may try a class this summer. I really need to focus on getting

better though and school causes me so much stress. I'm the type that has to

make straight A's or I freak and that's not a good thing. I need to work on

that issue as well. I have a lot to do to work on me. Anyway, I am so proud of

you for being able to accomplish this and I'm so glad that you found us. Please

keep posting letting us know how you are doing both with your health and all

your endeavors. This is an exciting time in your life.

Best Wishes, Love and Hugs, Kim

Carly Racker wrote: Hello all!

I just wanted to quickly introduce myself to the

group. I just joined a few days ago. I became ill 1

1/2 years ago and was officially dianosed with AOSD

just over one year ago, but I didn't know about this

group until recently. I have posted comments on the

message board in the past, however. When I became ill

in December of 2000 I was about to start my last

semester of college. As all of you know, especially

at the onset of this disease, I was unable to finish.

I had to move home and recoup for about 6 months. In

August I was able to return to school but it's taken

me two semesters to finish (I didn't want to overdo it

when I first returned to the real world). But, I'm

graduating from Brigham Young University in just 3

days! I'm currently on 12mg Prednisone (recently

tapered down from 15), 20mg MTX per week, 2 Enbrel

injections/week and then of course the fun meds to

counteract the side affects of the Prednisone. I'm

highly functioning compared to where I was a year ago,

but I'm not in remission yet and getting rather

impatient. My body has been doing fairly well, but my

hands and my wrists have problems frequently. I can't

seem to drop below 12mg of Prednisone. Everytime I

do, my body freaks out and I'm forced to go back up.

My Dr doesn't know what's taking so long to get me

into remission and would like to start me on Remicade

but my family can't afford that huge cost right now as

my dad has been out of a job for a year now.

Enough about me, though. I wanted to thank everyone

on this list and let you know how impressed I've been

by the love and support each of you gives to the

others in the group. I know that I've gone through

some pretty hard times since diagnosed and I wish that

I had known about this group back then. I just wanted

to share with someone my excitement about finally

graduating!

Also, for those that have been experiencing dizziness,

I actually experienced a lot of this at the onset of

the disease. Before I even knew I was sicked I lost

consciousness for just a few seconds one night, but I

was standing so I fell and cut my lip. My Dr was

never able to tell me whether it was related or not.

Thanks to those who take the time to read this email.

I look forward to getting to know each of you a little

better. To those who are struggling physically and

emotionally, I send my love and prayers for each of

you. We're all here for you and may not understand

everything you're going through, but we care and can

offer a listening ear.

Lots of love,

Carly

__________________________________________________

[Guest guest]

Carly,

Congratulations to you for finishing up your degree. You should be so proud of

yourself. I had to drop out with only 3 class to finish before obtaining my

degree. It was a hard decision to make and it still causes me a lot of pain at

times. I think I may try a class this summer. I really need to focus on getting

better though and school causes me so much stress. I'm the type that has to

make straight A's or I freak and that's not a good thing. I need to work on

that issue as well. I have a lot to do to work on me. Anyway, I am so proud of

you for being able to accomplish this and I'm so glad that you found us. Please

keep posting letting us know how you are doing both with your health and all

your endeavors. This is an exciting time in your life.

Best Wishes, Love and Hugs, Kim

Carly Racker wrote: Hello all!

I just wanted to quickly introduce myself to the

group. I just joined a few days ago. I became ill 1

1/2 years ago and was officially dianosed with AOSD

just over one year ago, but I didn't know about this

group until recently. I have posted comments on the

message board in the past, however. When I became ill

in December of 2000 I was about to start my last

semester of college. As all of you know, especially

at the onset of this disease, I was unable to finish.

I had to move home and recoup for about 6 months. In

August I was able to return to school but it's taken

me two semesters to finish (I didn't want to overdo it

when I first returned to the real world). But, I'm

graduating from Brigham Young University in just 3

days! I'm currently on 12mg Prednisone (recently

tapered down from 15), 20mg MTX per week, 2 Enbrel

injections/week and then of course the fun meds to

counteract the side affects of the Prednisone. I'm

highly functioning compared to where I was a year ago,

but I'm not in remission yet and getting rather

impatient. My body has been doing fairly well, but my

hands and my wrists have problems frequently. I can't

seem to drop below 12mg of Prednisone. Everytime I

do, my body freaks out and I'm forced to go back up.

My Dr doesn't know what's taking so long to get me

into remission and would like to start me on Remicade

but my family can't afford that huge cost right now as

my dad has been out of a job for a year now.

Enough about me, though. I wanted to thank everyone

on this list and let you know how impressed I've been

by the love and support each of you gives to the

others in the group. I know that I've gone through

some pretty hard times since diagnosed and I wish that

I had known about this group back then. I just wanted

to share with someone my excitement about finally

graduating!

Also, for those that have been experiencing dizziness,

I actually experienced a lot of this at the onset of

the disease. Before I even knew I was sicked I lost

consciousness for just a few seconds one night, but I

was standing so I fell and cut my lip. My Dr was

never able to tell me whether it was related or not.

Thanks to those who take the time to read this email.

I look forward to getting to know each of you a little

better. To those who are struggling physically and

emotionally, I send my love and prayers for each of

you. We're all here for you and may not understand

everything you're going through, but we care and can

offer a listening ear.

Lots of love,

Carly

__________________________________________________

[Guest guest]

Hi Elizabth,

Welcome to the group! I have a son who is also 13. He is in the 7th grade

and really doesn't care for school much, except for lunch time and music

I will be very interested in hearing your opinions on topics as they pop

up - a warning though - this group has been very politically oriented

lately - could be kind of dull for a 13 year old.

Ronnie

new to the group

Hi,

I'm . I am 13 and have Asperger's Syndrome. I don't want

to be treated differently from the adults, though. I will understand

most things, I just think the HASTeens group got too much into Freud,

way over my head.

Unlocking Autism

www.UnlockingAutism.org

Autism-Awareness-Action

Worldwide internet group for parents who have a

child with AUTISM.

Schafer Autism Report

News and information on Autism

To Subscribe http://home.sprynet.com/~schafer/index.html

Healing Autism: No Finer Cause on the Planet

[Guest guest]

Hi ,

Welcome to the group. We look forward to your input. One thing you may be

able to help with is some suggestions on how to tell a teenager he's been

diagnosed with Asperger Syndrome and how to help him adjust to the diagnosis.

Any ideas?

Gaylen

[Guest guest]

Hi ,

I too would like to say welcome. While I usually lurk, I too will be glad to

hear what your take on things are from time to time.I am the mother and aunt of

kids affected by asd. Hope this group does as much for you as it has for me.

new to the group

Hi,

I'm . I am 13 and have Asperger's Syndrome. I don't want

to be treated differently from the adults, though. I will understand

most things, I just think the HASTeens group got too much into Freud,

way over my head.

[Guest guest]

Don't worry,

I doubt it will get as political as the HASTeens group. Talking about the

thinking of Freud and his theories was not as boring as some school classes.

Anyway, it doesn't matter, I'm here just to learn and help others with my

opinions.

P.S. Did you see the movie about a bus for special needs kids that was

hijacked?

It's called Terror Ahead:The Hijacking of Bus 17. It really tests your

knowledge of disabilities to figure out the disability in each kid.

---------------------------------

[Guest guest]

,

Thanks for the welcome. I think something your kids might appreciate something

(I did) called Jeanne Lyons Gather Stars For Your Children. She sings songs for

teaching social skills. Some songs are " Perseveration Station " , " Way Down

Deep(We're Mostly the Same) " , " Flexibility " , " (positive song about a

nonverbal child) " , and " Personal Space Invader " . Look her up and you can order

her stuff for a low price and hear samples on her web page.

---------------------------------

[Guest guest]

,

Thanks, I am always looking for good teaching material.

Re: new to the group

,

Thanks for the welcome. I think something your kids might appreciate

something (I did) called Jeanne Lyons Gather Stars For Your Children. She sings

songs for teaching social skills. Some songs are " Perseveration Station " , " Way

Down Deep(We're Mostly the Same) " , " Flexibility " , " (positive song

about a nonverbal child) " , and " Personal Space Invader " . Look her up and you

can order her stuff for a low price and hear samples on her web page.

---------------------------------

[Guest guest]

we use dr for the bio med stuff and just changed to dr visootak

(developmental pediatric specialists) for our dev ped who didnt shun

the diet and bio med stuff.

>

> Try Dr Jonh Hicks....www.pathwaysmedicaladvocates.com

> Cale