RE: Prescription Medications and our Children MY opinion

[Guest guest]

Hi much long time to heared from you and wondered on you much so.

Sondra

[Guest guest]

That was the one thing I was certain of when Hope was diagnosed and I

started reading about all the medications that doctors try to use for

children with autism. Hope already takes medications for her seizures and

migraines (although we're starting to wean her off the migraine medication

and hopefulyl she can do without it). The last thing I wanted was for her

to be put on medications that who knows what they would do to her down the

road. I feel bad enough when she was able to tell me about her stomach

aches, and here I was feeding her things that caused her pain. I couldnt

even imagine how I'd feel if I let a doctor medicate her, and then find out

when she's 30 that she can't have kids because of it. That's a hypotetical

of course, but you never know what could happen. Some of those medications

have some really nasty possible side effects.

luckily the psychologist we have at Children's hospital and the one we have

coordinating her treatment locally are all for biomedical interventions and

therapy first, and try medications as a last resort. I approached them

about a GFCF diet and they were more than happy to guide me in the right

directions for it. Her neurologist yesterday just suggested some enzymes

and acidopholis (sp) to help her heal and help with any cross-contamination

issues we might come across. He also suggested an epsom salt bath, and

we've already been doing that. Hope falls a lot and gets sore muscles, so I

started putting salts in her bath for that. It helped her rest so much

better I started it with her sister as well.

We're still very early in Hope's treatment plan, and the more natural route

may not work. But at least I'll know we tried to avoid the medications

first.

Toni W. - BP mom to

Hope, 4, Seizure disorder, Verbal apraxia, Migraines, Austim

and

Faith, 2, Mild CP, Hypotonia, Asthma, Sensory Integration Dysfunction

website: www.merlins-avalon.com

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http://affiliate.doteasy.com/index.cfm?M=red & B=2 & T=544669 & A=designermom

[Guest guest]

Hi !

I was just wondering what enzyme you are giving your daughter for the

gluten/casein sensitivity? I have problems with the gfcf diet as well. Thanks

Janet In KC

________________________________

From: laurazr2003

Sent: Fri 6/18/2004 7:25 AM

To: Autism_in_Girls

Subject: Prescription Medications and our Children MY opinion

To all my Dear Friends here new and old -- PLEASE, PLEASE do not

medicate your children unless there is a specific reason, medically

documented from a neurologist or your personal pediatrician (sp?).

Try all the homo-path methods first:

Epsom Salt Baths (most of our children have a sulfate defiency (sp?)

epsom salts calms my autistic daughter, she sleeps better and has

less behaviors and sensory out bursts.

Swimming pools (sensory calmer)our kids love water, toilet water,

dish water, pond water etc.

Speech/Occupational and Physical therapy, Sensory Integration

therapy - if your child is enrolled in a school this can be put on

their IEP and MUST be provided especially if your childs

neurologist/pediatrician writes a letter or just a prescription for

it.

Every one should visit www.kirkmanlabs.com, there you will find

sulfate cream if you don't have a bath tub to give them epson salts

baths, you apply to their backs and the skin absorbs the sulfate. I

only have a shower here so it works for ie and me.

ie is also on the Super-Theru has all the vitamins and minerals

our kids need and loads of the B vitamins, A fatty fish oil) etc.

check out the website for yourself and discuss it with your

neurologist/pediatrican, the Enyzme Aid (for casein/gluten

sensitivity, the diet program to remove casesin and gluten is too

restrictive for my family, (I give HIGHEST praise to those who have

een able to do it successfully).

I have had ie on Paxil 1 1/2 cc's at bedtime since 2000 (age 6)

She is now age 10 and I just stopped the Paxil 6/7/04. We went on a

Girl Scout camp out weekend and I had forgot it, so she didn't have

it Saturday the day we left, Sunday or Monday - in just that time her

cognitive (understanding), receptive (answering questions, following

directions) increased almost 45 % . AND she is no longer

zoning....just staring at a fly on the window or in space. So I

called my neurologist and pediatrician and they both told me to not

give it to her for the summer. She might need it once she starts

back to school because of the sensory stressor our children incurr,

noise levels increase 85% (cafeteria, classroom, play ground etc.

florescent lights that buzz constantly, fire alarms that scream in

the concrete buiilding most schools are built with (Auditory

Integration therapy can help with the hearing sensitivities).

Hope this helps, I am NOT preaching or despencing advice without a

license, I am just a mother like all of you, who have combed the

internet, read every book I could beg borrow of steal on Autism,

because I was so determined to help ie have a winning chance in

our world.

Much Love,

, ie's Mom

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[Guest guest]

Dear List:

Hi all! I was very steadfast in not wanting my 13 yr old daughter on meds

either, but this summer I had to break down and give in. With puberty looming,

her moodiness and her agression towards herself and towards other (me

included) has been very hard to deal with. She also has huge OCD issues. When

she

gets upset, which lately, could be as quick as snapping your fingers, she has a

terrible time calming down from it. That cannot be healthy for her either.

Since we started her on a very low dose of Zoloft about a month ago, she is

happier, although we still have some upsets.

I commend all of you who are successful at not having to go the meds route...

Jill

[Guest guest]

,

I too would like to know what enzyme you give your daughter. Also I never

did receive the info about the ABA, that you sent me. Can you send it

again??

Thanks!

Penny in OH

's Mom

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