Re: New Member

[Guest guest]

Yep, daily shots. Pretty strange for a former IV drug

user! I’d been using an interferon pen, so that was easy, but I was

also on Procrit due to low red counts so I know how to do this.

" Running

is to dogs what dancing is to people.

It is

their way to get into the rhythm of the universe. "

~Stanley

Coren~

" I did then what I knew then and when I knew better, I did

better. "

~Maya Angelou~

From:

HepatitisCSupportGroupForDummies

[mailto:HepatitisCSupportGroupForDummies ] On Behalf Of

Motley

Sent: Friday, March 07, 2008 12:27 PM

To: HepatitisCSupportGroupForDummies

Subject: RE: New member

Welcome, .

We’re glad to have you with us. Will you be doing infergen

daily? You’re on the right track -- Never give up the fight.

Hugs,

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[Guest guest]

Hi , Welcome nice to meet you (mmoo) Matchinsky wrote: Yep, daily shots. Pretty strange for a former IV drug user! I’d been using an interferon pen, so that was easy, but I was also on Procrit due to low red counts so I know how to do this. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did

then what I knew then and when I knew better, I did better." ~Maya Angelou~ From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of MotleySent: Friday, March 07, 2008 12:27 PMTo: HepatitisCSupportGroupForDummies Subject: RE: New member Welcome, . We’re glad to have you with us. Will you be doing infergen daily? You’re on the right track -- Never give up the fight. Hugs, No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date: 3/7/2008 8:15 AM LINDA

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Good, . You need good care at this time. Hugs, VickieG

RE: New member

I like this doctor better than the first one I had. They did not seem to care, and missed important labs. This new doc is a liver specialist, while the other was a gastro-enterologist . He seems to care, and so does his staff. Besides, you know how insurance is. He¢s the only one who is in-network.

"Running is to dogs what dancing is to people.

It is their way to get into the rhythm of the universe."

~Stanley Coren~

"I did then what I knew then and when I knew better, I did better."

~Maya Angelou~

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[Guest guest]

Likewise, I’m sure!

" Running

is to dogs what dancing is to people.

It is

their way to get into the rhythm of the universe. "

~Stanley

Coren~

" I did then what I knew then and when I knew better, I did

better. "

~Maya Angelou~

From:

HepatitisCSupportGroupForDummies

[mailto:HepatitisCSupportGroupForDummies ] On Behalf Of

Lauterio

Sent: Friday, March 07, 2008 12:40 PM

To: HepatitisCSupportGroupForDummies

Subject: RE: New member

Hi , Welcome nice to meet you (mmoo)

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[Guest guest]

Hi , welcome to our family!

Fem

RE: [HepatitisCSupportG roupForDummies] New member

Hi , Welcome nice to meet you (mmoo)

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Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Thanks!

" Running

is to dogs what dancing is to people.

It is

their way to get into the rhythm of the universe. "

~Stanley

Coren~

" I did then what I knew then and when I knew better, I did

better. "

~Maya Angelou~

From: HepatitisCSupportGroupForDummies

[mailto:HepatitisCSupportGroupForDummies ] On Behalf Of FEM

Sent: Friday, March 07, 2008 3:00 PM

To: HepatitisCSupportGroupForDummies

Subject: Re: New member

Hi , welcome to our family!

Fem

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[Guest guest]

Hi its nice to met you. My name is D and I am 23 and have probley had hcv for 4 years but not really sure. I am glad to hear that you have been sober for that long. Congrat's on that. Good luck with treatment and let us know how things go for you wrote: Hi. My name is Matchinsky, from Des Moines IA USA. I haveHep C, and genotype 1A and have gone through 2 treatments withPegIntron. Actually, call that 1 and ½. My insurance company stoppedthe second treatment

before it was complete. Their argument has beenthat 72 weeks of treatment is "investigational and experimental." Mydoctor's argument is that I've already relapsed after 48 weeks, twice,and anything less than 72 weeks would be futile. I am a quickresponder, so there is hope.My wife's employer (where the insurance is from) is actuallyself-insured with an insurance company managing the program. Theyhave seen fit to grant an exception to the policy and I will bestarting 72 weeks of Infergen treatment next weekhttp://www.infergen.com/3-About_Infergen/. I'm not sure how good thatis; I seem to react strongly to interferon. Still, I'm not ready togive up.I have a Master's in psychology and teach part-time at the localcommunity college. I've been playing with computers since 1985, andlike using the web for information, though I try not to

believeeverything I read.The doctor is telling me that I will be needing a transplant, with orwithout successful treatment for the Hep C. (I also have fatty liverdisease). Not sure if he was trying to scare me, but it did. It isgetting worse, and though I only teach one class, it is a struggle.It was almost 20 years ago that I contracted Hep C. I was an IVcocaine user, but I've been clean and sober for 19 years now. I stillwork the 12 Steps, and have lots of support through meetings. Icontinue to look for support. I also have a HCV Anonymous group, butit isn't very active. http://groups.yahoo.com/group/HCVA

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

I will.  I guess many of us are not sure where and when we got

the bug, but I’m pretty sure shooting cocaine and sharing needles didn’t

help.

" Running

is to dogs what dancing is to people.

It is

their way to get into the rhythm of the universe. "

~Stanley

Coren~

" I did then what I knew then and when I knew better, I did

better. "

~Maya Angelou~

From: HepatitisCSupportGroupForDummies

[mailto:HepatitisCSupportGroupForDummies ] On Behalf Of

Doyle

Sent: Friday, March 07, 2008 3:19 PM

To: HepatitisCSupportGroupForDummies

Subject: Re: New member

Hi its nice to met you. My name is D and I am

23 and have probley had hcv for 4 years but not really sure. I am glad to hear

that you have been sober for that long. Congrat's on that. Good luck with

treatment and let us know how things go for you

wrote:

Hi. My name is

Matchinsky, from Des Moines IA USA. I have

Hep C, and genotype 1A and have gone through 2 treatments with

PegIntron. Actually, call that 1 and ½. My insurance company stopped

the second treatment before it was complete. Their argument has been

that 72 weeks of treatment is " investigational and experimental. " My

doctor's argument is that I've already relapsed after 48 weeks, twice,

and anything less than 72 weeks would be futile. I am a quick

responder, so there is hope.

My wife's employer (where the insurance is from) is actually

self-insured with an insurance company managing the program. They

have seen fit to grant an exception to the policy and I will be

starting 72 weeks of Infergen treatment next week

http://www.infergen.com/3-About_Infergen/.

I'm not sure how good that

is; I seem to react strongly to interferon. Still, I'm not ready to

give up.

I have a Master's in psychology and teach part-time at the local

community college. I've been playing with computers since 1985, and

like using the web for information, though I try not to believe

everything I read.

The doctor is telling me that I will be needing a transplant, with or

without successful treatment for the Hep C. (I also have fatty liver

disease). Not sure if he was trying to scare me, but it did. It is

getting worse, and though I only teach one class, it is a struggle.

It was almost 20 years ago that I contracted Hep C. I was an IV

cocaine user, but I've been clean and sober for 19 years now. I still

work the 12 Steps, and have lots of support through meetings. I

continue to look for support. I also have a HCV Anonymous group, but

it isn't very active. http://groups.yahoo.com/group/HCVA

 

Never miss a thing. Make Yahoo

your homepage.

No virus found in this incoming message.

Checked by AVG Free Edition.

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AM

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[Guest guest]

Hun, You don't have to tell everyone Thanks separately, just one Thanks Everybody will do it. SuZie Matchinsky wrote: Thanks! "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did better." ~Maya Angelou~ From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of FEMSent: Friday, March 07, 2008 3:00 PMTo:

HepatitisCSupportGroupForDummies Subject: Re: New member Hi , welcome to our family! Fem No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date: 3/7/2008 8:15 AM

Next time I'm coming back as a cat

[Guest guest]

Hi ,

Welcome to the group.

My name is , I am 52 and will be 7 years post transplant this August. When I was diagnosed I had ESLD and couldn't treat. I went downhill pretty fast, went through bad encephalopathy, and had a transplant after only 4 months on the waiting list. That all went well so I tried treatment and responded the first try but had a stroke at 26 weeks and had to stop.

I had to find another DR to treat me again so I went to Jewish Hospital in Saint Louis.

I had stage 3 fibrosis in my graft (what they call your new liver) That's why I had to treat again. The second time I went 52 weeks and was undetectable, but at 6 months they check you again and it came back.

I gained weight on treatment and really needed to lose some so now I've got a weight problem also.

The lap band may be a good idea for you, many have lost a lot of weight and it is not a huge surgery.

I checked into it but because I take antirejection drugs they would not do it.

Have you had a biopsy? It is really important to find out how much damage you have.

RE: New member

I like this doctor better than the first one I had. They did not seem to care, and missed important labs. This new doc is a liver specialist, while the other was a gastro-enterologist. He seems to care, and so does his staff. Besides, you know how insurance is. He’s the only one who is in-network.

"Running is to dogs what dancing is to people.

It is their way to get into the rhythm of the universe."

~Stanley Coren~

"I did then what I knew then and when I knew better, I did better."

~Maya Angelou~

No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date: 3/7/2008 8:15 AM

I am using the free version of SPAMfighter for private users.It has removed 291 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

[Guest guest]

Hi michael & welcome

Im patty,aka pooh..,57 san antonio, Texas, geno 1,undetectable 6 yrs soon. Ive had a hellava week and will catch up with everyone soon..hugs, Patty

RE: New member

Likewise, I’m sure!

"Running is to dogs what dancing is to people.

It is their way to get into the rhythm of the universe."

~Stanley Coren~

"I did then what I knew then and when I knew better, I did better."

~Maya Angelou~

From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of LauterioSent: Friday, March 07, 2008 12:40 PMTo: HepatitisCSupportGroupForDummies Subject: RE: New member

Hi , Welcome nice to meet you (mmoo)

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[Guest guest]

Hi ,My name is Dannella aka d I have been overweight as long as I can recall. I had the Lap Band surgery in April 2007. I had lost 43 lbs and then had to be off some of my meds since December. One thing after another kept me from the dr. Now I have gained 6 of those 43 back. BUT I am seeing the dr (I hope) on tuesday and hope to get back on my thyroid meds. I have some tips that helped me lose weight even before surgery. I will get some info together for you or anyone else wanting to lose weight. Nice to have you as part of our family.d-----

Original Message ----To: HepatitisCSupportGroupForDummies Sent: Friday, March 7, 2008 11:52:52 AMSubject: RE: New member

I do think the doctor was trying to scare me- he also said I had

hepatic encephalopathy. I went to a neurologist, and she said I had essential

tremors (essential being medical speak for “of unknown origin”).

My psychiatrist added another anti-depressant, and my cognitive abilities have

improved. I am very overweight, and the doc put me on a 1500 calorie a day

diet. I’m 52 and tried many times to lose weight, but this time I seem

motivated. I am a responder but the virus comes back. I have mixed

feelings about this new treatment as I have strong reactions to the interferon

and/or ribavirin, but I’ll do whatever it takes. Thanks to everyone for the warm welcome!

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

We’ve looked into the lap band, but our insurance and they’re

funky about it. They don’t pay as much, and won’t pay as much

for any complications. Still, I believe I am motivated this time to lose

the weight. I’ve done it before. When I was young, I wanted

to join the Army (seemed like a good idea at the time). I lost 70 pounds

in 3 months. ( They turned me down due to a juvenile record.)

I’ve had 2 biopsies and went from stage 0 to stage 3 in 2

years. That seems pretty fast to me?

" Running

is to dogs what dancing is to people.

It is

their way to get into the rhythm of the universe. "

~Stanley

Coren~

" I did then what I knew then and when I knew better, I did

better. "

~Maya Angelou~

From:

HepatitisCSupportGroupForDummies

[mailto:HepatitisCSupportGroupForDummies ] On Behalf Of

Sent: Friday, March 07, 2008 4:12 PM

To: HepatitisCSupportGroupForDummies

Subject: Re: New member

Hi

,

Welcome

to the group.

My

name is , I am 52 and will be 7 years post transplant this

August. When I was diagnosed I had ESLD and couldn't treat. I went downhill

pretty fast, went through bad encephalopathy, and had a transplant after only 4

months on the waiting list. That all went well so I tried treatment and

responded the first try but had a stroke at 26 weeks and had to stop.

I

had to find another DR to treat me again so I went to Jewish Hospital in

Saint Louis.

I

had stage 3 fibrosis in my graft (what they call your new liver) That's why I

had to treat again. The second time I went 52 weeks and was undetectable, but

at 6 months they check you again and it came back.

I

gained weight on treatment and really needed to lose some so now I've got a weight

problem also.

The

lap band may be a good idea for you, many have lost a lot of weight and it is

not a huge surgery.

I

checked into it but because I take antirejection drugs they would not do it.

Have

you had a biopsy? It is really important to find out how much damage you have.

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date: 3/7/2008 8:15 AM

[Guest guest]

Hi Everyone, I was told by one DR I probaly got itmin 61 when I had my first 6 blood transfusione's but between 91 nad 94 I hade 11, they weren't testing blood for it untill 92 does anyone know about this? I don't know when I got this s..t, but I found out in 97, HUG'S linda (moo) thank you all Matchinsky wrote: I will. I guess many of us are not sure where and when we got the bug, but I’m

pretty sure shooting cocaine and sharing needles didn’t help. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did better." ~Maya Angelou~ From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of DoyleSent: Friday, March 07, 2008

3:19 PMTo: HepatitisCSupportGroupForDummies Subject: Re: New member Hi its nice to met you. My name is D and I am 23 and have probley had hcv for 4 years but not really sure. I am glad to hear that you have been sober for that long. Congrat's on that. Good luck with treatment and let us know how things go for you <michaelboxernest (DOT) net> wrote: Hi. My name is Matchinsky, from Des Moines IA USA. I haveHep C, and genotype 1A and have gone through 2 treatments withPegIntron. Actually, call that

1 and ½. My insurance company stoppedthe second treatment before it was complete. Their argument has beenthat 72 weeks of treatment is "investigational and experimental." Mydoctor's argument is that I've already relapsed after 48 weeks, twice,and anything less than 72 weeks would be futile. I am a quickresponder, so there is hope.My wife's employer (where the insurance is from) is actuallyself-insured with an insurance company managing the program. Theyhave seen fit to grant an exception to the policy and I will bestarting 72 weeks of Infergen treatment next weekhttp://www.infergen.com/3-About_Infergen/. I'm not sure how good thatis; I seem to react strongly to interferon. Still, I'm not ready togive up.I have a Master's in psychology and teach part-time at the localcommunity college. I've been playing with computers since 1985, andlike

using the web for information, though I try not to believeeverything I read.The doctor is telling me that I will be needing a transplant, with orwithout successful treatment for the Hep C. (I also have fatty liverdisease). Not sure if he was trying to scare me, but it did. It isgetting worse, and though I only teach one class, it is a struggle.It was almost 20 years ago that I contracted Hep C. I was an IVcocaine user, but I've been clean and sober for 19 years now. I stillwork the 12 Steps, and have lots of support through meetings. Icontinue to look for support. I also have a HCV Anonymous group, butit isn't very active. http://groups.yahoo.com/group/HCVA Never miss a thing. Make Yahoo your homepage. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date: 3/7/2008 8:15 AM No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date: 3/7/2008 8:15 AM LINDA

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Hi, moo. I had a car accident in 1984 in which I hand many blood transfusions. I'm sure that's where I got my hep-c as I never did drugs or got tatoos. I remember telling them that I did not want one of my transfusions but my dr said I had to have it. I'm thinking that was the one as I was so adamite(spelling) about it. I think it was around 97 when I was told I couldn't donate blood anymore because I had the antibodies in my blood. I had never heard of hep-c and didn't understand what they were telling me. I didn't start treating until end of June last year. Hugs, VickieG

Re: [HepatitisCSupportG roupForDummies] New member

Hi its nice to met you. My name is D and I am 23 and have probley had hcv for 4 years but not really sure. I am glad to hear that you have been sober for that long. Congrat's on that. Good luck with treatment and let us know how things go for you

<michaelboxernest (DOT) net> wrote:

Hi. My name is Matchinsky, from Des Moines IA USA. I haveHep C, and genotype 1A and have gone through 2 treatments withPegIntron. Actually, call that 1 and ½. My insurance company stoppedthe second treatment before it was complete. Their argument has beenthat 72 weeks of treatment is "investigational and experimental. " Mydoctor's argument is that I've already relapsed after 48 weeks, twice,and anything less than 72 weeks would be futile. I am a quickresponder, so there is hope.My wife's employer (where the insurance is from) is actuallyself-insured with an insurance company managing the program. Theyhave seen fit to grant an exception to the policy and I will bestarting 72 weeks of Infergen treatment next weekhttp://www.infergen .com/3-About_ Infergen/ . I'm not sure how good thatis; I

seem to react strongly to interferon. Still, I'm not ready togive up.I have a Master's in psychology and teach part-time at the localcommunity college. I've been playing with computers since 1985, andlike using the web for information, though I try not to believeeverything I read.The doctor is telling me that I will be needing a transplant, with orwithout successful treatment for the Hep C. (I also have fatty liverdisease). Not sure if he was trying to scare me, but it did. It isgetting worse, and though I only teach one class, it is a struggle.It was almost 20 years ago that I contracted Hep C. I was an IVcocaine user, but I've been clean and sober for 19 years now. I stillwork the 12 Steps, and have lots of support through meetings. Icontinue to look for support. I also have a HCV Anonymous group, butit isn't very active. http://groups. yahoo.com/ group/HCVA

Never miss a thing. Make Yahoo your homepage.

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date: 3/7/2008 8:15 AM

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LINDA

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[Guest guest]

Hi VickieG, I 2 had blood in 91 the second time around and I told the DR. I was afraid of getting aid's and he sad I could die today or get blood tranfusione's, so I said ok I'll take the blood. I guess we will evere know for sure and at this point it really doesn't mater, I hope you are doing well, thank you for the e-mail,HUG'S mooVickieG wrote: Hi, moo. I had a car accident in 1984 in which I hand many blood transfusions. I'm sure that's where I got my hep-c as I never did drugs or got tatoos. I remember telling them that I did not want one of my transfusions but my dr said I had to have it. I'm thinking that was the one as I was so adamite(spelling) about it. I think it was around 97 when I was told I couldn't donate blood anymore because I had the antibodies in my blood. I had never

heard of hep-c and didn't understand what they were telling me. I didn't start treating until end of June last year. Hugs, VickieG Re: [HepatitisCSupportG roupForDummies] New memberHi its nice to met you. My name is D and I am 23 and have probley had hcv for 4 years but not really sure. I am glad to hear that you have been sober for that long. Congrat's on that. Good luck with treatment and let us know how things go for you wrote:Hi. My name is Matchinsky, from Des Moines IA USA. I haveHep C, and genotype 1A and have gone through 2 treatments withPegIntron. Actually, call that 1 and ½. My insurance company stoppedthe second

treatment before it was complete. Their argument has beenthat 72 weeks of treatment is "investigational and experimental. " Mydoctor's argument is that I've already relapsed after 48 weeks, twice,and anything less than 72 weeks would be futile. I am a quickresponder, so there is hope.My wife's employer (where the insurance is from) is actuallyself-insured with an insurance company managing the program. Theyhave seen fit to grant an exception to the policy and I will bestarting 72 weeks of Infergen treatment next weekhttp://www.infergen .com/3-About_ Infergen/ . I'm not sure how good thatis; I seem to react strongly to interferon. Still, I'm not ready togive up.I have a Master's in psychology and teach part-time at the localcommunity college. I've been playing with computers since 1985, andlike using the web for information, though I try not to believeeverything I read.The doctor is telling me that

I will be needing a transplant, with orwithout successful treatment for the Hep C. (I also have fatty liverdisease). Not sure if he was trying to scare me, but it did. It isgetting worse, and though I only teach one class, it is a struggle.It was almost 20 years ago that I contracted Hep C. I was an IVcocaine user, but I've been clean and sober for 19 years now. I stillwork the 12 Steps, and have lots of support through meetings. Icontinue to look for support. I also have a HCV Anonymous group, butit isn't very active. http://groups. yahoo.com/ group/HCVANever miss a thing. Make Yahoo your homepage. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date: 3/7/2008 8:15 AMNo virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date: 3/7/2008

8:15 AMLINDABe a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.____________________________________________________________________________________Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ LINDA

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[Guest guest]

Good morning, moo. Hugs. So far I'm fine this morning. I've had some pretty good days this week (it's about time). I still have joint pains and soreness in my muscles. I thought they could'nt continue treatment without your permission. But actually you give up your rights in the hospital. You are under their control. Hugs, have a good day. VickieG

Re: [HepatitisCSupportG roupForDummies]

New memberHi its nice to met you. My name is D and I am 23 and have probley had hcv for 4 years but not really sure. I am glad to hear that you have been sober for that long. Congrat's on that. Good luck with treatment and let us know how things go for you wrote:Hi. My name is Matchinsky, from Des Moines IA USA. I haveHep C, and genotype 1A and have gone through 2 treatments withPegIntron. Actually, call that 1 and ½. My insurance company stoppedthe second treatment before it was complete. Their argument has beenthat 72 weeks of treatment is "investigational and experimental. " Mydoctor's argument is that I've already relapsed after 48 weeks, twice,and anything less than 72 weeks would be futile. I am a quickresponder, so there is hope.My wife's employer (where the insurance is from) is actuallyself-insured with an insurance company managing the program.

Theyhave seen fit to grant an exception to the policy and I will bestarting 72 weeks of Infergen treatment next weekhttp://www.infergen .com/3-About_ Infergen/ . I'm not sure how good thatis; I seem to react strongly to interferon. Still, I'm not ready togive up.I have a Master's in psychology and teach part-time at the localcommunity college. I've been playing with computers since 1985, andlike using the web for information, though I try not to believeeverything I read.The doctor is telling me that I will be needing a transplant, with orwithout successful treatment for the Hep C. (I also have fatty liverdisease). Not sure if he was trying to scare me, but it did. It isgetting worse, and though I only teach one class, it is a struggle.It was almost 20 years ago that I contracted Hep C. I was an IVcocaine user, but I've been clean and sober for 19 years now. I stillwork the 12

Steps, and have lots of support through meetings. Icontinue to look for support. I also have a HCV Anonymous group, butit isn't very active. http://groups. yahoo.com/ group/HCVANever miss a thing. Make Yahoo your homepage. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date: 3/7/2008 8:15 AMNo virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date: 3/7/2008 8:15 AMLINDABe a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.____________ _________ _________ _________ _________ _________ _________ _________ _________Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

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Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Welcome, . I'm VickieG. Am looking forward to talking to you. Hugs, VickieG

New Member

Thanks for having me as a member in this wonderful group!!!

[Guest guest]

Thanks for the kind words BJ. It helps to know that someone else

understands what I am going through! I really like the new therapist.

He is working on just getting my son to talk to him right now! My

son is extremely quiet and sort of freezes up at his office. Yet he

says he likes him. So far we dont really know if the behaviors are

tics or compulsions because my son isnt sharing his thought. I

suspect they are compulsions because at home he says things have to

feel right and he needs to make things right. The therapist is taking

a cbt approach and talks about living with the uncomfortable thoughts

and feelings as oppposed to giving in to them.

[Guest guest]

Our son also had the " needs to feel right " OCD. His anxiety was more

attached to the OCD and GAD thoughts, which required CBT and meds to

get under control. But with the other stuff, he did some ERP and it

really helped. For instance, one of many things, was he would need to

check all the drawers throughout the house to make sure they were

closed. Seeing they were closed wasn't good enough. He needed to

feel them to be sure, by running his hands down them. . Then he could

stop thinking about it. And he couldn't stop thinking until he

checked and it felt right. Such a vicious cycle. Anyway, the therapy

was a matter of purposely leaving drawers ajar throughout the house,

and not shutting them. At one point, he even had homework to sit and

look at a drawer that was ajar, to desensitize himself. It worked.

He's been able to let it all go. Which is a relief, because the

rituals can take up so much time.

Does your son have physical rituals? Some only do rituals in their

heads.

I'm sure you will get to the ERP eventually. That's where we really

started noticing changes. It all takes time. And they need to set

the pace so they don't get overwhelmed.

You are on the right track. ) So, awesome that you found a good

therapist. That's so important.

BJ

>

> Thanks for the kind words BJ. It helps to know that someone else

> understands what I am going through! I really like the new therapist.

> He is working on just getting my son to talk to him right now! My

> son is extremely quiet and sort of freezes up at his office. Yet he

> says he likes him. So far we dont really know if the behaviors are

> tics or compulsions because my son isnt sharing his thought. I

> suspect they are compulsions because at home he says things have to

> feel right and he needs to make things right. The therapist is taking

> a cbt approach and talks about living with the uncomfortable thoughts

> and feelings as oppposed to giving in to them.

>

[Guest guest]

, my son also had the " has to feel right " OCD. Also a feeling

something bad would happen to him if he didn't comply. Glad you found

a therapist who understands OCD!

Even if your son just shares a few things he does (or you tell), once

he understands how to work on the more " minor " OCD needs, he'll be able

to apply them to others. Some things were very obvious of course with

my son, to watch him. He wouldn't say much either, I had to nag

information out of him.

>

> Thanks for the kind words BJ. It helps to know that someone else

> understands what I am going through! I really like the new therapist.

> He is working on just getting my son to talk to him right now! My

> son is extremely quiet and sort of freezes up at his office. Yet he

> says he likes him. So far we dont really know if the behaviors are

>

[Guest guest]

Thanks BJ. How do you handle things with you husbands ocd? Sometimes

I find that harder to deal with than my son's. It really affects our

relationship.

[Guest guest]

Hi Amber

I, too, am a new member, and just recently told I have hep C. I am full of questions also. Wish I could be of more help for you, but I have a shoulder to cry on. I too am scared, and confused, and cry.

Hang in there. Surely there is someone here to help both of us.

love

don christ

kansas

Subject: New MemberTo: Hepatitis_C_Central Date: Friday, September 19, 2008, 3:12 PM

Hi, My name is Amber, the mom to six children - sons 18yo, 16yo, 13, 11, a daughter 6 and an angel baby. I wor part-time as a Resource Parent for families with children with disabilities. (All mine have various disabilities) And I have my hubby Dan, we just celebrated our 20th wedding anniversary.

I have known I had hep c for about 20 yrs when I went to be a bone marrow donor, it was still known as non A-non B. I recently had my gall bladder removed and asked for a liver biopsy which came back questionable. Long story short, I have done blood work, sonogram, CT Scan. I am genotyped 1A. Other than that I don't know much. (scarry huh?) I had my third shot today and so far so good. I have a couple of good days and a couple real puny days.

It is a bit difficult with the kids' in the evening, I am just beat. Is this normal? I have my first follow up appt with my Dr on Monday. Is there any questions I should be asking or more I should know to follow? I am doing the weekly shot, Ribavarin, Zoloft, Ativan, Tramadol and Sam-E.

Thanks for giving me a "safe" place to come and seek out expert opinions - you who have gone through this!

Amber

[Guest guest]

HI amber

welcome to the group hon,, sounds like you really have a full plate..

What IM wondering is why you are treating your virus before having a biospy to see if you really must treat at THIS time or could wait for better and easier tx to come out? What stage of damage do you have? Geno 1a is what I am too and I just celebrated my 5 1/2 years of remaining SVR after finishing tx in march 03... so it can be done..

Yes, your side effects are very common and you will find that you will get more and more tired as the tx goes on. But hopefully you will reach undetectible and make it all worth it.

I noticed that you are taking SamE along with Zoloft, Is that safe? SamE treats some antidepression and it was my understanding that its not a good idea to take it along with an SSRI. The SSRI is very needed because as you know the Interferon depletes your brain of its seretonin and that can cause huge depression and insomnia too..

Once again, welcome to the group and I hope you do very well with treatment and that you continue to feel welcome here.. We suggest everyone get copies of everything from the doc and keep it in a file at home,, always seems that questions come up on fri nite after the doc goes home, lol,, seriously tho, keeping copies of all your recent labs, biopsies etc in a file at home is very helpful when the questions do arise..

hugs,

jaxJackie

Subject: New MemberTo: Hepatitis_C_Central Date: Friday, September 19, 2008, 1:12 PM

Hi, My name is Amber, the mom to six children - sons 18yo, 16yo, 13, 11, a daughter 6 and an angel baby. I wor part-time as a Resource Parent for families with children with disabilities. (All mine have various disabilities) And I have my hubby Dan, we just celebrated our 20th wedding anniversary.

I have known I had hep c for about 20 yrs when I went to be a bone marrow donor, it was still known as non A-non B. I recently had my gall bladder removed and asked for a liver biopsy which came back questionable. Long story short, I have done blood work, sonogram, CT Scan. I am genotyped 1A. Other than that I don't know much. (scarry huh?) I had my third shot today and so far so good. I have a couple of good days and a couple real puny days.

It is a bit difficult with the kids' in the evening, I am just beat. Is this normal? I have my first follow up appt with my Dr on Monday. Is there any questions I should be asking or more I should know to follow? I am doing the weekly shot, Ribavarin, Zoloft, Ativan, Tramadol and Sam-E.

Thanks for giving me a "safe" place to come and seek out expert opinions - you who have gone through this!

Amber

[Guest guest]

Welcome Amber and glad you found our group.

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

Subject: New MemberTo: Hepatitis_C_Central Date: Friday, September 19, 2008, 3:12 PM

Hi, My name is Amber, the mom to six children - sons 18yo, 16yo, 13, 11, a daughter 6 and an angel baby. I wor part-time as a Resource Parent for families with children with disabilities. (All mine have various disabilities) And I have my hubby Dan, we just celebrated our 20th wedding anniversary.

I have known I had hep c for about 20 yrs when I went to be a bone marrow donor, it was still known as non A-non B. I recently had my gall bladder removed and asked for a liver biopsy which came back questionable. Long story short, I have done blood work, sonogram, CT Scan. I am genotyped 1A. Other than that I don't know much. (scarry huh?) I had my third shot today and so far so good. I have a couple of good days and a couple real puny days.

It is a bit difficult with the kids' in the evening, I am just beat. Is this normal? I have my first follow up appt with my Dr on Monday. Is there any questions I should be asking or more I should know to follow? I am doing the weekly shot, Ribavarin, Zoloft, Ativan, Tramadol and Sam-E.

Thanks for giving me a "safe" place to come and seek out expert opinions - you who have gone through this!

Amber