Re: After Cast Life

[Guest guest]

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-MobileFrom: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis >Subject: "After Cast" Life Hi everyone, We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy?? Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Hayden hated wearing a shirt over the cast too, but just in the past two or three days, he is wearing a shirt, b/c I told him if he doesn't wear one he can't go out to the store, or outside without it. I think they don't like to feel hot, and the cast is already so cumbersome, so the shirt over it makes it even worse. But keep trying, thats what we did, and he will eventually give in. Glad things are going so well. He is a sweet baby boy and always so happy. Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Friday, October 2, 2009 3:49:45 PMSubject: "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

,

Thanks for sending the moleskin. Im sure its much better than the felt they gave me at ish. Isnt it funny how they learn to do things differently to adapt? Im hopeful Isaiah will be at least sitting up soon!

Joan,

At least you can reason with Hayden about wearing a shirt. All i did was try it on him and you would have thought it was the end of the world. I think its bacause of the sholder straps on the cast and how close it is to his face that the shirt just was too much around the face. Besides, it looked REALLY funny on him. He looked like a monster or something...i dont know how to explain exactly. Im sure you all know what i mean!

Subject: Re: "After Cast" LifeTo: infantile_scoliosis Date: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

I know it's hard to reason with a one year old. I understand. Yes, I know what you mean, we call Hayden the football player, b/c that is exactly what he looks like with a shirt on over his cast. It does look silly, but we have gotten used to it more every day. I would just keep trying a shirt once or twice a day and maybe eventually he will take to it. Good luck... Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Friday, October 2, 2009 6:15:37 PMSubject: Re: "After Cast" Life

,

Thanks for sending the moleskin. Im sure its much better than the felt they gave me at ish. Isnt it funny how they learn to do things differently to adapt? Im hopeful Isaiah will be at least sitting up soon!

Joan,

At least you can reason with Hayden about wearing a shirt. All i did was try it on him and you would have thought it was the end of the world. I think its bacause of the sholder straps on the cast and how close it is to his face that the shirt just was too much around the face. Besides, it looked REALLY funny on him. He looked like a monster or something... i dont know how to explain exactly. Im sure you all know what i mean!

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Yep, ours is plaster with fiberglass over it, too. No post cast blues for you? It sounds like you're doing great!Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Heidi,

No blues yet, more like relief!! The blues may come soon though. I was just so prepared for the worst and it hasnt happened...yet! The best thing is he wont sleep in his swing anymore. He will actually sleep in a playpen flat on his back!! (had to take the crib apart to move) so we finally got him broke from his swing addiction!! YAY!! Actually, i think im still on a "cast high" i just havent come down yet...maybe tomorrow. Im just SO excited my son is FINALLY on his way to a straight back!! How about you, got the cast blues??

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Thanks Joan. I dont mind him being w/o the shirt but in KS the winters are cold and he will need a shirt and a big coat!! He also HATES bibs now! I have tried fabric ones and plastic ones. Ones with velcro and snap ones. He really hates the plastic ones. He just freaks about anything around his neck. I guess the cast is so much around his cheeks he doesnt want anything else around him. Cant say i blame him!

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Joan,

Is it still bothering hayden being up around his cheeks so much or has he gotten used to it? Is he still itchy? Are you still flossing? I havent tried it yet. Thinking i dont want to press my luck if its not necessary...i hope its not necessary...

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

See, they never said a word to me about flossing and it wasnt in the cast care booklet either! Dianna knows about it and she has the same doc as we do so someone must have told her. i think it must just depend upon which nurse you get in the inpatient floor. How do you do it exactly and how often??

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Hi ,

Good to hear you and Isaiah are doing well so far. He hasnt cried much from discomfort or any pain?

My daughter got her 1st brace today and she has been crying all day, she has terribe reflux too. Everything is coming back up. Was Isaiah in a brace before his cast?

Just wondering if the cast is worse than the brace (as far as the baby getting used to).

Well, good luck and very happy to hear your doing great!!

Melinda

Mommy of Marlycia 8 mnths, Natalya 22 mnths

Scranton, PA

"After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Dr Rathjen told us to do it. And you just grab one end like at the bottom and then another end near his neck (make sure he is laying on his back) and then just pull up and down so it "scratches" the skin and any itch he may have. They said once a day but I do it whenever he is itchy... try it, he may like how it feels... it just rubs his skin gently Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Friday, October 2, 2009 7:39:35 PMSubject: Re: "After Cast" Life

See, they never said a word to me about flossing and it wasnt in the cast care booklet either! Dianna knows about it and she has the same doc as we do so someone must have told her. i think it must just depend upon which nurse you get in the inpatient floor. How do you do it exactly and how often??

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

WOW! Once a day! No one ever even mentioned it!!

Thanks,

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Sorry, didn't mean to mention my dr's name. My mistake... oops Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Friday, October 2, 2009 7:39:35 PMSubject: Re: "After Cast" Life

See, they never said a word to me about flossing and it wasnt in the cast care booklet either! Dianna knows about it and she has the same doc as we do so someone must have told her. i think it must just depend upon which nurse you get in the inpatient floor. How do you do it exactly and how often??

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

OOPS!!!

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Bugbite is really cute, Joan!Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Hi ,The reason for flossing is to exfoliate the skin, and keep it healthy. It can't really hurt and it sorta helps to scratch 'the itch'. In our 1st cast we had a new aide and she cut and taped the shirt to the cast, so we couldn't floss. Not only was she very dirty underneath when we took off the cast, she also had a seed that had germinated and was growing into her skin!! We flossed with all the other casts and it was much cleaner. Liz, Mom to Keira - 3.5 yrs in 5th cast at SLCTo: infantile_scoliosis Sent: Friday, October 2, 2009 5:27:25 PMSubject: Re: "After Cast" Life

Joan,

Is it still bothering hayden being up around his cheeks so much or has he gotten used to it? Is he still itchy? Are you still flossing? I havent tried it yet. Thinking i dont want to press my luck if its not necessary... i hope its not necessary...

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Liz,

Oh no!! We will be sure to floss!! No wonder its called flossing...its just to clean like your teeth!!

From: carriedonahoe@ ymail.com <carriedonahoe@ ymail.com>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 4:12 PM

it sounds like his cast is identical to my sons so that is actually a relief for me!! Tucker has gotten so use to it now that he lifts his head up so he can move his head a little bit. My son is in 24 months also b\c its the only size that fits around the cast. I'm so happy to hear that its going well for all of you! I got the mole skin out in the mail today so should be getting it soon Sent via BlackBerry from T-Mobile

From: "" Date: Fri, 02 Oct 2009 20:49:45 -0000To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

That is great correction!!!! Our cast is also like that and we did jump up quite a bit in sizing as well..... Every day you will both adjust to cast life more and more and it will be routine. Many Congrats!!!!- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: "After Cast" LifeTo: infantile_scoliosis Date: Friday, October 2, 2009, 8:49 PM

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Steph,

Thanks for the confirmation... i thought it was good but wanted opinions...thanks!!!

From: <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 8:49 PM

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Melinda,

He is in not in any pain maybe a little discomfort from the adjustment from the cast, but definatley not in pain. Did your daughter have reflux before bracing or is this a new symptom?? I can say it sounds like casting is much easier from the brace asfar as you are describing. We did not brace prior to casting. we had to have brain surgery done before cast could be applied. otherwise he would have been casted at 9 to 10 mos of age. If you feel it is too tight call her doc asap and see what they say. it may be uncomfortable but should not be painful. Maybe she is just crying because she is not used to it yet. Give it time. Best of luck!

Subject: Re: "After Cast" LifeTo: infantile_scoliosis Date: Friday, October 2, 2009, 7:47 PM

Hi ,

Good to hear you and Isaiah are doing well so far. He hasnt cried much from discomfort or any pain?

My daughter got her 1st brace today and she has been crying all day, she has terribe reflux too. Everything is coming back up. Was Isaiah in a brace before his cast?

Just wondering if the cast is worse than the brace (as far as the baby getting used to).

Well, good luck and very happy to hear your doing great!!

Melinda

Mommy of Marlycia 8 mnths, Natalya 22 mnths

Scranton, PA

[infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Ian's first cast was strictly plaster, but as we got further into the process they used fiberglass. Yes, it was always kind of awkward to carry him, but you get used to it.

Noelle (12-2-01)

Ian (8-15-04)

To: infantile_scoliosis Sent: Fri, October 2, 2009 4:49:45 PMSubject: "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

,

I'm sure I'm just over reacting, thats what I do best! If she was in pain, she wouldnt sleep thru the night with it on, and she did last night. She just has to get used to it. The relux just started. I emailed her PA to see what she says. Waiting for a response. If I can ask, why did Isaiah need brain surgery?

Thanks again

Melinda

[infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

Melinda,

Dont worry im good at overreacting too! Sounds like shes not in pain if shes sleeping thru the night, she may just be very uncomfortable or mad because her movement is restricted. Isaiah is pretty frustrated right now because he cant move but hes not in any pain so its hopefully the same thing for your daughter. Funny you posted now...i was just thinking of you

Isaiah had brain surgery because he has something called a chiari I malformation. This was found on his MRI of the brain and spine and it is where the brain sits too low in the back of the head into the spinal colomn area. It was putting alot of pressure on his spine and restricting CSF flow so they had to do a decompression surgery, or craniotomyand a laminectomy ( removal of C1 vertebrae) to relieve the pressure. He had it done 8-19-09 and hes doing great!!

Thanks for asking!! I hope she adjusts to her brace soon...i would definately ask about the reflux thing. Keep us posted!

From: Melinda Lee <mindylee1verizon (DOT) net>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 7:47 PM

Hi ,

Good to hear you and Isaiah are doing well so far. He hasnt cried much from discomfort or any pain?

My daughter got her 1st brace today and she has been crying all day, she has terribe reflux too. Everything is coming back up. Was Isaiah in a brace before his cast?

Just wondering if the cast is worse than the brace (as far as the baby getting used to).

Well, good luck and very happy to hear your doing great!!

Melinda

Mommy of Marlycia 8 mnths, Natalya 22 mnths

Scranton, PA

[infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

That's interesting that they called it a Laminectomy because that is what they called Hayden's tethered cord release surgery, a Laminectomy.. HMMM Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Saturday, October 3, 2009 8:51:29 PMSubject: Re: "After Cast" Life

Melinda,

Dont worry im good at overreacting too! Sounds like shes not in pain if shes sleeping thru the night, she may just be very uncomfortable or mad because her movement is restricted. Isaiah is pretty frustrated right now because he cant move but hes not in any pain so its hopefully the same thing for your daughter. Funny you posted now....i was just thinking of you

Isaiah had brain surgery because he has something called a chiari I malformation. This was found on his MRI of the brain and spine and it is where the brain sits too low in the back of the head into the spinal colomn area. It was putting alot of pressure on his spine and restricting CSF flow so they had to do a decompression surgery, or craniotomyand a laminectomy ( removal of C1 vertebrae) to relieve the pressure. He had it done 8-19-09 and hes doing great!!

Thanks for asking!! I hope she adjusts to her brace soon...i would definately ask about the reflux thing. Keep us posted!

From: Melinda Lee <mindylee1verizon (DOT) net>Subject: Re: [infantile_scoliosi s] "After Cast" LifeTo: infantile_scoliosis @yahoogroups. comDate: Friday, October 2, 2009, 7:47 PM

Hi ,

Good to hear you and Isaiah are doing well so far. He hasnt cried much from discomfort or any pain?

My daughter got her 1st brace today and she has been crying all day, she has terribe reflux too. Everything is coming back up. Was Isaiah in a brace before his cast?

Just wondering if the cast is worse than the brace (as far as the baby getting used to).

Well, good luck and very happy to hear your doing great!!

Melinda

Mommy of Marlycia 8 mnths, Natalya 22 mnths

Scranton, PA

[infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have

any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!

[Guest guest]

I'm sure shes not in pain, like everyone else said, shes just a baby, constantly on the go, wanting to move. So shes probably just uncomfortable. The reflux he said is normal but I dont know about this much and the runny nose, not sure. So, back to Isaiah, wow, did they suspect it before the MRI, or thats the only reason they found out? I wonder, should I request they do an MRI on Marly? If I remember correctly, some others said their children had MRI's before they were casted.

You and Isaiah are very brave, I'm crying about a brace and that poor kid had brain surgery. My heart goes out to him and you

Melinda

[infantile_scoliosi s] "After Cast" Life

Hi everyone,We have been home since yesterday from Isaiah's 1st cast that was applied Tuesday. He went from 50 degrees out of cast to 21 degrees in cast. WOO HOO!! Anyway, im sure im speaking too soon here but this is easier than i thought it would be. True, he cant roll over, sit up or stand but surely he will soon, right?? And he is SO heavy!! Its very hard and akward to carry him. He does still fit into his jumper and exersaucer so he is at least able to be upright so maybe that is why this isnt as hard as i expected. The cast does not come down low on the hips so diapering has not been a problem. He does get frustrated at times bacause he cannot move or even turn his head due to the sholder straps but otherwise is his usual happy laid back self. The only problem we have had is even though he does not pull on the cast like he wants to take it off when i tried a shirt on him last night he FREAKED!! He cried and tried to rip it off! I dont have any idea why this is! I was just trying to get an idea of size and WOW what a jump in size it is! He went from wearing 9-12 months to 18 months being tight and 24 months fitting better. Did everyone experience this big of a size difference? Also, is everyones cast made of plaster and then covered in fiberglass or is this just a ish Rite thing? Maybe that is why he is so heavy??Anyway, sorry for rambling i just wanted to share my experience so far. Thanks for listening!!