Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Abby has Partial Complex Epilepsy. From what I understand is that Subclinical seizures are small seizures that are only detected on an EEG. I don't know much about them, I am doing a search on Goggle to see what I can find. Abby has had her Trileptal increased. I hope that this works for her. I don't notice Abby having seizure activity but I see what I call " post seizure " effects. She has a headache, very tired and her eyes hurt. She also looses some mobility in her right hand for a short length of time. These seizures scare me, the autism I can deal with but for some reason this Epilepsy scares me to death. I think its because when Abby has a seizure she goes Status Epeilecus. Her shortest seizure has been 12 minutes and her longest is 40. That is dangerous. I live in constant fear of what the next one will bring. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Are these the ones also known as absent seizures. My Missy has of them. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Kassi please send me offlist all the info that you have. Can subclinical seizures have long term effects? Does it cause further learning disablilites? Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Pennie, could Abby's hormones be out of whack? Did anyone test for hormone levels? http://www.autism.org/seizures.html Autism, Puberty, and the Possibility of Seizures Written by M. Edelson, Ph.D. Center for the Study of Autism, Salem, Oregon About one in four autistic individuals begin to have seizures during puberty. The exact reason for the onset of seizures is not known, but it is likely that the seizure activity may be due to hormonal changes in the body. Sometimes these seizures are noticeable, (i.e., associated with convulsions); but for many, they are small, subclinical seizures, and are typically not detected by simple observation. Some possible signs of subclinical seizure activity include: exhibiting behavior problems, such as aggression, self-injury, and severe tantrumming; making little or no academic gains after doing well during childhood and pre-teen years; and/or losing some behavioral and/or cognitive gains. Personally, I have known a few autistic individuals who were considered high-functioning prior to puberty. During puberty, they experienced seizures which were not treated. By their late teens, they were considered, however, as low functioning. Some parents have an EEG performed to see if their child shows any seizure activity. However, even if the EEG does not detect abnormal activity during the testing period, one cannot conclude that the person does not have seizures. To increase the likelihood of detection, some individuals are assessed with an EEG for 24 to 48 hours. Interestingly, vitamin B6 with magnesium as well as dimethylglycine (DMG) are known to reduce or eliminate seizure activity in some individuals, even in cases where seizure drugs are ineffective. Note that the majority of autistic individuals do not have seizures during puberty. In fact, many parents have told me that their son/daughter actually experienced a dramatic developmental leap forward during this period. Parents of autistic children should be aware of the possible positive and negative changes that can occur with puberty. Of particular importance is the need for parents to be cognizant of the fact that about 25% of autistic individuals may experience clinical or subclinical seizures which, if left untreated, can lead to deleterious effects. The Autism Research Institute distributes an information packet on seizures/epilepsy. Click here to learn how to obtain this packet. > Kassi please send me offlist all the info that you have. Can subclinical > seizures have long term effects? Does it cause further learning disablilites? > > Pennie > Abby's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Tired of me yet? (DON'T answer that.) Has Abby been tested for CELIAC disease? http://neuro-mancer.mgh.harvard.edu/ubb/Forum240/HTML/000256.html and http://www.panix.com/~donwiss/gflinks/epcel.txt > Kassi, that wasent to comforting but I am glad that you are honest with me > > Pennie > Abby's Mom > > > Quote Link to comment Share on other sites More sharing options...
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