Guest guest Posted January 12, 1970 Report Share Posted January 12, 1970 dont feel like it should make it a difference. I tried casein free and was convinced I was conquering the problem. It made no difference. then I tried just gluten free. IT made a slight difference but not enough for us to continue it. (gf free) so I switched to enzymes. they have helped with the stomach and stool problems. On Saturday, June 5, 2004, at 05:11 PM, sh2270castellanos wrote: > I'm going out on a limb here, but am I the only one who tried the diet > for my daughter and found no changes? I don't understand why so many > people seem to get dramatic results and I saw virtually no changes in > Ellie. I was faithful to the diet for four months, really faithful, > and I don't believe that she was getting Gluten or casein elsewhere. > Even if she was, wouldn't I have seen some kind of up and down > behavior? > > I believe that the diet works for some kids and not for others. I'm > feeling guilty, though, that all these people were somehow more > dedicated, or adhered more strickly to the diet and found success > where I found none. If I knew that there are others out there who > tried this diet with all good intentions and didn't get results then I > can feel better about my assessments that it just works for some and > not for others. > > Any thoughts? > > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2004 Report Share Posted June 5, 2004 Sid Baker's " tack " analogy goes like this: You have 3 tacks in your foot, a red one, a yellow one, and a green one. You go to the doctor, and she says, " I believe the red tack is causing your pain. " So, she removes the red tack and tells you to come back in a week for follow-up. A week later, you're still hobbling, because the yellow tack and the green tack are still making your foot hurt. The doctor says, " Hmmmmmmmmmmm. Must not have been the red tack. I'll put it back in. We'll remove the green tack and see if that helps your pain. " Each child is individual. GFCF may have been one tack that needed to come out with one or two other tacks. Some people don't see results until they remove SOY with gluten and casein. Some kids have horrific yeast problems, and the yeast needs to be dealt with prior to GFCF(SF). Some kids have problems with phenols, and you have to do Feingold before or in conjunction with GFCF(SF). *sigh* You either have one of the minority of children who don't need the GFCF diet, or you have a child who had other issues going on, and you removed only one of the tacks. > I'm going out on a limb here, but am I the only one who tried the diet > for my daughter and found no changes? I don't understand why so many > people seem to get dramatic results and I saw virtually no changes in > Ellie. > > Any thoughts? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2004 Report Share Posted June 5, 2004 --- I know exactly how you feel. Believe me, I have become obsessed with finding a " cure " for Logan. If somebody told me to bathe her in ketchup and mustard I'd probably do it! LOL I am just not at the point where I am ready to say, ok, this is how its going to be from now on. I look at her and she is so beautiful and so sweet and I get mad because she is being robbed of a normal childhood and she is my only child and I had so many hopes and dreams, and I know all of that is not lost but may just be different than what I thought..... In Autism_in_Girls , " sh2270castellanos " <sh2270castellanos@y...> wrote: > What are the warning signs of a soy intolerance? Someone else told me > to cut out eggs. How about yeast and/or phenols (I don't even know > what those are) We have also done the Kirkman " detox " stuff with no > noticable difference. Ellie saw a homeopath for a while, but I > stopped going after about 5 months, as we again saw no difference. > > The thing that is so difficult for me to swallow, I suppose, is that > all our kids ARE different, so I keep thinking, " well, that worked for > HER, but Ellie is different in this and this way so maybe it's not the > same. " She had the ear infections but no diarrea or constipation > problems. She craved carbs but not milk products. And so on and so > forth. She seems to have all the cognitive information in that > beautiful little head of hers, but just doesn't care to share it with > the rest of the world. > > Just feeling down about it, I guess. I had kind of given up on all > these " alternative " treatments, but now reading about all your kids > makes me feel like I'm failing Ellie if I don't pick up the trail again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2004 Report Share Posted June 5, 2004 I hae to say that the ONLY real response I have gotten from Ellie in terms of treatment has been from lots of ABA, which I was initially really opposed to. I kept thinking that I could find an organic solution to her " problem " but I'm now thinking that it's just going to be a long, hard road and hopefully we'll see some real results over time. Still, it's hard hearing about all the " success " stories. I'm happy for all those people, don't get me wrong! But I keep wondering if I'm doing something wrong. > > What are the warning signs of a soy intolerance? Someone else told > me > > to cut out eggs. How about yeast and/or phenols (I don't even know > > what those are) We have also done the Kirkman " detox " stuff with no > > noticable difference. Ellie saw a homeopath for a while, but I > > stopped going after about 5 months, as we again saw no difference. > > > > The thing that is so difficult for me to swallow, I suppose, is that > > all our kids ARE different, so I keep thinking, " well, that worked > for > > HER, but Ellie is different in this and this way so maybe it's not > the > > same. " She had the ear infections but no diarrea or constipation > > problems. She craved carbs but not milk products. And so on and so > > forth. She seems to have all the cognitive information in that > > beautiful little head of hers, but just doesn't care to share it > with > > the rest of the world. > > > > Just feeling down about it, I guess. I had kind of given up on all > > these " alternative " treatments, but now reading about all your kids > > makes me feel like I'm failing Ellie if I don't pick up the trail > again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 I'm a huge advocate of trying the diet, even going to soy free, too, or SCD (www.pecanbread.com), etc, and am a huge advocate of biomedical intervention. HOWEVER, I believe that a mother's gut instinct is never wrong. If you are at peace with where you've been and what you've done, then quit worrying about it. If there's a little voice nagging you, then hop on some biomedical groups and start asking a bunch of questions. You'll either decide you have done all you want/need to, or you'll get a bunch of ideas for research and direction. But there's no rule that says you have to keep searching. Listen to your gut instinct. > Just feeling down about it, I guess. I had kind of given up on all > these " alternative " treatments, but now reading about all your kids > makes me feel like I'm failing Ellie if I don't pick up the trail again. Quote Link to comment Share on other sites More sharing options...
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