Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Hi, Sorry, but I need to vent. Please if any of you can help me anything would be greatly appreciated. My Sky is 9 years old and has a g-tube. She had the nissean done a couple of years ago for really bad reflux. This child is fed through her g-tube with Peptamin Jr. and this is a preabsorbed formula. Lately she has been having a really hard time and was recently diagnosed with constipation. The last few weeks have been really hectic for her. She is constantly stopped up and nauseous. She was in the ER twice for this and in the hospital for a clean out this last week. The child is still really nauseous and I dont know what to do. If we feed her she gets sick to the stomach. I hate seeing her like this. She is really miserable. We were hoping that after 3 years with the tube she would want to start eating by mouth but I am afraid that all this is going to discourage even more. If anyone has any suggestions on what we can do to give her some relief please by all means contact me. I am hurting inside to see her go through all this. Sorry to vent. I just have to get this off of my chest. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 , I wish that I had some pearl of wisdom for you, but I dont. This is a very supportive group though and we are all here to listen. ((((((((((((((())))))))))))))))) Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 I have a whole bunch of questions, and I want to know if you've done any other interventions. How are her magnesium levels? Calcium can't be absorbed w/o magnesium, and low magnesium is associated w/ constipation and with asthma, too. Where's ? She will have more to add to this. Another route to research...is yeast. Bruce Semon MD says that most of our kids on the spectrum have chronic heartburn and reflux. His book is " Feast without Yeast " , so I would guess his theory is the reflux comes from yeast. Have you done any biomedical to work on yeast in the gut? > > Hi, > > Sorry, but I need to vent. Please if any of you can help me > anything would be greatly appreciated. > > My Sky is 9 years old and has a g-tube. She had the nissean done a > couple of years ago for really bad reflux. This child is fed through > her g-tube with Peptamin Jr. and this is a preabsorbed formula. > Lately she has been having a really hard time and was recently > diagnosed with constipation. The last few weeks have been really > hectic for her. She is constantly stopped up and nauseous. She was > in the ER twice for this and in the hospital for a clean out this > last week. The child is still really nauseous and I dont know what > to do. If we feed her she gets sick to the stomach. I hate seeing > her like this. She is really miserable. We were hoping that after 3 > years with the tube she would want to start eating by mouth but I am > afraid that all this is going to discourage even more. If anyone has > any suggestions on what we can do to give her some relief please by > all means contact me. I am hurting inside to see her go through all > this. Sorry to vent. I just have to get this off of my chest. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Oh my gosh! wow! you are in my prayers!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Wow, , this is a very serious situation. That prepared mix is far from perfect food for long term use. It is obviously constipating. AmbroStart drink mix made by Mannatech would give her some fiber and Ambrotose which would help her tremendously. Of course, it is hard for me to be sure, but it appears an ignorant ped/gastroenterologist did this child in by not knowing what s/he was doing about reflux. Ninety percent of the time it is not excess acid but a LACK of acid that causes reflux. Was the tube put in because the esophagus was scarred and unable to swallow? Can she swallow food if necessary? I would advise finding a good naturopath or chiropractor who will nurse her back to health. If you are near the Los Angeles area I have a wonderful referral for you. In the mean time I would put some betaine hydrochloric acid into that tube to improve digestion, remove any " antacids " from use, get some fiber into her, and in the interim, do whatever is necessary to keep her bowel moving...enema, laxative, whatever, do it. Good luck, On Monday, February 16, 2004, at 07:22 AM, penelope_fam wrote: > I have a whole bunch of questions, and I want to know if you've done > any other interventions. How are her magnesium levels? Calcium > can't be absorbed w/o magnesium, and low magnesium is associated w/ > constipation and with asthma, too. Where's ? She will have > more to add to this. > > Another route to research...is yeast. > > Bruce Semon MD says that most of our kids on the spectrum have > chronic heartburn and reflux. His book is " Feast without Yeast " , so > I would guess his theory is the reflux comes from yeast. Have you > done any biomedical to work on yeast in the gut? > > > > >> >> Hi, >> >> Sorry, but I need to vent. Please if any of you can help me >> anything would be greatly appreciated. >> >> My Sky is 9 years old and has a g-tube. She had the nissean done > a >> couple of years ago for really bad reflux. This child is fed > through >> her g-tube with Peptamin Jr. and this is a preabsorbed formula. >> Lately she has been having a really hard time and was recently >> diagnosed with constipation. The last few weeks have been really >> hectic for her. She is constantly stopped up and nauseous. She > was >> in the ER twice for this and in the hospital for a clean out this >> last week. The child is still really nauseous and I dont know > what >> to do. If we feed her she gets sick to the stomach. I hate seeing >> her like this. She is really miserable. We were hoping that after > 3 >> years with the tube she would want to start eating by mouth but I > am >> afraid that all this is going to discourage even more. If anyone > has >> any suggestions on what we can do to give her some relief please > by >> all means contact me. I am hurting inside to see her go through > all >> this. Sorry to vent. I just have to get this off of my chest. >> > > > > Quote Link to comment Share on other sites More sharing options...
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