Re: roller coaster/Dena

[Guest guest]

Hello Dena:

Did I tell you about Ed Allebest? Can't remember, but he is the best around

here. Well worth a trip to Laguna Niguel. My husband and I have a Trust, he

has two children from a previous marriage that don't come around and our

" stuff " is locked into the Trust, we finally got my mother to get one (I have 7

brothers and sisters! Hate to be around when she passes!), but Ed made it so

there will be no fighting or else. And, several of my friends have used Ed and

are completely satisfied with the results. He explains everything in simple

terms, has been sympathetic/empathetic and working with the Elderly for 35

years....I think that is his " Mission " ....LOL, and he certainly has been fair

when

it comes to " phone calls. "

Email me any questions that you need answered. Aren't you in Apple Valley?

Hope you are having a wonderful evening...it's beautiful outside! Stevie

* * * * * * * *

Hi Stevie

My husband and I need to see a " damn good lawyer " too.

We have not done a Living Trust/Will whichever. If you

wouldn't mind e-mailing me personally and letting me

know the who " s/how's etc...

Thanks, Dena

--- juperant@... wrote:

> Hello,

>

> Just got off of the roller coaster that my Uncle had

> been on for almost two

> years. The past 8 months just got progressively

> worse and then " better " ....you

> know...they're sleeping all day and don't respond,

> eat or otherwise, then two

> days later they " wake up " and ask " What's for

> dinner " ...right when you were

> picking out which black dress to wear to the

> funeral!

>

> Mr. B rallied back from " death " so many times in the

> past 6 months that I

> thought I was going to go before he would......and

> he's still here! (Read some

> of the archive posts I wrote in the past 6

> MOs.....crazy!) After this back and

> forth thing, he has finally settled down a bit and I

> think he is starting the

> process of " accepting " his fate...as it were.

>

> Since January 2006 he has lost 25 pounds. When he

> came to live with me in

> 2003 he weighed 230 (at 6 feet tall) and now he

> weighs 150. He seems " content "

> to a degree, can't hold a conversation, can't walk

> on his own, is barely able

> to feed himself (he is still SO determined!) and the

> Caregiver now helps him,

> chokes on food, drools excessively, sleeps with his

> eyes half open and doesn't

> respond to questions when he does this, is

> incontinent at night and sometimes

> during the day not knowing that he had messed his

> " Huggies, " as he calls

> them, goes into what I call " Coma-Lewy " episodes

> more often now and when he comes

> out of them he does NOT rally back as he did before,

> he is noticeably at a

> different stage. Doesn't cry like he did before

> when talking about the past, but

> does " tear up " when something very " nice " is said.

> When I put him to bed at

> night, he now says. " Thanks for stopping by. " There

> are times when he doesn't

> know who I am, and wants to know " where I came

> from? " ...it takes a little

> while now but we " joke " through it and he finally

> remembers my name but still

> looks at me like I was a stranger. The Hospice

> nurse said his lungs have

> diminished quite a bit these past few months and he

> asks for oxygen at night. He has

> a bit of " mottling " in his hands and feet but not

> significant enough to be

> called an " active stage " yet.

>

> With all of this, no one knows where it will take us

> or how long. We live

> day to day with a lot of humour and that gets us to

> the next day...to wake up in

> the morning...and silently peak into his room to see

> if he is still with us.

> Most mornings now, when I get close to his bed, his

> eyes are closed and I am

> wondering what I will find...when...he suddenly

> gives me that famous smile,

> opens his eyes and says in his gargled speech, " I'm

> still here. "

>

> Sorry for rambling on.....I hope some of this helps

> you. Please try not to

> worry (I wish someone would have told me that 6

> months ago...LOL....oh dear, I

> think someone DID), and take each day as a

> " present, " and try not to worry

> about the future. Things will happen exactly as

> they should.

>

> Much Peace to you and your family on this trip to

> LewyVille, Stevie

>

> Stevie in So. California

> LO - Mr. B (Uncle) 82 yrs.

> Lives in my home - 3 yrs.

> DX Parkinson's 1993

> DX LBD 2003 - probably has PDD

> End stage meds: Hytrin, E.S Tylenol (Hallies have

> subsided) ...but have

> started up again.

> Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin,

> Roxinal, Aciphex,

> Amitriptyline

> Was given Ativan and Seroquel in NH for 5 days (Jan

> '06), hasn't been the

> same since

> Daily BP usually 68/52

> Severe shoulder pain, hip pain, and shortness of

> breath.

> Now taking Trilisate Liquid for pain - seems to be

> working

> UTI since 4/7 not getting any better - took Bactrim

> Sleeping most of the day, breathing becoming an

> issue, asking for oxygen

> daily.

> Got a Living Trust years before he became too ill.

> Stevie has a Living Trust and a damn good lawyer!

> LOL