Introduction

August 8, 2003

I think you might be right patricia but I must be lucky I have two of them.

the only thing about the one c.c is you need to go up two units of insulin

at a time because each click is two units. friends lwayne

Re: Introduction

> >

> > > Hi ,

> > >

> > > I learned about carb counting a few years ago, but for whatever

> > > reason never really got started doing it. Now, though, I am wanting

> > > better control so am going to look into that again. Is it hard to do

> > > when you can't see labels on packages or food on your plate?

> > >

> > > I do not use an insulin pump. Unfortunately, they are not covered

> > > here in Canada, so if I wanted to use one I'd have to pay the full

> > > price plus the price of any supplies for it on my own. I can't afford

> > > that right now, with tuition as high as it is. <grin>

> > >

> > > Your goal for your a1c's blew me away!! At lowest, my a1c has been

> > > around 7.0 or so, and at the moment it's higher than that and leaves

> > > something to be desired! This is why I am wanting to start trying to

> > > get my a1c's lower now before it gets worse. Right now I'm using the

> > > insulin pens, I'm not sure which brand (I think Lilly), but I'm

> > > wondering if there's another way of drawing insulin, since the pens

> > > don't allow you to mix insulins, so when I take Humalog and N in the

> > > morning that means 2 shots instead of one.

> > >

> > > Jen and Guide Dog Hula

> > >

> >

August 8, 2003

Hi .

So do you just multiple dose with the same syringe?

Re: Introduction

> > >

> > > > Hi ,

> > > >

> > > > I learned about carb counting a few years ago, but for whatever

> > > > reason never really got started doing it. Now, though, I am wanting

> > > > better control so am going to look into that again. Is it hard to do

> > > > when you can't see labels on packages or food on your plate?

> > > >

> > > > I do not use an insulin pump. Unfortunately, they are not covered

> > > > here in Canada, so if I wanted to use one I'd have to pay the full

> > > > price plus the price of any supplies for it on my own. I can't

afford

> > > > that right now, with tuition as high as it is. <grin>

> > > >

> > > > Your goal for your a1c's blew me away!! At lowest, my a1c has been

> > > > around 7.0 or so, and at the moment it's higher than that and leaves

> > > > something to be desired! This is why I am wanting to start trying to

> > > > get my a1c's lower now before it gets worse. Right now I'm using the

> > > > insulin pens, I'm not sure which brand (I think Lilly), but I'm

> > > > wondering if there's another way of drawing insulin, since the pens

> > > > don't allow you to mix insulins, so when I take Humalog and N in the

> > > > morning that means 2 shots instead of one.

> > > >

> > > > Jen and Guide Dog Hula

> > > >

> > >

August 8, 2003

You're right, Wayne. I have both machine also, but when the 1/2 cc one came

out, I changed over to that as I was taking only about 12 units of insulin

at the time. Now they are not making the larger one, which is too bad as I

have run accross diabetic who have to take more than 150 units because of

insulin resistance.

Re: Re: Introduction

I think you might be right patricia but I must be lucky I have two of them.

the only thing about the one c.c is you need to go up two units of insulin

at a time because each click is two units. friends lwayne

Re: Introduction

> >

> > > Hi ,

> > >

> > > I learned about carb counting a few years ago, but for whatever

> > > reason never really got started doing it. Now, though, I am wanting

> > > better control so am going to look into that again. Is it hard to do

> > > when you can't see labels on packages or food on your plate?

> > >

> > > I do not use an insulin pump. Unfortunately, they are not covered

> > > here in Canada, so if I wanted to use one I'd have to pay the full

> > > price plus the price of any supplies for it on my own. I can't afford

> > > that right now, with tuition as high as it is. <grin>

> > >

> > > Your goal for your a1c's blew me away!! At lowest, my a1c has been

> > > around 7.0 or so, and at the moment it's higher than that and leaves

> > > something to be desired! This is why I am wanting to start trying to

> > > get my a1c's lower now before it gets worse. Right now I'm using the

> > > insulin pens, I'm not sure which brand (I think Lilly), but I'm

> > > wondering if there's another way of drawing insulin, since the pens

> > > don't allow you to mix insulins, so when I take Humalog and N in the

> > > morning that means 2 shots instead of one.

> > >

> > > Jen and Guide Dog Hula

> > >

> >

August 8, 2003

patricia, when I became insulin dependant my doctor insisted that I use the

one c.c surynge because he thought that one was more accurite I am not sure

of that but I have used that paticular surynge sence that. so I guess I hope

if I need to git a new countadose I better learn how to use the half c.c

surynge. we all have to change now and than. friends wayne

Re: Introduction

> > >

> > > > Hi ,

> > > >

> > > > I learned about carb counting a few years ago, but for whatever

> > > > reason never really got started doing it. Now, though, I am wanting

> > > > better control so am going to look into that again. Is it hard to do

> > > > when you can't see labels on packages or food on your plate?

> > > >

> > > > I do not use an insulin pump. Unfortunately, they are not covered

> > > > here in Canada, so if I wanted to use one I'd have to pay the full

> > > > price plus the price of any supplies for it on my own. I can't

afford

> > > > that right now, with tuition as high as it is. <grin>

> > > >

> > > > Your goal for your a1c's blew me away!! At lowest, my a1c has been

> > > > around 7.0 or so, and at the moment it's higher than that and leaves

> > > > something to be desired! This is why I am wanting to start trying to

> > > > get my a1c's lower now before it gets worse. Right now I'm using the

> > > > insulin pens, I'm not sure which brand (I think Lilly), but I'm

> > > > wondering if there's another way of drawing insulin, since the pens

> > > > don't allow you to mix insulins, so when I take Humalog and N in the

> > > > morning that means 2 shots instead of one.

> > > >

> > > > Jen and Guide Dog Hula

> > > >

> > >

August 8, 2003

I know what you mean. I have a friend who uses two types of insulin and she

needs to use the smaller one because the sdifferent types of insulin some

times is by odd numbers and the other one is maltiples of two. friends wayne

Re: Introduction

> > > >

> > > > > Hi ,

> > > > >

> > > > > I learned about carb counting a few years ago, but for whatever

> > > > > reason never really got started doing it. Now, though, I am

wanting

> > > > > better control so am going to look into that again. Is it hard to

do

> > > > > when you can't see labels on packages or food on your plate?

> > > > >

> > > > > I do not use an insulin pump. Unfortunately, they are not covered

> > > > > here in Canada, so if I wanted to use one I'd have to pay the full

> > > > > price plus the price of any supplies for it on my own. I can't

> afford

> > > > > that right now, with tuition as high as it is. <grin>

> > > > >

> > > > > Your goal for your a1c's blew me away!! At lowest, my a1c has been

> > > > > around 7.0 or so, and at the moment it's higher than that and

leaves

> > > > > something to be desired! This is why I am wanting to start trying

to

> > > > > get my a1c's lower now before it gets worse. Right now I'm using

the

> > > > > insulin pens, I'm not sure which brand (I think Lilly), but I'm

> > > > > wondering if there's another way of drawing insulin, since the

pens

> > > > > don't allow you to mix insulins, so when I take Humalog and N in

the

> > > > > morning that means 2 shots instead of one.

> > > > >

> > > > > Jen and Guide Dog Hula

> > > > >

> > > >

August 8, 2003

No,m I always told my clients to use 2 syringes to measure up their over 50

unit dose-or there are appliances available that will measure over 50

units-they just aren't as easy to use a count-a-dose.

Re: Re: Introduction

Hi .

So do you just multiple dose with the same syringe?

Re: Introduction

> > >

> > > > Hi ,

> > > >

> > > > I learned about carb counting a few years ago, but for whatever

> > > > reason never really got started doing it. Now, though, I am wanting

> > > > better control so am going to look into that again. Is it hard to do

> > > > when you can't see labels on packages or food on your plate?

> > > >

> > > > I do not use an insulin pump. Unfortunately, they are not covered

> > > > here in Canada, so if I wanted to use one I'd have to pay the full

> > > > price plus the price of any supplies for it on my own. I can't

afford

> > > > that right now, with tuition as high as it is. <grin>

> > > >

> > > > Your goal for your a1c's blew me away!! At lowest, my a1c has been

> > > > around 7.0 or so, and at the moment it's higher than that and leaves

> > > > something to be desired! This is why I am wanting to start trying to

> > > > get my a1c's lower now before it gets worse. Right now I'm using the

> > > > insulin pens, I'm not sure which brand (I think Lilly), but I'm

> > > > wondering if there's another way of drawing insulin, since the pens

> > > > don't allow you to mix insulins, so when I take Humalog and N in the

> > > > morning that means 2 shots instead of one.

> > > >

> > > > Jen and Guide Dog Hula

> > > >

> > >

August 8, 2003

Actually, Wayne

Both count-adoses are very accurate. I like the smaller one as you could

give your self say 3 units or 5 units, which you could not do with the

other one. One unit makes a big differance for some people!

Re: Re: Introduction

patricia, when I became insulin dependant my doctor insisted that I use the

one c.c surynge because he thought that one was more accurite I am not sure

of that but I have used that paticular surynge sence that. so I guess I hope

if I need to git a new countadose I better learn how to use the half c.c

surynge. we all have to change now and than. friends wayne

Re: Introduction

> > >

> > > > Hi ,

> > > >

> > > > I learned about carb counting a few years ago, but for whatever

> > > > reason never really got started doing it. Now, though, I am wanting

> > > > better control so am going to look into that again. Is it hard to do

> > > > when you can't see labels on packages or food on your plate?

> > > >

> > > > I do not use an insulin pump. Unfortunately, they are not covered

> > > > here in Canada, so if I wanted to use one I'd have to pay the full

> > > > price plus the price of any supplies for it on my own. I can't

afford

> > > > that right now, with tuition as high as it is. <grin>

> > > >

> > > > Your goal for your a1c's blew me away!! At lowest, my a1c has been

> > > > around 7.0 or so, and at the moment it's higher than that and leaves

> > > > something to be desired! This is why I am wanting to start trying to

> > > > get my a1c's lower now before it gets worse. Right now I'm using the

> > > > insulin pens, I'm not sure which brand (I think Lilly), but I'm

> > > > wondering if there's another way of drawing insulin, since the pens

> > > > don't allow you to mix insulins, so when I take Humalog and N in the

> > > > morning that means 2 shots instead of one.

> > > >

> > > > Jen and Guide Dog Hula

> > > >

> > >

August 8, 2003

I found this interesting by dr. bernstein he quotes about insulin dose

amounts... first the link to the chapter of his book you can read online

then the excerpt...

http://www.diabetes-normalsugars.com/readit/chapter7-2.shtml

dr. bernstein quotes...

When you inject insulin, not all of it reaches your bloodstream. Research

has shown that there's a level of uncertainty as to just how much absorption

of

insulin takes place. The more insulin you use, the greater the level of

uncertainty.

When you inject insulin, you're putting beneath your skin a substance that

isn't, according to your immune system's way of seeing things, supposed to

be

there. So a portion of it will be destroyed as a foreign substance before it

can reach the bloodstream. The amount that the body can destroy depends on

several factors. First is how big a dose you inject. The bigger the dose,

the more inflammation and irritation you cause, and the more of a " red flag "

you send up to your immune system. Other factors include how deep you

injected it, how fast you injected it, and where you injected it.

Your injections will naturally vary from one time to the next. Even the most

fastidious person will unconsciously alter minor things in the injection

process

from day to day. So the amount of insulin that gets into your bloodstream is

always going to have some variability. The bigger the dose, the bigger the

variation.

A number of years ago, researchers at the University of Minnesota

demonstrated that if you inject about 20 units of insulin into your arm, on

average, you'll

get a 39 percent variation in the amount that makes it into the bloodstream

from one day to the next. They found that abdominal injections had only a 29

percent average variation, and so recommended that we use only abdominal

injections. On paper that seems fine, but in practice the effects on blood

sugar

are intolerable.

Say you do inject 20 units of insulin at one time. Each unit lowers the

blood sugar of a typical 150-pound adult by 40 mg/dl. A 29 percent

variability will

create a 7-unit discrepancy in your 20-unit injection, which means a 280

mg/dl blood sugar uncertainty (40 mg/dl x 7 units). The result is totally

haphazard

blood sugars and complete unpredictability, just by virtue of the different

amounts of insulin absorption.

Research and my own experience demonstrate that the smaller your dose of

insulin, the less variability you get. For Type I diabetics who are not

obese,

we'd ideally like to see doses anywhere from H unit to 6 units or at the

most 7. Typically, you might take 3-5 units in a shot. At these lower doses,

the

uncertainty of absorption approaches zero.

*** check out this next comment he writes about using the same shot

which I found interesting ***

I have a very obese patient who requires 27 units of long-acting insulin at

bedtime. He's so insulin-resistant that there's no way to keep his blood

sugar

under control without this massive dose. In order to ameliorate the

unpredictability of large doses, he splits his bedtime insulin into four

small shots

given into four separate sites using the same disposable syringe. As a rule,

I recommend that a single insulin injection not exceed 7 units.

Re: Introduction

> > > >

> > > > > Hi ,

> > > > >

> > > > > I learned about carb counting a few years ago, but for whatever

> > > > > reason never really got started doing it. Now, though, I am

wanting

> > > > > better control so am going to look into that again. Is it hard to

do

> > > > > when you can't see labels on packages or food on your plate?

> > > > >

> > > > > I do not use an insulin pump. Unfortunately, they are not covered

> > > > > here in Canada, so if I wanted to use one I'd have to pay the full

> > > > > price plus the price of any supplies for it on my own. I can't

> afford

> > > > > that right now, with tuition as high as it is. <grin>

> > > > >

> > > > > Your goal for your a1c's blew me away!! At lowest, my a1c has been

> > > > > around 7.0 or so, and at the moment it's higher than that and

leaves

> > > > > something to be desired! This is why I am wanting to start trying

to

> > > > > get my a1c's lower now before it gets worse. Right now I'm using

the

> > > > > insulin pens, I'm not sure which brand (I think Lilly), but I'm

> > > > > wondering if there's another way of drawing insulin, since the

pens

> > > > > don't allow you to mix insulins, so when I take Humalog and N in

the

> > > > > morning that means 2 shots instead of one.

> > > > >

> > > > > Jen and Guide Dog Hula

> > > > >

> > > >

August 9, 2003

No you don't use the same syringue for multiple doses, although I do use

mine twice, you just get those plastic disposable ones and put them into

the count-a-dose. LaWanda At 10:54 AM 8/8/03 -0400, you wrote:

>Hi .

>

>So do you just multiple dose with the same syringe?

>

> Re: Introduction

> > > >

> > > > > Hi ,

> > > > >

> > > > > I learned about carb counting a few years ago, but for whatever

> > > > > reason never really got started doing it. Now, though, I am wanting

> > > > > better control so am going to look into that again. Is it hard to do

> > > > > when you can't see labels on packages or food on your plate?

> > > > >

> > > > > I do not use an insulin pump. Unfortunately, they are not covered

> > > > > here in Canada, so if I wanted to use one I'd have to pay the full

> > > > > price plus the price of any supplies for it on my own. I can't

>afford

> > > > > that right now, with tuition as high as it is. <grin>

> > > > >

> > > > > Your goal for your a1c's blew me away!! At lowest, my a1c has been

> > > > > around 7.0 or so, and at the moment it's higher than that and leaves

> > > > > something to be desired! This is why I am wanting to start trying to

> > > > > get my a1c's lower now before it gets worse. Right now I'm using the

> > > > > insulin pens, I'm not sure which brand (I think Lilly), but I'm

> > > > > wondering if there's another way of drawing insulin, since the pens

> > > > > don't allow you to mix insulins, so when I take Humalog and N in the

> > > > > morning that means 2 shots instead of one.

> > > > >

> > > > > Jen and Guide Dog Hula

> > > > >

> > > >

October 21, 2003

nah wrote:

>As part of my graduate work, I am creating a museum exhibit, ìDispelling

>myths about autism through art created by autistic people.î I hope to one

>day start an online museum of autistic culture, but I do not know if I

>will ever manage it.

Congratulations on finishing your BS in anthropology. I finally

finished my BA in English at the age of 44 (in 1994). Although

I would have liked to take anthropology classes, the two times

I tried it (decades ago), I got professors I couldn't stand.

If you think my bears are artistic enough, you are welcome to

add them to your museum (assuming a cyber or photo version would

suffice). You can find them on my web site:

http://staff.washington.edu/mjane

I live alone since my mother died in 1995 --- that is, I'm the

only human who lives here. and Harold are cats (their

photos are hidden among the bears on the bear pages of my web

site), most of the inhabitants are bears (about 300 of them),

and there are a few other species (beaver, otter, fox, dog,

etc.) represented in the non-flesh form. I work part-time at

a university and wish you good luck in finding a job in an

archaeology lab. For that, recommendations from professors

should work well.

Jane

April 19, 2006

Hello group!

Well, I'm finally getting around to introducing myself. I joined this

group in January, when my grandfather was diagnosed with LBD

(officially, that is!) My grandparents are my parents, in a sense (they

raised me~), so here on out, I will refer to him as my father.

Anyway, I've been reading all of your posts with a lot of heart ache,

but am so thankful for them. Some weeks I just keep the digests, and

then read them all at once, because it is too hard emotionally to soak

it all in. I'm having the hardest time coming to terms with the fact

that I moved out of the state in May of 2005, and almost from the day I

moved, he started showing more and more signs. We got the official

diagnosis on January 11 of this year, and since then, it has been

nothing but a RAPID loss of ground.

His symptoms started over 3 years ago, though up until the last 6

months, weren't so bad. Three years ago, he was officially diagnosed

with a genetic disease called hemochromatosis. This is an iron overload

disease, where his body doesn't get rid of the iron it produces

properly. He unfortunately got the double gene mutation, and over the

course of the next 52 weeks, had a total of 50 pints of blood removed

from his system. It was a tough year, but we were able to get his

ferratin levels to an acceptable number within that time.

Unfortunately, this traumatic year healthwise alse seemed to be the

catalyst for LBD. Bad for us, because the horrible part is

hemochromatisis has symptoms similar to early stages of LBD, so the

Drs. just kept telling us it was his blood disorder that was the

problem. Then, shortly after I moved, he started the restless legs at

night, the night terrors (or what we now believe were hallucinations at

night), and he has spent the last year hardly able to sleep at night.

Then, in August, he was diagnosed with Parkinsons......and finally, in

January with the true diagnoses of LBD.

I am heart broken, because if we had been able to get his diagnosis in

before we moved, we wouldn't have ever made this move out of state, and

I would be there helping. My mother was hospitalized on Monday with

pneumonia, because she is so worn out from caring for him that she is

not taking care of herself...and today when he was taken to the hospital

he didn't believe that was his wife...and he got very beligerent,

accusing everyone of stealing his wife. He finally broke down in tears,

terrified that she was gone forever, and when the crying spat was over,

he looked up and said, " Oh, there you are, I thought they weren't ever

going to bring me back to you... "

And all I can do is read this message board, call on the phone

(incessently, by the way ), fly in every couple of months for a

couple days at a time, and offer a shoulder for the support.....

I'm hoping to get a job (with this move, my husband is active duty AF,

and this move allowed us the opportunity for him NOT to be deployed

overseas, as he has been overseas almost 4 of the past 7 years...and we

were hoping to not only have him home for a change, but to have me stay

home and be with the kids more)....but now, I'm looking for a job,

because I can't be there so much, I want to be able to send my paychecks

home, so even if he won't let anyone else care for him (he only wants my

mother to care for him, and is beligerent otherwise...) then at least I

can hire someone to come in and cook their meals, and clean the house!

So that's my goal over the next few weeks. Get a job! Lol. You'd

think it wouldn't be hard, as for I do have a Master's degree...but I

think I'm being picky...'cause I at least want to enjoy my job...lol!

Anyway, I have passed on MANY of this groups suggestions regarding

medications and other care information, so I appreciate that, and while

I won't write much on the board, it is helpful to hear your tales,

because it gives me a better grasp in understanding what they are going

through on the home front.

In God's loving care,

Hessler, grandfather, diagnosed January 11, 2006, and slipping

away fast.

April 19, 2006

Welcome

Glad that you found us. Write when you find time and have a need, no

matter how small you might think it is. There are great people on

this site that can give advice, comfort and a shoulder to cry on.

Hope you find the right job.

, borough, ON

cg to MIL dx May 2005, now aged 69.

exelon, seroquel(for hallucinations), tylenol, senokot, citalopram

(celexa), fosamax. Give risperdal last year and turned her into a

zombie.

>

> Hello group!

>

> Well, I'm finally getting around to introducing myself. I joined

this

> group in January, when my grandfather was diagnosed with LBD

> (officially, that is!) My grandparents are my parents, in a sense

(they

> raised me~), so here on out, I will refer to him as my father.

>

> Anyway, I've been reading all of your posts with a lot of heart

ache,

> but am so thankful for them. Some weeks I just keep the digests,

and

> then read them all at once, because it is too hard emotionally to

soak

> it all in. I'm having the hardest time coming to terms with the

fact

> that I moved out of the state in May of 2005, and almost from the

day I

> moved, he started showing more and more signs. We got the official

> diagnosis on January 11 of this year, and since then, it has been

> nothing but a RAPID loss of ground.

>

> His symptoms started over 3 years ago, though up until the last 6

> months, weren't so bad. Three years ago, he was officially

diagnosed

> with a genetic disease called hemochromatosis. This is an iron

overload

> disease, where his body doesn't get rid of the iron it produces

> properly. He unfortunately got the double gene mutation, and over

the

> course of the next 52 weeks, had a total of 50 pints of blood

removed

> from his system. It was a tough year, but we were able to get his

> ferratin levels to an acceptable number within that time.

> Unfortunately, this traumatic year healthwise alse seemed to be the

> catalyst for LBD. Bad for us, because the horrible part is

> hemochromatisis has symptoms similar to early stages of LBD, so the

> Drs. just kept telling us it was his blood disorder that was the

> problem. Then, shortly after I moved, he started the restless legs

at

> night, the night terrors (or what we now believe were

hallucinations at

> night), and he has spent the last year hardly able to sleep at

night.

> Then, in August, he was diagnosed with Parkinsons......and finally,

in

> January with the true diagnoses of LBD.

>

> I am heart broken, because if we had been able to get his diagnosis

in

> before we moved, we wouldn't have ever made this move out of state,

and

> I would be there helping. My mother was hospitalized on Monday with

> pneumonia, because she is so worn out from caring for him that she

is

> not taking care of herself...and today when he was taken to the

hospital

> he didn't believe that was his wife...and he got very beligerent,

> accusing everyone of stealing his wife. He finally broke down in

tears,

> terrified that she was gone forever, and when the crying spat was

over,

> he looked up and said, " Oh, there you are, I thought they weren't

ever

> going to bring me back to you... "

>

> And all I can do is read this message board, call on the phone

> (incessently, by the way ), fly in every couple of months for a

> couple days at a time, and offer a shoulder for the support.....

>

> I'm hoping to get a job (with this move, my husband is active duty

AF,

> and this move allowed us the opportunity for him NOT to be deployed

> overseas, as he has been overseas almost 4 of the past 7

years...and we

> were hoping to not only have him home for a change, but to have me

stay

> home and be with the kids more)....but now, I'm looking for a job,

> because I can't be there so much, I want to be able to send my

paychecks

> home, so even if he won't let anyone else care for him (he only

wants my

> mother to care for him, and is beligerent otherwise...) then at

least I

> can hire someone to come in and cook their meals, and clean the

house!

> So that's my goal over the next few weeks. Get a job! Lol. You'd

> think it wouldn't be hard, as for I do have a Master's degree...but

I

> think I'm being picky...'cause I at least want to enjoy my

job...lol!

>

> Anyway, I have passed on MANY of this groups suggestions regarding

> medications and other care information, so I appreciate that, and

while

> I won't write much on the board, it is helpful to hear your tales,

> because it gives me a better grasp in understanding what they are

going

> through on the home front.

>

> In God's loving care,

> Hessler, grandfather, diagnosed January 11, 2006, and

slipping

> away fast.

>

April 19, 2006

michelle, i am so sorry you had to find us, but welcome to the family, i am glad

you are utilizing the information availbable and i feel for you about being so

far away from your parents. i admire you to want to work and send money home to

pay for help for your mom, that shows how they have raised a very caring and

loving daughter, that is wonderful. please feel free to ask any questions that

you need to , take care and hugs, sharon m

Date: 2006/04/19 Wed PM 06:10:31 EDT

To: <LBDcaregivers >

Subject: Introduction