Re: Digest Number 2953/ Chip

[Guest guest]

Hi Chip,

I can understand your predicament in getting to a

study program. It has not been proven that LBD is

genetic. I don't know about other dementias. They

still have to research this area. Until they gather

enough research to answer these questions, I can't

think of anymore suggestions other than

one of the possibilities for you is to contact the

Memory Study Program at the Mayo Clinic in

ville and see if they would provide for you to

stay in the area while they do the study. I have heard

where this is sometimes done or they provide a room

for you and your wife to stay in at the University

hospital during the study program.

Chip, I am in awe of how you handle all that you have

been through. I wish there were answeres for you. You

have been struck by this disease so early in life. You

are such a help to all of us. I always look forward to

what you have to say and what you are experiencing to

guide me into understanding my husband's situation

more clearly.

I wish the best to you Chip and Sharon, who is so

strong in this journey with you. Hugs, Jan

--- cglaughter1@... wrote:

> Hi Jan,

> Sharon and I are normally limited to our more

> immediate area. We have Mayo at

> ville, close to an hour away, but are told we

> would have to visit

> often for research purposes. Due to my illness and

> my wife's illness, we are

> limited in where and how active we can be. Other

> wise I would love to be involved

> with research projects although my brother with LBD

> who lives in Ohio would not

> like to be involved. His stages are much worse than

> mine, but he is also

> older than me and his diagnoses came later in life

> and my initial diagnoses was

> very early in life. About age 50, I think.

> Any suggestions?

> Chip Gerber

>

>

> [Non-text portions of this message have been

> removed]

>

>

Jan Colello, wife of Jim, dx w/Parkinsons 1993 and LBD 2003San Francisco Bay

Area, California

__________________________________________________

[Guest guest]

--- Janet Colello wrote:

> Hi Chip,

> I can understand your predicament in getting to a

> study program. It has not been proven that LBD is

> genetic. I don't know about other dementias. They

> still have to research this area. Until they gather

> enough research to answer these questions, I can't

> think of anymore suggestions other than

> one of the possibilities for you is to contact the

> Memory Study Program at the Mayo Clinic in

> ville and see if they would provide for you

> to

> stay in the area while they do the study. I have

> heard

> where this is sometimes done or they provide a room

> for you and your wife to stay in at the University

> hospital during the study program.

> Chip, I am in awe of how you handle all that you

> have

> been through. I wish there were answeres for you.

> You

> have been struck by this disease so early in life.

> You

> are such a help to all of us. I always look forward

> to

> what you have to say and what you are experiencing

> to

> guide me into understanding my husband's situation

> more clearly.

> I wish the best to you Chip and Sharon, who is so

> strong in this journey with you. Hugs, Jan

>

>

>

> --- cglaughter1@... wrote:

>

> > Hi Jan,

> > Sharon and I are normally limited to our more

> > immediate area. We have Mayo at

> > ville, close to an hour away, but are told

> we

> > would have to visit

> > often for research purposes. Due to my illness and

> > my wife's illness, we are

> > limited in where and how active we can be. Other

> > wise I would love to be involved

> > with research projects although my brother with

> LBD

> > who lives in Ohio would not

> > like to be involved. His stages are much worse

> than

> > mine, but he is also

> > older than me and his diagnoses came later in life

> > and my initial diagnoses was

> > very early in life. About age 50, I think.

> > Any suggestions?

> > Chip Gerber

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> Jan Colello, wife of Jim, dx w/Parkinsons 1993 and

> LBD 2003San Francisco Bay Area, California

>

> __________________________________________________

>