Guest guest Posted January 7, 2006 Report Posted January 7, 2006 Hi Simmel, I would love to see you in DC. How special that would be! I appreciate so much your invitation for me to stay at your house. I am overwhelmed. I am bringing a long time girl friend with me, because I do not want to travel alone and it would be fun to have her company. I also told her to bring along a friend, so she wouldn't be sitting alone while I was in the Conferences. I don't know if she will be or not as of yet. I don't know if you would want the extra guest/s too. Do you know anything about the Ramada Inn New Carrollton/DC area? It said it was in the suburbs of DC, but very accessable to all things there. It is $69.00 per day and I thought that was reasonable compared to most of the hotels I saw online in the area and the photos looked like they were very nice rooms. I am finding out more about the Conference myself. Not all of the details have come out yet, but it will be held on February 21 and 22 in DC and it is a World Conference on LBD vs.PDD(Parkinsons Disease Dementia) Reasearchers, Doctors and Caregivers from all over will attend and get together to put an end to the Controversy if the diseases are one and the same or two separate diseases. Many doctors think the LBD does not exist and that only PDD does. I ran into this with the Veteran's Research in my area. I wanted Jim to be analyzed by them and they insisted by all I told them that Jim had PDD and would not accept anything about LBD, so I didn't have them analyze Jim, since they seemed to be doing it over the phone. LOL(Laugh Out Loud) even though Jim's neurologist diagnosed him with LBD. I told the person I was talking to I would send them a brouchure on LBD, she was very uppity and said she didn't need it, but I sent one anyway. They seem to have the exact same symptoms, but from what I have read some doctors believe that one has a longer life duration and that the span time between the two meetings of Parkinsons and Dementia and which one came first the Dementia or the Parkinsons has a lot to do with which disease it is say those that believe that the two exist separately. The Veteran's left me hanging wondering if Jim really does have PDD. So I have a real interest in this Conference. We have to chip away at everything that gets in the way of LBD, so it can get out there for doctors and all medical fields to know that it does exist. Go to: http://www.lewybodydementia.org and click on Newsletter and then click on Fall 2005 The newsletter is called, " The Thistle " and it will tell you a little bit about the Conference. Simmel, my friend and I plan to stay some extra days to tour also. I hope we can meet and we can celebrate our birthdays exactly a month later together! The fun part is that it will be President's Day while we are there too. Does DC do anything special for that or not? I will let you know all the information that I find out. The next Newsletter will tell us more too. I really hope I get to meet you Simmel...............Hugs, Jan --- Simmel Haim wrote: > Hi Jan, > > I am in Silver Spring, land. Close to the Metro > by which means you could > get to DC. Would be happy to have you stay here if > you do not mind large dog > and bird. Please let me know when the meetings are > being held as well as > where. I could attend some if that is allowed. > > Simmel > > > > > >Reply-To: LBDcaregivers > >To: LBDcaregivers > >Subject: Re: Simmel > >Date: Sat, 7 Jan 2006 04:12:13 -0800 (PST) > > > >Hi Simmel, > >Jim's kids came all on different days during the > >Christmas Holiday and each one stayed about 20 > minutes > >after not seeing Jim for about a year (Two had been > >here on Father's Day also) and each one brought a > box > >of Sees Candy. They couldn't even be creative and > get > >him something useful or make him something special > >like a card that came from the heart. One of them > >followed me into the bedroom to get Jim up to > visit, > >he saw me struggling to help Jim up into a sitting > >position and instead of helping me, backs away and > >said he would be outside and to call him when Dad > is > >ready. I was so shook about it, I couldn't even > think > >fast enough to tell him to get his ass back here > and > >help with his dad. He was gone before I could > speak. > >Oh well, they are hopeless! I can't waste my time > on > >them. > >I hope you had wonderful holidays with your family. > My > >oldest daughter, Michele, had my parents, sister, > my > >other daughter and their dad over for Christmas > Eve. > >We celebrate Christmas Eve. She really did a great > >job. The dinner was delicious and her home was > >beautifully decorated. Christmas Day is also > Michele's > >birthday and we celebrated her birthday too. She > >turned 33. Jim stayed home with a caregiver, I gave > >him the choice and he did not want to go. He was > more > >comfortable at home and it is just as well, he > would > >not have lasted a minute and would want to go home > if > >I had brought him. He and I celebrated Christmas > Day > >together. I brought home the gifts for him from > >everyone and he opened theirs and mine to him and > I > >made him a special breakfast. > >Thank you also for telling me about Robitussin > Pearls. > >I have not seen those and will look for them. > Hugs, > >Jan > > > > > > > >--- Simmel Haim wrote: > > > > > It seems a shame that all you seem to hit is one > > > brick wall after the other. > > > Have the kids even been to see him? > > > Simmel > > > > > > > > > > > > > >Reply-To: LBDcaregivers > > > >To: LBDcaregivers > > > >Subject: Re: Stevie/Dena > > > >Date: Thu, 5 Jan 2006 09:39:30 -0800 (PST) > > > > > > > >Stevie and Dena, > > > >I live in Northern California. I heard where > others > > > >were able to get Hospice in to help even if > their > > > LO > > > >was not 6 months terminal. I called Hospice and > > > they > > > >said that I needed my husband's primary doctor > to > > > >request Hospice to come to my home and evaluate > my > > > >husband. So I called the doctor. At first the > > > doctor > > > >said that Jim did not qualify, because he is > not 6 > > > >months termainal and didn't see a reason to > call > > > them. > > > >So I put up a fit and screamed, that I needed > help, > > > so > > > >the doctor put in a request. Hospice came and > asked > > > me > > > >questions about Jim, I played up every angle > about > > > his > > > >demands and needs, but he did not qualify. He > was > > > in > > > >bed when they came, but she went back to see > him > > > and > > > >asked him to sit up, he could with her > assistance. > > > >Since he was not bedridden and 6 months > terminal, > > > she > > > >said he did not qualify. > > > >I am at my wits end and need help. We don't > qualify > > > >for anything. I applied for MediCal/Medicaid > again > > > on > > > >December 2, since my Elder Care Attorney > > > specializing > > > >in MediCal went over all of our assets and said > > > that > > > >Jim would qualify, since the assets were all > > > protected > > > >and in Trusts, but it came back denied. I have > been > > > so > > > >down. I called Alzheimer's assoc. for help too. > > > They > > > >also sent me a form online of our assets. I am > > > >beginning to think there is no relief for me. > > > >I can't get to the money being in Trusts to > keep > > > care > > > >of Jim and the house repairs. I don't know what > to > > > do. > > > >My attorney was on vacation until January 3, so > I > > > >called to make another appointment to see where > > > >everything went wrong. > > > >I hope Dena has better luck than I have had. > Jan > > > > > > > > > > > > > > > > > > > >--- Donna Mido wrote: > > > > > > > > > Stevie, > > > > > > > > > > Thanks for the referral. That will help her > get > > > > > started with a personal intro. Wow! We > need > > > more > > > > > info like that. > > > > > > > > > > Thanks again. > > > > > > > > > > Donna R > > > > > > > > > > Do you want to read more about Lewy Body? > You > > > can > > > > > also read the Thistle, the LBD Newsletter. > Just > > > > > click on: > > > > > > > > > > http://www.lewybodydementia.org > > > > > > > > > > > > > > > Re: Bed Sores > > > > > > > > > > Stevie > > > > > > > > > > I am in Southern California in Colton which > is > > > > > inbetween Riverside and San Bernardino. And > in > === message truncated === __________________________________________ Yahoo! DSL – Something to write home about. Just $16.99/mo. or less. dsl.yahoo.com Quote
Guest guest Posted March 4, 2006 Report Posted March 4, 2006 Hi Simmel, I can see how you keep busy in your area. It is overwhelming with all there is to see. Those buildings are not small. Each one takes a day in itself to see. The sonian Buildings are huge! I have never climbed so many marble steps to buildings in my life! I had such an aerobic workout there. I learned how to use the Metro and got to the Supreme Court and the Library of Congress on it. Everything is so spread out. I am sorry we didn't get to meet this time. Maybe there will be another time. If you are ever in the San Francisco Bay Area, please don't hesitate to let me know. I would love to meet you. You always have a place to stay if you'd like. I am a great tour guide of San Francisco and the surrounding areas. I love to drive and show people the surrounding areas, I even do a tour walk of San Francisco that shows all the sights if you like to walk. We also have The Napa Wine Country, Sausalito on the other side of the Golden Gate Bridge from San Francisco and so much more. There is a lot to see here too, but I think I can cover a lot more here, because everything is so huge in DC and mostly buildings to tour, which take all day. My friend and I stayed at the Red Roof Inn during the Symposium and on Wednesday evening we took the Metro and moved to Virginia and stayed with a friend of my friend. She took us all over to tour. We ate lunch and dinner twice in town. We ate dinner where Bill and Hillary Clinton ate for Valentine's Day. Their picture was in the front window saying they chose to eat there for Valentine's Day and we toured Arlington Cemetary and toured the Lincoln Memorial and I told her that you thought the Roosevelt Memorial was the most outstanding, so she brought us to see that too. The fountains were all turned off, but it was very nice to see. I liked how they did segments of each of his terms. We went through two of the sonian Buildings; Space and Travel and the American Historical Museum. I took pictures of the White House. I couldn't get a tour, I didn't call my local representative 4 months in advance to get a background check. I saw the help come out the front door with the President's dog to walk him around the grounds. I thought that was special. And of course, I saw the Halocaust Museum, which was very sombering, but well worth the tour. I think I saw many of the highlights, but it will take a few more trips to even see half of what's there. I couldn't believe the weather. It was beautiful. I only wore a coat once. I was fine in a sweater or light jacket. There was no wind factor on the days I was there, so even though the weather was 30 - 40 degrees, it seemed like fair weather. It was colder when I arrived home. The wind and fog were so chilling, I finally had to wear a coat. The temperature was in the low 50's, but very cold. I found it funny that there was no snow on the ground at all and you had a blizard only a few days before I arrived. There were only a few tell tale places where the snow had been shoveled off to the side that were still in a clump in a parking lot or off to the side of the road, but there were very few. We do have all the trees already in blossom here in CA. It started before I left. I noticed that the Cherry Blossoms are just beginning to plump up and bud in DC, but they are not open yet. Well, you have a very interesting place to live. Oh, I got to be on the Beltway, that I hear so much about too. Take Care Simmel.....Jan --- Simmel Haim wrote: > Jan, > > It is wonderful that all went well while you were in > DC. Now, hopefully, his > daughter will see him at home and perhaps even his > sons will come by to see > things as they REALLY are. Good to hear the meetings > were enjoyable as well. > Washington has so many things to see and do that one > can spend years and not > see everything. Last week was so filled with things > that I did not have even > an evening at home where usually I am always looking > for something to do. > > My best to you, > Simmel > > > > > >Reply-To: LBDcaregivers > >To: <LBDcaregivers > > >Subject: Re: Jan / Jim's stay at > Assisted Living > >Date: Wed, 1 Mar 2006 23:24:42 -0600 (Central > Standard Time) > > > >Hi Jan- > > > >Welcome back. Sounds like you had a great time > >in DC with sight seeing and meeting everyone. > > > >Also, this is comforting to read Jim did well at > >Assisted Living and WOW, his daughter visited > >him EVERY DAY! I did read that right?? She > >visited him every day??!! Whoa!! Good for Jim > >and for her. Other than those comments, I am > >somewhat speechless. > > > >Good to have you back here. > > > >Hugs to you from Iowa- > > > >Sandie > > > >-- Jim's stay at Assisted > Living > > > >Hi, > >While I was in DC Jim stayed at an Assisted Living > >Facility. I had not left Jim at this one before, > but > >had heard good things about it from articles that > >seniors staying there had mentioned about it and it > >was all positive. I called the facility every other > >day from DC to ask how Jim was. One of the things > he > >said to me on the day that I stayed and acclimated > him > >before my trip was that he WAS NOT GOING TO TAKE A > >BATH THERE. On the second day I called, they said > he > >had a bath (Jacuzzi Bath) and was in his exercise > >program. I laughed about that. > >That is one thing he is combative about. I can > hardly > >get him to bathe. I give him a lot of sponge baths. > >They did say he was combative, but they managed > him. > >Jim told me he loved their food. What??? He is so > >picky about food. I sent all kinds of snack foods > with > >him and apple juice. I was afraid he wouldn't eat, > so > >there was food for him to snack on and drinks, so > he > >would not dehydrate. But he loved their food. He > told > >me their soup was the best he ever had! WOW > >Also, another (((SHOCKER))) Jim's daughter, Sharyn, > >was there everyday to visit him. What???? She saw > a > >lot of his behaviors for the first time. Another > >miracle. It was by her place of work, so she would > >stop on the way home. She didn't have to go out of > her > >way to visit. She kept me informed of all the > things > >that happened. She even liked the facility and > thought > >the people were very friendly working there. > >When I arrived to pick Jim up, he seemed healthy > and > >looked well. I just have to get him back on > schedule > >at home, because he is still on their schedule of > >being up at 6:30 to get ready for 7AM breakfast. I > can > >not keep that pace up when he is up all night. He > >whispers, so the people in the hall won't hear him > and > >he closes the bathroom door, so they can't see in > from > >the hall. He is still on their routine. Sharyn said > >when she was visiting the first day he was looking > >for the stairs that we have at home and she had to > >take him all around the facility to show him there > >were no stairs. Just when he got used to not being > >home, he now has to get used to not being there. He > is > >asking me for the yellow glass that he drinks out > of. > >I have no yellow glass. He sure is a creature of > >habit. > >Just to let you know, everything went well....Jan > > > > > >__________________________________________________ > > Quote
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