Re:DAD

[Guest guest]

Hi all,

I think I've regained my strength. This may be a long one so please

bare with me.

I took Dad (lbd) to VA hospital about 10 days ago to regulate meds and

he had horrible swelling in his legs as well as red flushing after

starting so called new lbd meds. The one that seem to cause the prob

was Divalproex (sp)?

Anyway, they have gotten the swelling down but now he is a total

Zombie. He wasn't like this when I took him in.

Yesterday I was soooo upset I couldn't think. I guess I bitched enough

that I actually got a phone call today by the Dr on call (all though,

not my Dads Dr). She informed me that he was content and I would have

to talk to his primary Dr on Monday to know all info...

I then called his friend (Bitch) Barb who wouldn't answer her phone for

the last two days but was there with dad tonight and causing him grief.

I had to ask the staff to have her removed... Just don't know where to

go from here...!

Hugs,

Debbie

[Guest guest]

debbie do you have a power of atty for your dad, medical and general. if so

enforce it, do not let some non family member who will attemtp to convince

the world that she is the best one for your dad on his care and everything

etc. i had 2 of these, and yes even tho dad has been gone since sept 25, -5

i am still very distraught by these 2 women who did their damndest keeping

me out of his life but guess what when the proverbial shit hit the fan,

guess who were the first to run, and the last to stay, stand your ground

during lbd you will learn who if any are true friends, dad didnt have any

friends that cared enough to come see him unless i specifically invited

them for a birthday party and then it was too many people at one time and

dad didnt have a good time after the intial 10 minutes. well good luck and

take care of yourself, remember that in order to be a good caregiver you

must take care of yourself first and your loved one second. hugs sharon m

-- Re:DAD

Hi all,

I think I've regained my strength. This may be a long one so please

bare with me.

I took Dad (lbd) to VA hospital about 10 days ago to regulate meds and

he had horrible swelling in his legs as well as red flushing after

starting so called new lbd meds. The one that seem to cause the prob

was Divalproex (sp)?

Anyway, they have gotten the swelling down but now he is a total

Zombie. He wasn't like this when I took him in.

Yesterday I was soooo upset I couldn't think. I guess I bitched enough

that I actually got a phone call today by the Dr on call (all though,

not my Dads Dr). She informed me that he was content and I would have

to talk to his primary Dr on Monday to know all info...

I then called his friend (Bitch) Barb who wouldn't answer her phone for

the last two days but was there with dad tonight and causing him grief.

I had to ask the staff to have her removed... Just don't know where to

go from here...!

Hugs,

Debbie

Welcome to LBDcaregivers.

[Guest guest]

Thank you Sharon, you are so right. This woman is what they call a

financial predator and I can prove it... She actually called Adult

protective services on me and it back fired on her. She was the one

who got in trouble when I showed the SW the check book.

I do not have full POA but do have POA for a few things. Dad can no

longer do POA due to his mental state (LBD). I have to do

conservatorship, but my siblings (brother & sis) are behind me on

this... Of course the " B " is not. Thanks for the support...

Hugs and prayers,

Debbie

>

> debbie do you have a power of atty for your dad, medical and

general. if so

> enforce it, do not let some non family member who will attemtp to

convince

> the world that she is the best one for your dad on his care and

everything

> etc. i had 2 of these, and yes even tho dad has been gone since

sept 25, -5

> i am still very distraught by these 2 women who did their damndest

keeping

> me out of his life but guess what when the proverbial shit hit the

fan,

> guess who were the first to run, and the last to stay, stand your

ground

> during lbd you will learn who if any are true friends, dad didnt

have any

> friends that cared enough to come see him unless i specifically

invited

> them for a birthday party and then it was too many people at one

time and

> dad didnt have a good time after the intial 10 minutes. well good

luck and

> take care of yourself, remember that in order to be a good

caregiver you

> must take care of yourself first and your loved one second. hugs

sharon m

>

> -- Re:DAD

>

> Hi all,

> I think I've regained my strength. This may be a long one so please

> bare with me.

> I took Dad (lbd) to VA hospital about 10 days ago to regulate meds

and

> he had horrible swelling in his legs as well as red flushing after

> starting so called new lbd meds. The one that seem to cause the

prob

> was Divalproex (sp)?

> Anyway, they have gotten the swelling down but now he is a total

> Zombie. He wasn't like this when I took him in.

> Yesterday I was soooo upset I couldn't think. I guess I bitched

enough

> that I actually got a phone call today by the Dr on call (all

though,

> not my Dads Dr). She informed me that he was content and I would

have

> to talk to his primary Dr on Monday to know all info...

> I then called his friend (Bitch) Barb who wouldn't answer her

phone for

> the last two days but was there with dad tonight and causing him

grief.

> I had to ask the staff to have her removed... Just don't know

where to

> go from here...!

> Hugs,

> Debbie

>

>

>

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

oh boy can i relate to this, each of dads 2 were that way, one of them went

so far to pay herself $5000 out of the 10.000 dad put in a joint account as

dad owed it to her for taking care of him post back surgery. what a b. and

the second one swore that she would keep me in the circle of dads care and

let me know if things were going on that i needed to be aware of i lived in

nashville tenn at time of all this starting. and then her true colors came

out when dad got worse with his hallucinations and his vision went bad, i

came to visit and his frig was full of foods growing pencillin, i had a fit.

her way of taking care of dad was bringing him vodka and getting drunk with

him every weekend and bringing his favorite dinner and hten leave on monday

anad not see him agaoin until the following weekend oh yeah and the 3

cartoms of cigarettes she brought him too. dont forget that, such a big

help. i wont hold my breath on these people helping me, as soon as i came

and moved in with dad and showed dad would really lving people do to hlep

each other, they all vanished completely from his life. made me sick.

hugs sharon m pensacola, florida

daughter/caregiver of Leonard, symptomatic from the early 1990's. we moved

in with him 1/19/03. diagnosed 5/04 broke hip ball 7/5/05, asp pneumonia

and lung blood clot 7/14/05, asp pneumonia and uti 8/05, passed away 9/25/05

-- Re:DAD

>

> Hi all,

> I think I've regained my strength. This may be a long one so please

> bare with me.

> I took Dad (lbd) to VA hospital about 10 days ago to regulate meds

and

> he had horrible swelling in his legs as well as red flushing after

> starting so called new lbd meds. The one that seem to cause the

prob

> was Divalproex (sp)?

> Anyway, they have gotten the swelling down but now he is a total

> Zombie. He wasn't like this when I took him in.

> Yesterday I was soooo upset I couldn't think. I guess I bitched

enough

> that I actually got a phone call today by the Dr on call (all

though,

> not my Dads Dr). She informed me that he was content and I would

have

> to talk to his primary Dr on Monday to know all info...

> I then called his friend (Bitch) Barb who wouldn't answer her

phone for

> the last two days but was there with dad tonight and causing him

grief.

> I had to ask the staff to have her removed... Just don't know

where to

> go from here...!

> Hugs,

> Debbie

>

>

>

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Hi Debbie

I was just curious, what VA Hosp is your dad at? I

think you live in So.CA don't you.

You have a lot on your plate, girl!! I will continue

to pray for strength for you and good care and peace

from Barb. Hope the days to come are better.

Dena

--- or Debbie wrote:

> Hi all,

> I think I've regained my strength. This may be a

> long one so please

> bare with me.

> I took Dad (lbd) to VA hospital about 10 days ago to

> regulate meds and

> he had horrible swelling in his legs as well as red

> flushing after

> starting so called new lbd meds. The one that seem

> to cause the prob

> was Divalproex (sp)?

> Anyway, they have gotten the swelling down but now

> he is a total

> Zombie. He wasn't like this when I took him in.

> Yesterday I was soooo upset I couldn't think. I

> guess I bitched enough

> that I actually got a phone call today by the Dr on

> call (all though,

> not my Dads Dr). She informed me that he was content

> and I would have

> to talk to his primary Dr on Monday to know all

> info...

> I then called his friend (Bitch) Barb who wouldn't

> answer her phone for

> the last two days but was there with dad tonight and

> causing him grief.

> I had to ask the staff to have her removed... Just

> don't know where to

> go from here...!

> Hugs,

> Debbie

>

>

>

>

__________________________________________________

[Guest guest]

Hi Donna,

I'm sooo sorry for your loss!

I couldn't agree more, those words sent chills up my spine but I

didn't know what else to do. He not only acted like he hated me but

was hitting me... I mainly put him in because his legs were sooo

swollen from water retention. I was worried about his heart. Found

out it was one of his Diabetic meds and not the LBD meds... Leg

swelling much better, almost gone.

My sister is coming up tonight and we are meeting with the SW

tomorrow am. I want to bring Dad home but need help with him. Can't

provide him the care he needs and take care of his ranch and animals

without some help. Hopefully the SW will be able to help.

I'll update after meeting.

Hugs and prayers to all of you,

Debbie

>

> Debbie,

>

> I hate those words, " let's put them in the hospital and regulate

their drugs. "

>

> That is what happen to my Mom too. ( She died in '02.) She could

almost walk in and I had to literally carry her out. Those are

dangerous words. I ended up fighting with the nh I had to put her

in as she was in a wheel chair and I didn't have enough room at home

for the wheel chair, and they didn't want to change any meds.

>

> I finally got her taken off all the ones she was on, the nh was

unhappy, and put back on the ones I had her on before she went into

the hospital. And the famous words I heard from the MD was " you

treat all dementia the same. " I had already been here and I knew

you didn't.

>

> I cried all the way to the nh with her.

>

> Donna R

>

> Do you want to read more about Lewy Body? You can also read the

Thistle, the LBD Newsletter. Just click on:

>

> http://www.lewybodydementia.org

>

>

> Re:DAD

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