Lewy Body Dementia

[Guest guest]

Hi,

I have just joined the Lewy Body Dementia email support group. My name is Anne

Queenan and I have a sister, who has just turned 69, who is suffering from LBD

and is currently in a nursing home. I think she is in the fourth stage of the

disease, but I'm not sure what the fourth stage is. She is very confused,

doesn't really know her family, she knows faces but not names. She at times is

very agitated and hardly eats. She is incontinent now and is very afraid of

everyone and everything. She does hallucinate. What I am asking, is there

anyone knows what stage this is. The doctor who visits the home, by his own

admission, doesn't know much about LBD, I just need some help from a group who

understands my family's stress.

Thank you for anything you can share.

Anne Queenan