Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 > THANKS SO MUCH IN YOUR TIME IN READING THIS MESSAGE. KEEP US IN YOUR > PRAYERS AND ANY REPLIES WOULD BE VERY MUCH APPRECIATED.> KIM Kim, I'm so sorry for your dad's misery, and so angry at that Dr for being responsible for his misery , that is criminal , putting him back on a statin when she knew what was happening to him already ! I can't say that my neuropathy has improved , and that was April that I went off the statins . Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 > My father has been taking meds for about 4 years. For the first few > months it was Baycol which was banned so he had to stop taking it. > Then until 8/03 he was taking Zocor. He had muscle pain, bakers > cyst, and joint aches constantly and still does. To make a long > story short his CK (muscle enzyme) count has been extremely high for > a year now. Normal level is less than 200, but Dad's has been over > 700 and consistantly 500-600. The lowest reading in this year was > 300. The doctor took him off Zocor in 8/03 after the initial high > reading, then in 12/03 she put him on Zetia. It seems like he never > feels good anymore, always aches and pains of different joints and > muscles. Also, the bakers cyst I mentioned earlier, which is usually > not even a problem for most people, bothered him so bad that he had > to have that surgically removed. It was extremely calcified. > > He has had apparent swelling of his rib area, knees and other areas > throughout this time. > > The doctor initially said that Dad's elevated CK level may just be > because he always carried a high level and basically was born that > way. I did not buy that. I finally was able to get him to a > neurologist. In 3/04 he had a cervical discectomy with fusion due to > stenosis and calcified spurs. I think this was unrelated. > > I have noticed a definate difference in his pain levels and amounts > when the CK enzyme was down to 300, which to me is way too much above > the average. > > CURRENTLY WE HAVE AN APPOINTMENT SCHEDULED WITH A GENERAL SURGEON TO > DO A MUSCLE BIOPSY. > > I just wondered 2 main things: > 1. Are these problems permanant since he is no longer taking the > statin drug? > > 2. Does calcification(deposits of calcium on the bone) masses have > any coorelation with this drug? > > > THANKS SO MUCH IN YOUR TIME IN READING THIS MESSAGE. KEEP US IN YOUR > PRAYERS AND ANY REPLIES WOULD BE VERY MUCH APPRECIATED. > KIM Hi, For me it's been almost 2 yrs. Some things have improved, many have not. Be well Art Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Les April till now is not that long to recover from neuropathy. It's taken me 12 months to repair the dropped foot but my left foot still has discomfort after walking for a reasonable time, still feels somewhat numb, still get odd pricking sensations, but thank God the sciatica pain left after about 3 months. --- LesinAZ@... wrote: > In a message dated 9/14/2004 9:04:04 PM US Mountain > Standard Time, > artp3377@... writes: > > THANKS SO MUCH IN YOUR TIME IN READING THIS > MESSAGE. KEEP US IN > YOUR > > PRAYERS AND ANY REPLIES WOULD BE VERY MUCH > APPRECIATED. > > KIM > Kim, I'm so sorry for your dad's misery, and so > angry at that Dr for being > responsible for his misery , that is criminal , > putting him back on a statin > when she knew what was happening to him already ! I > can't say that my neuropathy > has improved , and that was April that I went off > the statins . Les > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Les April till now is not that long to recover fromneuropathy. It's taken me 12 months to repair thedropped foot but my left foot still has discomfortafter walking for a reasonable time, still feelssomewhat numb, still get odd pricking sensations, butthank God the sciatica pain left after about 3 months. Thank you so much, for that encouragement !! I had given up hope of ever recovering ! I also have sciatia among all the rest of the problems , but LOL I can't blame mine on the drugs, I had it before I ever went on them . I've just started on Benfotiamine , after researching it a lot , it is supposed to show good results in three weeks, anyone else on this ? Les . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 It is somewhat positive to know some of you have at least received some relief after many months off Lipitor. It has been 6 months since I discontinued Lipitor and I still have severe neuropathy, but the muscle spasms, cold sensations, sharp pains, and burning have disappeared. I look forward to the day I can be " normal " again. Quote Link to comment Share on other sites More sharing options...
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