Re: Anne//sharon

[Guest guest]

no anne, you had me right dont worry most of respond if we htink we can

be of help, hugs sharon

-- Re: Anne/

Hi ,

Sorry, I think I called you Sharon in my email. I had an email from a lady

called Sharon, so I am getting my names mixed up.

Anne

Re: Lewy Body Dementia

Hi Anne:

As many of us here will tell you, there are no definative stages with

LBD - it is not like Alzheimer's. There are hourly/daily/weekly ups

and downs. Frequently LBDer's are diagnosed when they have been

displaying Alzheimer's or Parkinson's symptoms for some time and then

someone comes to the conclusion that this patient is not following

the

usual path or stages.

Let us know a little bit more about your sister. What medications

has

she been on? What meds is she on now? Sometimes a minor change in

the

medications can cause or alliviate the hallucinations and agitation.

If you haven't already check out the website

www.lewybodydementia.org

There is lots of valuable information there.

Along with my sisters, I am caregiver to my mother aged 75 who is in

a

senior's facility in Toronto. I noted your Canadian e-mail address

-

where are you located?

Welcome to the group.

(CG to mother, Margaret diag Feb 2005)

--- hugh queenan wrote:

---------------------------------

Hi,

I have just joined the Lewy Body Dementia email support group. My

name

is Anne Queenan and I have a sister, who has just turned 69, who is

suffering from LBD and is currently in a nursing home. I think she

is

in the fourth stage of the disease, but I'm not sure what the fourth

stage is. She is very confused, doesn't really know her family, she

knows faces but not names. She at times is very agitated and hardly

eats. She is incontinent now and is very afraid of everyone and

everything. She does hallucinate. What I am asking, is there anyone

knows what stage this is. The doctor who visits the home, by his own

admission, doesn't know much about LBD, I just need some help from a

group who understands my family's stress.

Thank you for anything you can share.

Anne Queenan