Re: Neurontin??/To Sonya

[Guest guest]

Hi Sonya,

I've been on Neurontin for over 2 years. I guess I take mega doses compared

to you all, yikes! I take a whopping 3,200-4,000 a day, for nerve pain...in

my big toe of all crazy places. According to my pain management doctor, if I

took more then that it wouldn't do anything more to stop the pain; it would

lose effectiveness.

I haven't had any serious side effects at all. All I can say is that it

causes dry mouth and it's difficult to lose weight (a more rare side effect).

I'm having a hard time getting rid of all those cookies I ate over the

holidays. Like also mentioned, I had to ramp up on it. It caused some

brain

fog in the beginning. It gets a bad rap in some circles, but it is still

one of the most widely prescribed medications. In all fairness, I know people

who cannot take it, but they had serious side effects. You would have

noticed that when you took it.

If I were you, I'd ask why. What did your doctor give you instead? I hope

he didn't leave you in nerve pain. I have found that I've had to tell my

doctor what I want to take and won't.

It's your body, your life, and you need to be able to be functional and

productive. The doctors provide a service that we are paying for. There's

more

than one way to skin a cat... oops I mean, treat a condition;) Doctors are

not Gods, and they all have a slanted perspective depending on their area of

training. If one won't comply, please seek another. This is just my opinion.

Take care:-)

Hugs,

Jen

In a message dated 3/10/2006 6:59:15 AM Alaskan Standard Time,

mustangsally351@... writes:

Hello All,

Has any of you tried Neurontin for nerve pain? Have any of you that has

tried it had any good results? I was on it about 2 half weeks and I think

it was helping me a little, but my new doctor that I went to Friday took me

off of it and it seems like I am in a lot more pain this week now that I am

off of it.

He just said stop taking it if it hasn't taken all your pain away, but I

think it was helping a lot. I've heard a lot of bad side effects from it

maybe he thinks they are to high to take the chance, I don't really know.

Hugs,

Sonya

[Guest guest]

Hi Sonya

I've been on Neurontin for about two years too....I guess I take small dose

compared to everyone else...I only take 1,200 per day.... 300 x 4 per

day...but I also take vicodin 3 x per day too... My doctor started me on

Neurontin because she wanted me to get off Vicodin... I started out with

just one (N) per day, which did nothing she increased it still hoping I'd

get off Vicodin....now I take it 4 x per day...It began helping me at 600

per day and I took only 600 for about 6 mo. before it was increased to 900,

which also worked for about 6 mo....then 1,200 which has worked for me for

quite some time, in conjunction with Vicodin....I have had very little side

effects...just a little nausea, but a couple cookies takes that

away...LOL.....I agree, you should know why he took you off, especially if

it was working....That's just crazy if you find something that helps and

someone else makes the decision that you don't need it....Make him tell

you....you have a right to know...my doctor sure didn't force me off

Vicodin, although she hated them....I told her they work in conjunction for

immediate relief and the Neurontin helps for longer relief...

oh, oh, here I am back up on my soap box...I just get so angry when other's

abuse their control over our bodies....Big Hugs to you....Jeanne

Re: Neurontin??/To Sonya

Hi Sonya,

I've been on Neurontin for over 2 years. If I were you, I'd ask why.

Hugs,

Jen

Has any of you tried Neurontin for nerve pain? Hugs,

Sonya

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Rose

Owner/ Moderator Hugs N Pain

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Please Pray for them

[Guest guest]

Hi Sonya,

If you have nerve pain, neither Vicodin or Relafen will work very well.

I should say, for myself, Vicodin doesn't begin to ease my nerve pain. It

helps with my back pain only. I wouldn't want to take Vicodin all night or

during the day, because of the brain fog and tiredness it causes. My pain

management doctor also agrees with this...you know, after hearing from all her

patients. Relafen is a NSAID, an nonsteroidal anti-inflamatory...as is Advil

(ibuprofen). You were on a very low dose of Neurontin. In addition, Neurontin

wears off quickly. They both work for about 4 hours, then effectiveness

tapers off.

You can't be up in the night like that or you'll become exhausted and even

potentially depressed. I guess your options are to either tell the doctor what

you want to try, or try another doctor. Maybe I'm wrong and just a NSAID will

be enough for you. Please let me know. I'm sorry for what you are going

through. I remember those painful and sleepless nights. The job of a pain

management doctor is to get you to a point where you are functional.

You aren't there yet, not with this treatment plan. I'm here for ya:)

Jen

In a message dated 3/11/2006 7:00:01 AM Alaskan Standard Time,

mustangsally351@... writes:

Hello Jen,

My doctor didn't give me anything in it's replacement. I had only been on

the Neurontin a little over a two weeks and he just said is it helping and I

said I'm not sure, and he goes stop it now. But now I can tell it was

helping that I am off of it. I can tell my pain is worse and my Ibuprofen

is not working at all, I am back on Vicodin this week. I haven't been able

to sleep in three nights and when I was on the neurontin I only took one Ibu

before bed and slept all night. Now I am up every 3 to 4 hours taking

another Vicodin.

All he sent me home with was a prescription for Relafen twice a day and I

haven't filled it yet, haven't gotten to the pharmacy. It kind of makes me

nervous about only being able to take something twice a day.

Hugs,

Sonya (