Guest guest Posted March 21, 2004 Report Share Posted March 21, 2004 My son Aidan is 3 years old. He is not yet what " recovered " but without 10 months of biomedical interventions, I can only fear where he would be. He was diagnosed moderate ASD last May, but it was the last weekend in March 2003 when someone first used the " a " word to describe Aidan. I was overcome with grief, but I finally had name for his problem. I knew in my heart it was true. I knew when between 12-18months he lost all 10 of his words & the ability to point at objects. I tried at his 18 month well visit to get someone to listen to my fears. I was told " wait until he is two, regression is normal in boys. " By the time he was 2, everyone around us believed he was deaf or just " slow. " No one wanted to face the truth. I avoided autism websites because I did not want to skew the answers I gave on his evaluations, but deep down in the places I feared to visit, I knew. Once I had confirmation that my deepest fear could be a reality, I delved into autism with a vengeance. I kept thinking of the movie " Lorenzo's Oil " and how if those parents could find something to halt a hopeless disease, there must be something I could do for autism. I contacted the one person I knew with a child on the spectrum. She recommended Seroussi's book & Rimland's website. Fortunately, many other inspired parents and loved ones had already blazed a trail a found ways to treat autism! I took casein out immediately. Aidan fit the mold of an allergic child. It was worth a shot since I had already lost my son to a world of his own. He no longer made eye contact or responded to his name. Pointing to objects of interest had been gone for a year. He no longer took comfort in hugs and kisses. All that was left was his shell. Within the first week casein free, eye contact, response to name, and pointing to EVERYTHING returned. He no longer sat around stimulating his gag reflex & spaced out. It was like a fog had lifted!!! He did start eating 2-3 bowls of pasta & cereal at a time, so I knew we were onto something. I got him a food panel, OATS, & a urinary peptides test 2 weeks into being casein free. He had multiple food allergies (most severe was milk), 3 times the normal range of casomorphin & double the normal of glutomorphin. His OATS showed high yeast & clostridia. We jumped into biomedical interventions with both feet. Progress has been slow, but steady. In ten months, he has gone from no language to functionally labeling everything (even if his speech sounds are still immature, the attempt is there). His eye contact is awesome, and he is a very affectionate, attached child. His biggest challenges are language (not many 2 word phrases yet) and social (seems insecure & withdrawn around non-family members). He has had major issues with supplementation (about 6 months into it, after biting into a Yeast Aid while learning to take tablets, he began throwing anything forced/coerced up), but is finally cooperating without throwing up again. Aqua Flora is a godsend! We are also moving on to SCD. I am hoping by late Spring, SCD and a full supplement regimen will get him ready for chelation this summer. I would love to say my son is recovered more than anything in the world, but we are not there yet. It is bittersweet to read about other children's recoveries. I am thrilled, but also want my child to get there SOON. I have seen 's daughter Annie, and they are both such an inspiration to us! What an amazing pair of ladies!!! I think stories of recovery like theirs are invaluable. It is what keeps me going when pity party time comes around. I need to know recovery can be achieved. It is our ultimate goal, but if for some reason Aidan does not ultimately make it to " indistinguishable, " I am okay with that too. I sleep well at night because I know we are doing everything we can for him. He has come such a far way in ten months time due to biomedical interventions. All of his therapies have been beneficial, especially ABA and Therapeutic Listening, but none of them would have been successful if he did not have the clarity and ability to attend that biomedical alone gave him. He just feels better on the diet and supplements!!! I know this is not a true recovery story, but I wanted to share Aidan's story. He is an inspiration to me and a testament that even if full recovery has not yet happened, the gains from biomedical interventions are priceless! He is back with us, and we are so happy to have him. I hope time will unveil more great surprises from Aidan. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2004 Report Share Posted March 21, 2004 , your story IS an inspiration! Your son is in the middle of recovery and doing great! What a great mother you are! It is hard and it does take true commitment on the parents part. I just recently had a lady to contact me about her son. My mother in law had told her about my son because this lady was complaining to my mom in law about her boy having some odd problems. He is four, soon to be five. He has some classic symptoms of autism. The hand flapping, weak muscle tone and poor balance, along with the social issues, ect. Regardless of everything I have told her, she is still doing nothing to help her son. Our last conversation broke my heart. I asked her if she had joined any of the lists or bought Dr. M's book so she could learn about how to help her son. SHe said no. I asked her if she had tried the probiotics, enzymes, or GFCF diet. ANswer was no to all. I said " What are you waiting for? Time is very important! " She said she was just not a " digger " like I was, but that she would tell her husband what I had recommended. I just can't imagine a mother like that. My mind is always going 100 miles an hour dealing with just plain life and always still digging for more answers for Zack. It is my obsession, but I know that if I do nothing, then my son's life would become 'nothing' also and I could not live with that. Autism is Treatable My son Aidan is 3 years old. He is not yet what " recovered " but without 10 months of biomedical interventions, I can only fear where he would be. He was diagnosed moderate ASD last May, but it was the last weekend in March 2003 when someone first used the " a " word to describe Aidan. I was overcome with grief, but I finally had name for his problem. I knew in my heart it was true. I knew when between 12-18months he lost all 10 of his words & the ability to point at objects. I tried at his 18 month well visit to get someone to listen to my fears. I was told " wait until he is two, regression is normal in boys. " By the time he was 2, everyone around us believed he was deaf or just " slow. " No one wanted to face the truth. I avoided autism websites because I did not want to skew the answers I gave on his evaluations, but deep down in the places I feared to visit, I knew. Once I had confirmation that my deepest fear could be a reality, I delved into autism with a vengeance. I kept thinking of the movie " Lorenzo's Oil " and how if those parents could find something to halt a hopeless disease, there must be something I could do for autism. I contacted the one person I knew with a child on the spectrum. She recommended Seroussi's book & Rimland's website. Fortunately, many other inspired parents and loved ones had already blazed a trail a found ways to treat autism! I took casein out immediately. Aidan fit the mold of an allergic child. It was worth a shot since I had already lost my son to a world of his own. He no longer made eye contact or responded to his name. Pointing to objects of interest had been gone for a year. He no longer took comfort in hugs and kisses. All that was left was his shell. Within the first week casein free, eye contact, response to name, and pointing to EVERYTHING returned. He no longer sat around stimulating his gag reflex & spaced out. It was like a fog had lifted!!! He did start eating 2-3 bowls of pasta & cereal at a time, so I knew we were onto something. I got him a food panel, OATS, & a urinary peptides test 2 weeks into being casein free. He had multiple food allergies (most severe was milk), 3 times the normal range of casomorphin & double the normal of glutomorphin. His OATS showed high yeast & clostridia. We jumped into biomedical interventions with both feet. Progress has been slow, but steady. In ten months, he has gone from no language to functionally labeling everything (even if his speech sounds are still immature, the attempt is there). His eye contact is awesome, and he is a very affectionate, attached child. His biggest challenges are language (not many 2 word phrases yet) and social (seems insecure & withdrawn around non-family members). He has had major issues with supplementation (about 6 months into it, after biting into a Yeast Aid while learning to take tablets, he began throwing anything forced/coerced up), but is finally cooperating without throwing up again. Aqua Flora is a godsend! We are also moving on to SCD. I am hoping by late Spring, SCD and a full supplement regimen will get him ready for chelation this summer. I would love to say my son is recovered more than anything in the world, but we are not there yet. It is bittersweet to read about other children's recoveries. I am thrilled, but also want my child to get there SOON. I have seen 's daughter Annie, and they are both such an inspiration to us! What an amazing pair of ladies!!! I think stories of recovery like theirs are invaluable. It is what keeps me going when pity party time comes around. I need to know recovery can be achieved. It is our ultimate goal, but if for some reason Aidan does not ultimately make it to " indistinguishable, " I am okay with that too. I sleep well at night because I know we are doing everything we can for him. He has come such a far way in ten months time due to biomedical interventions. All of his therapies have been beneficial, especially ABA and Therapeutic Listening, but none of them would have been successful if he did not have the clarity and ability to attend that biomedical alone gave him. He just feels better on the diet and supplements!!! I know this is not a true recovery story, but I wanted to share Aidan's story. He is an inspiration to me and a testament that even if full recovery has not yet happened, the gains from biomedical interventions are priceless! He is back with us, and we are so happy to have him. I hope time will unveil more great surprises from Aidan. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 I know exactly what you mean. My 8 year old god daughter has so many Aspergers red flags it is not even funny. She is a textbook case! My friends calls up crying & pleading for help. I got the names & numbers of several doctors in the area who could provide a thorough exam/diagnosis, gave her the names of several books (CSB for one:-), signed her up and paid for her to go to a all day lecture on biomedical treatments given here in St. Louis by Dr. Shaw & the Metabolic Center docs, and gave her a list of all the asperger's talk coming up in our area. She bailed on the free lecture and has not done a blessed thing with the information I gave her. Last I heard, her pediatrician thought her kidneys might be infected & were causing all the behavioral issues. Her kidneys tested perfectly healthy. My friend now avoids me like the plague. She refuses to acknowledge the trumpeting pink elephant in the room! It is so frustrating!!! I made friends with another MO mom. I convinced her to but Alyson on the diet and see a DAN doctors. 6 months later, Alyson is still showing no real signs of progress. Her allergy numbers are sky high & now I am trying to convince mom to try SCD. Autism is such a tough phantom to get under control! Some children on Aidan's protocol would be fully recovered by now. Some, like Alyson, show no real gains. Aidan is in the middle, and I am grateful he is doing so well. I look back to last year and remember my child had completely slipped away from me. Now, he is so happy and loving again. I cannot be anything less than thrilled with the gains he has made. I look forward to his future for the first time since the regression began because I know he is going to surprise us all with the great things he can do. We take no accomplishment for granted. In the past month, we finally started hearing " NO " from this toddler. I was never so happy to enter the " no-no " phase:). This week he started calling me " mom MEEE " instead of " mama. " He's a bit melodramatic with it, but it warms my soul. I prayed & prayed to hear his voice, so no matter what comes out, I am happy to hear it (remind me of this when he is 16:-).) Take Care, Re: Autism is Treatable , your story IS an inspiration! Your son is in the middle of recovery and doing great! What a great mother you are! It is hard and it does take true commitment on the parents part. I just recently had a lady to contact me about her son. My mother in law had told her about my son because this lady was complaining to my mom in law about her boy having some odd problems. He is four, soon to be five. He has some classic symptoms of autism. The hand flapping, weak muscle tone and poor balance, along with the social issues, ect. Regardless of everything I have told her, she is still doing nothing to help her son. Our last conversation broke my heart. I asked her if she had joined any of the lists or bought Dr. M's book so she could learn about how to help her son. SHe said no. I asked her if she had tried the probiotics, enzymes, or GFCF diet. ANswer was no to all. I said " What are you waiting for? Time is very important! " She said she was just not a " digger " like I was, but that she would tell her husband what I had recommended. I just can't imagine a mother like that. My mind is always going 100 miles an hour dealing with just plain life and always still digging for more answers for Zack. It is my obsession, but I know that if I do nothing, then my son's life would become 'nothing' also and I could not live with that. Autism is Treatable My son Aidan is 3 years old. He is not yet what " recovered " but without 10 months of biomedical interventions, I can only fear where he would be. He was diagnosed moderate ASD last May, but it was the last weekend in March 2003 when someone first used the " a " word to describe Aidan. I was overcome with grief, but I finally had name for his problem. I knew in my heart it was true. I knew when between 12-18months he lost all 10 of his words & the ability to point at objects. I tried at his 18 month well visit to get someone to listen to my fears. I was told " wait until he is two, regression is normal in boys. " By the time he was 2, everyone around us believed he was deaf or just " slow. " No one wanted to face the truth. I avoided autism websites because I did not want to skew the answers I gave on his evaluations, but deep down in the places I feared to visit, I knew. Once I had confirmation that my deepest fear could be a reality, I delved into autism with a vengeance. I kept thinking of the movie " Lorenzo's Oil " and how if those parents could find something to halt a hopeless disease, there must be something I could do for autism. I contacted the one person I knew with a child on the spectrum. She recommended Seroussi's book & Rimland's website. Fortunately, many other inspired parents and loved ones had already blazed a trail a found ways to treat autism! I took casein out immediately. Aidan fit the mold of an allergic child. It was worth a shot since I had already lost my son to a world of his own. He no longer made eye contact or responded to his name. Pointing to objects of interest had been gone for a year. He no longer took comfort in hugs and kisses. All that was left was his shell. Within the first week casein free, eye contact, response to name, and pointing to EVERYTHING returned. He no longer sat around stimulating his gag reflex & spaced out. It was like a fog had lifted!!! He did start eating 2-3 bowls of pasta & cereal at a time, so I knew we were onto something. I got him a food panel, OATS, & a urinary peptides test 2 weeks into being casein free. He had multiple food allergies (most severe was milk), 3 times the normal range of casomorphin & double the normal of glutomorphin. His OATS showed high yeast & clostridia. We jumped into biomedical interventions with both feet. Progress has been slow, but steady. In ten months, he has gone from no language to functionally labeling everything (even if his speech sounds are still immature, the attempt is there). His eye contact is awesome, and he is a very affectionate, attached child. His biggest challenges are language (not many 2 word phrases yet) and social (seems insecure & withdrawn around non-family members). He has had major issues with supplementation (about 6 months into it, after biting into a Yeast Aid while learning to take tablets, he began throwing anything forced/coerced up), but is finally cooperating without throwing up again. Aqua Flora is a godsend! We are also moving on to SCD. I am hoping by late Spring, SCD and a full supplement regimen will get him ready for chelation this summer. I would love to say my son is recovered more than anything in the world, but we are not there yet. It is bittersweet to read about other children's recoveries. I am thrilled, but also want my child to get there SOON. I have seen 's daughter Annie, and they are both such an inspiration to us! What an amazing pair of ladies!!! I think stories of recovery like theirs are invaluable. It is what keeps me going when pity party time comes around. I need to know recovery can be achieved. It is our ultimate goal, but if for some reason Aidan does not ultimately make it to " indistinguishable, " I am okay with that too. I sleep well at night because I know we are doing everything we can for him. He has come such a far way in ten months time due to biomedical interventions. All of his therapies have been beneficial, especially ABA and Therapeutic Listening, but none of them would have been successful if he did not have the clarity and ability to attend that biomedical alone gave him. He just feels better on the diet and supplements!!! I know this is not a true recovery story, but I wanted to share Aidan's story. He is an inspiration to me and a testament that even if full recovery has not yet happened, the gains from biomedical interventions are priceless! He is back with us, and we are so happy to have him. I hope time will unveil more great surprises from Aidan. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Thank you for sharing your and Aidan's story with us! My son, , is also 3 (11/00). I too feel he is on the path of recovery and I know that this would not be the case without wonderrful people like Dr. McCandless and other supportive parents. never regressed as much as Aidan but I know we would have continued regressing if we had not begun biomedical interventions. Do you mind if I ask, what is " Therapeutic Listening " ? Thanks again for your story. Kate D. Mom to (3) and (1) > My son Aidan is 3 years old. He is not yet what " recovered " but without > 10 months of biomedical interventions, I can only fear where he would > be. He was diagnosed moderate ASD last May, but it was the last weekend > in March 2003 when someone first used the " a " word to describe Aidan. I > was overcome with grief, but I finally had name for his problem. I knew > in my heart it was true. I knew when between 12-18months he lost all 10 > of his words & the ability to point at objects. I tried at his 18 month > well visit to get someone to listen to my fears. I was told " wait until > he is two, regression is normal in boys. " By the time he was 2, > everyone around us believed he was deaf or just " slow. " No one wanted > to face the truth. I avoided autism websites because I did not want to > skew the answers I gave on his evaluations, but deep down in the places > I feared to visit, I knew. Once I had confirmation that my deepest fear > could be a reality, I delved into autism with a vengeance. I kept > thinking of the movie " Lorenzo's Oil " and how if those parents could > find something to halt a hopeless disease, there must be something I > could do for autism. I contacted the one person I knew with a child on > the spectrum. She recommended Seroussi's book & Rimland's website. > Fortunately, many other inspired parents and loved ones had already > blazed a trail a found ways to treat autism! I took casein out > immediately. Aidan fit the mold of an allergic child. It was worth a > shot since I had already lost my son to a world of his own. He no > longer made eye contact or responded to his name. Pointing to objects > of interest had been gone for a year. He no longer took comfort in hugs > and kisses. All that was left was his shell. Within the first week > casein free, eye contact, response to name, and pointing to EVERYTHING > returned. He no longer sat around stimulating his gag reflex & spaced > out. It was like a fog had lifted!!! He did start eating 2-3 bowls of > pasta & cereal at a time, so I knew we were onto something. I got him a > food panel, OATS, & a urinary peptides test 2 weeks into being casein > free. He had multiple food allergies (most severe was milk), 3 times > the normal range of casomorphin & double the normal of glutomorphin. > His OATS showed high yeast & clostridia. We jumped into biomedical > interventions with both feet. Progress has been slow, but steady. In > ten months, he has gone from no language to functionally labeling > everything (even if his speech sounds are still immature, the attempt is > there). His eye contact is awesome, and he is a very affectionate, > attached child. His biggest challenges are language (not many 2 word > phrases yet) and social (seems insecure & withdrawn around non- family > members). He has had major issues with supplementation (about 6 months > into it, after biting into a Yeast Aid while learning to take tablets, > he began throwing anything forced/coerced up), but is finally > cooperating without throwing up again. Aqua Flora is a godsend! We are > also moving on to SCD. I am hoping by late Spring, SCD and a full > supplement regimen will get him ready for chelation this summer. > > I would love to say my son is recovered more than anything in the world, > but we are not there yet. It is bittersweet to read about other > children's recoveries. I am thrilled, but also want my child to get > there SOON. I have seen 's daughter Annie, and they are both such > an inspiration to us! What an amazing pair of ladies!!! I think > stories of recovery like theirs are invaluable. It is what keeps me > going when pity party time comes around. I need to know recovery can be > achieved. It is our ultimate goal, but if for some reason Aidan does > not ultimately make it to " indistinguishable, " I am okay with that too. > I sleep well at night because I know we are doing everything we can for > him. He has come such a far way in ten months time due to biomedical > interventions. All of his therapies have been beneficial, especially ABA > and Therapeutic Listening, but none of them would have been successful > if he did not have the clarity and ability to attend that biomedical > alone gave him. He just feels better on the diet and supplements!!! > > I know this is not a true recovery story, but I wanted to share Aidan's > story. He is an inspiration to me and a testament that even if full > recovery has not yet happened, the gains from biomedical interventions > are priceless! He is back with us, and we are so happy to have him. I > hope time will unveil more great surprises from Aidan. > > > ~ > > > Quote Link to comment Share on other sites More sharing options...
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