Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 That is the 64 million dollar question. If we had good testing, the world would not be in this mess. It's the testing that has got us in a muck. I did the Florida lab on my son and I. We tested flat out negative. Yet, we have low CD 57's which is indicative of lyme, tons of lyme symptoms and tested positive for Babesia and Bartonella (two lyme coinfections) by Fry labs. Plus my son has the Bartonella rash. Thus, I am positive we have lyme. I never did the Igenex test. I still read that the lyme docs are going with the Igenex over Florida. Although Florida is most likely cheaper, and they bill insurance. That's why I went with Florida. I may or may not do Igenex testing. I haven't decided yet. ly, I don't need the test results at all, but it might be nice to have it when telling others I have lyme. The way Igenex works, is that you pay up front, and then bill your insurance yourself. I hear that some insurance companies will pay some of it. The specifics would change depending upon your insurance. I got the complete Fry panel that you have to pay $500.00 up front for. I then billed my insurance which paid around $150.00 of it. If you can afford it all, its worth every penny. When it came back positive for Babesia and Bartonella, it made me feel more grounded. But the best part is showing everyone the test results so that they don't think you are making stuff up. Fry Labs in Arizona only does lyme coinfections. I have read that there is a C6 peptide test that many labs do that is paid for by insurance that is coming up positive for kids. Thus, maybe you can try that as well. Keep in mind that lyme testing is just very difficult to get positive for. Most people I read about that come up positive told me one of three things. It was either Igenex; and/or they took antibiotics for 3 months, then went off for 6 weeks, then tested; or they tested 3 or 4 times by different labs/tests before getting the positive. Thus, its difficult. Heidi N "My son's IgeneX test was negative, but all the Borellia-specific bands were indeterminant. I figure if he has it, he must have gotten it from me, so even though I'm asymptomatic I want to test myself (mainly to help me determine whether he really has Lyme).My question is which lab to go with. I was thinking IgeneX, but I'm wondering about the Florida lab test. Is it really more accurate for someone like me who is not sick and presumably has a healthy immune system? What's the price difference b/t those two labs?TIA,"Create a Home Theater Like the Pros. Watch the video on AOL Home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Heidi, What's CD 57? Thanks for the info. > > > That is the 64 million dollar question. If we had good testing, the world > would not be in this mess. It's the testing that has got us in a muck. I did > the Florida lab on my son and I. We tested flat out negative. Yet, we have > low CD 57's which is indicative of lyme, tons of lyme symptoms and tested > positive for Babesia and Bartonella (two lyme coinfections) by Fry labs. Plus > my son has the Bartonella rash. Thus, I am positive we have lyme. I never > did the Igenex test. I still read that the lyme docs are going with the > Igenex over Florida. Although Florida is most likely cheaper, and they bill > insurance. That's why I went with Florida. I may or may not do Igenex testing. > I haven't decided yet. ly, I don't need the test results at all, but it > might be nice to have it when telling others I have lyme. > > The way Igenex works, is that you pay up front, and then bill your insurance > yourself. I hear that some insurance companies will pay some of it. The > specifics would change depending upon your insurance. I got the complete Fry > panel that you have to pay $500.00 up front for. I then billed my insurance > which paid around $150.00 of it. If you can afford it all, its worth every > penny. When it came back positive for Babesia and Bartonella, it made me feel > more grounded. But the best part is showing everyone the test results so > that they don't think you are making stuff up. Fry Labs in Arizona only does > lyme coinfections. I have read that there is a C6 peptide test that many labs > do that is paid for by insurance that is coming up positive for kids. Thus, > maybe you can try that as well. > > Keep in mind that lyme testing is just very difficult to get positive for. > Most people I read about that come up positive told me one of three things. > It was either Igenex; and/or they took antibiotics for 3 months, then went > off for 6 weeks, then tested; or they tested 3 or 4 times by different > labs/tests before getting the positive. Thus, its difficult. > > Heidi N > > " My son's IgeneX test was negative, but all the Borellia-specific bands > were indeterminant. I figure if he has it, he must have gotten it from > me, so even though I'm asymptomatic I want to test myself (mainly to > help me determine whether he really has Lyme). > > My question is which lab to go with. I was thinking IgeneX, but I'm > wondering about the Florida lab test. Is it really more accurate for > someone like me who is not sick and presumably has a healthy immune > system? > > What's the price difference b/t those two labs? > > TIA, > > " > > > > > > > **************Create a Home Theater Like the Pros. Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15? ncid=aolhom00030000000001) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 The CD 57 test is also called the stricker panel. Its a measurement of your natural killer white blood cells. These are the ones that kill pathogens that live inside of cells and these are the ones that lyme interacts with. I read that initially when infected with lyme, your CD 57 count will go very high, then go very low. LabCorp is the lab that is often talked about when you read reports on CD 57 testing. Other labs may have different ways. Supposedly, 200 is average, less than 100 is indicative of lyme, less than 60 is pretty sick. This is what I read a lot, but there is much disagreement of course. These numbers vary with different labs. Also note that one is suppose to get their blood drawn in the morning and sent out that day for the lab to get it the very next day. Supposedly, the test is only accurate if done right away. I read that often people have less than 20. There are herbs that actually boost CD 57 counts. And I also read that children with autism have low CD 57 counts. The thing that is interesting with CD 57 counts and lyme, is that I read that some docs who have done research with lyme, say that lyme will make the CD 57 counts go low, whereas other infections don't. I also heard that other infections can cause the CD 57 count to go low, but I have not been able to find which infections those are. A low CD 57 count should at least raise a doc's suspicion and lead him to do more testing. Also note I read that the theory goes that lyme damages these CD 57 white killer cells which leaves the body a gaping hole for other pathogens to come in and take over. Thus, that is why one with lyme has many infections. Their immune system is too dysfunctional to then react to pathogens. Make sense to me. Also, I read that when the immune system is further damaged with vaccines and mercury and other toxins, the same parts of the immune system are affected, which leaves a very dsysfunctional immune system and body. ly, that's the theory I am going with currently. Heidi N > > Heidi, > > What's CD 57? Thanks for the info. > > > > Quote Link to comment Share on other sites More sharing options...
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