Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 , Thank you for giving an update. I've been talking with Rita off-list trying to get more feedback about the Valkion. I've talked with my husband and it looks like we're going to order it, but it's going to be a STRETCH for us financially, so hearing positive reports is a real help. The bottom line for us is that my son's lab results indicate mito disorder and he has had chronic G.I. issues since birth. He has been getting worse these last two years, almost a failure to thrive, throwing up and losing weight. We have exhausted so many therapies that did little or actually made him worse. The appeal of LED and Valkion for us is that I can do it at home and it carries very low risk of side effects. Our closest DAN doctor is Dr. Bradstreet, whom we have seen and think highly of, but his approach of spironolactone, IV chelation and HBOT are not choices that we would make for our son knowing how fragile he is and the doctors that do practice the protocols that I want to use live too far away to visit regularly. Sharon New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 Hi ... I know I'm coming into this out of nowhere, but have you had your son tested for celiac's or tried GFCF diet? Jen slkbrooke@... wrote: > > , > > Thank you for giving an update. I've been talking with Rita off-list > trying to get more feedback about the Valkion. I've talked with my > husband and it looks like we're going to order it, but it's going to > be a STRETCH for us financially, so hearing positive reports is a real > help. The bottom line for us is that my son's lab results indicate > mito disorder and he has had chronic G.I. issues since birth. He has > been getting worse these last two years, almost a failure to thrive, > throwing up and losing weight. We have exhausted so many therapies > that did little or actually made him worse. The appeal of LED and > Valkion for us is that I can do it at home and it carries very low > risk of side effects. Our closest DAN doctor is Dr. Bradstreet, > whom we have seen and think highly of, but his approach of > spironolactone, IV chelation and HBOT are not choices that we would > make for our son knowing how fragile he is and the doctors that do > practice the protocols that I want to use live too far away to visit > regularly. > Sharon > > > > > ------------------------------------------------------------------------ > New *MapQuest Local* shows what's happening at your destination. > Dining, Movies, Events, News more. Try it out > <http://local.mapquest.com/?ncid=emlcntnew00000001>! > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.173 / Virus Database: 270.7.6/1711 - Release Date: 10/6/2008 5:37 PM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Just want to let everyone know in case there's anyone else interested in the Valkion that the $200 discount is still good. , I hope my son can tolerate it! Planning on only doing 1 tablespoon of water and 1 minute of oxygen every other day. Does this sound ok to start with? Thanks, SharonNew MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! Quote Link to comment Share on other sites More sharing options...
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