Pre-Scope Prep/Diet concerns - Please Help

[Guest guest]

Hello Listmates,

My son Henry, 8, ASD is scheduled for a colonoscopy/endoscopy on

Tuesday at Mass General with Dr. Buie. I am very excited about the

potential information that we will be getting. However, I am a little

nervous about the prep that we have to do. Henry has to have only

clear liquids for a whole day before. He has to drink a magnesium

citrate product from the pharmacy and take a senna laxative

(compounding pharmacy said these look ok). Besides the issue

of " bottomless pit boy " not having solid food for that long, and

having to explain it to him, I am more concerned because the list of

allowable foods contains very few things he can have, due to his

dietary restrictions. He has been GFCF or SCD for almost 4 years.

Here is the list with my comments:

Water - OK

Soda, Koolade, Sport Drinks - Umm, no for obvious reasons

Jello - no, gelatin not OK

Italian Ice - are there acceptable brands?

Bouillion or fat free broth - ditto, any GFCF brands?

apple or white grape juice - Henry does not consume grapes or apples

due to phenols

popsicles, slush - are there any acceptable ones?

pedialyte, ricelyte - these have sugar, coloring, etc., right?

I had been very comfortable with the idea of it all until I spoke to

one of the nurses yesterday and she told me that the two main things

that I had planned on giving him were not OK (pear juice and I wanted

to make homemade broth with lots of nutritious veggies, strained of

course).

Can anyone help me?

We are going to spend most of the day before at our pool - pray for

good weather! When he swims he doesn't care about anything else (food

included, I hope). If there are accidents from the clean out, I will

just deal with it. At least we will not be in public. We will leave

fairly early the next day to get to Boston.

I am still a little nervous about the anesthesia.

Thanks so much.

Mae Lynn

[Guest guest]

Did the nurse say why you can't give him that stuff?? Sounds like clear

liquids to me! I used to work in a hospital, and we gave broth and clear

juices for a liquid diet. (you said Jell-o was out)

Making chicken broth is easy-you basically just boil chicken until you have

broth then strain it. If you're allowed to add salt, it tastes a lot better.

Liz

>

> Reply-To: csb-autism-rx

> Date: Fri, 04 Jun 2004 14:21:17 -0000

> To: csb-autism-rx

> Subject: Pre-Scope Prep/Diet concerns - Please Help

>

> Hello Listmates,

>

> My son Henry, 8, ASD is scheduled for a colonoscopy/endoscopy on

> Tuesday at Mass General with Dr. Buie. I am very excited about the

> potential information that we will be getting. However, I am a little

> nervous about the prep that we have to do. Henry has to have only

> clear liquids for a whole day before. He has to drink a magnesium

> citrate product from the pharmacy and take a senna laxative

> (compounding pharmacy said these look ok). Besides the issue

> of " bottomless pit boy " not having solid food for that long, and

> having to explain it to him, I am more concerned because the list of

> allowable foods contains very few things he can have, due to his

> dietary restrictions. He has been GFCF or SCD for almost 4 years.

>

> Here is the list with my comments:

>

> Water - OK

> Soda, Koolade, Sport Drinks - Umm, no for obvious reasons

> Jello - no, gelatin not OK

> Italian Ice - are there acceptable brands?

> Bouillion or fat free broth - ditto, any GFCF brands?

> apple or white grape juice - Henry does not consume grapes or apples

> due to phenols

> popsicles, slush - are there any acceptable ones?

> pedialyte, ricelyte - these have sugar, coloring, etc., right?

>

> I had been very comfortable with the idea of it all until I spoke to

> one of the nurses yesterday and she told me that the two main things

> that I had planned on giving him were not OK (pear juice and I wanted

> to make homemade broth with lots of nutritious veggies, strained of

> course).

>

> Can anyone help me?

>

> We are going to spend most of the day before at our pool - pray for

> good weather! When he swims he doesn't care about anything else (food

> included, I hope). If there are accidents from the clean out, I will

> just deal with it. At least we will not be in public. We will leave

> fairly early the next day to get to Boston.

>

> I am still a little nervous about the anesthesia.

>

> Thanks so much.

>

> Mae Lynn

>

>

>

>

>

> Many frequently asked questions and answers can be found at

> <http://forums.autism-rxguidebook.com>

>

[Guest guest]

One note...be sure you give nothing red. (usually is noted in the

info. that G.I.'s give you with prep info.

Most parents have been surprised how well this part went, I hope it's

the same for you.

One tip, as long as you are full of liquids, you don't really get

hungry so, just keep the liquids comin' and the child busy.

The meds used to put you out for the scope are more of an amnesia

type. You are just out for a short while.

Good luck.

> Did the nurse say why you can't give him that stuff?? Sounds like

clear

> liquids to me! I used to work in a hospital, and we gave broth and

clear

> juices for a liquid diet. (you said Jell-o was out)

>

> Making chicken broth is easy-you basically just boil chicken until

you have

> broth then strain it. If you're allowed to add salt, it tastes a

lot better.

>

> Liz

>

> > From: " maelynnarl " <MaeLynnArl@a...>

> > Reply-To: csb-autism-rx

> > Date: Fri, 04 Jun 2004 14:21:17 -0000

> > To: csb-autism-rx

> > Subject: Pre-Scope Prep/Diet concerns - Please

Help

> >

> > Hello Listmates,

> >

> > My son Henry, 8, ASD is scheduled for a colonoscopy/endoscopy on

> > Tuesday at Mass General with Dr. Buie. I am very excited about the

> > potential information that we will be getting. However, I am a

little

> > nervous about the prep that we have to do. Henry has to have only

> > clear liquids for a whole day before. He has to drink a magnesium

> > citrate product from the pharmacy and take a senna laxative

> > (compounding pharmacy said these look ok). Besides the issue

> > of " bottomless pit boy " not having solid food for that long, and

> > having to explain it to him, I am more concerned because the list

of

> > allowable foods contains very few things he can have, due to his

> > dietary restrictions. He has been GFCF or SCD for almost 4 years.

> >

> > Here is the list with my comments:

> >

> > Water - OK

> > Soda, Koolade, Sport Drinks - Umm, no for obvious reasons

> > Jello - no, gelatin not OK

> > Italian Ice - are there acceptable brands?

> > Bouillion or fat free broth - ditto, any GFCF brands?

> > apple or white grape juice - Henry does not consume grapes or

apples

> > due to phenols

> > popsicles, slush - are there any acceptable ones?

> > pedialyte, ricelyte - these have sugar, coloring, etc., right?

> >

> > I had been very comfortable with the idea of it all until I spoke

to

> > one of the nurses yesterday and she told me that the two main

things

> > that I had planned on giving him were not OK (pear juice and I

wanted

> > to make homemade broth with lots of nutritious veggies, strained

of

> > course).

> >

> > Can anyone help me?

> >

> > We are going to spend most of the day before at our pool - pray

for

> > good weather! When he swims he doesn't care about anything else

(food

> > included, I hope). If there are accidents from the clean out, I

will

> > just deal with it. At least we will not be in public. We will

leave

> > fairly early the next day to get to Boston.

> >

> > I am still a little nervous about the anesthesia.

> >

> > Thanks so much.

> >

> > Mae Lynn

> >

> >

> >

> >

> >

> > Many frequently asked questions and answers can be found at

> > <http://forums.autism-rxguidebook.com>

> >