Guest guest Posted February 8, 2006 Report Posted February 8, 2006 , Seizures, warts and potato sensitivity sound familiar. Seizure meds for us were part of the problem. A trial of depakote actually seemed to cause seizures; 1-1.5 hours after dosing. Our daughter has been on Tegretol SR for several years. When we went gfcfsf in 2000, there was some conflict about whether the Tegretol had casein. Two pharmacists found a yes in their data base while the manufacturer said no. We decided to have it compounded and that seemed to be the final link to a pure diet. She still seizes if she gets gluten/casein. We've reduced her med dramatically with no increase in seizures. The seizures seem related to food and how much of an offending item she gets. She will plug a machine at school now and then! Our daughter does best staying close to Feingold and low oxalate eating pattern. B12 injections produced major aggression for her when we first tried them. Now, 2 years later, she tolerates them. Don't know why. Combination multivits have been hard to find. The choline, or anything bitartrate or aspartate contributes to neuro irritability for her. As we've been chelating we've been through a couple of years when she could not tolerate any B vits without getting very close to seizures. Only recently, have we been able to add them back in very low amounts. Your little one must be very uncomfortable with the duodenal bleeding. That would be enough to put most of us over the edge. Does anyone know if the hydrochloride form that Valtrex uses contributes to high acid in stomach/duodenum? > > my 5yo had an endoscopy last week. they found a large severe bleeding > duodenal ulcer, the lining of her stomach and small intestine is > sloughing off (why?) and looks like celiac.we found one foood did > contain gluten after all, and we thought we have been gfcfsf for 2 > years...damn. we get biopsy results back next week. this is not a > biomed friendly doctor. the doc had us stop everything 2 weeks prior > to the endoscopy, except seizure meds. she had done valtrex 250 tid > for about 21 days previously. we have stopped most supplements all > together now as she is new to carafate and prevacid and i am watching > for reactions. we have to stop houston neutraceuticals as they said it > may thin blood and worsen the ulcer. here are the questions. she has > to take carafate suspension 3x a day on empty stomach, 2hrs after or 1 > hr before meals. prevacid can be mixed with the carafate. these two > slow absorption of the seizure meds 2x aday, so i time them out. i am > giving mvi and b6/magnesium from kirkmans - chewables. givng mb12 > shots q 3 days. annie is extremely aggressive for the past few > weeks.we figured it was our valtrex bad phase and would pass. she has > a horrible rash on her butt that is not resolving. and a wart on her > left hand. she is now reacting to potatoes with red face. do you think > the rash,aggression is valtrex related and can we resume valtrex on > these meds? any other ideas? thanks in advance...teresa c > Quote
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