Re: valtrex and ulcers/mary

[Guest guest]

mary- thanks for the reply. i feel so alone with all this as we have

tried everything and not seen positive results.annie is nonverbal but

seemed to be in pain so i pretended to be from my pediatricians office

and scheduled the endoscopy then let him know i did it. he was very

cool about it all. i am so jealous of the parents of kids who respond

quickly to anything. we use lamictal and clonazepam for generalized

seizures. nothing else even slowed them down. i would love to get off

potatoes but i am down to so few foods she will eat at all. meal times

are such a battle. the houstons enzymes actually helped and now they

are not allowed. we too tried mb12 and the b vitamins with increased

aggression and hyperactivity and seizures over 1 year ago. we

restarted them recently but the folic acid seems to set her off so i

give alot of vitamins individually. any advice is greatly

appreciated.. thanks alot ..teresa c

> >

> > my 5yo had an endoscopy last week. they found a large severe

> bleeding

> > duodenal ulcer, the lining of her stomach and small intestine is

> > sloughing off (why?) and looks like celiac.we found one foood did

> > contain gluten after all, and we thought we have been gfcfsf for 2

> > years...damn. we get biopsy results back next week. this is not a

> > biomed friendly doctor. the doc had us stop everything 2 weeks

> prior

> > to the endoscopy, except seizure meds. she had done valtrex 250 tid

> > for about 21 days previously. we have stopped most supplements all

> > together now as she is new to carafate and prevacid and i am

> watching

> > for reactions. we have to stop houston neutraceuticals as they

> said it

> > may thin blood and worsen the ulcer. here are the questions. she

> has

> > to take carafate suspension 3x a day on empty stomach, 2hrs after

> or 1

> > hr before meals. prevacid can be mixed with the carafate. these two

> > slow absorption of the seizure meds 2x aday, so i time them out. i

> am

> > giving mvi and b6/magnesium from kirkmans - chewables. givng mb12

> > shots q 3 days. annie is extremely aggressive for the past few

> > weeks.we figured it was our valtrex bad phase and would pass. she

> has

> > a horrible rash on her butt that is not resolving. and a wart on

> her

> > left hand. she is now reacting to potatoes with red face. do you

> think

> > the rash,aggression is valtrex related and can we resume valtrex on

> > these meds? any other ideas? thanks in advance...teresa c

> >

>